Anyone with RIBP/LE?

Binney4

I'm excited about a new study that's recruiting volunteers, women or men with Radiation-Induced Brachial Plexopathy, with or without LE. It's by Dr. Elise Radina from Miami University in Ohio, and it's an interview opportunity to explore the experience of patients who are dealing with this. Dr. Radina did a similar survey about the experience of women with post-bc LE several years ago and really woke up a lot of people in the research and medical communities with her finding that most of us have "feelings of abandonment by the medical community." It helped spur interest in research about LE, and I'm really hoping this study will do the same for RIBP. So if you've been diagnosed with RIBP please consider volunteering. And if not, please pass this announcement on to your therapist so that s/he can get the information to any patients who are dealing with this. THANKS!
Binney

Here's the announcement:

Study Announcement: Recruitment of Volunteers
 
Exploring the Personal Impact of Breast Cancer-related 
Radiation Induced Brachial Plexopathy (RIBP)
 
Women and men who have been diagnosed with breast cancer-related radiation induced brachial plexopathy (RIBP), with or without lymphedema, are invited to participate in a study. The purpose of this study is to help better understand patients’ experiences with RIBP including symptom experience, lifestyle changes, health information use, interactions with health care providers, personal coping, and the impact of RIBP on family or relationship quality of life.
 
Volunteers will participate in an informal interview over the telephone, via Skype, or face-to-face with an interviewer. The interview may last up to 90 minutes. 
 
This study has been approved by the Miami University Institutional Review Board: 11-052.
 
If you would like to participate in this opportunity, please contact the Principal Investigator:
 
Elise Radina, PhD, CFLE
Associate Professor
Family Studies & Social Work
Miami University
 
radiname@muohio.edu
513-529-3639