Seeing onc tomorrow....and I'm a bit speechless

Options
1Athena1
1Athena1 Member Posts: 6,696

Hello, fellow early stagers,

You would think that with a deadly disease and a not-too-distant chance of dropping dead in 10 or 20 years because of it, I would be able to pepper the man in charge of twisting fate in my favor with questions.

I see my onc tomorrow for a regular three-month check-up, and beyond asking him for a Vitamin D test and telling him I tested at 99 a month ago (per another doctor), I really have no other questions. I chose not to do chemo and  I take Tamoxifen. He does a physical check of my body, they weigh me and they extract about three tubes of blood from me. Every other visit, I get a Zometa infusion.

I am 18 months out from dx. I just wonder where I go from here. What do some of you ask? Is there a new study or test I should inquire about? Any new research? NOTE: IS IT WORTH ASKING ABOUT EVISTA IN COMPARISON TO TAMOXIFEN? Dare I ask whether the fact that I haven't had mets yet augurs a tiny bit better, or is that premature? What is regular breast cancer screening at this stage? I wouldn't mind mammograms if it were not for the fact that they are unreliable and I fear for my implants. An ultrasound seems much better. Or should I just go by symptoms (and I have none) and resist the temptation to over-test and over-treat?

I am curious what other people at this stage are doing. I am not even due for a Zometa infusion tomorrow so it might be a short visit. I would like to make the most of it.... Thanks for any advice you can offer.

Comments

  • changes
    changes Member Posts: 622
    edited September 2010

    Hi Athena,

    I have my followup at the end of the month. My list of questions for him is growing -there were a lot I did not ask before, because I was just overwhelmed by making decisions and putting one foot in front of the other. I also have a pain in my right leg that's been there a couple months, which I think we're going to have to check out. I want to know just how confident they really were that there was nothing in my right breast, given how dense my breasts are, I want to know just what I can do for this extreme moodiness, given that Tamoxifen rules out most antidepressants. I want to know when the next mammogram is, and will I also have an MRI?? And lots more, too. I'm only a few months out, though, so right now I'm all in favor of overtesting!

    Good luck at your appointment,

    Karen

  • mmm5
    mmm5 Member Posts: 1,470
    edited September 2010

    Be thankful there is nothing else to speak about, then run out of there as fast as you can. LOL

    I just had to chime in about your tag line I love it and it made me laugh today, you obviously have a great sense of humor and that is working for you.

    "if I don't die, it was worth it" 

    I think that all the time....just love seeing it in print 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited September 2010

    Thanks, mmm5 - and you know what? I think you just gave me the best advice!

Categories