Calling all TNs

MBJ

bkj66:  Yes, they are both under the muscle and I had a TE for my MX side only.

Stupidboob

Hey Gang..................hope all is well.    I am feeling better today thank God.    I know I have some messages to answer but right now I have yet another question.

How soon did you all start having side-effects after your first treatment?    From others who have gone through this I seem to have had many that are not normally seen until a few treatments.   I am real sensitive to meds and I will be talking to the doctor about this but I wanted to get a little more info. on how others did.    I had a bad reaction with nausea, and mouth sores, finally I got some magic mouthwash and WOW WEE does that stuff work....

Stupidboob

Found this to be very interesting............then follow to the site for many other subjects.

http://www.chemotherapyfacts.com/types-of-chemotherapy.html

osis: 4/11/2011, IDC, 1cm, Stage IIa, Grade 3, 2/15 nodes, ER-/PR-, HER2-

Huskerkkc

My SE's were mainly a result of the Neulasta shot that I got 24 hours AFTER chemo. I was terribly achy with bone pain, even with Claritin and Aleve. All the pre-meds given for chemo seemed to keep the nausea away-that is one SE I never had. I had trouble with steroids keeping me awake, jittery, and wanting to eat. I had trouble with diahrea and constipation in the same day! 

Stay on top of hte mouth sores...the magic mouthwash will help clear them up, but rinsing several times a day with plain 'ole baking soda and/or warm salt water can help keep them from coming in the first place. Did they send you home with nausea meds? If not, they should. Or call the minute you have symptoms. That is something I was told chemo patients should not have to endure, although there are several on here that have struggled with that. Your doctor should know right away if that is a problem. Don't wait over a weekend or overnight. It can usually be treated if you get something early. ONce it hits though, it can be tough to overcome and you just have to ride it out.   

blondelawyer

Is the "magic" mouthwash biotene?

gillyone

The magic mouthwash is made by the pharmacist - maybe even prescription. It is disgusting but realy works. Can't remember what goes in it - really odd combination. I also used biotine toothpaste and their mouthwash several times a day to stay on top of the mouth sores. That was one of my most miserable moments.

GuyGirl

Just got back from the Dr.  My PT/CT Scan was clean.  I am doing the happy dance.  Thanks to everyone for all their prayers. 

Suze35

GuyGirl - yay!!!  They need a "raising your glass" smilie on this board .

Suze35

Stupidboob - I didn't get all of the worst SEs from AC, and I was able to control my nausea with drugs.  It just whacked the crap out of my WBCs and I don't do well with that.  However, a friend of mine got hit with everything the first cycle - mouth sores, nausea, low WBCs - she really struggled.  The best you can do is tell your doctors about everything, because chances are they can offer you different things to try and help.  You are down one treatment, only 3 more to go of this!

ksmatthews

Way to go guy/girl!  Congrats!!!!

tracie23

Yeah Guy/girl

 Loved the magic mouth wash.... I didn't get as many side effects on the AC I would be down and out for a week due to extreme exhaustion but the nausea was controlled with meds. Taxotere is a different story..... I thought I was going to die on Taxotere. We started (taxotere is a nightmare) lots of of good info on there. Any issue I had I called the Dr. and they seemed to have a fix for it. I did notice it was cumulative.

ksmatthews

I dot AC and Taxotere, but I usually feel pretty good.  I get tired really easy and have no taste   I only have 2 more to go!

Wishing everyone a SE free week.

Marijana

I'm 28 diagnosed at age 27 and have clinical and pathological inflammatory breast cancer. Neoadjuvant therapy (TAC 6X, every 2 weeks), 2 X mastectomy followed by radiotherapy. 10 positive lymph nodes, including the top, cancer located diffusely in the breast, partial response chemotherapy ypT4N3.

The TAC was heavy my arms, legs, head everything swell. The latest treatments, I thought I would die. Stupid thing is that I ask for more chemo, given the amount of disease found after mastectomy and the disease still remains (in the skin around the scar).

Babs37

Finished my last of 25 rads today. YAHOOOO!!!!!!!!!!!!!!!!!

Suze35

Congrats Babs!!!  Yay!!!  I finished my full fields today myself, now I'm just going for the one spot in my neck.

Welcome Marijana.  I'm a bit confused, I'm sorry - you say you have skin mets, but the doctors won't give you more chemotherapy?  Or do you think you have mets, but haven't been diagnosed...?  I can understand wanting more poison, even after what we went through... ((hugs)) to you.

Still waiting to hear my start date...I'll probably know tomorrow.

MBJ

Marijan:  If they didn't get all of the cancer then I would opt for more chemo, too!  Nothing stupid about wanting to live!  Big hugs--I had 6 x TC, too.  No fun but I got through it. 

GuyGirl:  WAHOOOOO!!!!! Doing the happy dance with you!  Congratulations on clean scans!!!

Titan

Hey Guygirl!  congrats on the clean scans!  And Babs..done with rads...good, good news!

hi Marijana..so more chemo for you??? Sounds like you have been through alot..hang in there ok???

Can I say..I HATE CANCER!..especially when I hear from these 27 year olds.

Hey..I'm 51 and Triple Negative...I hate that you younger ladies are on this board with triple negative....but you young ladies keep me "cool"...even my kids are surprised sometimes ..ha ha

Marijana

Suze35

Now I receive radiotherapy 60 Gy on the chest, I'm still busy. I (still) have skin mets pathological proven. MBJ, Titan thank you.

Glad you're done Babs, when I'm done, big party.

Crazy, that our breasts cause so many problems.

GuyGirl

Congratulations Babs37.  One more milestone met.  Now on to the next phase of your life.

Babs37

Thanks everyone for your support. You are so right GuyGirl 'on to the next phase of my life". I'm still scared of this beast but I refuse to let it run me down! We have a great Florida vacation coming up in a month with my sister and her family and I can't wait to go have fun. Real fun this year!!!  

To everyone doing chemo right now and the newbies, hang in there. You can do this!

Suze- You know I'm with you in all you are going through. I am wishing you all the best in the world and that everything will go fine with your next chemo. You are so determined that I know you can do this!!

Big hugs to all of you.

ksmatthews

Congrats on finishing Rads!

rella40

To all with good news Praise God!  May you continue with success!  Those in treatment...I am right there with you.  I am taking Xeloda right now with very little SE's.  Keep fighting everyone! hugs to all

Suze35

Rella - I was thinking about you! I'm glad to hear you are doing well on the Xeloda :-).



Babs - thank you, it means a lot :-). What part of Florida are you headed to? I grew up in Ft. Lauderdale, 30 years. Hoping to make a visit there myself this summer. I hope you have a blast!



Marijana - definitely get that second opinion! I know my doctor does Xeloda with radiation for persistent IBC, maybe that would be an option for your skin mets. She said a low dose of Xeloda improves the efficacy of the radiation. I believe there are some women doing it on the IBC board here...I would recommend posting there as well.

Babs37

Suze- We are going to Daytona Beach. We go there pretty much every year. We reserved a little cottage on the beach, oceanfront. So pool fun and beach fun for me and my little boy and for my DH lots of fishing fun.

Suze35

Okay guys, what do you think about vaccine trials? I found one that interests me - it is for TNs at high risk for mets after surgery and chemo...I might be able to doit after my next round if I get NED.



Babs - Daytona is so nice. I love fishing myself, I'm taking my oldest on a charter this summer. He caught a huge kingfish last summer when we were in Ft. lauderdale. I know you'll enjoy your time with you family :-).

bak94

Suze35, I would be interested in triple neg vaccine trial. Where did you find it? Have there been any preliminary studies? What is it targeting? I know of the her2 vaccine trials but never heard of triple neg ones. I am nowhere near end of treatment, but if I stay stage 3 I know I have a high risk of recurrence. I would definitly consider it if  were you, and I would like to consider it too!

Suze35

bkj. - here is the link to the trial:



http://clinicaltrials.gov/ct2/show/NCT00986609?term=Breast+cancer&recr=Open&no_unk=Y&rank=635



It states Phase 0, but I think all of these vaccines trials are early phase. It is in Ohio, so travel might be necessary. I was surprised to see it myself!

Summer38

Suze, it looks like patients must be disease-free of prior invasive malignancies for >= 5 years to participate in the trial. Interested to see the outcome of this!

Suze35

Summer - that is just in reference to malignancies outside of BC. It is a common exclusion criteria in trials, from what I can see. You just have to be no evidence of disease and 4 weeks out from chemo and/or radiation.



I am also very curious...the idea of using our own immune system is fascinating!

bak94

Sounds interesting, maybe by the time I am done with treatment they will have a similiar study closer to Seattle.Suze, are you going to go for it? I think  I would if everything lined up right!