Halaven - Day 1

denny10

Hi Sadiesservant, it's sad we have had to stop, I had hopes of getting a year out of halaven.

I am sorry you are having pain ,it really drags you down . I had radiation on a spine met that was compressing a nerve and giving me pain in my shoulder blade. Luckily it resolved, because I was taking opiods for a while ,they were the only thing that suppressed the pain. I hope you you get some relief soon.

denny10

I have seen my Oncologist and after looking at my last biopsy he has decided that Trodlevy is the next treatment for me!

Good wishes to anyone still getting halaven.

nopink2019

I had 1st Halaven infusion 4 days ago. I found this thread and read everything posted 2022. MO said positive reaction was 60%, but I'm not getting any warm, fuzzies on its success. So many seem to go off after 3 months with progression. Maybe the nickname for this one should be "Hail Mary"? Also hair loss seems prevalent, not 50/50 chance. But I'd take bald (for 3rd time) to have stable tumors.Any succss stories to share?

nopink2019

So, bald it is. I also find that I have no appetite. Continue losing weight which drains my energy too. Don't know if lack of interest & motivation is caused by lack of energy or mental fatigue.

50sgirl

Nopink, I noticed that you had posted to this thread and remembered how few people were on Halaven when I was. It can be disappointing when no one else contributes. I am in the same boat now that I am on Ixempra, so I decided to share my Halaven experience with you. I was on the treatment for 6 or 7 months. It was working, but I had a rare painful SE and had to come off of it. (I had severe joint pain and had to use a walker and was unable to grasp things such as toothbrush and eating utensils with my hands.) The SE gradually went away within 6 weeks of stopping Halaven. I was disappointed that I had to change treatment. I think that I would have stayed on Halaven for a long time. it was working and other than one severe bout of mouth sores and the the joint pain, it was an easily tolerated treatment for me. I hope it works for you for a long time. Oh, and yes, I went totally bald for the third time while on Havalen. Ixempra makes it four times! Things could be worse. Good luck. I will be pulling for you.

Lynn

nopink2019

After 3 months on eribulin, I have a CT this week. Don't know if it is working, but my appetite is nil, fatigue is skyrocketing & now I have tingling/numbness in toes up to knees. See MO week after scan to discuss. Six weeks ago she said I might take a short break, then restart to see if fatigue & appetite improved. I can still walk, but not always steady feeling. Now with this I wonder if I've got to move on to something else. Yep, bald too.

Rosie24

NoPink, Sorry to hear of your rough sounding se’s. I hope your MO takes some action to lighten the effects. I’m just finishing cycle 2, fatigue, neuropathy are evident, but I also take some pain meds that make me unsteady and foggy. And yes, hair loss. Good luck with the CT. Please post again after you see your MO.

nopink2019

Good results from CT, tumors in liver show shrinkage & lungs look clear. When we discussed neuropathy & fatigue, she talked about "quality of life issues". No chemo this week! She wanted to schedule a liver biopsy, but found my MBC diagnosis (from another MO) included biopsy from lungs that showed HER2 low. This is what she was hoping. I've got a break until early Oct when I'll start Enhertu. Neuropathy is not common SE and we'll hope this abates somewhat given a 6 week break from treatment. I'm glad the eribulin was effective, but if it causes SE, would probably cause them again. I look forward to a few weeks to regain strength.

Rosie24

NoPink, Great news on the Her2 low finding by your MO. I hope the break is good for you and Enhertu keeps your liver improving. It’s nice to hear your good news especially when we know it’s not always good news. Sending warm thoughts!

Pots

I started Erubilin on Monday. CT scan at the beginning of September showed progression in size and number of liver tumours. Plus my lungs are showing cancer progression too. I had a summer off from treatment so now it’s back at it. Day 2 I had fatigue and a fever, today it’s about fatigue and mild nausea. Tomorrow will be something different? When did you typically lose your hair? Anyone else having fevers?
I haven’t updated my treatment list, the format got in the way. Sigh!
Be well,