So, what if you're NOT "moving beyond"?

Binney4

So many of us are experiencing on-going problems from bc treatment, and our doctors seem to know almost nothing about that. New York University currently has an on-line survey available for us to tell researchers about our reality, whether it's on-going pain, fatigue, complications, lymphedema, PTSD, anxiety -- or even whether we really have "moved beyond" with no problems. We need to be heard, and this is our opportunity to help define the direction of future research.

PLEASE take a few minutes to fill out the survey. I've taken it, and it only takes 15 minutes or so, gave me spaces to type in my own comments and observations, and it's completely anonymous. PLEASE speak out by letting the researchers know what this journey is really like. It's here:

http://www.stepup-speakout.org   (The home page has a paragraph about the survey and a link to the page.)

Yes!
Be well,
Binney

Binney4

Aaaugh! Just realized the link I had there wasn't working. Just changed it -- please try again!

Thanks
Binney

thenewme

Hi Binney - thanks for sharing!  I agree - definitely important for "them" to know that we don't get the option to just close that chapter of our lives when we leave the last official treatment!

iodine

Great idea if they read them.  I'll take the time and hope it helps.

smithlme

I did the survey...

Linda