I say yes, you say no, OR People are Strange

BarbaraA

Welcome back thenewme. I am heartened to see some of the regular sock puppets are no longer on the member list.

3monstmama

I received a response to my PM from the moderators.  They say the arrangement of the forums continues to be reviewed and they appreciate input from members.  Which is all well and good but they told me---when I tried to play by their rules and start a new thread in the new now gone Buddhist forum--that everything was going back to the way it was.

And it hasn't.  The Muslim women have lost their forum.  Now I'm not a Muslim woman and I know that in the time that I have been on these boards, there haven't seemed to have been many Muslim women but I'm sorry, THATS NOT THE POINT.  Are these boards meant to be welcoming to all who suffer from breast cancer or just certain people? 

Its well and good to talk about the merits of simplification BUT why is that forum gone and not the lesbian forum or the forum for African American women or the forum for Singles with breast cancer or the forum for women with high risk?  Each of those groups got their own space because each of them have particular issues relative to their medical treatment and mental health and they needed a safe place to discuss issues relevant to them that are not relevant to people not in their situation. There are a ton of forums here that have zero relevance to me.  But that doesn't mean that they shouldn't exist.

First they came for the Socialists and I did not speak out

Because I was not a Socialist.

then they came for the Trade Unionists and I did not speak out

Because I was not a Trade Unionist.

Then they came for the Jews and I did not speak out

Because I was not a Jew.

then they came for me---and there was no one left to speak for me.

Anonymous

YEAH, thenewme

Enjoyful - LOL...wrong thread   Did I ever tell you about the time I "lost" my car keys  -they were in the freezer on top of the ice cube trays.....posting on the "wrong" thread - not a problem!

suzieq60

thenewme!!!!! Yippeeeee!!!!!!!!!!!!!!!!!!!!!!!!!

I think Judith (mod) is a sweetie She was very tolerant of my many pm's last night (our time)

JUSTICE!!!!!

Sue

RetiredLibby

((((thenewme))))) Welcome home!

lassie11

HL - if wine in your fridge spoiled, you clearly are not drinking enough!

RetiredLibby

You are absolutely correct, Lassie! I keep forgetting ... But I am going to develop a regular routine of a nightly glass!



3M, I added to your thread. I agree with you and Cindy wholeheartedly!



L

jancie

So much to catch up on.  For now - details regarding the procedure and then when my head is in order - I will talk about the new forums (we have way too many to begin with), etc.

Arrived at 5:30 am.  Took me back to the room and proceeded to attempt a needle for an IV.  I had told the young one that I was hard to stick - veins roll, collapse, destroyed by chemo yada yada yada.  She didn't listen to me.  Shen sent in a 2nd lady.  Told her not to put the needle in my hand as I have a lot of nerves there and I can't take the pain.  I was talking to a brick wall.

After screaming and crying and sobbing from the pain she finally decided it was best to remove the needle that she kept pushing in there HARD! and let the anesthesiologist do it.

On the way to surgery I got stopped by a nurse who had valium in her hands and said that she wanted to give me two of them would I mind?  Hell no I wouldn't mind one bit!

Got wheeled into surgery, saw the staff, the table full of instruments, etc. and that is the last I remember.  I have no idea when the anesthesiologist actually put a line in my arm.

I have no cysts, no tumors but other than that - I have no idea.  My husband tried to tell me but I was out of it.  I was told to not drive or make decisions for 24 hours - don't remember that at all as I drove 2 blocks to visit my coffee buddy this morning.

So until my dh gets home I don't know what was said by the urologist, how long the procedure took, how long it took me to wake up, etc.  I do know that I felt like I had a UTI and kept getting out of the bed to go to the bathroom with my dh following me with an IV but I couldn't pee - just felt like I needed to.  After the 10th trip I think he got a little bit frustrated.  I don't even remember the ride home.  I called some friends stoned out of my  mind but I warned them ahead of time.

I am going back to bed to take a nap - I downed a lorazepam about 30 minutes ago.  I will be back later.

Riley - hugs to you on the loss of your precious kitty.  I know it hurts like hell and I never have the right words in situations like this but know that I am thinking of you and grieving with you.

AnnNYC

((((((Jancie)))))), good to hear from you -- it's really something how all these meds can do a number on one's memory, I know -- hope you can sleep well and get the full report from your DH soon.

(((((((Riley)))))) -- I'm so sorry about Imp -- seems I missed a lot of posts last night -- so touching about Lucy trying to cheer you up.

(((((((thenewme)))))))) -- yay!!! -- so glad you're back!!!  Sent you a PM last night -- wonder if you got it, or if it went in to a hole that briefly appeared in the time-space continuum?

bluedahlia

(((((hillck))))) I have no comforting words except once you finish the herceptin it will probably get better.  I still have my days and I'm going on my 5th year.

bluedahlia

Jancie, when I was waking up I was so stoned that when the nurse asked me what year it was I said 1990 + 20. 

Bren-2007

Cindy .. I can't imagine going through everything you have gone through in the last 14 months .. and you still have a couple months of Herceptin left.  My heart just goes out to you.

hugs,

Bren

bluedahlia

Welcome back thenewme!  It's sick what's going on at that review site.  4 or 5 with multiple accounts doing there what they were doing here.  Even went so far as copying 3M's post here.  Sick!

Hillck, you are not whiney.  We all have a right to feel the way we do on some days.  It's allowed.

apple

it has to be a pain..

Anonymous

CINDY, you are absolutely NOT allowed to call it "whiney" - damn, what you've been thru in such a short time - and don't forget what a SHOCK it still is to realize we HAD bc.  I think the Herceptin is a tough one, emotionally, well, they all are, but I've had friends who said life BEGAN when they finished it.  Really.  And I expect as you're E+, they've taken that out of your system too.  I wonder if the "inventors" of these pills, ever thought of what life for a woman would be like with NO estrogen?

And, then I think of Sonya, and I wish, PRAY, hope there will soon be something SHE can take to make her feel awful too  She knows what I mean ( this is not "bullying") I know how hard it is for some of my 3N friends in my support group, to hear women whinging about the AI's - and while I hate them, I also LOVE them, am so grateful there is something for us to take.  I relaly think there's going to be something soon for 3N - keep looking for that everytime I get one of those "news" updates from Dana Farber.

But, Cindy, I know what you mean about that word "perpetual" - I was SO happy to finish year 2 and go to every 6 months.  And with Herceptin, they actually DO something when you go.  They just poke me & talk to me.

Jancie - WTF is it?????  Hoping it is still something eas to "fix."  Panless too...

3Monsmom - I LOVE yoor post.  So true. 

suzieq60

Blue - sick is the exact word for it.

Anonymous

I AM FURIOUS - that someone would take 3Ms post - and take it so out of context - and try to make it seem that she posted it on the review site.  Why can't BCO find out from Perla Ni, OWNER of the review site, who the posters are - at least the identifiying information needed to find out so they can be stopped from posting here. 

It continues to NOT FEEL SAFE to write here, at BCO, knowing screen names and words will be copied and taken OUT OF CONTEXT and used against us and BCO.  What are the owners of BCO doing letting this get so, so, so , so out of hand???

suzieq60

CS - I haven't seen that yet - will look when I get home. I noticed some more mention of Melissa's full name and quals. I don't care if they copy my username or even mention it, but I get really really annoyed when they are publishing someone's full name - I know, I've said this before

LUNCHTIME!!!!

scuttlers

I am not sure there are enough drugs or alcohol that would help me even begin to understand the last 16 hours here - and with chemo brain, I feel like a watermelon head. (I know, doesn't make sense - that is the point.)



But I am truly dancing on air to see CS and TNM are resurrected. (OOP's, does this belong in the new religion area?)

rosemary-b

(((Happy Libby)))

[[[thenewme]]]

(((Jancie)))

I think I caused the mods stress when I was very upset abot tnm and C-S being gone and reinstaeted c-s's posts when I pointed out they will gone. (I hope I am not taking credit that is not mine.)

I think drinks should be on the house for the moderators after what must have been a very stressful day..

Cindy. It is hard to feel like a perpetual patient. That's what we're here for. Go ahead whine and complain all you want. I know I've done my share. We love you girl and we get it.

Anonymous

scuttlers - ROTFLMAO - just thinking of putting this thread in the "religion" section - tee, hee...can you IMAGINE what some folks who have left BCO ( but still, darnitall, sneak back to post) would say.

Almost wish it could happen just to think about their reaction...tee, heeeeee....LOL, LOL , LOL

1Athena1

So much to say, and I don't know about the order.

First, the good news: ((((thenewme)))) so, so glad that you are back and that there is justice in the world. I think this day ended slightly better than it started at BCO. Glad to have everyone here.

((((jancie)))) - It looks good for you. Procedure's over, and I am sure your husband would have told you any bad news, so good for you, and I hope we didn't make too much of a ruckus in your bag. I tried to jump into your IV line but I decided against in case the anaesthesiologist was afraid of lions.

Oh, hillck....your post catches me at such a time. It's so awful to be on the roller coaster of illness. What is more frustrating is the feeling that one does everything and still one's body/mind/brain betrays one. I have been so close to throwing the towel. It IS exhausting. You are so right. And sometimes one wonders: for what? Speaking of cancer, I was thinking today with bitterness of the Tamoxifen. My thought went like this: "Who cares if you can assure me of a longer future when you ruined my present." And all because I think the Tamoxifen has permanently changed my brain. I just have an enormous hug for you and a ocean-full of empathy. My comment probably is not very uplifting, so I'm sorry. Maybe tomorrow I will have better words. Until then, keep posting and ranting - that is what we are here for!

Barbara: I hope you are at a good hotel. It makes hectic business trips tolerable.

And HL: You were extremely composed to not shoot the bastards. No one gets in the way of THE PLAN.

 

1Athena1

Yees, rosemary - drinks on the house. And they had better be stiff. I mean, reallly stiff.

rosemary-b

Oh my. I just went to the review site. Just oh my.What can I say the mind is totally boggled. Before it was a joke. Now it is... words fail me...

Anonymous

NIte all, this is REALLLLLY late for me   Hope all have sweet dreams, a good day on the other side of the world, and we find not tooooo much has changed by tomorrow.  Oh, World Peace would be nice

rosemary-b

All we are saying is give peace a chance....

otter

Wow.  otter here.

I've been reading and shaking my head and reading some more. This is just way too confusing for my muddled brain. 

I'm soooo glad to see friends reinstated.  That thing about losing all your posts -- your entire BCO history -- if your username is deleted?  It has such a spooky effect on friends left behind.  It's as if the person was never here.  Years of contributions simply vanish, and discussions the person was involved with can lose all their context.  "Banning" sounds like a way around that problem, but it's an awfully clumsy solution.

I haven't found my way to the religions (spiritual?) section/forum/whatever.  I've just been sitting here hoping someone didn't decide "atheism" was a religion, too, which would mean the atheists' thread would be in there with the ... whomever else is in there.

Bartender?  I think what I need will require two scoops of vanilla ice cream, an ounce of rum, and an ounce of Kaluha.  Blend until smooth, and pour into a cold glass.  That would make me happy.

otter

duckyb1

Otter..............................tell the Bartender to send a couple of those my way ..............Kaluha and I have a special love.............its each other.................yum, that sounds heavenly..................

1Athena1

Otter - I was about to give you a shout out - where have you been?

suzieq60

Rosemary - I don't think the mods were stressed by us pming them - I apologised for being annoying and they said they weren't annoyed at all. I think they like that someone has friends who will go in to bat for her.