Calling all TNs

NavyMom

Thanks for sharing the Omega-3 info, Debra. 

Anyone have some suggestions for lowering cholesterol?  Other than the obvious....I go to the gym 4 times a week and keep active on my off days.  Also, have fairly good eating habits (not perfect, but decent)  I really do not want to start on the statin drugs, but I just can't seem to get the labs to improve.  ACK!

Stupidboob

Kathy I sure will schooch over on the couch...........wouldn't it be nice if we really could go it together.   I am sorry that you are dealing with it again as well.   The not being able to remove it is scary and that whole hard to get to....that is what they told me too.  

Phyllis come on and get on the couch with us........I don't want to go through this again either.

I just had chemo yesterday and already feel like the flu is coming on.   I did not get the Neulasta shot so can't blame that this time.   I HATED that crap.   She said she will let me try this one time and if numbers are not good next time I get it.   I did not have nausea with the Taxol but I had it alone.   The Cytoxan and Taxotere is hitting me with it all.    I just hope I can get through tomorrow when we walk our babies.....I have taken the Zofran but I really hate taking anything and then I read it can cause temporary blindness.....OH GREAT and other issues.   Did you all know it is a seratonin thing and just blocks the brain from getting the signals?  I will take it though if I can't stand it....I have taken 2 so far today.  I get home from Chemo yesterday and had a message from my primary care docs nurse that they need to talk to me about my pap results, then today one of my dogs has a hard lump that has appeared on her surgical area (to remove a sarcoma) hoping it is scar tissue but after the cancer coming back, losing my older dog if ONE MORE THING GOES WRONG I just don't know if I can handle it.   I am so CANCERED OUT!!!

Thank you Sheryl and to the others thinking of all of us going through this.

Debra thanks for the article on the Omega 3

I hope I got everyone, but I don't have to tell you all how easy it is to miss something

Welcome to the new members and I am SORRY you have a need to be here

Stupidboob

I want to add my new diagnoses but it looks like it will over-ride what I have already.   Will it?

Anonymous

Stupidboob, I am so, so sorry you got dealt such a crappy hand, for you and for your dog. That is just the pits. "Cancered out" says it perfectly.



On your profile, the new diagnosis will add to, not overwrite. At least that is how mine worked.



I'm thinking about you and hoping you don't need the Neulasta.



Phyllis

5thSib

Stupidboob, kathyrnn, and phgraham -- so sorry you are having to go through this again. As soon as I post this I will be saying a special prayer for each of you.



I'm not feeling well this weekend but hopefully it will be my last weekend to feel crappy since I'm through with treatments. Neuropathy has really hit in the last two weeks. Doing anything with my fingers is getting difficult. One little toe is numb and both big toes very sore. I'm still taking the B6 daily.

Luah

Navy: Cholesterol can be lowered by cutting out eggs and reducing all saturated fats, and exercise of course. But some people are just genetically prone to high cholesterol, and there's not much you can do about it, except medication. Does it run in your family?

Hugs Phyllis and stupidboob, so sorry you're dealing with this again. You'll kick it to the curb this time.

slv58

5thSib, I think I know how you feel, I developed neuropathy within days of my first docetaxol. And to think I have 2 more to go

I have been taking 100 mg. of B6 and 5 grams of L glutamine 3 x day. Not sure if it is helping because I have that numb, tingling and burning sensation intermittently. I'm hoping that it is temporary and will lessen after chemo is done. Things like undoing my jeans is getting more difficult, my fingers don't seem to have the dexterity they use to and they hurt. I've also experienced a lot of bone pain mostly in my thighs, but MO has me on gabapentin which at least allows me to have a good nights sleep. I seem to be able to function during the day without taking anything after that first horrible week. Hoping my beasty cancer hates this treatment more than me-I can visualize every cell writhing in tortuous shrinking pain! I hope you find relief as time passes and congrats on finishing treatment! Will you be doing rads? Shari

LNBCA

So sorry to read of all these recurrances  You all were so helpful last year when I came to you for answers for my Mom. I pray that everyone facing a recurrance kills this beast once and for all, and for everyone else to stay NED! xoxoxo

Cocker_Spaniel

A little bit of laughter to hopefully cheer everyone up.

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teresa008

Does anyone else have a problem with itching under their tissue expander? It itches like crazy but it's just like having a very long cast on your leg and having an itch waaaaay down there that you just can't get at, no matter how hard you try! I'm taking benedryl but it's not working as well as it should. Makes me feel like ripping the expander off to get at it!! And I'm stuck with this expander until after I've finished chemo and I can get my surgery scheduled, so in other words, for months. This itching has occurred off and on and right now it's on and driving me nuts!

Anonymous

LOL Cocker! I love it!

TifJ

Teresa- yes, I have had the itching and still sometimes do even with the implant. I was told it was nerves repairing themselves. My episodes only last a few minutes now. but it is really aggravating!!

teresa008

Thank you so much for responding. It can last for hours for me. It usually starts in the late afternoon and will keep itching until I take something for it. I was told the same thing from my bs. Just another thing we can just put up with, I guess.

5thSib

Slv58 -- yes I will be doing rads -- probably will start the 2nd week of May.

Cocker_Spaniel

I hope the bastards who did the bombing at the Boston Marathon rots in hell.  They are the ones who should be getting F.... cancer. 

teresa008

Ditto Cocker spaniel

Cocker_Spaniel

Tazzy

So saddened to hear of you all going through this again... WTF ?  In your pockets and big hugs to you - I cant imagine.

Someone on another thread that the bastards who did the bombings at Boston should be made to have chemo for the next six months - daily.   I said then fry the bastards.

Hugs and love to you all xxx

bak94

inspired-I had stage 2b triple neg in 2003 (Well, end of 2002). I had a lumpectomy, right side, ac followed by taxol and then radiation. April of 2011 I was diagnosed again but on the left side, triple neg., well my er was 3% this time. So basically they said it was a new primary. I did genetic testing and I am BRCA 1 positive. I did  neoadjuvent chemo this time, AC for a second time and then abraxane/avastin, bmx,  and then raditation. And then hysterectomy October of 2012. it is taking me awhile to recover. I am 46 and on disability. Can't work, I get too tired and my arms and chest hurt from bmx. Hoping to build up strength so I can work again, but it is taking a long time. I do think it is because I had AC twice, but my heart function is actually good, so I really don't know why I am still so weak. All my doctors say it is because I am so deconditioned.

Kathy, Phyllis, and Stupidboob-It sucks that you have to go through this again. In a way it is a bit better to know what to expect, but at the same time it is more difficult the second time around. Recovery is a bit slower. It hit me hard emotionally and physically, and now I feel like I am in denial, blocking everything out of my mind that has happened. Probably not a good thing. I feel for all of you, but you can do this.Go ahead and cry, scream, or whatever you need to do. I don't mean to sound negative, but sometimes I think we are expected to sail through this crap with a smile on our face, but dang it, sometimes we just don't feel like it!

My prayers go out to those in Boston. Such a sensless thing. Why don't those who do these terrible things value life? Does it make them feel powerful when in reality they are cowards? How can someone hold so much anger in order to hurt such innocent people/children? I just don't understand life and what it is really about.

OBXK

Started Xeloda today. Wish me luck!

Anonymous

OBXK - Good luck! I will be thinking about you with positive, happy and possibly goofy thoughts. You will kick it!



My Zelda gets delivered today snd I will join you on Monday.



Phyllis

OBXK

Phyllis - I'll dance naked in the woods for you! 40 minutes in, my hands were mottled red. Scared me a bit. Took photo and emailed it to my MO. I think it's okay, since I don't have pain.

It's just scary, not having a MD around, after swallowing a handful of chemo

Anonymous

Karen - Yikes!  You have to do it at home alone?  I would be scared too.  I'm glad there's no pain, but anything happening to your hands is scary!

I will have my first dose at the chemo shop when I get the Ixempra IV.  At least I will have nurses around that I can yell for. (Hey, what the hell is this???!!")

Dancing naked in the woods sounds pretty good, except we're about to get 3 inches of snow tonight and tomorrow.  I won't ask you to do it until the weather's better!

jenjenl

I finished chemo on 4/2 and all through chemo i have had back pain - and reported said pain.  I got the nulasta (sp) shot each round.  My back still hurts...sometimes its right in the middle of my back other times it's lower and on my left side of pelvis.  For the last 4 months through chemo by MO says it's the chemo and shot causing the pain.  He also says it's bc I work 40 hours a week at a computer and chase my 2 wild children around.  I had a bone scan, MRI and maybe a CT scan (can't remember) in November and those were clear. 

I tell him that I am not saying it's cancer but I think we need to figure out what it is bc i spend most of my night after my kids go to bed laying on a heating pad.  I  was under the impression that we would make a plan at my appointment yesterday but instead he said he would see me May 14th - he wants some of the chemo and crap to purge from my system.

He is so anti scan and blood tests for monitoring.  I think he thinks I want a scan...I just don't want to be in pain.  I even said maybe I should see a spine/back specialist.  Lordy!?!?!?!  Of course I hope it's just stress, work, bad posture, etc.

Any advise to MAKE him understand if he tries to push me off again? 

OBXK

Jen - can you get your PCP, to give you a referral to a neurologist? Or order a MRI for the area of your back that is giving you trouble?

jenjenl

I've never had a PCP - I've always just gone to my OB annually and if I was sick to urgent care.  Perhaps I need to find me a PCP. 

teresa008

jenjen, are you using dry heat or wet heat on your back? I injured my lower back years ago and I've never been able to tolerate dry heat as it kind of settles the pain in instead of breaking it up. It's easy to make your heating pad do wet heat, just get a tea towel wet and put in next to the pad itself under the liner and there you go! It helps immeasurably, you just won't get it until you try it.

jenjenl

teresa - I will for sure try that tonight and report back

Stupidboob

I want to thank everyone for the well wishes.    Going this the second time around has alot of different emotional feelings with it.........:(.  Looks like I will be just as sensitive to this regimine.  Treatment Friday, feeling a little off Saturday.  Starting hurting (bone but not like the Taxol) and mouth sores on Sunday.  Constipation Monday and then last night and off and on today diarrhea and fever.   I felt semi ok all day yesterday and then apprx. 7:30pm I started with the diarrhea and just felt like poodoo and then about 9ish started running a low grade fever.   Was staying between 99.4 to 99.9 for about two hours.   I called the doctor because I had chills and just over all did not feel well.  I know we are to call after 100.5 but I felt horrible........no luck they said I could not take anything.   Fever has started again tonight.   Hope to be back on tomorrow.

OBXK

Stupidboob - I am so sorry you are feeling so badly. I hope tomorrow is a much better day.