Calling all TNs

OBXK

Welcome back Annie!

Off to chemo

liv-

lauren - bring it on and get it over with - great attitude, well done.

michelle - welcome and yes its terrifying and then somehow you adjust and start to accept whats happening, we are here for you.

hope- thx and luvs to u.

loafer - i had full mastectomy and had lots of cording and bits n pieces happening where the nodes were removed.  through loads of exercise and stretching the arm through the pain barrier it has sorted itself out.

and anyone else reading and a bit scared to join in, dont be, we were all there once and now we chat away and learn from each other.

xx

Mrsrenicka709

Hello Ladies, I had an Lumpectomy and have one more treatment of chemo before I start Rad. I considered a Masectomy after i learned that i was TN, I took the BRCA testing and my results came back negative so should I still consider a Masectomy ? My MO said there is no need since my concern of reoccurrence will be somewhere other than the breast.....does this sound similar? Please advise

Titan

Welcome Back Cocker...missed you! 

kidsandlabs

Last chemo treatment is under way!

Luah

Mrsren - yes, sounds familiar and makes medical sense. TN is more likely than ER+ cancers to recur in distant locations - and that's the real concern (no one dies of cancer in the breast as my onc says). That said, most TNs do not recur at all.

Each of us makes decisions -- based on medical, emotional or other considerations -- and they can be different, obviously. We just need to feel comfortable with whatever we decide. Hope that helps. 

Loafer

Mrsrenicka7 - I have your exact same scenario. Triple negative, lumpectomy, with negative BRCA results and have just finished chemo. I plan to move onto radiation and am very comfortable with this decision. Good luck to you!!

gillyone

Kidsandlabs - congrats on finishing chemo.

Mrsrenicka - many of us had lumpectomies.(And feel fine about doing that) It is common with TNs.

kathyrnn

LuvRv - thrilled to hear you're heading off for vacation.



OBXK- waste no sympathy on "what next" for me, you're living thru much worse than my piddling problems. Glad to hear the goods results. Hug!



Mags - thanks for the update and glad to hear your good results too.



Cocker - big smooch! I've missed your humor in my life. Don't worry to much about your port, sounds like it's blocked and has outlived it's use. **does happy dance that you're getting rid of it**

Mrsrenicka709

Thank you Ladies, I felt comfortable initially once I received my negative BRCA result but of course I have a loving family member that knows somebody that knows somebody that didn't get a Mastectomy and so on and so on.......lol but she is standing firm with the advice to just get rid of them! Trust me I will be the first to say if the have to go I am willing to but why now looking at the big picture? Some people do not understand and don't do the research but some how become experts! Uggggh! Once again thank you!

Tazzy

Cocker: I know I have been MIA - still reading the posts though and posting on a couple of other threads.   Did you have a good holiday.

first day back at work for me today - only did 4 and a bit hours and boy is my brain frazzled.... but did it feel good to be part of something other than fbc. Lots of hugs and welcome back's which made me feel special indeed.

Although sad, that is a wonderful story about the doves and butterfly.  So glad your friend is finally at peace.  I don’t have kids but knowing my Mum’s love for me, I cant even imagine what it must be to lose one.

Welcome to all the new ladies here – you really will not find a more comforting place.   You can release whatever emotion you are feeling and will not be judged.

Like I said I have been lurking and reading only, so want to send hugs and positive mojo out to everyone.

Tazzy

Cocker: I know I have been MIA - still reading the posts though and posting on a couple of other threads.   Did you have a good holiday.

first day back at work for me today - only did 4 and a bit hours and boy is my brain frazzled.... but did it feel good to be part of something other than fbc. Lots of hugs and welcome back's which made me feel special indeed.

Although sad, that is a wonderful story about the doves and butterfly.  So glad your friend is finally at peace.  I don’t have kids but knowing my Mum’s love for me, I cant even imagine what it must be to lose one.

Welcome to all the new ladies here – you really will not find a more comforting place.   You can release whatever emotion you are feeling and will not be judged.

Like I said I have been lurking and reading only, so want to send hugs and positive mojo out to everyone.

mags20487

Hi Tazzy...and so happy you were able to return to work....baby steps.  Glad to see you back

Maggie

Cocker_Spaniel

Some light entertainment

http://www.youtube.com/watch?v=28xjtYY3V3Q&feature=share

Hopex3

Annie..Good to hear from you! So sorry about your friend but glad she is with her kids. Beautiful story about the doves and butterfly. Gave me goose bumps!

bexH

Hey all!  I don't think I managed to post on here for my TNS that I'm officially in remission with 9 rads to go! 

Welcome to all the newbies!  We are glad you are here but wish you didn't have to be here either!  you know what I mean!  Chemo brain is still alive and well....but, getting somewhat better.

I haven't been able to deal with logging on here lately...it's too much sometimes.  I'll feel okay and then I read abt you and it reawakens my fears and anxiety.  I'm seeing my counselor still and it helps a lot.  Sometimes being in denial can be a good thing .  I seem to be handling things worse not better....I guess I'm not normal (never was).

Minxie...I hope you are doing okay.  I've really been worried for you.  I just didn't have the strength to be here for you and I'm sorry.  We all worry that those who are here for us will walk out on us at some point because it's just too much.  I know God has a plan for each of us and I should've said that to you earlier.  Overwhelmed and trying to be hopeful for each of us.

(((Hugs)))

Becky

Cocker_Spaniel

Liv I do the same as you. If my old fellar goes for a blood test I always tick the boxes for his cholesterol and prostate to be done if the doc hasn't done it.  I might get sprung too but what the heck.   

liv-

hello all

luah - what do you mean most tnbc dont recur at all?  I wish but i have not heard this, tell us more please?

cocker spaniel - thx  great video -everyday i walk down the park and all the doggies are there.
so unique are they and nothing puts a smile on my face like a dog no matter how im feeling.

tazzy - brain fog is moi - seriously i forget what i was doing 2 seconds ago..never mind we have a good excuse when we need it.

mrsrenicka7 - im waiting for my results and no matter what they are im having the other good breast off and have put it to my bs to do this asap and whilst im under have asked to take ovaries out and for the life of me cant understand why they never took 2nd breast of or recommended it with such a bad path report as i had...figure if i get 2nd one off asap then i can have both reconstructed in 8 months.

kidandlabs - whoop whoop - such a good feeling, now time to nurture and build up those bloods again.

loafer - rads were a walk in the park for me and most say the same.

so much more research is going into triple negative all over the world and hopefully in the near future we might be given a bit of confidence.  they are putting a lot more dollars to research tnbc.

when we look back over the last 10 years tnbc was so behind and didnt hold much hope as far as  any sort of treatment at all and with mine being ibc also it was a death sentence with no hope. i have a good feeling that finally we are on the move, they are getting closer.

try and keep strong ladies & have a great day

xx

Cocker_Spaniel

Now that our Bernie has left us you will have to put up with me for the joke of the day but I warn you I will be a poor substitute for her.

Bet you never thought of this ..... New Treatment for Sunburn.

A guy visiting in Hawaii fell asleep on the beach for several hours and got horribly sunburnt specifically to his upper legs.  He went to the hospital and was promptly admitted after being diagnosed with second-degree burns.

With his skin already starting to blister and because of the severe pain he was in the doctor prescribed continuous intravenous feeding with saline, electrolytes, a sedative and a viagra pill to be taken every four hours.

The nurse was rather astonished at this and asked what good will viagra do for him doctor.

The doctor replied it won't do anything for his condition but it'll keep the sheets off his legs.  

I have heard they have started to do this in rest homes too. It stops the old fellars from rolling off their beds.  I might even get some for my old fellar.

Tazzy

 Cocker:  good one - ha ha ha!!   OK here's my contribution.  Off to work now - have a good day everyone.

Love & Hugs xxxxxxxxxx

A successful rancher died and left everything to his devoted wife.  She was a very good-looking woman and determined to keep the ranch, But knew very little about ranching, so she decided to place an ad in the newspaper for a ranch hand.  Two cowboys applied for the job. One was gay and the other a drunk.  She thought long and hard about it, and when no one else applied she decided to hire the gay guy, figuring it would be safer to have him around the house than the drunk.  He proved to be a hard worker who put in long hours every day and knew a lot about ranching.  For weeks, the two of them worked, and the ranch was doing very well.  Then one day, the rancher's widow said to the hired hand, "You’ve  done a really good job, and the ranch looks great. You should go into town and kick up your heels." The hired hand readily agreed and  went into town one Saturday night.

One o'clock came, however, and he didn't return.

Two o'clock and no hired hand.

Finally he returned around two-thirty, and upon entering the room, he found the rancher's widow sitting by the fireplace with a glass  of wine, waiting for him…  She quietly called him over to her.. "Unbutton my blouse and take it off," she said.

Trembling, he did as she directed. "Now take off my boots.".  He did as she asked, ever so slowly.

"Now take off my socks."He removed each gently and placed them neatly by her boots.

"Now take off my skirt.. He slowly unbuttoned it, constantly watching her eyes in the fire  light…

"Now take off my bra.." Again, with trembling hands, he did as he was told and dropped it to the floor.

Then she looked at him and said, "If you ever wear my clothes into town again, you're fired."

(P.S. - I didn't see it coming, either)

liv-

loved it tassie & cocker

russell33

Hi ladies, just wanted to give a quick up date.  I had my first treatment on Tuesday.  What a long day...Then only problem I had was a reaction to the benadryl IV they gave me before chemo.  I had extreme restless leg syndrome and had to urninate every 2 minutes.  A lot of up and down until the 2 ativan they finally gave me, relaxed me. Slept a little through infusion.  Felt pretty good after just tired and kinda had a high feeling.  Went home and shortly went to sleep with no problems and slept like a baby all through the night. Probably the best night of sleep I'v had since my lumpecomy.  Finally the pain and swelling from that has went a way.  Slept like a baby last night also.  No nausea or side effects yet.  Just trying to keep busy......I did the shot yesterday and so far no pains and aches.  Hopefully I won't have to experience that.  But if I do I know what to exspect.  So glad to have the 1st round done.  3 more to go::  I hope everyone is feeling well.  This board has helped so much getting prepared.  I wish all of you the best. I definitley don't have much of an appetite but trying to push some foods.  The water thing is the hardest. Trying to drink cranberry juice in between.  I'm not sure if this is normal but I didn't have a period last month (sure it was because of all the stress) but I did start today.  Hopefully it won't be to bad.  Good luck to everyone who is starting treatment this week, next week and so on.  I wish you nothing but good days.  Hugs to all, Anne

Luah

liv- Here is one study: http://jnci.oxfordjournals.org/content/100/16/1179.full.pdf+html

Within 5 years, 93% of hormone neg women had no recurrence, 89% within 10 years.

There was another more recent study cited on these pages somewhere, I will try to locate it. But as I recall the recurrence-free outcome at 39 months was in the high 80s. Most TNs, thankfully, do not recur. But it is important to bear in mind that TN is made up of many subgroups (basal, BRCA etc.), with their own risk factors. 

CatWhispurrer

I saw a recent story on a lady with mets that is going on 12 years after diagnosis.  She gets monthly Herceptin.  This is interesting since just awhile back, someone posted the study that showed real progress treating BC, even if HER2 neg with anti-HER2 drugs (I assume herceptin).   See the article here:

http://www.myfoxatlanta.com/story/20524202/woman-defies-odds-in-battle-with-breast-cancer

liv-

thx luah great read.

thought you were saying no recurrence at all, right from day one, would be very nice but ive miss understood you. made me think though, your words that it was not so good if you didnt respond to chemo.  well i stopped responding after the 4th dose and tumor grew another 3 cm from 4th to 6th treatment. shocking onc would not listen to me and i was green as we are when first diagnosed and just shut my mouth until i learnt what a head farrkkker that onc was., dreadful dreadful!

by the time i had finished treatment tumor was a whopping 10cm.

so that chemo i did not respond to but it appears since i have been taking xeloda and navalbine ive had good results that being the nodes in chest have shrunk 80% whilst on the last 3 months.

my question now is, does that put me into the category does not respond & the above stats are saying 5 years 93% no recurrence would not apply to me taking into account new chemo since finished standard treatment  have had good results..

gawd im talking in riddles, have i made any sense at all?

xx

Kelley41

Dont post often but...wanted to share..Three years ago today, I got the phone call "you have breast cancer" - what a journey it has been!  Just had my 3 month check up on Tuesday and everything "looks good"...we now need a cure so our daughters, friends and sisters dont follow in our footsteps!  Have a great day everyone...

liv-

congratulations ms kelley another 333 years to go

xx

netty46

minxie

Did they say if they catch it before it spreads that its curable?  I cannot seem to find many women with this story.

Thats why they do alot of chemo before removing tumor now . Because it will show if your cancer responds to the chemo.If it does not they switch to one that does.

Hope60

Hi ladies! I havent posted in a long time but I do read when I can. Still on chemo - carbo/gem - and it's been knocking the cr*p out of me. Plus I've  had some "extracurricular" activities....port installment, rbc transfusions, etc. Seeems like its been all BC, all the time.

But I did want to wish you all a belated happy and HEALTHY New Year!

Love,

Hope xoxo

PS - any news from Inmate? I've been thinking of her a lot.

Fighter_34

Happy New Year's everyone. All is well just taking things one day at a time and enjoying life.

That's my new motto from here on out ENJOYMENT!!