Curios --- Her2 positive or negative?

Faith316

Just curious if more of us IBC girls are Her2 positive or negative?  I'm positive.

EDIT --- I wish there was a way to edit the thread title.  I spelled curious wrong.  Bugs me!

leisaparis

I'm HER2+ and also ER-/PR-. Have you been on the Herceptin for a year yet? Have they asked you to join the Neratininb drug trial yet. It's for HER2+ gals. After you're done with Herceptin. It's to prolong the time between recurrences. Hopefully I will start it by December. I'm having reconstruction in November, so I have to wait until I heal from it to start. Hoping it works well.

Life is short. Live it one day at a time. Love always, laugh often and smile. God is Good. Leisa
Diagnosis: 10/7/2009, IBC, Stage IIIb, Grade 3, 2/21 nodes, ER-/PR-, HER2+

Faith316

Herceptin did not work for me.  My original dx was IDC in April 2008.  I took Adriamycin, Cytoxin, Taxol and was still on Herceptin and in the middle of 30 radiation treatments when I had a recurrence which was finally dx as IBC in June 2009.  I stopped the Herceptin (after 9 months of being on it) and switched to Tykerb and Xeloda for 6 months.  I am now NED, thank God.  i no longer take Xeloda, but continue with Tykerb daily,  I have been on it for 15 months so far.