Lung issues, can't rule out mets?

bevin

hi everyone, Thank you , thank you thank you. I truly appreciate each and everyone of you for  all your prayers and well wishes. So as the results came in . Good news is no other areas showed concern aside from the lung lesion.  

The SUV on the lung lesion was 3.5, and this puts it as positive, and on the lower end of the range. An SUV over 2.5 is something to watch and do repeat scans on and could be potentail mets.  So another petscan in 3 months. Good news from the radiologist standpoint is he did feel the lesion looked more like radiation scarring - fibrosis.  I will see what the pulmonolgist thinks and if he agrees with radiologist  next week when I have an appt to review CD images with him. Hopefully he will concur. Either way - still more watching. But at least with the lower SUV level they didnt prescribe any other tx aside from my AI.

I may get a second opinion based on what my pulmonologist says.By that appt he'll have my old chest CT scans as well as the CT from this month and now the Pet to compare all 3 together.

I feel better, but I am still nervous.And I don't feel confident yet. Wish I could feel that way. I don't want to look for trouble as they say, but I don't want to have anyone miss trouble either!

Hugs to you all, thanks for checking in. How is everyone  doing?  Here in my home town its been raining cats and dogs for 2 days now. I'm a bit tired of it and boy my joints dont like it. I feel as if I am 87 vs 47.

HUgs,

Bevin

LRM216

I too am waiting for the day you can really feel confident.  The best to you, Bevin, and know that we are here waiting to hear next week.  Hoping for good news and some peace of mind for you.  Let us know, please.

Linda

bevin

Thank you Linda - will give you the update when I meet w Pulmonary doc again.

Hope you're doing well.!

LRM216

Doing well (I think and hope)  - as long as I don't stop and think about anything, that is!

bevin

Aww Linda, I know. It's a bit hard isn't it. To not think about this.  I was diagnosed late summer and I can't believe I still think about this every day. I hope and pray you are well and stay well.I like your quote - I'm going to have to share that with my daughter. It seems like she cries at everything at this age.. yikes, I can't imagine what the teen years will be like.

J_Jackson

Just went through this from August to now. Wait every 6 weeks, rescan. Doc told me he was 98% sure it was mets, then changed it to "I'm not sure, we should wait another 6 weeks". What I've since learned is to try to triangulate in the meantime, though this can be nerve wracking b/c this means going to the doc so many times and getting little bits of info that still don't confirm. What I've been offered is brochoscopy as someone mentioned earlier. That's the tell tale way. There is also video assisted but the nodules need to be in the right place. Add the CEA and CA 15-3 just to see if they are high. None of it is specific except the biopsy, so maybe in the end it is best to wait the 6 weeks and give yourself a break from the worry. Hope, pray, and fill your days with only what supports you!

bevin

HI J-Jackson - thanks for your note. I hate to sound uninformed, but what do you mean by traingulate?

I wish I had asked percentages of either scenario, but to tell the truth, I didnt have questions prepared as I thought I just had inflamation and would be sent w a prescription and on my way. So to now consider scarrring/fibrosis or potential mets, I have great questions to ask with my next appointment given to me by some of the responders here.

My doctor did the ca 15-29(?) , not sure if I had that correct. He did not do the 15-3 or CEA as far as I know. What is the difference? Do you mind if I ask you if you had the Bronchoscopy and how was it?

Thanks for your feedback and for reaching out.  I wish you strength as you go through this next treatment phase.

Bevin

pennylane

Hi Bevin, Okay so things are moving along in the right direction here.  You got that pet scan and another ct scan under your belt....I think one more ct scan and you will have yourself in a real comfort zone.  Looking back, I know I drove the Pulmonary Dr crazy with requests for percentages...He was rough,  would not give me better than 50-50 in the beginning...guess he didnt have much faith in me...We both started liking each other a lot more after a few scans...and I stopped asking for my odds...finally realized the meaning of the phrase the docs love to throw around "it is what it is"...also and very importantly, took Lexapro religiously to get me through the 2-years...Really though, the PET is the big one, and if everyone is happy with the results, I hope you can hold on to that for a while....Watch and wait is such torture, but that's what they choose to do...especially I think, when they dont feel it is an emergency....Hold tight Bevin.....P

bevin

P- I like that philosophy mentioned in your last line- especially when they dont think its an emergency. Good to hold on to.

Yes another one in 3 mos. the fusion PET/CT and the first CT were within 3 weeks of each other so I dont think they expected any more answers, They just wanted to see if anything else lit up and the uptake of the lesion itself. Going to go with your last line and remember that during these next few months.

Bevin

lollypop59

hi bevin, i do live in the uk, i was diagnosed last sept with ibc i had all the treatment plus mx, but five months after my mx i had a local reccurance had another ct scan which show 1 lung nodule, it terrified the life out of me but my oncoligist did say do not worry everybody has nodules, i am due another scan 31st of this month. hope nothings changed, so try not to worry to much they do seem to be quiet common.

bevin

Thanks Lollypop,

Love your name. It made me smile!

I have more scans coming up in 2 months so they keep an eye on it still. I don't mind that at all. Thanks for letting me know about your situation. I hope that everything stays the same for you too. Please keep me posted and let me kow how the scans go on the 31st. Wishing you a healthy New Year!

mokenagirl

Hello--

Before I started chemo, I had an MRI on my liver. The was a tiny spot on my liver. Too small for a biopsy. No one seemed to concerened. I was told we will go ahead with the chemo regimine. Do another MRI after chemo, and see what happened. Well, the spot was gone, and everything changed. At one point I wasn't even going to have surgery. Well, 4 doctors had a pow wow,they couldn't decided, and are they are calling it inconclusive. I had my surgery, and radiation,and I get scanned every 4 months. Man, do hate I that. Doc said he will do this for 2 years.  So, I maybe Stage 4, and not know it. So far my scans show me NED!