Just Diagnosed Oct. 2010 with IDC

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oakley
oakley Member Posts: 206
edited June 2014 in IDC (Invasive Ductal Carcinoma)

First time on this board.  I found you through google and am so happy I did - a wealth of information here.  I was just diagnosed with IDC last week - 7mm Stage 1, Grade 1.  I was told by the diagnosing breast surgeon that I would need a lumpectomy and SNB, radiation for 5 weeks and tamoxifen for 5 years.  I am 48 - perimenopausal.  Shock of the century, and I am incredibly positive (or in denial) because of the research I've done with my situation.  I am seeing two more surgeons, both in NYC:

Alisan Goldfarb out of Mt. Sinai

Alexandra Heerdt out of MSK

Any feedback would be appreciated - didn't see so much on the board about them.  I also am so stressed about what each will say, the differences in opinion, if any.  I am also terrified about the lumpectomy and SNB - mostly for the results.  

I just don't know what to make of this whole thing - I still believe I am in shock with the diagnosis and that it is not a huge deal with what I have.  Scared now. 

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  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    oakley...I sent you a Private Message.

    When you see a pink sign saying new 1 on Private Messages just click on it.

    Sheila

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  • warrrior3
    warrrior3 Member Posts: 51
    edited November 2010

    I was also diagnosed in October 2010 with IDC stage 1 grade 1.   I also went to 3 breast surgeons for their opinions and am glad I did.  All agree, as long as no node involvement, lumpectomy and radiation is the way to treat.  I did learn from surgeon #2 that I may be a candidate for partial breast radiation, known as Mammosite which is a 5 day, twice a day radiation compared to 6 weeks.  I chose surgeon #1 and am scheduled for a Lumpectomy and SN bx next Thursday and cannot wait to have this cancer taken out.  Unsure  at this time which radiation treatment I will opt for.  Good luck with your consults.  Each doctor may teach you something new.   

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  • jo1955
    jo1955 Member Posts: 8,543
    edited November 2010

    I was diagnosed with IDC, stage 1, grade 1.  Had the SNB and lumpectomy.  Was in denial and total shock until after the surgery.  Got results from biopsy on 10/20 and had surgery on 10/30.  Things moved pretty quickly.  Had the best surgeon in the world.  Not only excellent but very, very caring.  No going through 30 rad treatments (13 down and 17 to go).  My surgery was same day and I recovered fairly quickly. I also did alot of research and new what was doing to be done and what i could expect.  Surgeon answered all my questions and really put me as ease.  Has been my angel through this whole things. Important to have a good support system.

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  • changes
    changes Member Posts: 622
    edited November 2010

    Hi Oakley,

    Sorry about the diagnosis. I too had IDC Stage 1, grade 1. I'm done with active treatment and am four months into Tamoxifen. The lumpectomy and SNB is not that difficult - it's usually done as an outpatient surgery. I felt well enough to go out to dinner and a movie that same night (partially because I was still half stoned on IV Lortab and Versed!) I doubt you'll get any significant difference of opinion from the doctors - treatment at this stage is pretty straightforward. FYI - the final staging is not done until after the surgery, when they can actually measure the tumor and check out the sentinel nodes. When you get to the point of doing radiation, you might want to join a thread for women starting radiation at the same time. It was a wonderful support for me going through it.

    Wishing you the best,

    Karen

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  • cgeo
    cgeo Member Posts: 2
    edited August 2013

    Hi all is great finding this place.  Thought I was just straight up DCIS until got the results of my surgery a few days ago... Now IDC, YIKES.  I did not do SN biopsy because didn't think DCIS warrented it and my surgeon agreed.  Guessing he will tell me on Tuesday that is what we need to do.  I am for it now but am seeing controversy about whether node removal beyond SN affects survival rates or mets but only that it has a positive affect on keeping the cancer local to the breast.  If that's the case I'm thinking I might prefer skin-saving, nipple-saving bilateral mastectomy.  I have been on the losing end of every statistic thus far and would not be able to emotionally handle Lymphedema.  I love to ski, play tennis and have active twin boys so that would not fly with me.  Am I misinformed... Not all mastectomies require node removal do they... Just now researching so maybe I'm missing something.

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