Calling all TNs

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited December 2011

    Yes---Thinking of LJ and Suze.

    Catwhisp:  I did not have pain until I had my annual Mammogram.  Within a few hours my tumor(at the time I didn't know there was a tumor) was extremely painful and swollen and the same area on my skin became discolored...not a bruise but more like a reddish/brownish color.  That was a wednesday and by saturday, when the pain, swelling and discoloration did not get better I called the clinic where I had the mammo.  I told them of my issue, they put me on hold and came back with"call your doctor first thing Monday AM."  And that is when I "knew"   

     Please bring someone with you to your appointment on Monday.  Make sure you are clear on post op instructions, too.

    Good Luck

    Navy

    Oh and by the way, for all you cat people, I am enjoying your photos.  I do not have any pets and in general do not care for critters but do like seeing all of your sweet animals .

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  • christina1961
    christina1961 Member Posts: 736
    edited December 2011

    Yes, thinking of Laurajane and Suze.   

     Naan, Good to see you! I hope you are doing ok with your chemo treatments.

    Carolyn,

    KittyMansions is great- good prices!  I've been window shopping.  I'm starting to feel rough from this clinical trial chemo and have a feeling I will be resting more often. I would love to have one of those trees next to my bed for my cat who loves to climb.

    Catwhispurrer, I had some pain in my tumor following chemo treatments but not before - however about a year before I had had pain in that same area of the breast. Unfortunately I went to a surgeon who was dismissive and patronizing, "All women have pain in their breasts."  (He didn't do my surgery BTW!) Good advice from Navy Mom about bringing someone along - my sister went with me to every appointment and still goes. I don't know how I would manage without her. She has been so wonderful to me during this.

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  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Christina,  yes, survived the first due for my second on 12/13, can't wait til it's all over.

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited December 2011

    Unfortunately, I do not have anyone to go with me on Monday.  My family doesn't live around here and my hubby is too afraid to take much time off work.  Since he needs to financially support us right now, I don't want him to fear for his job.   I will take a tape recorder with me so he can listen later.  My sister is flying in on Tuesday night to be with me for the surgery.

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  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Catwhispurrer,  I went all by myself too, when i got the news, since hubby had to work and i wasn't sure what my result were gonna be like would've been nice to have someone there, but hey u do what u got to do

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  • riley702
    riley702 Member Posts: 1,600
    edited December 2011

    Could you ask the doctor whether they could provide someone to take notes? My sister took notes for me. It really helped.

    Christina, why are some docs so ignorant? My breasts never hurt, although I do know that some BC does hurt. Since your biopsy pain had subsided, I wouldn't expect it to start hurting from that again. During chemo, I could feel the lump getting softer and smaller, but it didn't hurt. I know our reactions are very individual, so docs shouldn't generalize instead of trying to find out what's going on in your particular case.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited December 2011

    Welcome to the family catwhispurrer...i too am a lover of cats as you can see from my avatar.  You are in the scariest part of the journey but every step you take in the battle will empower you against the beast.  I have finished 6 of my 8 treatments and there are studies that indicate doing taxol first then AC improve outcomes.  I believe I read it at  tnbcfoundation.org.  That is another site I recommend to you as it is just for us Trip neg gals!  Wishing you the best this week for your doc visits and surgery.  You can always tape record what they say as well--perhaps with a cell phone.  My Onc's office also has volunteers that are "sisters" who will take you to appts and such if you need it also American Cancer Society!  Best wishes

    Maggie

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  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    My tumor hurt too...not all the time but mainly when I was stressed out (which was most of the time)... I was losing alot of weight also...plus my hair looked awful...people that didn't see me often tell me now that I didn't look good at all...even though my mammo was clear in August of 08 when I rec'd the letter telling me this I remember thinking that it couldn't be right..that something was wrong...I wish now that I would have gone to my GP and just had a complete physical and talked to him about my concerns...ah well..it doesn't matter now but I watch my daughter like a hawk...now that I know what to look for.

    naan1004..you are having dose dense chemo right?  

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011
    Hi to everyone i don't post often.
    Did anyone have pains after chemo and rads?
    I have an ache/pain in the back of my thigh - been there about three weeks, gets worse as the day goes on. Feels like a strain but i haven't done anything to get that.
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  • minxie
    minxie Member Posts: 484
    edited December 2011

    It's been awhile since I've posted - my husband figured out who I was on here and read some of my posts on the Emotional Issues board, especially those dealing with our marriage... I've been meaning to delete all my posts and start again with a new user name, but haven't felt like starting over... So I've basically not been logging in.

    But today is an important day for me - December 4th is the day I was diagnosed, and today marks three years out,  and as far as I know, I am cancer-free. I've aged physically about 10 years in the past three, and I'm a completely different person, but I'm still here!!! So happy to be with my family. My youngest remembers none of it.

    Aches and pains - the story of my life. Screwed up back and shoulder and ribs from surgeries, I'm sure chemo played a part as well. Pretty normal, I think, Bernie Ellen.

    Tumor pain - yes, mine hurt. A lot. And of course I was told that meant it couldn't be cancer... I think the aggressive ones like TN grow so fast that they do hurt.

    Suze and LJ, hope you all are doing well.

    Happy Holidays everyone! This month has filled me with dread the past few years, but finally I think I can enjoy this season a little better now, thanks to the passage of time, and my good buddy Cymbalta :)

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011

    Thanks minxie.  

    so glad to hear that you are three years out. I know how you feel about the ageing thing.

    Lots of love. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    "I think the aggressive ones like TN grow so fast that they do hurt."

    Exactly what I was told. Mine hurt before *anything* was done. In fact, my cat stepping on it was what made me (literally) sit up and take notice.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited December 2011

    Hi all,

    Haven't posted in a bit....packing and getting ready to move...mixed feelings about it all. Have been busy with work but return to the surgeon for 6 month check up tomorrow. Hope all is well. I expect it will be.

    I have breast pains post radiation and still a lot of anxiety but I try hard to get rid of it. I listen to a download by Belleruth Napersack...you can download one 17 minute tape for free on her website and it is very calming.

    Today  we are having our daughter and son in law for dinner.

    Feels very strange to be in a house where we raised our children and now almost nothing is in it.

    Love to all...keep posting and charging forward.

    Thinking of Laura and Suze35 a lot and hoping they are getting some kick.... .delete... treatment for this. Want so much for them to beat this.

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  • tisthyme
    tisthyme Member Posts: 49
    edited December 2011

    I felt an electric like shock on the tumor site; I touched the location and walla! there was a tumor.  I wouldn't have caught it as soon if there wasn't any pain coming from it. From then on (before tx began), I felt the electric shock sometimes, but a dull pain and tenderness all of the time, and even more intense pain when stressed out.  Since tx began, I don't feel those pains anymore, but an array of others from the treatment.  Yes, BC can definitely hurt!  I wish docs would quit telling people that it does not.  I think some people put off getting a painful lump checked out because they have also heard that BC does not hurt. 

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  • christina1961
    christina1961 Member Posts: 736
    edited December 2011

    Bernie Ellen,

    I still have lots of pain in my joints and ribs - of course I'm still on chemo - but  had it before I started this trial.  The trial nurse told me that often the pain from the chemo can last a year or so - and on facebook, on the TN foundation page, several women said they have had it even after a year off chemo.  I try to use the 2 week rule - if something is constant and unexplained, I let them know about it. I had a bone and CT scan in October because of my rib pain.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited December 2011

    My tumor hurt too which made me hopeful awaiting diagnosis as I was always told that BC did NOT hurt....lies and deceit!!

    Maggie

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  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    Wow Minxie..your dh creeped on you?  At first my DH and family wondered why I was on here..now...they seem to accept it..I even showed my DH the pictures of the cats..and he was actually interested...He doesn't want to hear about our cancer related stuff but that's ok...this is my place...not his...

    Wow 3 years out..that is soo awesome!  I hope to post 3 years very soon..counting the days.

    Shout out to LJ and Suze..miss you ladies..

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    wow why did he creep?  my hubby knows I get on here, but he never really asks me anything.

    I find alot of strength from coming here.  This is our place.  Only us can understand. 

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  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Titan, i'm not sure, it's AC every 3 weeks, I'm assuming so, i'll ask this Tues i have my onc appt then.  They never mention the density.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011

    Thanks Christina

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  • bak94
    bak94 Member Posts: 1,846
    edited December 2011

    Bernie-I have had aches and pains after chemo. I had weird arm pain before I was scheduled for a bone scan, nothing showed up and the pain went away shortly after.

    I wonder how much my boobs weighed that they took off with my bmx?! I haven't stepped on the scale since surgery but kinda curious if I lost weight! My whole top area, collar bone, arm pit area all looks much thinner after surgery. Wish he could have done my whole body:). I think bs was very thorough on getting as much breast tissue as possible. 4 days post surgery and still getting quite a bit of fluid from the drains, did I mention I hate the drains?

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011

    Hi bak, thanks for that.  Hope you heal well from the surgery.  thinking of you.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited December 2011

    Bernie - I feel like I've aged 30 years, it takes a good 5 min after I wake up and move around for my limbs to unstiffen, lots of aches and pains, some in my left shoulder, they go away only for my right arm to start getting achey, etc.....

    I never felt any pain with my tumor, I went for my very first regular mammogram and they discovered the tumor, I think I'm still in shock sometimes.  I know everytime I catch a glimpse of myself in the mirror I always just say WTH happened???? 

    Hubby hated this site when I first found it, he didn't understand it was my support group, thought it was all doom and gloom - is finally starting to realize that I can talk to people who know exactly how I feel and supports me now. 

    Went topless for the first time to Universal Studios, even though I have a very sparse buzz but it felt amazing and for a few minutes everynow and then I felt normal and forgot about BC. 

    Hoping all is well for LJ and Suze35

    Happy Monday Ladies,

    Heather

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited December 2011

    Laurajane, Suze - How are you guys doing?  Please write if you get a moment.  We are all waiting to hear good stuff from you both.  Hope you are not writing just because you are so busy celebrating the season.  Have a wonderful holiday season with your families.  We are all thinking about you.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011

    Hi Heather, i know just how you feel.  I still don't think it has sunk in with me and i had my surgery in March.  The problem is it's everywhere now but it's so difficult to believe it's happening to you.

    My Dh know's that these groups are my lifeline. He works abroad four weeks on and then four of.  I know he talks to the lads at work and that helps him. 

    Good for going topless, i have enough now to get it coloured.  Growing back snow white. 

    Take care

    Bernie 

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  • minxie
    minxie Member Posts: 484
    edited December 2011

    Well, when I was first diagnosed my husband did all the online research because I was too terrified. He came across this site and has found it very useful, and was glad when I started using it. Except when I obsess over the worst case scenarios. 

    I didn't think he came here much over the past year. But apparently he did, and read a post where I described something that happened that morning and he immediately knew from the situation described that "minxie" was me. 

    At that point he should have stopped, but didn't. He searched for and read more posts by "minxie" and came across one I never wanted him to see.

    So I wouldn't say he "creeped" but I wish he wouldn't have persued it. Though I do know if the situation was reversed, I would have trouble reining in my curiousity as well.

    We have reached a tentative peace. Though I will not be posting anything here of a personal nature again.

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  • jazz3000
    jazz3000 Member Posts: 188
    edited December 2011

    Heading for a second opinion from another ONC. Hoping he sees my side of things instead of thinking his opinion is all there is.

    KS- Awesome picture and thanks for sharing it. I love pics like that. They always brighten my day.

    CatWhispurrrer- The tumor doesn't hurt but it can certainly sit in a position where every nerve in the area is effected. I can't believe all your dr's are the tumors. What about the surrounding tissues they effect? I think sometimes the medical profession has gotten so secular they forget there are other things going on outside the cuts they want to make to get the tumor. Yes the area hurt around my tumors as they were swollen so bad that you could feel them. Hang in there. 

    Titan- I have the most absurb cats. Nothing pleases them. I have purchased the grass time and again, and they look at me like I'm stupid. It sits and turns yellow and I wind up swearing I will never purchase it again. But I do and they remind me and I throw it away. Vicious cycle they enjoy watching.LOL

    Hang in there naan - I hope it's not too severe on you. Sorry to hear your going through all of this.

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  • Suze35
    Suze35 Member Posts: 1,045
    edited December 2011

    Thank you all for thinking of me - it has been a rough week, but I'm hanging in there!



    I'll write more tomorrow, but I officially flunked my clinical trial, so I'll be starting Halaven (eribulin) on Wednesday.



    Have a great night everyone :).



    Susan

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  • Babs37
    Babs37 Member Posts: 455
    edited December 2011

    (((((SUSAN)))))

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  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    Minxie..wonder if your DH saw our page on sex??  Haven't told my DH about that conversation yet..waiting for the perfect time..ha ha...

    Suze..have read some threads on here about Havalen...sounds like its good stuff..I hope, hope, hope it does it for you..

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