Dealing with people not believing you're sick

Anonymous

Isthisforreal - YOU go for it.....I rode all those kinds of things younger and huh, why give it up if you enjoy it....sledding, skateboarding, tennis, soccer, biking (pedal), windsurfing, you name it I did it and LOVED IT!!! Your welcome.....and I'm really looking forward to purchasing probably more of the shopping part for my new bike....OH BABY, stay off the roads, they won't be the same!!!

Lago - Yeh, your funny, It hurt, sure all of their comments, but you know what, you should see these women, AFRAID of their own shadows...c'mon, LIVE LIFE.....I can't help who I am and I can HELP being more of who I am and enjoying each day....thatnks for the huge LAUGH!

Anonymous

I must say one thing, when I rode, I rode dressed up, wig, banadana and all and LOST them all too (do you think I was going toooo fast???!!!) LOL The wind on my bald head was awesome, felt like silk running over the top and the sun warmed it and right thru me, OHHHH what a glorious feeling...NOW I let my hair grow and you can betcha thet that will be flowing in the breeze....

Of course, I wore my leathers to protect my body, but in style and very lady-like, I actually bought my jacket before I bought my bike, first a Virago (teal blue) then another Virago (navy blue) and named her INDIGO, which I love...all sorts of blues and this bike was smaller in cc's because I had lost some strength during chemo, I wasn't going to ride a bigger cc bike if I couldn't pick it up (If I had laid her down) and I was careful but oh yeh, I rode like I stole it...a lot...hehehe, I rode to Galena, IL many many times, look it up on the web, just beautiful and lots of back roads that are very FUN to say the least...I had that baby up to 101 mph going down one hill into the next and I swear I could feel that front end lift as to take flight....an experience I will never forget....so excited for you to WANT to take this and RUN with it and I'll be waiting with bated breath to follow allong in your journey!!! BE SAFE...but have FUN!!! Stephanie

Anonymous

Hey, listen to the song, "When the War is Over" by Eric Clapton and JJ Cale, this CD got me thru a whole hell of a lot.....upbeat and great stuff!!! I've used it for many picture shows I do over the computer....FUN Fun Fun!!! I always kept thinking that BC was my personal war of such and man oh man, just be HAPPY and positive....gets you through MUCH!!!!  MUSIC is therapy and uplifting and of course the reverse, sad and solumn, it heals and helps, it says much that sometimes we can't say ourselves....I used to listen to it when I rode (earphones under my helmet) and I was in my OWN WORLD, just lovin LIFE!!

lago

Here are a few of my fun up songs/videos:

Good when you are waiting for test results 
http://www.youtube.com/watch?v=in1TFrAoLUY&feature=related  

Fun dancing 
http://www.youtube.com/watch?v=dMH0bHeiRNg

Goofy Walkin:
http://www.youtube.com/watch?v=sMZwZiU0kKs

jan508

Very good thread!  Lots of nice 'comeback' lines here...I'll have to remember them

I was one of the 'lucky' ones and didn't need chemo or rads so, of course, everyone thinks I'm just doing fine.  Boy I'd like them to take Tamoxifen for 6 months...YIKES!!!!!

I don't even get the phone calls anymore from friends and family out of State asking 'how are you?'.  My SIL birthday was the other day and I called her and she was talking about going on vacation. I mentioned I would love to go on vacation but can't schedule anything because I have my exchange surgery coming up sometime in March.  Note: I mentioned this 3 times in the conversation and she did not ask me one time about it.  Go figure!!!!

I'm thoroughly convinced people don't 'have a clue'.....

But I thank God everyday for my sistas on this forum...you have kept me sane!!

God Bless

Jan

Anonymous

Jan508 - WELCOME....we here are a lively bunch and wow, humor is a pre-req, right lago??? She's funny and very intelligent....gets me gigglin everytime, thanks hun!

I have to watch what I post here, because Ya never know who's eyes will kinda stumble upon this site...but go figure, people have NO CLUE and don't want to have one either, that's less they have to deal with and most I've met have these "it will never happen to me" type attitudes....now here's a topic, just what if "one of these so called ones" sometime in the near future should say, be Dx'd, what would we tell them then? How would we treat them? Up for discussion, any feedback welcome.....I have a small story and may have posted it before, but it has happened to me, as much as I wanted to thrust the mighty sword into the belly of the beotch (my x mother in law) I could not treat another human that way, however, I was mentally thrashed by her at one of the most devastating times in my life and she chose to join her son (my X) beating me up and non the less in my own home where she was a guest....how I got thru that one I'll NEVER know....FAITH, COMPASSION that's what....for some do not know what they do or even realize it, but regardless she was responsible for her actions and words, I hope she is well but we have had no contact nor do i wish any....hmmmph..

Ma_rta

hai ladies,

i just join this disscusion board, my surgery will be on next week tuesday

i did my biopsy, ultrasound and mamogram

biopsy diagnostics 'they don't know excatly wht it is' so they've to send to other doctor, then last tuesday my doctor told me to remove it then check if cancer spread or not

my doctor general surgery doctor

i need more info. ladies

 marta

sling99

I was also one of those people who did not look sick during chemo. I was 44, and had a BMX and wore a wig when my hair fell out. After chemo was done I went to the local pharmacy to fill the prescription for tamoxifen. The pharmacist looked at me and said "Normally you don't start tamoxifen until you've completed treatment like surgery and chemo."  (Excuse me you idiot) I already had surgery and chemo. What...do I have to look like my skin is falling off before you believe I've had chemo?

hymil

Sling that's brilliant. Must be your confident smile - confidence is said to be very attractive (You WILL look me in the eye, not the tits!) so I go out and blag it when I can (and pray my fake hasn't worked it's was across my chest again!) Maybe you are also the beautiful lady in the catalogues who makes me think, Why is SHE modelling a mastectomy bra, she has cleavage?! And actually your pharmacist is wrong, some surgeons now are using neo-adjuvant (chemo or) tamoxifen to make large lumps smaller, easier to remove and get good margins on. Tamox was the only treatment I had for four months before being considered "ready" for surgery. Maybe next time you go for a fill, ask him for something to boilwash this, and wop your wig onto the counter?

Jan, No, people don't have a clue. In the cafe today, a guy near us had a false leg - and shorts!!, and nobody batted an eyelid. We are so polite. His shoes and socks matched, they chose to ignore the five inches of plain metal pole between that and the shorts. Or maybe they were all inordinately unobservant.