Wondering if it will be DCIS or DC?
Was wondering if anyone had ADH with other pathology risk factors first and later got DCIS? Is DCIS a mass that is found? OR within the ducts when you have a duct removed? OR Can it be in more than 1 duct? Hello. Been awhile since I got on. I think I was taking it pretty hard to hear "I should be greatful and I am lucky" just because my pathology was not cancer. My doctor's say that it is a type of precancer becuz of all the dx that were mixed with the ADH. But, I am def. not here to argue becuz I know that each persons dx can and is different in some way. And I have been through 2 procedures under sedation and one major surg. and more to come. Last time I was on I had some ducts removed from both breast that were ADH along with other high risk factors. My main issue that I had was that I knew my body was going crazy because of all the other health issues I am having. I was also confused because I kept reading about core biopsy and lumpectomy. I know what they are but did not think it was the same as what I had. It seemed and (seems) like they are talking about one location or one lump, mass, etc. and in one breast and my diagnosis is in both. I finally got the nerve up to talk to my doctor about the double masectomy since I was schedule to have all my ducts removed (major ductal removal) and it was getting close. I got on the internet and did all this researching because I thought I was going to have to argue with her to get her to do it. Which was my main concern when I started to go onto these forums. So my breast discharge tested positive for blood in Oct. Had the bleeding and dilated ducts removed from right breast in Nov. and left breast Dec. When I talked to her a little less than 2 weeks ago my question for her first was that I did not understand why it was spreading so fast. (I had starting having actual red blood discharge now and pain in my breast starting under my armpit shoting all the way into my nipple and many more ducts dialted (actually raised on my breast) and my nipple was turning dark. She explained to me that I had the ADH in all my ducts and that each one or as a group was presenting it's self at the time of dilation, etc. She explained to me by doing the tot. duct.rem. that they would be able to look at the pathology (if cancer) they would be able to tell type and how agressive it was, etc. Which finally made sense to me. When I asked her about doing the preventive double masectomy she said she that she strongly suggested against it. She said that from everything that I have done (surg's) and the increase in symptoms I was having that she believed there was some sort of cancer there and it was a possiblity that it COULD be invasive. That if I were to proceed with the preventive double masectomy and they found the cancer that I would have to undergo another surgery to scrap the chest walls and remove any lymph nodes (if needed only). I did not know that the two were different. I thought that a mas. was the same no matter what, they removed your breast. Since I talked with her extensively and understood what was REALLY going on I felt very comfortable with going ahead and doing the total ductal removal in both breast which I had done on Friday. I go to my appt. tomorrow to get the results and see which double masectomy I will be getting. The surgeon which I had not spoke to about the double mas. yet asked my husband after surg. if we had talked about doing Dou. Mas. even if the pathology came out the same as before. Which of course my husband said yes. I really hadn't researched the actual details (recovery time, etc) that much because I do not feel that those things should be included in your decision. I think it should be about your health instead. Anyway, I really wanted to know if any of the women had what I did or just masses? I had a papilloma from my left breast surg that was also. I just couldn't understand what they were talking about. Anyway, now that I have researched it in detail it is pretty scary. Some say not to bad some say they have alot of complications. I just wanted to say that I really should have trusted my instint and talked to her and I would have been more informed however I did become more educated. Talking to your doctor and asking alot of questions is the way to go. She talked to me always but I really didn'[t ask for details. I just thought well if it needs to be done let's do it which I still feel.
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