Calling all ladies in their 20's

TreadSoftly

LibraryJenn - what horrible news ....my heart goes out to you 

I echo what selfmedicatinggirl wrote - its such a horrible disease.... 

You are in my thoughts and prayers, (((((hugs)))) 

NannaBaby

I'm so sorry to hear the bad news Jen, it made me cry 

I agree, it is a horrible disease! I am praying for you!

Big Hugs! We are here for you! xox

Melanie_Ann

So sorry to hear the news Jenn! Keep fighting girl! I'll be praying for you.

LibraryJenn

Update: now they aren't sure if it's mets on the ct scan. Have a fever that snuck past two different antibiotics and tylenol. I'm in the hospital currently because of this, pneumonia, and dropping O2 levels (was 83 on Monday). My oncologist has ordered a liver biopsy tomorrow so that they can be "200% sure"of what they are dealing with. If it is mets then I start taxol and carboplatin (sp?) shortly. He called the hospital yesterday to talk to the dr who admitted me and said he is less convinced that it is mets based on all that is going on, and is possibly a "super imposed fungal infection." Praying that this is what it is and I can get treatment and get back to my life.

shiramg

i pray its a fungal infection.

hugs

Melanie_Ann

I pray that as well!!!!

texasrose361

Jenn- sorry i didnt respond sooner- sent you a PM

also praying for a fungal infection

NannaBaby

praying for fungal results too! as weird as it may sound!!

texasrose361

I have my look good feel better meeting tomorrow! CANT wait! I didnt buy a wig this time on chemo, but i KNOW i want one next time i lose my hair- just to have some normalcy, and not ppl askin a million questions!

NannaBaby

Enjoy the free goodies TEXASROSE! I got a bunch of good brand name stuff.  Some I didn't like so much... so I kept the stuff for regifting

texasrose361

for those who have bought wigs- do the insurance co cover part of the cost?

WarriorPrincess24

TEXASROSE: Have fun at the LGFB. I'm here in Tallahassee and was the only one who attended so I got the royal treatment...but NannaBaby is right, they give great products out!

All ladies, I need some follow up advice/input. I posted a while back about terrible neuropathy that developed in my hands and feet and since then the dr has prescribed gabapentin for the neruopathy and effexor for the hot flashes. I'm up to a total of 10 pills daily and the SE's are sometimes tolerable at best. I'm meeting with the dr again tomorrow to discuss stopping with the 9 out of 12 Taxols that I've completed (at the suggestion of another dr at his office). What is your experience with stopping treatment a little early???

LibraryJenn

Hey Ladies, thanks for all hoping it was a fungal infection too. Unfortunately though, it wasn't. The two large tumors in my liver are continuing to grow, but by far the worst of the two is that the "cloudy"areas of my lungs were not an infection and probably not pneumonia either, but are signs of "very advanced" cancer. I'll be on oxygen for the rest of my life, but no one has told me yet how long they expect that to be. I get short of breath getting out of the hospital bed to go to the washroom, but I'm helpful that the nebulizers they have me on will help open up my air ways.



I'm trying to stay positive but I've had enough of this stupid disease. I'm also hoping they let me go home soon.I've been in the hospital for eight days and only got to see my son twice. He's too damn little for this. Everytime I talk to him on the phone he says that he wants daddy to come get me and bring me home. Fml

WarriorPrincess24

LibraryJenn...I'm at a loss for words. All I can say is that I'm praying for you're strength and grace during all of this and comfort for your sweet baby boy. I know it's sometimes hard to stay positive with what all of us are going through but just know that there is a whole army of sisters here thinking and praying for your recovery and healing!

texasrose361

Jenn thats fuckin shit! i was hoping and praying it wasnt stupid cancer!!!! Have them send you home with an oxygen tank so you can be with your little man! I hated the 4 days i was in the hospital with a highfever, cant imagin 8!

(((HUGS))) my heart is breaking for you! Be positive and pm if ya wanna talk! I totally understand what you are going through!

Warrior princess- if the nuropathy is that bad i'd stop. I only got 7/8 treatments of taxotere even though i prob shouldnt have had the 7th either, but honestly i down played it to my dr cuz i wanted to do the full 8... problem with continuing tx when the nuropathy is getting that bad it can cause it to become permanent...

 me after the LGFB meeting- i got a really cool wig (my first) http://tinypic.com/view.php?pic=10oloc9&s=7

jcoutee

texasrose361-how was the meeting?  i have never heard of those before until i read your post so i looked into it and found they are having one in my area in june.  i thought about going.  was it worth it?

TreadSoftly

Jenn - what a bummer!!  Grrrrr!! Heres hoping they can get you started on a treatment, get you more stable and then home so you can spend time with your son!!!

TexasRose - clicked on your link to check out your wig but cant find it!! Im sure its gorgeous!

Jcoutee - I enjoyed my LGFB meeting.  There were approx 10 ladies there, average age was much older than me but there was one other young girl in her 20's in the group so we hung out together and chatted!  Got lots of good quality make up and make up tips - defo worth a trip in my opinion

WarriorPrincess - Ive no experience in stopping taxol early, hope your oncologist gave you some good sound advice

TreadSoftly

oh girls - forgot to say that I turned 30 in the past few weeks but dont want to migrate over to the Calling All Ladies in their 30's Thread, I feel more comfortable hanging out here!!  Well, I was diagnosed when I was 29!!

hdangelbaby

hey all!

I have been lurking daily but haven't written much.

I started rads yesterday. wow.... i'm soooo much younger than everyone else!

also found out a girl i know has stageIV colon cancer. she is 32. and a friend came down from boise this weekend and told me one of his friends found out she had breast cancer last year. she is 23.

treadsoftly, i hear ya!! i was diagnosed at 29 also! i turn 30 at the end of the month. i think i will stay on this thread too!!

love you gals, -- Angel

NannaBaby

Oh JENN! I am so sorry to hear the news I hope you get to go home soon and cuddle with your little man I wish you all the best and a good treatment!

I'm turning 30 in July! I'll be hanging on this thread for much longer too!

My chemo is starting to creep up on me... feeling very fatigued! It's unbearable sometimes! I can't even stay up to watch TV!  I am hoping this is just a cold or something... I don't know if I can do 3 more! It was such a beautiful day outside and I spent all day in bed!

texasrose361

Um no y'all need to get steppin' we dont want you oldin up the place with your 30s vibes!!!!

j/k i will be 30 in 15 months and plan to stay around!

Heres a link to my photobucket- apparently tinypic donest last forever LOL

http://s6.photobucket.com/albums/y247/tbelmares/?action=view&current=me.jpg

hope that link works- its just me goofin on my cell phone, i misplaced the digital camera where the better pics are:)

nanna hope you feel better!

hdangelbaby

did any of you ladies get wiped out easily at the beginning of rads? I started monday and have napped every  afternoon since. just feel wiped.....

my armpit is already sore-ish. no redness yet

texasrose361

hdangelbaby- not at the start but at the end i was getting more tired!

LibraryJenn

Hey ladies, I'll be 30 in October and I'm still planning to be here too! So I started chemo on Monday, navelbine (and continued herceptin). My O2 stats were 90-91% on 5 litres of oxygen a minute as of Monday, right now they are at 99% at 3.5 litres. Hell ya! So much for the cancer being "too advanced"for the chemo to work on my lungs! I think that lung specialist can kiss my ass and I'll stick with my oncologist who must of put me on it for a reason. I found out what the"average" life expectancy is for stage IV mets, and I am going to knock that shit outta here. I'm hopefully going home this weekend. I have a video camera thanks to some dear friends, and we are going to make lots and lots of memories!

hdangelbaby

libraryjenn, you keep up that fantastic attitude! I swear sometimes that makes this hellhole of a disease easier to beat!

Melanie_Ann

I think it's great that everyone plans to stay, even if you're thirty! We'll all be around for a long time to discuss...remember in our 20's, when we all had BC. Praying for all of you!

I start RADS in June. Probably toward the end. I hope I'm not too wiped out. Although I think a nap sounds nice. I still have one more chemo to go, and I swear, I just can't sleep. I think it's the lack of hormones. I have night sweats all night. So I'm almost looking forward to being sleepy, since I don't seem to ever be now. 

LibraryJenn- that's great news! I don't even want to hear statistics anymore. B/c as soon as I hear, oh you only have a so and so % chance of that happening, it happens! So no more statistics for me. Prove them all wrong! And here's to hoping you get to go home soon!

NannaBaby

I don't remember being tired from rads... maybe towards the end when my skin started to turn red and peel.

Keep up the great attitude JENN!  I am on Navelbine too! Along with Cisplatin.  I get cis. and nav on day 1 and only nav on day 8.  Day 8 is easy! Infusion is only 10 minutes.  And i don't have side effects! No fatigue, no nausea and I still have my hair after 3 cycles!  I have chatted with some ladies on the stage 4 threads about navelbine, and it is doing wonders on their lung and liver mets!  I think there is one lady who has been on it for years! and is in remission

Take care and kick butt!

bimmer2011

Hey ladies - sorry havent been on much here much but have been thinking about you gals alot and hoping all has been going well!  I have been home recovering from my mastectomy which for the most part has been easy breezy.  The only hiccup I have had was the incision reopened after the staples were removed and now it has to be packed and heal from the inside out.  As this healing process takes time they have decided to rush it by putting some VAC system on the incision to heal it faster so I can start radiation sooner!!

LibraryJenn I just wanted to send all my love and support your way.  Your posts have brought tears to my eyes because it just proves how unfair this stupid disease is.        

MonoVersesStereo

Thank you so much for starting this thread - i am 25 and was just diagnosed in March, then re-diagnosed with liver mets in April.  I am finding that there are very little resources for young women - i tried the reach to recovery program through the ACS but there was no one near my age in my area for them to put me in contact with.  Babies are a HUGE concern of mine, especially at a time in my life where i am watching all of my friends get married and start families of their own knowing full well that it will be years before i am finished with care and given the green light to have children - and if my body will allow that to happen.  I am also having a hard time dealing with the hair loss from chemo and the decisions about which surgical route to take.  I am glad there is a resource here for other young women to voice their concerns - we can all help eachother out! <333

texasrose361

Monovsstereo- so agree- no one my age going through this either! Glad you found us! Being our age with mets as well is a SUPER RARITY! 

Bimmer glad to hear from you!