Calling all TNs

journey4life

Titan - you always seem to know the right things to say! Until my OvCa dx, I was looking forward to a "normal" life, doing the things you talked about. Now I'm caught up in the worry whirlwind and hope there will come a time when I can enjoy and experience LIFE...

Has anyone heard from Fighter? If you're reading our posts Fighter, know that we are thinking of you! (((((hugs)))))

ksmatthews

shorfi, yes stay off the internet except for here.  And when I was going through treatment I even had to take a break from here.  It is scary and overwhelming.  There are lot's of TNBC survivors.  I hit my 3 year mark this month.

Well saw my bs and onc yesterday and neither were concerned about my headaches, both told me they were sinuses and to see my primary dr to get something to break it loose.  They really didn't do much just asked me a few questions, did breast exam said I was doing great and to come back i 6 months.  I will take that!  Oh they did blood work too but they never tell me the results, just say they will call if something shows up.  I am not even sure what they check.

Thank you all so much for support, I know when I am scared I can come here and you ladies will make me feel better!  I love you all!  

Luah

titan: nice new avatar

Wrenwood47

More good news about Curcumin. I have been taking it since my Dx in March of 2011. For all those who are not familiar with Curcumin, Google it and TNBC. I do believe it offers some degree of hope regarding recurrence and/or metastasis.

Food for Breast Cancer Newsletter

Dear subscriber:

Breast cancer stem cells (which have the ability to divide indefinitely) drive tumor metastasis in part by extending multiple microtentacles that assist in cell reattachment. In other words, tiny protrusions help tumor cells that have broken free of the primary tumor attach to distant tissues, thereby promoting metastasis. In a remarkable new study, researchers at the University of Maryland School of Medicine have demonstrated that curcumin (the main bioactive compound in turmeric) prevents reattachment by extinguishing such microtentacles. The authors suggest that curcumin could be an effective antimetastatic strategy.

KSteve

ksmatthews - I checked back in right now just to see if there was an update from you.  Yay!  I'm so happy that they weren't concerned about your headaches.  That must be a relief!  You know if they were worried at all, they would have ordered you a scan.  Made my day!

Kathy

momof2doxies

Shorfi…I found myself spending too much time on BCO after my most recent diagnosis. One of the TN ladies passed and it put me in a real funk, plus the SE of starting chemo was taking its toll. Therefore, I had to get my husband to create a block on my computer to keep me away for awhile. I just do not have the self control with some things. But now that I am finished with treatment, and my energy is returning, I have been able to post and read things without obsessing. Sometimes you just have to step away...

CatWhispurrer

I have been away for awhile.  I couldn't bear any more bad news after losing Karen so had to take a break. If anyone remembers, last September I found some little lumps on my (good) breast that all the mammo's and US showed as nothing to worry about.  I requested an MRI but decided not to get it because I was due for my yearly MRI this month and didn't want to use it for something that was "nothing."  I was sure my insurance would not cover another one so decided to wait.    Well, I had my MRI this morning and BS called me this afternoon that there are some suspicious areas.  One area on my left side (LX side) of thickening on my breast bone.  My cancer was down into my muscles of my chest so hoping this is just scarring but they did not see it on my MRI a year ago.  The other spot is in my lung.   This has me in fear.  It also was not there last year.   Both BS and Rad Dr are concerned and they immediately ordered a PET/CT scan for tomorrow.   They say I should get results by Friday so that I don't have to wait over the weekend.   I am scared shitless. I am literally shaking.  I had a lot of weight loss last year too which also happened before my diagnosis in 9/2011.    Please, can all of you gather up in my pocket and stay there with me the next two days?   I need all of your strength right now.

megomendy

Catwhispurr, already praying for you, honey.

lizlori

cat...I wished I could hug you in person....but I can't, so what I can do is tell you in words how much I will pray for you.  You are in the sisterhood of breast cancer survivors, and I truely care about you....please suround yourself with caring people to lean on....you are not alone my friend, please put me in your pocket.  Lori

JAN69

With you Cat.  We'll be with you whenever you need us.  Jan

momof2doxies

Cat…I am not that far from you, a fellow Georgian. Put me in your pocket. I will keep you in my thoughts and so hope this is a scar. Deep breath…I am with you, ((HUGS))

Titan

We are there with you Cat....thinking and praying for you..

Titan

and thanks Luah...!  I was the oldest of the group in that pic...and my time beat them all..lol...probably couldn't do it again..but I enjoyed the moment...

Cocker_Spaniel

Cat holding your hand all the way and saying lots of prayers.  Hopefully it will be just scar tissue. I understand all of the shaking because I shake like mad when I am scared.   Sending huge, huge, hugs.  All of us are with you dear friend. xxxx  

adagio

cat - I will be with you in your pocket ,and prayers are already being sent upward for you. Your feelings are totally understandable - hugs!!

DorMac

Dear Cat, We are holding you close and surrounding you with hugs and prayers that all will be well. Feel our positive thoughts going your way. Doreen

Nuan

Cat--- You are in my thought. I'm praying for you.(((HUG)))

LanaM

Cat - make room in your pocket for me too! Sending thoughts and keeping you in my prayers. We're all hoping its nothing! I was going to say try not to worry, but I don't know that any of us could do that - just know you have all of us in your corner. Lana

TifJ

Cat- hope your pocket isn't too full because I'm jumping in too. Sending good thoughts!

shorfi

Cat...you are in my thoughts and prayers as well.

CatWhispurrer

Thanks everyone.   I am wearing clothes with BIG pockets and taking all of you with me.  I don't feel so alone now.   

LanaM - yes, it is impossible not to worry with BC.   BTW, I am originally from Madison, WI, and my husband is from Portage.  Small world!

Leealice

Cat- lifting you up in prayer. The waiting and worrying is the worst

KSteve

Cat - I'm with you too.  Please keep us posted!

Hugs,

Kathy

CatWhispurrer

I had you all in my pocket.  Did you hear me talking to you?

The CT scan is back and BS/Rad said it is "very concerning."   Not only did they find enlarged nodes behind my sternum in the mediastinum, the nodule in my right lung, but also a smaller nodule in my left lung.   The PET scan should be read tomorrow but the BS said that they are concerned enough to go ahead with a biopsy regardless of what the PET shows.  I should get the date of biopsy tomorrow along with what the PET shows.  I assume it will be next week sometime.  I am even more fearful now and dreading the biopsy.  Local anesthesia doesn't work for me and I felt I nearly died when they did the original breast biopsy.  They kept shooting locals in but it felt like I had nothing and they were tearing my insides out to the point I nearly fainted.  I was screaming and crying in pain.  The same thing happened when BS collapsed my lung during port placement and I had to have a tube put in my lung.   This has happened all my life.  I tell them locals don't work but they go ahead anyway.   This time, I am NOT going to let them torture me.  I told the BS that he HAS to give me something besides locals.  He mentioned hydrocodone but I don't think that will be enough.   I think I read someplace that lung biopsies also have the chance of causing a pneumothorax.  Grown.   If it can happen, it will probably happen to me just like collapsed lung during port placement - BS said it was only the 2nd time it had ever happened to him.  Now the wait and fear of the biopsy.....

FierceBluebird

Sending love and light to everyone who needs it. 

journey4life

Cat, you may not have known but I was (and still am!) in your pocket. I am hoping there's another reason these spots are showing up. I've been sending you moments of peace and tons of strength to help you in the coming days. 

Lean on us - we're here to hold you through this...(((((hugs))))))

Lisa

journey4life

Has anyone seen or heard from kathyrnn? Time for you to check in, Kathy

LPBoston

Just hopped in your left pocket - will there with you!!

Nettie1964

Hugs and prayers for you catwhispurrer!

May I ask if you are a fan of cats?  I have too many, but I love them and they helped me get through treatment. They kept me entertained and occupied.

bak94

Cat-can they give you dilaudid, I think it is a form of morphine. They gave me morphine once and it gave me a bad anxiety attack, but dilaudid worked well for me when they were removing my infected port, plus some tissue for a biopsy. That would be terrible to go through a biopsy and feel it! When I was first diagnosed I had a biopsy on a node behind my breastbone, they did it with an ultrasound. Happily they were able to numb me and it wasn't bad at all, so I really hope they can figure something out for you because you shouldn't have to go through that much pain. Maybe they could do a twilight sedation? I will be thinking of you and please put me in your pocket with everyone else! We will make sure the docs give you something good before the biopsy!