Calling all TNs

Paintingmywaythru

Paintingmywaythru

My work as an artist. Some work will be in NYC this summer and I have 4 shows coming up between now and September........can't wait to see what creatures I get when I am on chemo.

www.susanmedyn.com

Anonymous

Paint: that is a really cute painting!

bak94

Painting, I love it, how original!

Titan

Painting..I actually took a couple of minutes and studied your work..I like it!  Do you have a website that we can see your work?  I think that is allowed on these private threads..to let us know...

Good luck with your shows!  Maybe chemo will bring out even more talent..guess we will see..

I am 27 months out today...the only issue is I have an allergy/summer cold..not sure what..I feel ok..but I woke up during the night and had the post nasal drip going big time (hope that isn't TMI)...I don't know what caused it...and am sneezing my ** off...

Paintingmywaythru

Hope you are OK!!!! Lots of allergies going on...

my website is www.susanmedyn.com

I will add the link. You will see I am alos on soem daily painters websites too...thanks for your interest. I hope this keeps me sane as I go through this process.

http://www.susanmedyn.com

christina1961

I love your work!!!  Very, very nice- and love the kitty inspirations.

christina1961

Luah,

That sweet little girl!  I sure hope things go well for her with her treatment!  What a courageous kid. I hate cancer.

OBXK

Painting- thanks for sharing your art! So glad you have a place, to get out of your head.

njbhwgirl

painting: your art makes me smile!  when are you in NY...I live in NJ ...maybe I can go to your show

njbhwgirl

susanhF: I have heard wonderful things about Fox Chase... I think it is imperative that everyone goes for a 2nd opinion

For me, 1st dr. made TN sound wonderful. She said.. all I would need was a lumpectomy and I was not a candidate for hormone therapy afterwards. She was sure I had no node involvement and my right breast which indicated fatty tissue was just that.  I would be back to work in 2 days with some radiation afterwards.

My cousin forced me to go for 2nd opinion..and yes 2nd doctor had me go for biopsy of right breast   It revealed 2 tumors . I opted for bilateral. I looked into Phila but NY was closer for me.

Good luck! I am sure you will choose which doctor you are most comfortable with

blondelawyer

Does anyone know of a place online that has a good collection of research on TNBC?  I am collecting all the information I can to help make my surgery decisions.

Thanks!

Lisa 

Sugar77

Blondelawyer - there's a website for a foundation that's specifically TN.  You might want to check it out.  It's called Triple Negative Breast Cancer Foundation and I'm sure it would come up if you Googled it.  I assume they'd have a lot of what you're looking for. Good luck!

Titan

blondelawyer, I have never been able to find much research on TNCB on line...all I ever see is good response to chemo, higher relapse rate the first couple of years...

I did find somewhere that our 5 year survival is something like 77% compared to Non tncb cancers at 85% (all stages)...

Some people don''t like stats...I would like to just see a little more information sometimes..

Actually I think the research is pretty much at the beginning of our cancer..."they" don't have that much information yet.

Paintingmywaythru

blondelawyer..soemwhere ont he web I found a "positives about negatives" site that was good. the triple negative breast cancer site jsut posted a link to their very recent confernece and all the research studies report on are there to look up...they did not report any breakthroughs this year of anymajotr kind but the studies are interesting to read.

At the MGH site there is the Avon Breat center which also has a link to several studies and research going on on triple negative.

My best, stay strong.

Luah

Blondelawyer: Here's a link to the "positives about negative", scroll down on the left to see a collection of research and articles (which includes non-TN too). http://hormonenegative.blogspot.com/2009/01/want-to-beat-cancer-exercise.html

Titan: Congrats on 27 months out, another quarter down, another small breath to let out. I'm coming up to 21.

MBJ

Titan:  I am coming up 24 months this September. 

Painter:  I found art a great outlet while undergoing chemo and took a wonderful Healing Art class.  It was great as we used all sorts of mediums.  I love your art-very whimsical and of course, being a cat person, I loved that, too!  Good luck with your NY show!

Suze35

Painting - your art is lovely.  My kids would love it!

Luah - I will check the link at some point, but children with cancer always makes me cry .  It just isn't fair.

Titan and MBJ - congrats on the milestones!  It must be so nice to mark another month off those calendars!!

~~~~

Feeling like %&$* today.  The radiation is making my throat irritated - they actually owned up to this SE! - and I'm off any heartburn stuff because it was causing me headaches, so I'm nauseas and blech.  I also think my gallbladder is starting to crap out on me.  Wugh.

Have a good day ladies!

MBJ

Thanks, Suze!  How is your new car?

Suze35

MBJ - the car is so much fun!  I'm getting used to driving a carb engine (I've flooded it twice, lol), and the transmission is not what I'm used to - first gear is non-synchronus, so I grind it more than I like.  But the wind in my short hair, being so low to the ground, on these windy back roads - FUN!!  Thanks for asking .

MBJ

Suze:  How great is that??!!

blondelawyer

Thanks Ladies!

Paintingmywaythru

Suze 35 sorry to hear about your feeling yucky....tough days are just that. Please give yourself lots of TLC.

Lynn18

I do like that blog that Luah posted.

Suze35:  Sorry you are not feeling well.  The car sounds like a lot of fun.  I know what you mean about feeling the wind blowing your hair--I love it!  It's funny how we notice the small things--like the wind in our hair. 

Teka

Hi,

My BS removed the benign cyst from up under (L) breast, which was probably caused by severe radiation burn.   Suze35, vroom vroom vroom on the Fourth of July.

MBJ

Teka: Glad it was B9-hope you heal quickly!

Teka

MBJ,

Thank You!

OBXK

Blondelawyer- try www.nccn.org it has all the guidelines. Just register to gain access.

Titan

Teka..did I miss this about your b-9 scar tissue?  If so..I'm sorry...glad it was benign!  If I would have known I would have worried for you...

To tell you the truth..I just hadn't felt very well the past couple of days..I was freaking...I kept telling myself... the two week rule..I'll feel better soon..yata yata yata...but today, except for sneezing and a runny nose I feel just fine...

It's hard to realize that we can have allergies, get colds, have aches and pains (Heidi)..what is normal to a non BC person is not normal to US...

I guess I feel that having BC I shouldn't have anything else...! 

Teka

Titan,

To be honest I read all the posts but have a hard time keeping everyone straight in my mind.   I keep going back and reading prior posts.   We could all use a lot of sunshine.