LCIS and Micro calcifications

RobinLM

Hi Mary, nice to meet you.

Our cases are indeed very similar as I will be having a BMx with immediate reconstruction on tuesday. The B9 lump is still benign however while poking about checking the micro calcs in it they found LCIS. This diagnosis was in April. Two lots biopsies then an MRI scan. Scan was totally clear so nothing visible on it - recommendation was to be monitored but I don't want the stress I've had this year to be a regular thing. Because of that, I've had to have a psyche evaluation, and then do a bit of waiting for a long time slot. So here I am, waiting to go in on monday. Good luck to you too Mary.

Thank you for sharing your post Op experience, I'm hoping mine goes smoothly but who knows.

lciscarroll

Sharon,

Hi, I am 52 years old.  Had my 3 kids all after age 35.   I am an avid runner - I run every single day, also cycle, swim, hike, yoga .. you get the idea.  Then to summarize briefly- I had atypical lobular hyperplasia from a surgical biopsy diagnosed in April of this year.  6 months later had another mammogram of the same breast with three more areas of microcalcifications.  Long story short- diagnosis of LCIS after surgical biopsy.  My pour very small breasts have really taken a hammering.  They are not just dense they are according to the radiologist "extremely dense".  My breasts have always hurt, like when my son gives me a hug.  I have had mastitis really bad twice.  I am waiting to see the oncologist still.  However, something in the back of my head keeps saying- "get rid of them, they are a pain in the ____. "  Also, I explained this to my 15 year old daughter and she immediately said- "just get rid of them Mom, you don't need them".  So, here I am trying to figure out what to do.  I think I know the answer, after researching and researching I am seriously considering PBM with immediate DIEP flap.  I have other reasons for leaning this way- I have a son with Autism who is extremely dependent on me.  Also, my close friend passed away from breast CA 20 years ago.  

This forum and all the wonderful people that come here will help you.  They have helped me, just by listening and sharing their stories.  It helps you to sort out all the information.  Would love to keep in contact with you.  Seems were are in the same boat together.

Sincerely,

Laurie

vmudrow

Laurie,

I too had ALH diagnoised in Jan. of this year.  Up to that point I had had several biopsies on both of my very small dense breasts.  I finally decided on PBM, done in May and last Friday I had the TEs removed and the silicone implants put in (I decided to go a bit bigger than my barely an A cup).  I have been happy with the whole process.  No more biopsies, MRIs, worry etc.  I am almost 50.  I was able to have nipple/skin sparing masectomies.  Let me know if you have any questions - val

RobinLM

Hi Laurie

I've had a history of very dense breast tissue, massive fibrous lumps with micro calcs etc. Had my first screeninbgmammo this jan, got recalled because of the same old lump. Had 2 biopsies and an MRI scan. They found LCIS, sclerosing adenosis, atypical hyperplasic growth, etc etc...decided I couldn't stand the strain of these procedures every year, daughter only 13, work as a dayrater - no paid time off......rather lose my breasts than my hair and risk death...many reasons - so had BMx on 31st august with immediate reconstruction with implants (no nipples now but skin sparing)......PAth report showed LCIS in both breasts, with something approaching DCIS in the right one..... Nothing invasive though - which was fantastic.... - original lump was still B9!

All I feel now is relief. I'd be living in constant fear of something developing. I know - just from the waiting periods - that I wouldn't have coped well with that scenario. As for the implants, not all plain sailing, but worth it. My foobs are smaller than my boobs were but higher up. Painful while they adjust to their final position.

No regrets for me in fact I fell lucky to have been given the heads up. Only you know whether you'll be able to cope with the strain without it ruining your life - you will make the correct decision for yourslef based on that knowledge..... PM me if you have any questions.... good luck with everything

Robin

derbostwick

Dear Laurie, Sharon and all others who have posted their LCIS stories:,


THANK YOU!!!!! for your post. I by accident found this post and yours and others offered so much hope!

I was newly diagnosed with having LCIS and have to undergo the excisional biopsy next month. It doesn't matter what the results will be because my mother died of breast cancer and my two sisters not only have had breast cancer (3X each!), but also positive for the BRCA gene so I know the surgeon that I will meet for the first time when I discuss an excisional biopsy, will strongly recommend prophylactic bilateral mastectomy.
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I've never heard of LCIS until I received by bx results a week ago. I've come to the conclusion
that not only does my family history making me a ticking time bomb, but even more so witw this new dx of LCIS. I am in my early 50's and try to workout almost daily. Since my mom and sisters were all in their 30's when they got breast cancer, I figured, maybe the gene bypassed me. And so maybe it did, but now with LCIS, I'm a greater risk for breast cancer for a new diagnosis of LCIS! The needle biopsy for microcalcification clusters were negative as well as my MRI so that is good
new



This is a silly question, but can anyone tell me if they LIKE their new reconstructed breasts following their PBM???? I've seen very few pictures and...



Thank you all so much for your posts!! I feel stronger and more assured. I love my husband so much, but he just lacks the female's point of view!!!



God bless you all, and I'm going to spend the next hour reading the previous posts!!!



Obviously, I'm thinking about PBM. From what I've read, I can be monitored closely, but I don't think I can endure another steriostactic needle biopsy!!! My breast is still black and blue!

KellyMaryland

derbostwick-

Hi and welcome.  I recently had a PBM (mastectomies with tissue expanders in January) and exchange to silicone implants (just 5 weeks ago) for PLCIS.  For me it was not an easy road.  I was 42 at the time and in good shape and totally blown away by the recovery process.  But now, I must say, I feel great and my breasts look fabulous.  I spent quite a bit of time researching breast and plastic surgeons, which is the real luxury of an LCIS diagnosis- time to make decisions.  I was a candidate for skin/nipple sparing and my incisions are in the breast fold- not at all visible.  I'm a smallish person so not lots of extra fat, which resulted in some rippling across the top of the breasts- interestingly, if I stand with correct posture (I tend to be a sloucher) the ripples disappear totally.  My nipples look and react as they always did, but I don't actually feel much of the sensation, which is a downside.  Also the silicone implants get colder than the rest of my body, which bothers me some.  My PS used Natrelle 45s, which offer great projection.  All in all, I actually prefer the way I look now. 

-Kelly

wolfe33

Hello ladies. I was diag with LCIS in December of 2009.  I am adopted and have no idea of my family history.  I attempted the watch and wait process, but it just didn't work for me....it made me crazy (not to mention my husband and kids and their anxiety) so I decided to have a BMX with immediate DIEP.  I couldn't be happier with the whole process.  The surgery was done on June 1, 2011.  It was 9 or so hours long.  1 night in ICU,1 blood transfusion, 4 nights stay on the surgical floor and then finally home!  I am still having some emotional issues (I do not have nipples yet, very weird to look at)....but I haven't thought about BC since!  I think about my stage ll surgery coming up, but not about living with fear.  I know that this is not for everyone, but it was absolutely right for me.

Oh yes....the question about being happy with the new breasts....I am thrilled with the shape and size.  I will be totally happy once I receive the nipples and tattoo.  My only issue was a problem with the anesthesiologist...my jaw was dislocated during the surgery.  That is a HUGE bummer, and looks like I may have to have jaw surgery.   Anyway, there is a great forum for surgery: before, during and after....check it out to see what other experiences there are out there.

-Amy