LymphoVascular Invasion?

onvacation

MDG - I agree it is scary!  I read about the cold caps - so they really help with the hair loss?  Can you put them on yourself, or do you need help?

sallyyy

hey yes i have lvi without lymphnodes involvement me too

Pumpkin25

Hi. I too have LVI. Nodes neg. stage2. Grade3. Oncotype score 17. Low chemo would only give a 3% benefit. I had rt masectomy , they had to me to have lumpectomy . They want me to have chemo and rads even though they believe it may not help. So I saw another occologist and because I an Er+. 90%. And pr+ 99%. Chemo won't help no reason for rads I had masectomy and all margins and nodes clean but tomoxafein will turnoff estrogen. It is a hormonal cancer even though it showed LVI Why put your body thur that and risk potential damaging your blood and cells. I am getting ovaries out too to avoid ovarian cancer. Did You test for BRCA gene??

Onelife2012

Hi, I just saw my Onc yesterday. My history without boring you too much.......I had a mastectomy, clean margins. I am stage 2, tumor was grade 2 with LVI which I didn't know until yesterday. No nodes involved, all other tests , x rays etc...clear. This tumor was different, it was sent away to a specialist for analysis. They felt it was caused by the previous treatment 11 years ago, something we don,t think about.



My doctor said chemo may help but, because I'd had 10 rounds plus rads before there was a huge chance I would get Leukemia. So the risk outweighs the benefit. he gave me Tamoxifen and said I would be fine. He felt that because all nodes were good and that I'd had 10 removed before, and that all tests were good and that I felt great there was no need to worry. I have to trust him because my first nought is.....well, I'm going to do the chemo....but Leukemia would kill me faster.



I think we all feel that we want to do whatever we can and if that means putting extremely toxic poisons in our bodies...then we do it. We don't always know what the benefits vs risk are. If I had known this 11 years ago I probably would have chosen differently. But, saying that...I might not have been here to tell the story! We'll never know.



Please think hard about your treatment. Ask lots of questions regarding benefit vs risk. If the benefit isn't huge then why put yourself at risk?



Hope this helps

Best wishes and God Bless

Xoxo

lukefrancis1

Same diagnoses as many ilc stage 1 1.9 margins not clear...scheduled for bilateral mast. 10/22

lets all stay in touch! hugs to everyone, barbara 

michellej1980

I'm also worried about my 'extensive vascular invasion'. It doesn't sound good to me at all and I've been worried sick all week since I found out about it. Waiting to hear what oncologist thinks on Wednesday. Hopefully she can put my mind at rest somewhat.



Good luck with your surgery lukefrancis1.

lukefrancis1

I am still so concerned.....some say its just in the breast....feeding the tumor I don't really know...Best wishes to you...will stay in touch

Lauren15

Hi all - I was recently diagnosed with IDC with LVI - Grade 3; 3+ cm; triple negative.  I'm going to do chemo before any surgery.  I don't really uderstand the LVI part yet.  I'm having a PET scan on Wednesday and an MRI after that.  Can you recommend what questions I should ask?  How do I know how bad the LVI is?  Will I find that out after either of these tests or do I have to wait for surgery?  Thanks!  Lauren

jsrose14

Just finding this thread. I was recently dx with bc in January. I had bilateral mx with reconstruction in march. I had an oncotype score of 16 and have been told that the risks of chemo would not outweigh the benefits. I just found out that I have lvi. The path report from the hospital i did my surgery with said there was no lvi. I am having a 3rd oncology opinion this Thursday and they redid the path slides and said there was lvi. I have no idea what this means other than I may now need chemo. I am happy that I went for the 3rd opinion but now we have another bump in the road. Does lvi mean chemo for sure?



Thanks

Jsrose

bluepearl

In Europe they divide LVI into two categories....lymph vessel invasion and blood vessel invasion....and also degree of invasion. I had no LVI on needle biopsy then LVI present after surgery. From what I understand, it is just one of the prognostic factors, but not an especially good one. My tumor was only 7mm, grade 2 (downgraded from 3) with clear nodes (3...and one was a non-sentinel node). Don't know what I'll be told next week by the oncologist.

EJKIRBY

I am also just finding this thread.  I was dx with breast cancer in December.  Had bilateral massectomy in January with immediate reconstruction.  Just had the tissue expanders taken out and implants put in April 11th.  I had requested a copy of my path report from the general surgeon yesterday and reading through it came across the "LVI present" statement.  The surgeon had not mentioned it when I called to get the results of the lymph node involvement a week after my surgery in January.  He had just said there was no lymph node involvement and that I would not need chemo and was good to go to proceed with my plastic surgeon on reconstruction.  He had prescribed Irimidex when I was first diagnosed and it was determined that the cancer was estrogen + and I am continuing to take that.  I had a lumpectomy with radiation and tamoxifen 13 years ago so that is the reason for the irimidex.  I have an appointment with my plastic surgeon May 9th and am going to get a referral from him for an oncologist.  I had thought I was sailing along nicely until the LVI thing popped up and now I am in a tailspin.  Been doing a lot of search on the internet since yesterday....