BC and MS, how did this happen?
I was dx with MS in 2006, and with BC in 2008, after two years on Copaxone. I can hardly believe it, and wonder if anyone else had their dx's so close, too. I'm doing extremely well with both. I'd love to hear from anyone else with same thing. They're both female issues, so there have to be a bunch of us.
Beth
Comments
-
I was diagnosed with familial spastic paraplegia in December, 2010, a year before I was diagnosed with breast cancer. MS and FSP share some of the same symptoms: muscle spasticity, incontinence, fatigue, foot drop, etc. Btw, I'm only 41.
Good luck!
-
Our stories sound very similar. I was dx with MS in 2010, and with BC in 2012, after 6 months of Rebif followed by 8 months of Capoxone. Neuro wants me to stay on Capoxone. BC is DCIS and i go for lumpectomy in 2 weeks. I hear Tamoxifin and radiation are to follow. I'm handling it all very well, although I am nervous about the drug combination. I'm treating all of this as a wake up call to live a better life. I made many healthful changes when i got the MS dx, but there is still some room for improvement. I'm reading 'Younger Next Year" and hope that's how I'll be feeling. At least our garden is in harvest so there's lots of good anti-inflammatory eats.
I hope you sailed through your treatment and are doing well.
-
I'm a long time MSer (Winnipeg is the capital of the MS world, I sometimes think) and recent BCer. Given that they both affect women more than men (MS and BC), I think it's not that rare to get both. I know a couple of other women with both. I also did Copaxone.
-
I've got a nasty history of auto-immune diseases. When I was 24 I developed sudden onset Fulmanating Ulcerative Colitis with a toxic mega colon. As a result of that my entire large colon, rectum, and anus were removed and I've lived with an ileostomy since. In the early '80's I started to have symptoms of MS but an MRI was negative. Over time I had more symptoms and an MRI and spinal fluid test in 1999 indicated MS. I was on Copaxone for 8 years and also had 6 infusions of Novatrone during that time. Now I am secondary progressive and am on my 2nd year of Tysabri infusions. Last year for my 60th birthday I got Invasive Mucosal beast cancer in my left breast and elected to have a BMX so I didn't have to try going through radiation and chemo. I knew I wasn't In any shape to try that horror show on top of worsening MS. I also have Interstitial cystitis (PAIN).
I use a leg brace and a cane to get around. I also self-cath because of bladder retention. I have pelvic nerve damage from the first surgery and so have chronic pain in my butt and left leg. I can't sit for long or lay on my left side very long without having nasty pain that even Fentanyl and Dilaudid don't relieve. So because of the pain I am getting off my iPad now. You are not alone.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team