It's Back :-( Hugs & Help Please!
Comments
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Well I'm back on the trail. Diagnosed with early Stage II breast cancer Jan 2009, no
lymph involved. I had surgery but didn't want radio or chemo. I did lots of
detox, herbals, strict diets etc etc... but just got sicker and sicker and weaker and weaker. A year on I was signed off work with Chronic Fatigue. As the British health system is free, it's incredibly slow and it was going to be 6 months before I saw a doctor about this, so i decided to go to peru and do some shamanic healing work. It's been tough ladies.. I can't say I'd recommend
it to anyone.
However I have finally found the root 'death wish' that has been poisoning my psyche all these years and doubt I would ever heal fully while that was still running around my head.
A week or two after the death wish thing I had a scan as I'd been having more pain in both breasts that was getting worse. Bad news - 3 very small lumps - 1 in the old breast and 2 now in the other breast that was clean up til now.
So I'm now doing Dr Simoncini's bicarbonate of Soda treatment.. and when I return to civilisation in 2 weeks I'm doing Bill Henderson's protocol for 6-8 weeks and see how that works for me.
I'm feeling a bit down and lost about this. The healing work has been really challenging and lonely. My marriage is in crisis as well - but hope can work things out .,., and I miss all my friends. adventures in foreign climes are all well and good, but sometimes there's no place like home.
If anyone has hints, tips, great supplements or useful treatments I'd love to hear them. One thing I noticed is that in my healings I had a lot of energy going on in my jaws.. I had lots of crappy teeth work done over the years - mercury fillings (all removed now - but they were in there from age 10) and crowns and implants.. Hulda Clark says just remove all your teeth and get dentures and I must admit that seems quite appealing in many ways... I think I only have maybe 8 teeth that aren't filled or crowned or something dreadful.
Look forward to hearing from you.
mimi -
You need chemo. Seriously, shamans and rooting some secret death wish and bicarbonate of soda and everything else you are trying has not and will not treat your cancer. Why you would be willing to remove all your teeth but aren't willing to take the effective medicine for cancer makes no sense. There are women here who can give you great advice about complementary treatments but the approaches you are wasting money on won't help. Seriously.
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wondering why you needed chemo and rads when it seems like you had an early stage cancer with no lymph node involement, what was your onco score? What ever you decide is your decision and wish you the best. There is a holistic site on here and a natural girls thread that talk about eating healthy and healthy herbs, hope this helps.
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i didn't do anything to my teeth but regular dental care. my teeth are ok. i did chemo, 2 surgeries, rads, tamoxifen, and am still here living fully 5+years later after a big %$^%&& stage III tumor. probably my treatment was easier than yours. do your homework and do what is right for you, but don't run away from tried and true stuff without checking it out first. best of luck and health to you. perversely, i felt better acknowledging that life is finite and knowing it would never be my fault when i died--we all do--so i just decided how i wanted to live, and how long i hoped to live and made decisions based on that, while of course doing the math and science because that is the age i am lucky enough to live in. do what is right and reasoned for you and yours.
take care,
--hattie
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it's sounds like there is more going on than just cancer. Stress and negative thoughts have negative influence in our body. You are going through a lot...hope life gets better for you!
Do check in with the natural girls. They are familiar with what you are going through...also impositve on the fungal theory thread. She's also familiar with Dr Simoncini's bicarbonate of Soda treatment.
With my dx, early cancer, I chose lumpectomy only. The second recurrance made me a little more serious about diet and etc..but not to the extent of some of the girls in the iodine or natural bc sisters. After second dx, I went to a naturalpath who put me on supplements to prevent cancer...and learned I'm hypothyroid. So with thyroid meds, and supplements, I hoped it was enough to stay cancer free until of recent.
I'm learning a lot right now. However, I don't think I would go to the extreme in removing my teeth. Although, of recent, after being somewhat trauatize by a recent candida infection, I'm a lot more open to changing my diet. I'm motivated to make sacrifces that I might not have made earlier on. I now think the C beast is fungus...and my goal is to stay fungus free.
I hope the treatment you choose goes well for you. Keep us posted to how you are doing. I've known one person, who was helped by Dr Simoncini's bicarbonate of Soda treatment. I'm standing on the side lines...watching and hoping it works.
By the way, I know someone whose been taking tamoxifen for a few years back and did rads. She was stage 1. Now she has invasive cancer and is on chemo ... the works. There is no guarantee for any cancer treatment! People die in both camps.
Take care of yourself...your life is important!
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Hello!mimi, i was diagnosed recently and had my masectomy last nov 10,2010. then a family friend visited me who advised me to eat soursop fruit daily because she said so many cancer patients she knows got cured of this fruit.she said that it attacks cancer safely and effectively and target and kill malignant cells in 12 types of cancer including colon,breast,prostate,lung and pancreatic cancer...iam eating the fruit since it is readily available here...
take care.godbless
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Sorry, but I'm with Member of the Club. Get some real cancer treatment. I have seen a couple people die after not having traditional medical care with cancer, but instead trying unusual alternative or "Natural" cures. I know its not easy. Wishing you the best.Judie
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Hello and I'm sorry to have to welcome you here. Re: these new lumps that were found, how did they determine they're cancer? Do you have a firm diagnosis/staging?
Like Barry said, you have a lot going on that I'm glad you're addressing. But, it sounds like you're a little all over the map with the alternative treatment thing. Um, removing all your teeth? Please put that idea away and don't ever consider it again.
Instead of going after all these random snake-oil type treatments, I urge you to 1) see a cancer specialist that you trust, ideally one with both medical training and a holistic outlook, and 2) pursue an overall healthy lifestyle, which includes:
- loads of fresh, whole, organic veggies, at least half consumed raw. Every meal should be crammed with fresh cancer-fighting foods (there are lists of them if you search this forum)
- iodine (Lugol's or Iodoral) supplementation unless you're hyperthyroid... build up to taking 50mg and plan to take it every day for the rest of your life
- daily exercise (walking, rebounding or anything else to get your lymphatic system going, strength training)
- plenty of sleep with absolutely no artificial lights in the room (no clock radio light, stereo lights, etc.)
- sunshine exposure every day (or if it's dreary where you are, as it was where I lived in the U.K., supplement with vitamin D or take fermented cod liver oil)I am a big believer in alternative/complementary treatments and (most of all) an aggressive anti-cancer diet/lifestyle, but keep in mind that there are alternative practitioners who use unproven treatments and make unrealistic promises. Don't blow your life savings on someone who promises you will be cancer-free by extracting all your teeth and drinking Oil of Witch's Nose. Listen to what a good holistic-minded oncologist recommends... find out what your risk is based on various treatment scenarios... and go with what makes sense for you.
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So sorry to hear about your recurrence. It's enough to go through it once, but twice? Doesn't seem fair, does it?
I agree with CrunchyPoodleMama, she has some very good advice. There isn't one individual thing that will cure cancer (i.e. a certain fruit or vegetable, supplement, or treatment like sodium bicarb) Dont get me wrong, I think all of the above will help you get there but it takes incorporating those tools into a lifestyle change. It's about changing our inner terrain and not just until we get rid of the beast but for a lifetime to insure it doesn't return. We need to figure our what got us here in the first place. In my case it was stress, poor diet, little exercise....neglect. All those things affect our immune systems and it's ability to ward off cancer an rebuilding your immune system is first and foremost! We women are so busy taking care of others that we neglect to take care of US.
Pleeeaaase take your time and educate yourself. Armed with knowledge, you can make a decision that's right for YOU. Dont move forward with ANYTHING out of fear, something we are all inclined to do. Fear paralyzes rational thinking. It's taken me a year to figure out what I'm supposed to be doing and I'm so glad I took this time. I am smarter, stronger and without fear.
I dont mean to offend anyone here but it really troubles me when people comment about "people dying" from alternative treatments or you must do the "tried and true" methods and "effective treatments" for cancer, referring to conventional treatments. I'm sure we all know someone who have been failed by those treatments.
Ten of the twelve "major cancer advances" named by the American Cancer Society for Clinical Oncology in '08 involved drugs. Not food, not lifestyle changes, just drugs. Even the ACS says that one third of cancer deaths are linked to poor diet, physical inactivity and overweight. I think that's very conservative. In the last 30 years of the 20 century the (global) cancer burden has doubled and will likely double again by the year 2020. With statistics like these, how can we use the words "tried and true" and "effective". They are treating the cancer and not the person. I'm not saying to throw conventional medicine out the window, I'm just saying, dont wait for "definitive scientific proof" to make a change. Learn both sides of the coin before you make the call and you may decide to do a little of both but please do your own research before you make that call.
Barry mentioned to check with the natural girls thread and also the fungal thread. There's lots of great information there and a good place to start. Dont limit it to just those. Do your homework and you can't go wrong.
I learned this phrase on my journey and it has stuck.....
"If you always do what you've always done, you'll always get what you've always gotten."
Hugs...and best wishes on your journey.
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Wow, she had stage II, so thats why chemo and rads were recommended and she has had a recurrence, that fortunately was local but still is a sign of an aggressive cancer. I can't believe folks here are telling OP to eat fruit and think happy thoughts. Whatever you think is the cause of cancer -- and frankly I don't buy that we give ourselves cancer with stress in our lives -- OP already has it. There are some tenacious tumors growing as you read this. If she was thinking that she didn't want to do the mainstream treatments and was willing to accept a shortened lifespan as a result, I would agree that this is her choice (though again, I can imagine her husband not being so accepting). but to tell a woman who both does not want to die and refuses any real treatment to prevent that, that this is cool its her decision, is really just lying to her.
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Impositive makes an important point in taking time to rationally investigate your options. Don't let anybody tell you there are "tried and true" methods for curing cancer. And don't let the chemo evangelists here bully you into doing what they did. You just need to look around to see the women who did the so-called "tried and true" and their disease progressed anyway.
You will find your way on this journey, one step at a time. Julia has given you a way to start. Blessings to you. We offer you love and support.
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best of luck mimi.. i would seek some conventional treatments (chemo etc) to get things under control. cancer cells are not normal. I certainly do not in any way wish to undermine the importance of natural ways.
Perhaps the Stage IV forum is full of women who have done the 'tried and true'.. but we are alive.
A healthy diet is so important but sometimes we need help in attacking the cancer cells.
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I did a lot of research into local recurrences a few years ago after I had a breast MRI with a finding of a "highly likely" malignancy. It turned out to be a false positive, and I didn't have a local recurrence. But what I learned is that local recurrences are strong markers for subsequent mets. The one woman I know personally who had a local recurrence did develop mets a few years later and died. I don't believe that any of you who are telling OP thats its just fine for her to avoid chemo were anything beyond stage I to begin with and certainly none of you had a local recurrence to deal with. There are cancer tumors in OP's breast and it is highly, highly likely that there are also cancer cells circulating in her bloodstream and, perhaps, taking root in distant organs. Ordinarily, when I read posts in which early stage women are debating whether or not to have chemo that has been recommended (and again, for many of you here, chemo would have been overtreatment) that by foregoing chemo they are taking a great risk. This is the first time I've read a post that made me write this: if you do not take the chemo, you will die of breast cancer. Those of you telling OP to suck on fruit need to realize how irresponsible you are being.
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I'm lost. Some recommend chemo and others recommend diet.
What is wrong with recommending something that actually works - at least somewhat? What's wrong with surgery - getting those damned breasts lobbed off? Don't mean to insult your body parts, just trying to insult the cancer. It won't necessarily prevent mets, but it will get rid of the cancer that was found there. Perhaps I'm being a simpleton, but I am surprised that no one is recommending the most obvious treatment. Only in cancer treatment do we have these crazy conversations.
And only in cancer treatment do people act as though there is a known cure, an obvious answer.
Keep the teeth. I do agree with that one.
And I am really sorry to hear about this new development. I do hope you consider options that have the best chance of making you happy. That's what we all really want.
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mimi, I'm so sorry to hear of your difficult time. From where I sit, I don't see enough information for any of us to know what is going to be most effective for mimi. We don't know which kind of bc was dx'd, we don't know if it was classed as agressive or not. When people say they're trying something alternative, truly, it's not very much information. Is it Gerson therapy? Hoxsey treatments? Budwig protocol? Accupuncture? Meditating in the woods? If it's diet changes, is it vegan food? If it's vegan, is it cooked or uncooked? Gluten free? Sugar free? We don't know if there was any followup after surgery with the British doctors. Mimi mentions travelling to Peru, but that really doesn't shed much light on what's already been tried. I've read about Simoncini's treatments, but the success he reports I believe are for other types of cancer. There's a lot of choices available, including more surgery if you have new tumors. My mom had bc 30 years ago and surgery is the only treatment she received. She turned 83 this month and her mother lived to be 84 after her bc which was also treated only with surgery.
Given your situation, I'd strongly recommend some more research. Knockout by Suzanne Somers is a collection of interviews with many doctors who are truly making strides in treating cancer. I also recommend anything written by Kris Carr, who was dx'd with stage iv inoperable cancer years ago and is now a shining example of vibrant health, even though her tumors accompany her everywhere. And then for something completely different, read Susun Weed. She has a book on breast cancer and breast health, but it was written over 10 years ago, so some of the references to current treatments are dated. She is a veritable fountain of healing information. There's another author I haven't read yet that many here hold in high esteem -- David Serban-Schrieber. I haven't read Bill Henderson either, so can't comment. I'd like to hear a desription of his protocol, if you feel like sharing.
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Hi. They suggested radiotherapy but said I didn't need chemo. I chose not to do radio as I already have a heart irregularity and didn't want any radiotherapy.
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I'll add my 2 cents for what it's worth...2 cents I'm guessing!
I agree with Athena and Member. This is serious shit. It isn't acne or psoriasis or hair colour. It's your life. Take the bloody breasts off if you don't want to do rads or chemo. I didn't. So I took them both off. You don't hear me whining!
If a tooth is rotten you take it out. You don't drink baking soda to rid yourself of the infection. You use baking soda to take the smell out of your fridge. Does anyone else get that? Your body runs on chemicals not green grass and fresh air. Something is causing your tumour to continue to grow. Take away the breast tissue it grows it. Or take the rads that are recommended. Or, do the real deal and take off your breasts. That's pretty much as natural as you can get.
If you decide to do nothing, then you are writing your own obituary. "Here lies mimi999 who died while chewing on wheat grass."
Okay, a pretty angry answer, but I don't know why people posts thoughts like yours on a website where people are trying to live! You got away the first time and then you got a recurrence. Doi!
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mimi, the information you're providing is very vague. Since you still have some of the breast still affected by the original dx, that tells me you had a lumpectomy rather than a mastectomy. It's not clear if you got clean margins after the first surgery or if you're experiencing a recurrence. It's not clear if you had any followup visits with your surgeon. While people who post here tend to have inquistive minds, it's not realistic to expect us to have the skills of detectives who ferret out confessions from a tightlipped suspect. Be aware that you'll have a limit of 5 posts per day until you reach a total of 50 posts.
Also be aware that the humongous thread called natural girls consists of bc sisters who received treatments from mainstream doctors upon receiving their bc dx. Our main focus there is to keep ourselves so healthy that we don't get a recurrence. I've been here for years now, and I can think of just one person who was following natural healing methods to treat her stage iv bc. Her name was genesis. She stopped posting and it's unclear whatever became of her. You might be able to find her posts if you search.
Otherwise, everyone here has done surgery, and quite often the whole nine yards (chemo/rads/hormone therapy also). Using supplements is important, but you need bigger guns to battle active tumors. If you want to post about what Bill Henderson's protocol entails, I'll read it. I know I can google it, but I have a full plate with google as I try to solve some issues with my aging mom. Truly, you need to fess up some details to get some meaningful help here.
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I am amazed at some of the comments here. The insidiousness and anger.....Someone posts "it's back and I need help" and these are the kinds of responses she gets....."If you do not take chemo you will die" and "cutting off your breast gets rid of the beast." "Your body runs on chemicals not air and green grass." WHAT!? Did I read that one wrong? "You can write your own obituary."
FEAR is a nasty four letter word and that is what you are invoking with these kind of statements. I dont know if that is your intent but as I said before, fear paralyzes any rational thought and I can tell by some of the posts here that someone has invoked that in you ladies.
Althea's got it right. There are a lot of choices available and more research is needed before you can truly make an informed decision.
Cancer isn't a disease of the breast, lung, colon, skin or wherever else it may turn up. It's a disease of your body, your inner environment. Cutting it off doesn't rid your body of the condition in which it formed in the first place and chemo may or may not kill cancer cells but it doesn't prevent recurrence. As a matter of fact it probably enhances your chances because it destroys any chance your immune system has in protecting you... at least for a good while.
Btw, I was Her2+ and was advised I needed chemo and rads. I did get a lumpectomy but after further research, I chose another route. I am healthier today because of it. And btw, I didnt do it by "sucking on fruit", I have eliminated most fruits (sugar) from my diet. Just though I would point that out.
Everyone has the right to choose their own path and hopefully those people make an informed decision not one based on fear mongering.
Mimi...it's great to hear they are not suggesting chemo! Hugs....
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removing cancer from the body (cutting it off) is indeed an effective way of preventing it's spread if if is removed before it spreads.
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When someone writes in that they need help, wanting us to advocate they buck the system and try to heal their cancer themselves (which obviously didn't work as this is a recurrence!) what are we supposed to do? Oh hugs, sweetie, let's blow somemore smoke up your butt, and give you a biiiiig hug because you are special?
Nope. That's someone crying for a smack up the side of the head. Like a suicide ATTEMPT.
Changinge diet and exercise as WELL as conventional treatment and using supllements AFTER the doctors have completed your treatment is all good and wise.
Asking us to condone someone doing their own "thing" is tantamount to pulling the trigger and shame on anyone who supports mimi's thinking at this time.
It's called "tough love" ladies....would you watch your child bleed to death because he didn't want stitches on a head wound or something???
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I suspect mimi is saying they didn't suggest chemo initially. I would be shocked if her docs were not recommending chemo now that she has had a recurrence. Lovely for those of you who were stage 0 or 1 to heal yourself through your own inner beauty or whatever and to get all theoretical about how you have to realign your body or whatever. Good luck with that. Mimi has a stage II recurrent cancer and therefore has bigger fish to fry.
I've been coming on these boards for over 6 years. I have lost track of the number of women who have said they were going alt (not complimentary, alt) and ended up with mets, or women who have friends and loved ones who went alt and now have mets. I have enormous respect for the women here who research complimentary approaches and do the hard work of augmenting their treatment. (Though my pet peeve is that rarely do the "natural girls" focus on the proven benefits of exercise -- its not a pill, but its better than a lot of pills.) But the women who come on here who had stage 0 or 1 cancers, who would most likely have been just fine had they done nothing but surgery, but they come on here and extol others to just go alt and do nothing medical to treat their disease -- these women are irresponsible.
And for those who say -- well the stage IV section is full of women who tried mainstream medicine -- yes, that is true. And also highly unscientific. The fact is that there are far more women, millions, who are alive today because of chemo, rads, hormonals. And the women on the stage IV section are living for years with their disease because of mainstream treatments. Years.
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Impositive, I would recon to say that the posts that you are indicating ARE to invoke fear. Mimi is NOT thinking straight. Can you imagine a newbie reading her post and thinking, "Oh, here's someone who got a recurrence and they're not even going to treat it! Gee, I'm only at my first diagnosis, surely I don't have to do anything either!"
There's an expression: Scared straight. I think that's what we're trying to do! This person is not a newbie. Her way of life since first diagnosis has not changed the fact that she recurred. Do you really think that if she maintains her life style everything will be status quo?
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Apple,Of course you're right. Cutting off your breast gets rid of the lump but it doesn't change the environment in which the lump began. I use the following analogy because I own a salt water swimming pool. If I dont keep the pH and salt levels in balance, I will get algae growth. I can go in and remove that growth from the side of my pool but if I dont do something about the water balance, it's going to grow back in the same or different area of my pool. So that's the point I was trying to make.
Barbe1958 and Member_of _the_club- I'm not sure why you ladies are here in the Alternative thread except to be antagonistic. I would never go over to the Conventional threads and tell someone they are stupid and ignorant for listening to their doctors "blow smoke up their ass" about their treatments. And Member, Ihave "lost track" of all those who have died in spite of their conventional therapies. Those alternative women who have "dropped off" these boards I suspect have done so because of posts like yours and the fear mongering that goes along with them, as well as the fact that they have mastered their disease and no longer need your "advice". The "enormous respect" you have for these women here is somehow lost in your comments. I dont believe any of us here have "extolled" mimi for using alternatives, nor have we admonished her for going conventional. We havent said "DONT DO IT, IT WILL BE A DEATH SENTENCE!" Mainstream treatments may have their place with some but not others. That is the point that we are trying to drive home to mimi. YOU HAVE CHOICES! Do your research to determine what those legitimate choices are before you make life changing decisions. That is what I have to offer mimi and I hope she takes me up on it.
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Barbe1958, You are in the ALTERNATIVE, COMPLEMENTARY AND HOLISTIC TREATMENT thread! No one here is saying dont do ANYTHING! Again, I ask myself why you are here.......
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The internet bullies who come over here to tell women they will die or they are committing suicide are using HATE SPEECH in the guise of 'tough love.' Internet bullying is a serious matter with legal repercussions.
Bully-ladies, you're not just trolling here, you may be breaking the law.
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Mimi, I just wanted to put in a bit of personal experience regarding having your teeth out. My mother had to have all her teeth extracted at quite a young age, because she had oral cancer and was treated with radiation which would apparently have destroyed the roots. In her case, I think she felt she had no choice but to be as aggressive as possible with her cancer treatment -- she had young children -- and losing her teeth was an unfortunate tradeoff. But the dentures and the changes in her facial structure caused by losing them all at once were uncomfortable and embarrassing to her for the rest of her life (almost 30 years). It changed the way she ate, the way she spoke, and her self-image -- in some pictures of her after the extraction she's holding her hand in front of her mouth. Even though most of your teeth have fillings or crowns (I think all of mine do!) they are still your natural teeth at the roots and you should hold on to them as long as you can. Best of luck.
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OK, I'm going to dial some of this down here. I do want to point out that women have gone on other threads accusing those who choose mainstream medicine as being stupid and harming themselves. Nobody has engaged in hate speech here. Seriously, calm down. I'll bow out because I've said my piece (and I mean every bit of it) and i felt mimi had to hear it. I would only urge the rest of you to go back and read mimi's original post. She is pursuing methods that are way beyond what even the purely alt folks here on these boards use. And is desperate -- remember she is willing to yank out all her teeth, for goodness sakes. She's willing to travel around the globe. This is a woman who wants to live. So please consider that her cancer is more aggressive and advanced than anything any of you are dealing with, and then advise her as responsibly as you can.
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Mollyann I am shocked. Totally. At what point did this discussion become bullying until you came into it? Get off your high horse and look inwards sweetie. Anyone who's tag line says "question authority" in my opinion is not a model citizen!
The alternative board isn't here to mean that you forgo standard treatment and do alternative treatment. It is here for the healing of your body and soul in a natural environment DURING treatmnent and afterwards!
You who are condoning mimi's path are patting her on the back and urging her on to take her time, look at other options. As far as I'm concerned, she has two options. Rads, which I agree she shouldn't chance. And mastectomy. Why can only a couple of us see that? What do the others of you see? I don't think she has a lot of time to go treatment shopping with an aggressive cancer rearing it's head.
I seem more concerned with mimi's well-being than you who are blasting me. I have PM's from people thanking me for being so blunt on this thread! Mimi is asking for help. I'm giving it. What are you doing besides blowing smoke up her butt?
(Alternative does not mean hippies and free-love....for those of you who don't understand...just a thought.)
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I'll add that I don't have to defend my right to be here. While I did pursue mainstream treatments I am also interested in how lifestyle choices protect us. I've been a vegetarian my entire adult life and an avid runner and I follow how these choice affect cancer. Plus, I feel the need to bang the drum every once in a while for exercise because I think it is a complimentary practice that is accessible to everyone and yet often ignored on these boards. Plenty of women who have never had chemo go on the other threads to hector women who have, same with radiation and hormonals. There was even someone here who went in the lymphedema section -- a section in which we have some true women warriors who have changed the way mainstream surgeons handle lymphedema, I mean had a very substantial effect -- but someone went over there to hector women for bringing on their lymphedema because they had surgery. or something. This works both ways.
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- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
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- 591 Pain
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- 109 Welcome to Breastcancer.org
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