Making the Right Decision

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kimmie68
kimmie68 Member Posts: 47
edited June 2014 in HER2+ (Positive) Breast Cancer
Making the Right Decision
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  • kimmie68
    kimmie68 Member Posts: 47
    edited June 2010

    Well, this is my first post.  I have been visiting and reading for a while now, just havent had the courage to post anything.  I was diagnosed in Jan/Feb with IDC, Grade 2, Her2+3.  I have 2 tumors in my right breast.  Then when I had my first MRI it showed that I had lymph nodes, 2 I believe, that are together that were enlarged.  I had biopsies done of the lymph nodes and the biopsy stated Metastatic Ductal Carcinoma Grade 3, and a bunch of other stuff.  Have another MRI scheduled for this Wednesday.  They staged me at IIA, but I have no idea if that is still my diagnosis.  And honestly does it matter at this point, I just want this all gone and done.

     I have been on a trial now of Paclitaxel and Tykerb (lapatinib), every week for the last 16 wks.  I will get my last dose on Monday, thank God.  I have been dose reduced on the Taxel once cause of the neuropathy, and the Tykerb twice... rash, diarrhea, etc... it is some nasty stuff (1500mg to 1000mg).  On my physical exams the tumors cant be felt.  The tumors were 4.6x3.5 and 3.0x2.5. 

    I am scheduled for surgery on July 13 and still have no idea what I am going to have done.  I worry about just having a lumpectomy and not having the clear margins and then having to go back and have a mascectomy anyways.  And with lymph nodes involved should I even bother with trying for a lumpectomy anyways.  And with it being a Grade 3 and lymph nodes involved, someone out of the blue asked me whether I had even thought of having a double.  I was unsure to have one removed now why would I want both?  That just made me giggle.  Sigh.

    After surgery I have to have 4 doses every other week of AC, anyone have any advice on that, I'm a bit worried about the SE.  And then I have to have Rads for 6 wks x 5days/wk and Herceptin for a yr every 3wks. 

    If anyone has any good advice that would be great.  Im soo tired of being tired.  And to think I have another year of this.... blahh!!!!  I am now so overwhelmed with information that trying to find the right answer seems impossible. 

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