TNBC mets to lungs

bettyelay

Any feedback will help. Dx'd in 9/09. 8 tx's with Cytoxan & Adramycin. Total mastectomy. 4 more rounds of chemo. 36 radiation tx's.  Finished this past May.  Now 3 spots in right lung ranging from 5 mm to 1 cm. 3 spots in left lung, 1=1cm; 1=1.3cm; 1=5mm.  Talk to chemo doc Monday about options.  Hate the thought of chemo again. Do I??? Says it's not the fastest growing he's ever seen, but "it's pretty damn fast".

LRM216

Bettye:

I am so sorry about the spots in lungs.  It is all of our worst fears- the spread of this cursed disease, especially when we are triple neg.  I will be thinking of you and hoping a plan is put into effect asap, but hate it that you have to go through more.

My suggestion is that you also post this on the Stage IV board as there are other triple negs over there with progression that can be of comfort and assistance to you as well.

I wish you nothing but the best, Bettye. God bless and keep the faith - no matter what.

Linda

mrsnjband

Hi Bettye,

So sorry to hear you have mets to the lung. This has to suck big time.  I understand how you feel about chemo, I wouldn't want to do it again.  I only recently figured out I was triple neg after another teacher at my school has triple neg too.  My doc did refer to it that way. 

So sending lots of love & support your way. NJ 

Fighter_34

So sorry to hear about your progression. I know it sucks but being treated again is doable.

echo-on-the-lake

Hi Bettye

So sorry to hear that this horrible beast has raised its ugly head again. But you can beat it down again! There are various chemo drugs that have proven to be beneficial.

What did you find out at Monday's oncologist's visit? Please let us know how you're doing.

celticsgirl143

Mine also just spread to my lungs 2 weeks ago I found out. It sucks and all my doctors keep telling me how it will always come back now and I won't ever get better, all I can say is it sucks and my husband and I had to cry for about a week, and every time I looked at my 2 year old and my 8 month old I couldn't stop crying, but then I kept reading and researching online and found that you know what it is possible to get better. I even found a woman who was triple negative who got better, she was taking the parp inhibitor trial drug which is what I have decided to take in combination with chemo. She has been better and off chemo for a year! Sure she is an exception, but who the hell says you or I won't be too. Don't give up. All I can say is there are options and you should do what's best for you, but hang in there.

celticsgirl143

Mine also just spread to my lungs 2 weeks ago I found out. It sucks and all my doctors keep telling me how it will always come back now and I won't ever get better, all I can say is it sucks and my husband and I had to cry for about a week, and every time I looked at my 2 year old and my 8 month old I couldn't stop crying, but then I kept reading and researching online and found that you know what it is possible to get better. I even found a woman who was triple negative who got better, she was taking the parp inhibitor trial drug which is what I have decided to take in combination with chemo. She has been better and off chemo for a year! Sure she is an exception, but who the hell says you or I won't be too. Don't give up. All I can say is there are options and you should do what's best for you, but hang in there.

KSkier

TN mets to lungs here too.  Been doing chemo every month since...August 2009.  It's working.  It's smaller doses than the AC/T regimen you have done, so it's possible that what you fear and dread regarding chemo won't be that bad.  One of my measured tumors what 2.5 times larger than yours is and is now immeasurable.  I still run, ski, work full time and have two young kids.  You can live your life this way, just make every day worth it!