Bonfire of the Goddesses

Joan811

(((((Veggy))))) throwing in SEs from the Xeloda before they can find you. 
Sending positive thoughts, prayers, and hugs.  Hope the big X kicks cancer's butt.

Jo, glad the gyn appointment shows good healing.  It seems like a long process...

Yes -- It has been quiet around here...

Linda-n3

(((((Veggy))))) am so sorry. I have followed the Xeloda thread off and on because that was what my previous MO was wanting to go to, and it does look a little scary, but then all of these meds look a little scary to start with. Many women are doing well with Xeloda with minimal SEs. Hope you are one of them!



Jo, glad you are recovering well.



Tossing in LE again. Today I start with a new LE therapist and hoping for some progress. Tossing in fatigue and crying all day as well. I don't know if the fatigue is due to meds, LE, depression, laziness, or just really tired from traveling and family. So am trying to find a little more quiet rest time for me and see what happens. I find the crying stops when I have energy and things to look forward to.

jo1955

(((VEGGY))) - Hoping for minimal or no SEs.  

Linda - Hope this therapist can help you and you can get some relief.  I don't have LE and can't begin to imagine what you are going through.  Hang tough sweetie.

I am coming up on my 3 year cancerversary and I have to tell all you ladies, it has been a very long hard journey.  Seems like the issues and medical appts are never going to end or at least get back to a manageable level.  This latest surgery - hysterectomy - threw me for a loop and knocked me right on my ass.  I am one that usually bounces back pretty quickly from treatment and surgery but not this time.  It have been a little over 4 weeks and I am still trying to be a good girl and do a lot of resting.  It is about ready to drive me absolutely crazy.  I am so used to be pretty active and having to sit around the house is for the birds.  Into the damn fire with all of it.  Sorry, had to vent a little today.  Just having some of those days.

sas-schatzi

To all, we all have discussed chemo/ anethesia brain. We now can call it anesthesia/chemo/drug brain. This article is in AARP magazine. It discusses the drug classifications that can cause memory loss. It describes why each drug class can cause memory loss. It gives specific names of drugs. It gives alternative drugs that can be substituted. I would suggest reviewing it with your prescribing doc if you have concerns regarding any of your meds. I also suggest you put it in your favorite places on your computer. Also, printing it off for future referrence if you have a printer. Please, pass this on to other BCO friends, friends etc. sassy

www.aarp.org/health/brain-heal...

Hi jo hope things get better soon, sorry this is dragging you down so much. Congratulations on your third cancerversary

Linda I think I messed up and missed your Florida visit. May not have been able to get up there when you were here, I was doctoring allot---yearlies and scoping. Sorry I missed the opportunity to see you--bummer sassy

Joan811

Linda, I hope you find that energy and things to look forward to soon.  It sux when the funk lasts and lasts....so glad you got to have the visit with your family...

Jo, you hardly ever complain, so this recovery must really be a bummer.  Hang in there...it has to get better.  3 years...that's a milestone.  I hope that soon you will feel better and can enjoy your retirement. 

Sending positive thoughts....thinking of you, Veggy.

Anonymous

I'm throwing this nausea and the xeloda into the fire. I can't keep anything down.

Linda-n3

(((((Veggy))))) Do you have anything for the nausea? I know that some days I have such a queasy stomach, but have only vomited once on the current meds (I think it is the afinitor that does that for me), so I deal with it, don't eat a lot on those days besides crackers. But vomiting is just not good for you - do let your doc know!!!! You cannot afford to become dehydrated! Much love to you this morning, holding you gently.

Anonymous

I have the meds for nausea. They do nothing. I went for fluids yesterday. Still can't eat or drink. Waiting for onc to call back.

jo1955

Joan - This recovery is the hardest I have had to deal with.  I try not to complain too much.  I am just tired of all the sitting around I have to do.  I am usually a very active person and this is really sucks.  Hoping to be released from the doctor when I see him on Sep 6th.  Right now that seems like a long way off but of course, I am trying to be good.

Veggy - Gentle (((HUGS))) - I sure hope your MO can give you something for the nausea that will work.  You need to be able to eat and drink.  Gotta keep your strength up.  

Anonymous

She toolk e off the xeloda chemo pill until I see the physician assisant on Tuesday. I'm keeping gingerale, orange juice and crackers down. Keeping a little usy also has helped.

jo1955

Veggy - Hope you get to feeling better over the weekend and are able to be able to eat more.  Hugs!

Anonymous

Thanks Jo. Im eating chickena and stars soup from a can. I had a thin slice of pizza too. I hope it agrees with me.

jo1955

Veggy - Me too!  I love chicken and stars soup.  I can do pizza anyday.  

voraciousreader

I'll warm the soup and count the stars!!! Hope everyone has a better day tomorrow!

Anonymous

I had some toast this morning so far. I had a nasty headache in the midddle of the night. I took some of the prescriptions and it finally lessoned the pain,

Hugs!

FireKracker

Ok veggy..lets start the fire once again

First we will throw all you s/e from this freekin disease,then the meds.all of them

A d

I will like to throw the cholesterol meds...every single one of them..

Anyone else have anything to throw in.

Ill start the fire right now

Ready,set,and go

Burn baby burn.

Anyone gonna join me?

I need help....

Linda-n3

Granny, helping you out here: tossing on all the SEs from all the meds and treatment for ALL of you around this fire! None of us have escaped some of the misery that IS breast cancer treatment (some days, I wonder if it would have been easier to just take the credit cards and run at the diagnosis, do my traveling and enjoy life for a few months, because once I started treatment 3 years ago, I have not had an opportunity to truly do anything normal - at least if I had taken a few months at the beginning, I would have had that opportunity, and yes, maybe I would be dead now, but would have enjoyed that time!). I know BC can be miserable at the terminal stages, but it really is the treatment that sucks the life out of us. Let's get some better treatments!!!! Watch those flames leap as I help fan the fire and toss on more fuel!



Hugs for Veggy and Jo!

Anonymous

Im throwing xeloda and its naststy side effects, the stupid dream I juat had, needles, ans canned chicken soup. There's nothing like the real chicken soup.

jo1955

Linda - I agree with you 100%.  The past 3 years have been a living hell for me as well as alot of other sistas.  The damn Tamox has been more trouble than it is worth.  There are some days I wish I had stopped the med all together and taken my chances.  I hope this latest surgery is the last thing I have to deal with.  I hate having to plan vacations around surgeries, doctor appts, etc.  

Granny - I will most certainly help you get this fire going again.  I try not to complain or whine much but I am in one of those moods.  Had my hysterectomy 6 weeks ago today and still dealing with some pains, having to sit and rest and not being able to do much.  I am gaining weight, I can feel it and I don't like it.

Okay, I am done with the rant.  

Hugs to Granny, Veggy, Linda and all the other pink sisters.

Joan811

Veggy, so sorry to hear what the devilish X has caused in your life this past week.  I hope there is something else that you can take that won't be so hard.  I think everyone agrees that nausea is one of the most unwelcome SEs after pain.  Into the fire with drugs that take away QOL.

Linda, you have been through so much as well...into the fire with your SEs and life interruptions. 

Granny am helping you with the toss. 

Jo, you too...i think Sept. 6 will seem to be here soon and I hope you graduate out of being a patient.   Into the fire with femaie parts that betray us after we've given all of ourselves to others for their pleasure, nourishment, pride, etc. etc.....so not fair to those ladies who are suffering.

jo1955

Joan811 - Thanks for the encouraging words. I also hope I can finally graduate from patient status.  It has been a very long 3 years of constant appts, treatment, etc.  It seems when I think I am finally at the point of no appts, etc. something else crops up.  I'm fed up with it.  I still try and maintain a positive attitude and keep moving forward every day.

Linda-n3

Have new cording issues, tossing them in. Could this be the reason the LE is not resolving? Will be discussing with therapist today.



Remember the movie "Groundhog Day"? I wake up every morning, say "Oh, crap, I'm still here" and then I am trying to make the best of each day. I continue typing despite the constant tingling & burning in my fingers and the cumbersome bandages on my other hand. I continue to make a little art, not as prolific as I would like, but even a little is better than nothing.



I miss my music terribly. Piano is pretty much out, stringed instruments pretty much out, got my French horn out yesterday and not sure the LE arm is going to be able to support it, and FOR SURE the chops are weak - will have to practice a LOT to get that musculature back in shape. I have dreams of joining a local community band or orchestra again - I haven't participated in one since I moved from Rochester, NY 5 years ago, and it is one of my worst losses. Today I met a woman who plays dulcimer, and apparently you can use a piece of wood or bamboo to hold down the strings rather than sensitive fingers, and you can use a pick, and it sits on your lap .... hmmmmm .... maybe it's time to learn a new instrument?



Tossing in queasy. Saw my PCP, she suggested a topical cream with phenergan in it, says no systemic effects. Anyone have any experience with this? I don't want to take the oral form because of SEs and interactions with other meds.



Hugs to all of you as we toss stuff in, bring those flames up! Burn, baby, burn!!!!

jo1955

Linda - So sorry you are having cording issues.  I can't even begin to imagine what that is like.  Sounds like you have suffered many losses in your artistic abilities.  Music can be soothing to the soul.  I love dulcimer music and wish I could read music and learn to play one.  The particular dulimer that you are describing is what I believe called a "mountain" dulicmer.  It is played sitting in your lap.  There are also ones that are set up like xylophones and you can either sit or stand to play it.  I sincerely hope you can get back into your music.

Yes, there are still many things to throw into the fire.  Let's see how big we can get those flames going.

FireKracker

I'm also gonna throw the nasty bug bite that scared me almost to death

That sucker got me on my hand .

Ill be indoors for the rest of the summer

One scare is enuf for me

Sooo into the fire goes the summer bug seven one of them and every kind.

Lets keep this fire going.

I just bought a pkg.of 2 new lighters...I'm all set.

Step back..it's comin and its gonna be strong

Hold your ears while the buggggggs scream.

jo1955

Granny,  Let's all watch the bugs burn!!!  How dare they do that to you.

FireKracker

Can u see them?

Can you hear them?

I'm waiting for the explosion

Anonymous

jo1955

                                       

FireKracker

Keep that fire going please

They are still out in full bloom

And I'm stuck inside...grrrrrrrr

Linda-n3

Oh, Veggy! You crack me up!!!