Calling all TNs

Redporchlady

Thanks for the info.  I have been staged now but from what all the doctors have said you are right that staging is just a reference.  My prognosis is also determined by my health and age so not to get worried about staging.  Their main concern for all the tests were to make sure it had not spread.  I am ready to kick cancers butt.  One chemo treatment under my belt!

ALHusband

My beautiful wife Kathleen, hands held high, in the "Survivors' Walk" (I'm the "photographer" so not in pic. She's number 3836) associated with the Liz Hurley Ribbon Run in Huntsville, Alabama this past weekend. I wish everyone in this forum many decades of "Survivors' Walks" of your own!

Radical2Squared

Redporch,

You already are kicking butt! Keep at it!

redheeledwomen

HI TNBC Sisters,

I went back to work on Tuesday October 14th and by Saturday I was in the hospital diagnosed with Pneumonia.  Eventhough, I ended chemo on 9/23 my immune system was not ready. While in the hospital I had 3 CT scans (brain and chest).  Brain was clear but chest detected the pneumonia.  I also found out I can NOT have an MRI with the type of tissue expanders I have (Allergan 133SX).  So, my MRI scheduled today was cancelled.   

Anyhow, everyone at work was so happy to see me and even dedicated Friday to my return (everyone wore pink).  I am now out of work for the next two weeks while I recover. 

Everyone take it easy!  It is flu season and not safe for any of us. 

P.S.  I should have taken the that last Nuelasta shot

Meadow

Al, your wife is a doll! happy happy for her, and for you. thanks for sharing

Red, so sorry youare sick, hang in there!

Tobycc

hi Redheel, so glad to "see you" !  Been thinking about you and wondered how your test had gone.  

Take good care of yourself!!!! Maybe yiu could wear a tiara on Fridays too?

Meadow

Last week I had my first scans since end of treatment, 6 months out. So happy to report I am still cancer free, NED. Thanks for all the support, and thanks to God.

Tobycc

praises to Him Meadow!

Anonymous

Great news, Meadow!!

Cocker_Spaniel

Hi ladies.  So many posts to  read and catch up with.   

Simple - fantastic photo of you and the other ladies.  Wonderful that you were all able to get together and you are looking great and cancer FREE.

AL  Husband your beautiful wife is just like you said. 3836 is so beautiful.  We also do the Pink Walk here in NZ| and so many girls and men turn up for it.  It's always a fantastic day.

Stupidboob - thinking of you and hoping you gets some answers soon for the breathlessness.  I should imagine its not easy to lose weight especially when you are worried about the cancer coming back.  I have the same trouble with doing exercise.  I sit and type for the major part of the day and when I get home I am just too tired to even think about exercising.     

Lovemydobies - as much as we probably all hated periods I hope that is what is happening and yours will return soon.  I do think its best if you get another opinion for the vaginal discharge though so you can put your mind to rest.

Somebody asked about pain in their other boob.  I have been having intermittent pain in my right breast so have just had a scan and a mammo.  All was well thank goodness but they said the radiation can cause this pain and said it was costochondritis (Inflammation of the ribs).  Radiation can make them rub together and cause the pain. Since the tests came back all clear I haven't had the pain (Duh, it's all in my mind).  

I really believe its the skill of our surgeons that determine our fate.  I had complete faith in mine from day one because for the simple reason I had nobody else to trust.  He has turned out to be spot on and I wouldn't look for a second opinion all the time that he is around.   

Our minds will always go to the fear of recurrence with every little or big ache or pain. This is so natural but I find the more I push it to the back of my mind the better I feel and the longer those thoughts stay away.  I stay away from Mr Google and any threads that mention recurrence because I just don't need them and neither do I want to go there, my mind does enough of that without extra help. 

Thinking of you all ladies and sending big warm hugs.  Its my birthday tomorrow and I never thought I would be so pleased for it to come around again. 

Annie     

Curlyq1974

Cocker_Spaniel -

HAPPY BIRTHDAY!!!!  May you be blessed with many more.

Enjoy your day and those who love you!

~Janet

NavyMom

Happy Birthday Cocker!  Time to Eat CAKE!!!

LRM216

HAPPY BIRTHDAY, to our sweet Annie.  May this year bring you every happiness!

Love,

Linda

ksmatthews

hello ladies popping in to say hi and that I think of you all often. I tried to read some posts but way to many. I hope everyone is doing great and that we lost no one. Love and hugs 

Lisaj514

I'm loving joan Lunden on all the shows recently. She's doing a great job in a classy way I think. She seems so real but they dont give her enough time on the shows. Today was dr. Oz. she wanted to talk to audience girls longer but was cut off due to time. Following her on fb and her blog

Annie, happy birthday. I also have intermittent pain ( small twinges) in R unaffected side. Mri last month showed nothing. Twinges are in the same area as my lump in leftie, strange

slv58

Annie, wishing you a wonderful, healthy happy birthday! I agree with you about how your attitude changes when you get to celebrate another birthday-I love mine now! lol

lilyrose53

Happy Birthday Cocker!   I am looking forward to more also.  Hope you are doing well.

Hugs,  lilyrose

ALHusband

Happy Birthday Cocker! Meadow...GREAT news!

Luvmydobies

Happy Birthday Cocker!!!

Meadow, so happy for your good news!

HUGS everyone!

JAN69

Happy Birthday Cocker.........We made it another year!  I miss hearing the latest stories of your dog, whose name I can't remember.  Jan

Cocker_Spaniel

Thank you for the birthday wishes ladies.  It was a lovely day and my family all came last night for dinner, which my beloved old fella cooked. 

Jan it's Chloe and although she has given up taking out tins from the recycling bin and chewing every little inch of them she still gets up to other things.  I brought a lovely big new cream shaggy rug. I found out last night that if she wants to hide a piece of her meat from Tessa she hides it in the rug, little sod.   

I told a joke to my work mates today. I said  "You know, out of all the 7 dwarfs, only one of them is happy"  One of the girls said 'which one'.      

Keep well and happy ladies.  If you are having side effects may they fade away quickly.  

wendeeB

Ah Cocker!  I'm up at 0245 here in the States with corticosteroid induced insomnia, and your home made it with it!  Thanks!

Jennjdance

Hi everyone. My name is Jen, I wanted to introduce myself. I'm back after 4 years and wondering if anyone has had a similar experience to me. 4 years ago I was diagnosed with triple neg breast cancer. I found out I had the breast cancer gene as well. With that knowledge, I had a double mastectomy, tram flap reconstruction, and 16 rounds of AC/T. I was lucky that although it was stage 2, I had no lymph nodes or mets. I thought I was in the clear as time went on. I got more and more comfortable and even had a baby one year ago. Coincidentally, my first son was one when I was first diagnosed with cancer, and now my second son is also one. A few weeks ago I found another lump- this time in the OTHER breast. My doctors said it was impossible- where could the cancer come back if the breast tissue was gone? But as we went through the tests one by one, things got very serious very quickly when we realized it was cancer once again. A week and a half ago, I had a lumpectomy, and found out it was exactly the same type/stage of cancer that it was four years ago. Stage 2A triple negative breast cancer- no lymph nodes or mets once again, luckily. And we also found out that it's a new primary, not a recurrence. My doctors said this rarely rarely happens, they've seen it happen 3 times. I can't believe I'm here once again, and I can't believe I got a new primary after a double mastectomy and all that chemo. It's so scary. This time I'm doing cold caps to try to save my hair. To me, losing my hair was the worst part of the experience last time and took 2 years for me to get back to "normal" (my normal is long). Hoping I can get some support here.

Meadow

Jenn, so sorry you are going through this. I am glad you came here for you will certainly find support. How can cancer come back in tissue that is part of reconstruction?! It is just so very frustrating! You have fought this before, so you know you can do it again. Has your team talked to you yet about a treatment plan? Again, I am very sorry, do not get discouraged.

SpiritBlessing

Hi Ladies,

I have posted on occasion and check postings once in a while. Thought I would reach out again. I am on another board with other Christian women but wanted to try one with ladies with the same type of dx that I have. I see most of you are not mets which if you see my profile, I am. I am on a study trial and was hoping to find others who might be. I am doing well and have been on this trial since 11/25/13. 

Jenn sorry to hear you have to return as your story seems surprising. With this dx it is hard to really have it too far from our minds. I am glad you were able to to have 4 years. Stay strong. 

Lucy

Luvmydobies

Jenn I'm so sorry you have this again! My Onc told me that even though I had a mastectomy it doesn't guarantee anything because there is "some" tissue still there. It's apparently rare though. It does suck though! At least it's early stage. Hang in there and you can ALWAYS get support here. We're right there with you! Don't forget! HUGS!!!

SpiritBlessing I don't share your diagnosis but I am a Christian. Feel free to PM me anytime or just check in here because no matter what all of us are here for you. Glad you're doing well in the trial. HUGS! I pray for all of us here!

LRM216

SpiritBlessing -

Just wanted to inform you also that there is a Triple negative thread in the Stage IV forum.  Maybe you can get some info there as well.  Wishing you all the best.

Jennjdance

Thanks everyone! Meadow- right now I had a lumpectomy almost two weeks ago and am pretty much recovered. I'll start chemo in about 2 weeks, 4 rounds of TC which supposedly isn't too bad from what I've heard. I'm going to be trying the Cold Caps to save my hair. I just found out today the Cold Caps financial aid dept is going to cover most of the cost for me so I'm really excited. And then I'll have radiation, which I didn't have before. After that, we still need to discuss the plan. Obviously I'll see my dr. once ever 3 months for two years. My surgeon said he'd like to see me get a breast MRI once a year. I figure we'll discuss the plan after I've finished my treatment. On one hand, I figure.....okay, I had such a low chance of this happening, it happened, and now I'll get double treatment and that'll be it forever! But then on the other hand I can't help but to think.....this came back once, it has a good chance of coming back again. So scary

TrishE23

Hi everyone! I haven't been here in a long time. In August I celebrated 8 years since my diagnosis. I still look over my shoulder after all this time. I mean I go on with my life but every now and then I get that sinking feeling that it will come back. I was released from my oncologist December 2013 and I was so happy but scared at the same time. 

I just want to wish you all well and hope you're  doing good.  : )

Luvmydobies

Congrats Trish!! Eight years is inspiring for all of us! So glad you're doing well. Thanks for updating! XOXO!!