Calling all TNs

Cathytoo

Cocker...so very sorry to hear this news. Tessa is now free of pain. She must have had an amazing life filled with so much love from you.

JAN69

My dear Cocker, I'm so sorry you have lost your little love. I'm sending hugs and warm thoughts as you grieve. Love, Jan

greenae

Dear Cocker

I am so sorry for your loss. Tessa was lucky to have you, and she will Live Forever in Your Heart.

Hugs

Arlene

Luvmydobies

Cocker, I'm so sorry about Tessa! (((((HUGS))))) I'll keep you in my prayers. I know she had a great life with you. RIP sweet Tessa.

NavyMom

Sending hugs your way, Cocker.

Loved your post, Greenae.

Praline

(((((((( Cocker)))))))))- I am so sorry.

BanR

Cocker...so sorry to hear about Tessa! I have always wanted to ask you to send a picture of your cocker spaniel ..thats what your member name is too!! I hate this disease Cancer...it has eaten away so may wonderful lives ..and it has not spared animals too. There is no cure and the damn disease has been around since 5000 years..that is the beginning of civilisation and all we can do is helpless die or watch our loved ones die.

Lookingforward66

Cocker,

Many hugs.

Marsha

Shopgal2

cocker hugs to yo

Nanuan

Hi all,

I rarely post. Last year, I forgot my password then I had to re-sign up to get my new username&password.

I just want to stop by to say hello to the newbies and all tnbc sisters.

I have passed the 4 years mark. So far so good.

The newbies sorry to see you here but glad you find this great place. You will get what you need to support you during your treatment.

I see Navymom and Cocker are still here to support each other. Kind and helpful.

Cocker, so sorry about your adorable Tessa. RIP.

Nuan

Teka

Cocker, feel comfort in fond memories of Tessa!

JJ62,

*Oldies* and *Newbies*

Allydp

Cocker - wrapping my arms around you and giving you a huge hug. I'm so very sorry. I wish we had more time with our beloved fur babies. You gave each other wonderful years and were beyond blessed to have one another.

Arlene - beautiful post.

Nuan - congratulations on 4 years.

koala55

First post. Diagnosed October '15 (Age 60) with TNBC Grade 3, Stage 2/3. Tumour was about 3 x 4 cm so quite big. Definitely 2 lymph nodes involved at that point. Had 12 weeks of Taxol with Carboplatin added each 3 weeks. Tumour reduced significantly during this but was still evident before surgery. Surgery 4th February - lumpectomy. Had Sentinel Node Biopsy but surgeon removed about 17 nodes (first layer). Pathology report showed no cancer in lymph nodes or tumour so a pathological complete response (pCR). Return to oncologist today who had suggested 4 rounds of AC spread over 12 weeks plus if I wanted to, to add two more rounds of Taxol/Carbolplatin. I did seek a second opinion on this and recommendation was to do dose dense AC over 8 weeks only and that there was not enough evidence to warrant more Taxol/Carboplatin. Radiation would follow chemotherapy.

I handled the Taxol/Carbolplatin really well with limited side effects apart from tiredness and of course hair loss. Fingers are crossed that next type will also go well and hope that I am making the right decision about not having the extra taxol/carbo but from my research it appears the dose I have already had is sufficient.

Didn't see myself ever posting on a site like this but here I am. My treatment is being carried out in Singapore where I work but I will return to Australia in June (to retire) and hope all of this will be behind me.

littleblueflowers

Oh cocker, I am so very sorry for your loss. Bless you and bless Tessa.

Meadow

Yes Cathytoo, do you think it is too late after the infusion to be an allergic reaction? Was it 2 weeks?

Welcome Koala! We are glad you are here.

Cocker, I am so very sorry for your loss of your beloved pet. Sending you comfort.

WannaCruize

Thanks for the warm welcome, everyone. Not a place I would choose to be, but happy to have people traveling this road with me to keep company with. You all understand in a way that no one else can.

I start chemotherapy (TC) on March 9th, and I did tell my doctor's I wanted a port installed. However, the surgeon says he prefers to wait until 6 weeks post BMX, so there are fewer complications/issues. So, because I'm pushing to start chemo within 30 days of my surgery, I will have my first chemo without a port.

Cocker, so sorry to hear about your beloved dog. At least you know Tessa is no longer in pain, and in the long run, that's what was best for her. Here's a quote my sister sent to me that i found comforting:

"Grief never ends... but it changes.
It's a passage, not a place to stay.
Grief is not a sign of weakness, nor a lack of faith...
It is the price of Love."

LRM216

Annie - I am holding you close to my heart across the miles. I am so very, very sorry for the loss of your precious Tessa. I know how much you are hurting. Be strong, sweet friend and know that you will someday get to greet Tessa again.

Hugs,

Linda

Teka

Linda, Hi!

Cocker_Spaniel

Oh Linda so good to hear from you. I hope you and your beautiful girls are well and happy. Yes I told Tessa before she went that I would see her in Heaven and to wait for me. Please come on more often I miss your posts so much. xx

Ally I caught that hug and it made me sure that Tessa will be well and happy again. Today all I wanted to do was go and get her back.

Thank you ladies for being here for me. Love you all and Mike so much.

BanR

While i was reading about Tessa and how she died of cancer and then we have all of us here who are dealing with it and many more in the stage 4 forums too....I feel generally helpless thinking about the disease . Perhaps a cure is just around the corner and when it arrives what huge happiness for everyone and at the same time what huge regret for all the millions of lives lost so far because of the lack of cure for this disease... as i kept thinking about this, i get a call from my mother. My uncle ( fathers elder brother ) gets throat cancer diagnosis today..non smoker, non drinker...active, healthy and a reputed academician who dedicated his entire life to research. From no family history of cancer ..to two cases already ..him and me, in a matter of 3 years!!

Cocker_Spaniel

BanR I know how you feel. Even though Tessa suffered so badly as no dog should, it also frightened and saddend me as well. There is no end to this terrible disease. All the millions that have been poured into research and yet no cure found. The only thing we have had since my mother died at 48 years and my grandma not too long after, all of those years ago, is an improvement in treatment yet no cure. How long is this going to go on for. What about our family and relatives and yes, the other people on this site. Is this epidemic levels, I think so. Nearly every day I hear about someone being diagnosed, going through treatment or dying with this fecken awful disease. Your uncle, living a healthy life as much as he can, and yet he gets diagnosed. I feel angry that this is happening and it makes me scared for my family. Where is all the money going that is raised. How long do we have to wait before we get that huge happiness and how many people and animals are we going to lose to it. How many times have we prayed and how many times have no good come of doing just that. What can we do about it??? How can we band together, all of us, on this disease. Today I am questioning God. Is there one and if there is why is he not stopping this. Tessa didn't deserve this horrible cancer. She hurt nobody, ever. I could leave that beautiful girl with all my grandchildren safe in the knowledge that she would never hurt them and they would be protected by her. I feel so down which is unlike me, but I feel it's time something is done about this.

StefLove

Cocker, so sorry to hear about Tessa. hugs!

Have been away for a few weeks and sorry to see so many new faces as well. Welcome to our little fabulous group!

After chemo and radiation, did anyone lose their eyelashes AGAIN?? I finished chemo end of Sept, finished rads mid-Jan and now my eyelashes decided they don't want to hang on anymore...again.

jenjenl

Stef, i lost mine 3 times!

Ag23

Hello all,

I would love to hear a long term survivor story from someone that had significant tumor size left after chemo. My fear is that all of those who have survived disease free are women who had a pcr or near pcr. After ACT, the tumor taken out during surgery was 3.2cm. They gave it a score of 2 (in terms of response to chemo, with 5 being the best).

If you or anyone you know is a long term survivor that had a high residual cancer burden, I would love to hear from you! I plan to collect these stories to read on days when I need encouragement.

I will be starting rads and hopefully a clinical trial doing concurrent Cisplatin. My MO has also discussed adding Xeloda after this.

Thank you!
Ally

roserosie

Hi ally,

I am currently in the same situation as you, I had ACT and still had a tumor size of 3.2 cm and

8 out of 9 nodes positive, I was so excited to finally be finished and then to get the news that I still

had all this residual cancer left I was really devastated. I am going to do the carboplatium/xeloda trial that will be starting shortly. I just finished my radiation and can't wait for my skin to recover, This is definatley a long road, never thought I would be so excited to sign up for more chemo:)

Your MO discussed doing Xeloda after the carboplatinum?

thanks

Rose

ALHusband

BanR when my mom was diagnosed with non hodgkins lymphoma she said to the doctor, "How can this be? Cancer doesn't run in my family." The doctor's response was, "In all of the families where cancer DOES run in the family...someone was first." And man did that turn out to be a true statement. She was one of ten kids. Within a year of her diagnosis, two of her sisters and two of her brothers got cancer. Each of them different cancers from breast to lung to colon to lymphoma. This beast does not discriminate!

BanR

You are right Al ! Its is really strange.. As for me, my gene profiling was all clear and i was happy that it is just me, for some reason something went wrong with that single cell of mine which managed to form a tumor, but it is not something which i have inherited or passed on. And then my first degree relative gets diagnosed in two years...and neither me or him have any lifestyle issues too.. Apart from the air which we have to breathe however it is and all those radiations which we have to face however it is. I am pretty sure that all this is 90 percent somatic...absolutely no role of genetics...its just random...or is it because nature is planning something else for mankind next??

Cocker...I always prefer to call you cocker instead of Annie! I find it cuter and that is the way I will always address you and each time I type it, I will remember dear Tessa!! I perfectly get your anger and helplessness...i feel the same too. I have noticed something...SO many criminals are in jail, so many in death row...none of them get cancer. So many notorious robbers, terrorists are hiding here n there....they have to be captured with great difficulty and punished...they dont naturally die of cancer. Only we do...normal citizens of the world, including children too.

I came across a weird quote in facebook a few months ago..." Dirty minds give rise to more diseases than dirty streets do" I instantly went off...most people have this notion that pure and positive souls dont get diseases, especially cancer. Cancer is a disease which can be cured with strength, spirituality and positivity and cancer is caused my negative vibes etc etc. What a misconception!!

So till the time a cause and a cure is found...most people ( esp the ones who have not faced cancer) will continue having their own theories about this disease.

Ka-cey

Dear Cocker

I am so sorry for your loss. We had to say goodbye to our 2 little dogs last Sept., so I completely understand what you are going through. My dogs were of great comfort while I was going through treatment.

Take good care of yourself and your family during this difficult time.

ALHusband

Cocker we had the world's greatest dog. A pug named "Ed". We had to have him put down a week after Kath was diagnosed with her TNBC. When it rained, it poured. Very sad day indeed. So sorry to hear that your time with Tessa has come to an end...for now. "For now" is the key. You'll see her again. Stay strong and God bless.

HausFrauMi

hugs Cocker!! Tessa has crossed the rainbow bridge.

LifeAloft-- I am doing neoadjuvant chemo. Started the 19th Feb. Friday is my 2nd AC. 4 AC then 12 Taxol. Then lumpectomy followed by 6-7 wks of radiation is the plan

I am finally feeling like normal about 8-9 days post AC. Not looking forward to starting all over again on Friday. Hoping the side effects are the same so I know what to expect and how to manage. I see my MO Thursday and may ask about Prozac or something to keep the crying for no reason at bay!! Wasn't expecting that S