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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited December 2014

    Thanks for the info Rad! If I didn't have the bowel issues I'd be a lot better off. I've had a wonky digestive system for a long time but I used to be able to pinpoint the problem like certain foods. But lately it seems like things bother it that shouldn't. I know stress makes things worse. I'm just messed up after C Diff. It was just a double whammy for me. I'm terrified of things that never bothered me before. For example if I get something simple like a pimple on my arm or something I'm scared it's going to turn into an infection that requires antibiotics because antibiotics are what gave me C Diff! It sucks and it's so hard for me

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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2014

    Just shot my e-mail off to Cavuto as well. I watch him often and never considered him an a$$ - now I do:

    Mr. Cavuto:

    I watch you often and have always been a fan, but to say I am shocked by your absolute ignorance and the horror you have instilled in so very many triple negative cancer gals is just beyond me. I am a triple negative breast cancer gal myself, coming up to my 6th year anniversary this February. While a cancer diagnose changes one's life forever, as I will always be looking over my shoulder for the rest of mine, please know that your comment that "recurrence is inevitable" is so tremendously incorrect and so monumentally harmful to those with this disease and those just diagnosed. It is true that triple negative cancer is the most difficult to treat, and when diagnosed after it has already reached Stage IV, yes, a great number of those cases do not respond to the many chemo treatments we must endure and do not often end well, but for your information, TNBC has a success rate of 70 to 80% and our chances of recurring go back down to normal when we reach 5 year survival - disease- free. While there are always exceptions to every rule and a rare few will recur to go on to Stage IV, and "inevitably" a premature death, most of us do not. You have done a grave disservice, while honoring your friend, to all of the many triple neg women that have, or are presently undergoing, the worst, most aggressive treatments of their lives. No one should ever have to endure the pain and suffering that we cancer gals have to go through in order to save our lives - but save our lives it does. My condolences to you and all those that loved Ms. Goodman as her life was cut much too short. Nothing can hurt her any longer - may she soar high and free.

    Linda McMichael

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited December 2014

    Luvmydob - My MO ordered a scan for me after I was done with my first treatments. I was going to go crazy if I didn't know I was clear and he said they only did scans if something wasn't right. So, between the two of us, we came up with "a constant pain in my right rib" to request the CT scan and we got it. I hope you find a way to get one to put your mind at ease.

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited December 2014

    Thanks Cat! I'm about to get on a plane to go to TX for Christmas. So when I get back, I'm hoping to get some answers. If my Onc doesn't order a scan, I'll have to push my PCP to do one. She sees me every three weeks and I see her next Monday. I'd rather my Onc order one at the Cancer hospital where he is but he never wants to do one. While I do hope this all is from intense stress, it still seems real to me! I know they look at things from a doctor's perspective, but everything isn't textbook either!

    Also to you ladies who've sent emails to the reporter from Fox, thanks, and keep us posted on any response you may receive. Hope everyone has a great day. Love all of you more than you know

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    that was spot on Linda! Thanks from all of us. Thank you inspiredbydolce as well for allyiur great information shared with us

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  • Zenful
    Zenful Member Posts: 599
    edited December 2014

    Hi ladies! I have not posted before but have checked in from time to time. Unfortunately, the few times I checked in, I was reading about someone's recurrence (or worse), and because I work hard at staying positive every day, I didn't want to be reminded of those possibilities, so I have been absent. However, thankfully, I checked in again and have found this group to be a wonderfully positive, supportive group of ladies, so I plan on checking in regularly now, as no one "gets it" quite like you do. I have spent the last couple years dealing with treatment and reconstruction. I am closing in on my two year diagnosis anniversary and looking forward to the three and five year anniversaries. And Linda, what a wonderfully eloquent letter that was to Mr. Cavuto. You said it with both conviction and kindness. You ladies rock!

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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2014

    Thank you Lisa and Zenful for your kind words. Was really shocked when I read his tribute to Annie Goodman, just never expected him to be so mindless with his words and just how much they would frighten and harm so many that would read them. One would like to think that a public figure with his stature at FOX News would have researched and would have known the facts before writing and speaking something that held no truth whatsoever. Just saying....

    Want to send my very best wishes to all of my sisters on this site joyful and loved filled holidays.

    Linda

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited December 2014

    I think Neil Cavuto's words have been taken out of context. Apart from those two unfortunate words it was a very nice tribute to Annie Goodman.  How do we know she didn't say those very words to him.  Knowing the aggressiveness of the TNBC, if mine returned I would probably say at some stage it was inevitable really.  I've learn't more about flaming recurrence on  HERE than anywhere else so maybe we need to stop and think sometimes without getting words out of proportion.     


     

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  • JAN69
    JAN69 Member Posts: 947
    edited December 2014

    Good point, Cocker.

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2014

    My xmas vacation starts right now and I am pumped! I have so much wrapping to do these upcoming nights. The kids are freaking out, it's so sweet and innocent :)

    Last Friday I got my 3d nipple tattoo, it was a strange experience but worth it - they look really good. It was a lot of driving for 1.5 hour tattoo. I drove from NC to MD. Expensive trip 250 hotel, 100 gas, 100 food and 800 for the tattoo. I took a friend I met when in chemo - it was my 1st infusion and her 3rd, she was so kind and welcoming, we've become close. Now we've always done dinners, lunches and such. I've come to realize she talks....A LOT. But it was fun :) The crappy part was i got a letter in the mail that BCBS did not approve my in for out claim and that my employer doesn't have this on the plan. Bummer but so typical for me.

    Today when I left from my last surgery post op appt they asked if I wanted to pay my 1800 bill....whaaaat? So now I'm battling it out on that...tis the season. It was pre approved and i've met my OOP so not sure what the issue is.

    Other than the typical crap always happening I've very happy today. I am hopeful that I can start to put this behind me heading into 2015.

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    Hi Friends,

    Just a quick pop in to tell you that I just caught the end of a segment on Dr. Oz, where they were discussing Turmeric tea. On the show, Dr. Weil showed us how he made it, and I went online just now to see if you can buy organic turmeric tea, and you can. Here is the link, and it has over 20 5-star reviews. I'm ordering it now and will report back. For today, I've added 3 big shakes of my turmeric spice bottle to my green tea. LOL Not sure how this experiment will work ... but Turmeric, I know several of you have posted that you are supplementing with it, and they said today it is one of the best things to fight inflammation with. You might also be able to get it from Amazon, but wanted to post this particular link since all the reviews were so good about it.

    Edited to add that the shipping is cheaper through Amazon, so if you decide to order it and you have an Amazon account, shipping was cheaper by $2.

    Organic Turmeric Tea

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2014

    Beware of Dr Oz, he's been getting some heat for not being able to back his "medical claims".

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    Exactly, LOL - Dr. Oz has made some outrageous claims before, I seem to remember some criticism about an apple juice claim. So, this information is from Dr. Weil about the turmeric. I found more info on the LiveStrong website and will post it here. http://www.livestrong.com/article/262079-how-to-us...

    It says to make the tea, put one teaspoon in 4 cups of hot water. I think I had 1 teaspoon for 1 cup of green tea, so maybe I should back it off a bit. But reporting in, that the taste was not bad. I'm drinking it now. It also said you can add ginger, which is another anti-inflammatory. and when I was shopping for it online, I did see some "turmeric and ginger teas" out there. Anyways, for now, I'm drinking the green tea with turmeric in it. Will let you all know how the official tea tastes once I receive. I used to sprinkle it on my steamed veggies, but I've switched to a raw veggie diet and so I haven't had any turmeric in quite some time.


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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    JenJen - I just read about your tattoo. Did it hurt or do you not have sensation? Just the past few months I've started getting feeling back everywhere, from under my arms to parts of my chest. I guess it really does take some time for the body to completely heal. I remember my PS saying the tattoo would not hurt if I wanted it, as I didn't have sensation. I never got it, as my husband said I looked great, just like a mannequin, and I also did not get the nipples done either. lol I've seen the photos of women with the tattoo and they have all look phenomenal. Congrats on finally starting your vacation, and you will have to get together an assembly line to get your packages wrapped in time. We are not much further ahead than you either, and have just started this past weekend. I was supposed to be on vacation from the 15th on, but I decided to take on a few more clients before the New Year. My husband asked me what I wanted for Christmas and I couldn't think of one thing, I just told him my health. But I did manage to find a perfume that I wanted to try. I haven't used perfumes in over 3 years now, but I'm feeling a little braver and I want to spray some somewhere, hair, clothes, car ... something! lol :o)


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  • slv58
    slv58 Member Posts: 1,216
    edited December 2014

    just a heads up for those with diabetes or warned against blood thinners taking turmeric or curcumin-I quote


    "Turmeric and curcumin supplements are considered safe when taken at the recommended doses. However, taking large amounts of turmeric for long periods of time may cause stomach upset and, in extreme cases, ulcers. People who have gallstones or obstruction of the bile passages should talk to their doctor before taking turmeric.

    If you have diabetes, talk to your doctor before taking turmeric supplements. Turmeric may lower blood sugar levels, and when combined with medications for diabetes could cause hypoglycemia (low blood sugar).

    Although it is safe to eat foods with turmeric, pregnant and breastfeeding women should not take turmeric supplements.

    Because turmeric may act like a blood-thinner, you should stop taking it at least 2 weeks before surgery. Tell your doctor and surgeon that you have been taking turmeric."

    Source: Turmeric | University of Maryland Medical Center

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited December 2014

    Wishing all of you wonderful ladies a very Merry Christmas and a peaceful, happy, and more importantly healthy New Year.  May cancer stay away from all of us.

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    The information Shari shared is also mentioned within the link I supplied to the LiveStrong website. There is a "When to Avoid" and "Warnings" section on the linked page. LiveStrong is really good about stating benefits as well as risks on many topics on their site.

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2014

    Inspired - no feeling at all but it was weird having some other guy than my DH that close to my boob. I only did the 3D tattooing I never got the nipple made.

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    Hi Everyopne .... logging on remotely to wish you all a Merry Christmas/Happy Holiday and best wishes in the New Year. We can prevail as strong healthy women in the New Year!

    #TNBC Strong

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Hi............

    image

    Busy wrapping, Son and Daughter are home for Christmas Eve and Day!!

    image

    BBL *2015*

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  • eileenpg
    eileenpg Member Posts: 467
    edited December 2014

    MERRY CHRISTMAS ALL MY TNBC BUDDIES!!!

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2014

    Teka, I love your cat (tree is pretty too!) How big is he? We also have a big cat. There is a stray we are trying to help and he looks like yours a bit. So cute!!!!

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Teka is our female maine coon cat.

    Daughter chose the name "Teka" which means "angel of death" before I was Dx with BC.

    She's more on the small side but dwarfs other cats.

    Loves to play fetch but not a lap kitty.

    But content being an indoor cat!

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited December 2014

    Wishing everyone a Merry Christmas!!

    ((((((((((HUGS))))))))))!!!!

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  • Tobycc
    Tobycc Member Posts: 789
    edited December 2014

    thinking of all of you this Christmas Eve, and glad to know I have you all!!!

    Merry Merry Christmas

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  • slv58
    slv58 Member Posts: 1,216
    edited December 2014

    Merry Christmas filled with love, happiness and health to all of us!

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2014

    Merry Christmas everyone!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited December 2014

    Merry Christmas to All! May we have Happy & Healthy New Year too!!

    Marsha

    Day after Christmas is my 2 years.

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  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2014

    Merry Christmas everyone!! I've been reading but not much posting! I spent a great part of this year doing my reconstruction surgery. I am just 1 week out from my last surgery. I can say that my CT scan in November was all clear! So I remain NED! I want to wish everyone a happy and healthy new year!!!!!

    Also, I have been taking 500mg Tumeric for awhile now and no problems!

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  • Meadow
    Meadow Member Posts: 2,007
    edited December 2014

    Gram. great news!

    Thanks for all the Merry Christmas wishes, and sending you all mine too! Merry Christmas!


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