Calling all TNs

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  • LRM216
    LRM216 Member Posts: 2,115
    edited March 2011

    Kyme:

    While chemo wasn't even near the category of the fun things I have done in life, with triple negative and anything larger than 3 or 5 mm's - chemo is suggested.  You only get this one shot at killing this agressive beast - and I would definitely do everything I could to fight it with the largest guns I could (which is what I did).  Wishing you a gentle journey with whatever you decide to do.

    Linda

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited March 2011

    Kymm,

    I echo everyone else's opinion. Chemo is not easy but it is the best shot you have at improving your chances. Good luck and keep us posted.

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  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Hi Ladies, thank you all so much for your words of wisdom and thoughtful responses to my question. I have decided that yes I will go through with the chemo. I am going to a chemo class tomorrow to learn all about it. I was just looking at my babies ( 8 and 14 Smile) and I just new there was no way I could live with myself if it came back and i didnt do everything i could to fight off this beast.I know I will have all of you to walk me through this and one day I will be helping others. have a good evening and again thank you

    Kymn

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  • cc4npg
    cc4npg Member Posts: 764
    edited March 2011

    Yup, we'll be here!  And you'll get through it... and I honestly believe you're making the very best decision.

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  • Survivor2Be
    Survivor2Be Member Posts: 109
    edited March 2011

    I'm on taxol and just woke up with a fever of 102. Do I need to call the onc right now or wait a couple hours for the morning?

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  • laurajane
    laurajane Member Posts: 321
    edited March 2011

    Survivor- CALL YOUR DOC NOW!!!I  I was told to call my doc if my fever reached 101 or higher. I hope it isn't anything and you feel better soon. 

    Kymn- Welcome and we are here for you. You can do it and we will help you on this journey. Celebrate with you when it is over and share jokes, smiles, laughter and tears with you along the way. 

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  • laurajane
    laurajane Member Posts: 321
    edited March 2011

    Michelle- I hope your first chemo went ok and wasn't too rough. I had to take a xanax the first few times I went. I also chewed on peppermint Altoids to disguise the taste of the saline wash. It really helped. The taste of the saline would make me gag.

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited March 2011
    Kymm, Give your kids information about what you are going through. Tell them concrete ways they can help you during the chemo. They will feel less helpless if they know something they can do to help you (help with cooking or other chores, or making sure you drink enough water etc.)  We are here for you to lean on, and we are shoulders to cry on, so you don't need to overload the kids with the nitty gritty of your side effects and fears, but they can be a huge support for you.  Sending good wishes your way.
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  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    Survivor - I echo what LJ said, call your dr ASAP.  I too was told to call if my temp hit 100.5, after my first AC treatment my temp reached 99.9 - they started me on anitbiotics right away.  You don't want to waste time with this.

    Kymm - Welcome to the club that none of us wants to be a part of.  Chemo is not fun, but doable and your children will suprise you.  Please feel free to come here with questions, venting, rants or rambling on a good or bad day.

    Michelle - thinking of you.......

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  • Babs37
    Babs37 Member Posts: 455
    edited March 2011
    Kymn- You will be suprised how well your children will adjust to this new reality. I have a 5 years old son with me all day and he was a trooper all the way through my chemo. He just grew up faster and became much more responsable in the past 6 month. I was able to take care of him all the way through my treatments which was important to me and now that I'm 1 week back from my surgery, he is great. When I got back, he ask me : The doctor took away your breast? I said "Yes". Then he asked:" When is he going to put a new one back in?" Then last night before going to sleep, he asked me if he was taking good care of me...... He is so cute and I love him so much! He lights up my life everyday. We are soooo lucky to have our kids even if it breaks our mother's heart to put them through all of this.Let's enjoy every moments.
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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    Michelle- Hope your first chemo went uneventfully. I'm sending good thoughts to you for minimal SEs.

    Kymm- Good choice. Whenever I had a question or concern during chemo I came to this thread and always got helpful info. When you find out what your treatment will be and when it starts, join a thread for your particular tx and another for the month you start chemo. It's really nice to be able to talk to others going through exactly what you are at the same time.

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  • Luah
    Luah Member Posts: 1,541
    edited March 2011

    Babs37: Thanks for posting that. Your son sounds like an absolute gem.  It's hard going through this with kids (and mine were 20 and 17 at the time), but they are such a wonderful gift at a time like this too.

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  • Cleb
    Cleb Member Posts: 28
    edited March 2011

    Hello TN Sisters,

    I want you all to know that I finished my 8 rounds of chemo Jan 12 2011.  I had two bouts with fevers, and I missed a week of chemo due to not paying attention to 100.5 rule.  It happened to me twice.  But on the day of my last round, for some reason I took my original path report to onc.  My diagnosis said IDC but in a note it stated metaplastic.  Please read the fine print. I will pray that your chemo goes as well as mine did (as far as tolerance of the drugs).  On final chemo my onc also stated that I should consider 5 yrs of tamoxifen due to the metaplastic factor, I'm triple negative. I already have lumps in other breast and am scheduled for sono and bone scan within next five days.  Please don't do what I did.  Apparently being TN goes hand in hand with metaplastic bc.  NOT ALWAYS!  Love and prayers to all of you and for you girls just starting tx, I hope you all cope as well as I did.

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  • JenC
    JenC Member Posts: 382
    edited March 2011
    Kyme - Sorry you have to be here with the rest of us.  I had a lump then mastectomy due to unclear margins and one node positive and I was not given the choice for chemo but told it was necessary.  Like some other woman even if I was given the choice I would have done it. I had AC and Taxol and Rads. I did not finish the Taxol (did 7 out of 12) because of neurpathy to my feet but was told that I got enough.  I am 38 and the mother of a 6 year old and would and will do anything possible to make sure that I am around for a long time for him no matter how crappy I felt, hair loss, etc.  It is all worth it in the end to beat this monster.  Good luck with your decision and remember that sometimes the hardest road is the one worth taking Smile
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  • JenC
    JenC Member Posts: 382
    edited March 2011

    Cleb.  Sorry to hear that you have more lumps and I hope that all the tests go well and it is nothing.  Thoughts and prayers are with you. 

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited March 2011

    Hi Kymn, glad to hear you've decided to do the chemo.  I really think that once you are on the other side of the fence, you'll look back and be glad you did it. My daughter turned 10 the day before I had my first treatment.  We were honest with her and tried to keep things at a level that she could understand. She was really a big help and I tried to keep things as normal as possible during treatment. I do think the whole experience made her grow up a bit faster but not in a bad way.  She's so much more responsible now and her grades improved (now all A's and B's from mostly B's and some C's!!).

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  • Survivor2Be
    Survivor2Be Member Posts: 109
    edited March 2011
    Well, this sucks!  I'm getting admitted for antibiotic therapy and this weekend my parents are coming to town!  What a downer!  Especially cuz I made it through AC with no problems at ALL!!  Frown
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  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    Thank you ladies, yes it is a big decision but I am confident now that I am making the right one. I have a chemo teaching class today and will find out when I start. I am having some pain in my breast today not sure if it is just the incision still healing in there or what, I will ask when I go in. Do any of you worry everytime you have an ache or pain now? I think I am turning into more of a hypocondriac than I was before lol.

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  • MBJ
    MBJ Member Posts: 4,352
    edited March 2011

    Kymn:  Welcome to the thread and I am glad that you chose chemo, as it is our best defense!  I still have aching and occasional pain in my MX site and I had my MX in April of last year-guess you could call it the new normal.  As everyone said above, you will find a great group of women here and much support.  Hugs!

    Michelle:  You are in all of our thoughts today and I hope everything goes smoothly.  Hugs!!!

    Survivor:  Noooo!!!  So sorry to hear this!

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi! Cleb,

    In the past I heard about  Metaplastic Breast Cancer and checked pathology report (invasive poorly differentiated ductal adenocarcinoma (no special type)).   However, while checking for MBC I found out (foci suspicious for lymphvascular invasion are present), and was never told by my Medical Oncologist.   I asked him.   He acted sheepish.   All BC patients should get a copy of pathology report.

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  • Suze35
    Suze35 Member Posts: 1,045
    edited March 2011

    Survivor2Be - I'm sorry you have to go to the hospital, that does suck. I hope all goes well.



    Kymn - I sadly welcome you to this group. I think chemo is the right choice. It isn't any fun, but doable, as everyone else has said. As for being a hypochondriac, hah!, I'm the queen! It is another awful side effect of this cancer. I've been told it eases over time...I sure hope so.



    I go in for my brain MRI tonight, and have my surgery Monday. I am feeling just so...resigned...I guess is the right word. Is that supposed to be the "acceptance" stage? I don't know what they'll find in my skull, hopefully just a brain, lol, but I am concerned I've had some new tumor growth in my breast. Two weeks ago, I felt nothing but scarring. Now I have some lumps where I didnt before. So, I feel like I'm resigned to bad news, from one doctor or another. I guess this way I won't be disappointed if I'm wrong...



    Sorry to be a downer. On a happy note, things are moving quickly so I don't have too much time to worry myself to death :). And I've been able to finally feel good enough to just hang out and enjoy my kids. Small steps!

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  • MBJ
    MBJ Member Posts: 4,352
    edited March 2011

    ((((((Suze)))))!!!  I will be thinking about you and hoping all is B9.  I am glad your dr's aren't making you wait.  Big hugs!!!

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited March 2011

    Hang in there Survivor2Be this too shall pass...

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  • cc4npg
    cc4npg Member Posts: 764
    edited March 2011
    Andrea:  So sorry to hear you're going to the hospital.  Been there.. done that.. it wasn't fun.  But they have to check everything for possible infection.  I wish you a fast recovery so maybe you can still be at home by the weekend!
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  • lindaa
    lindaa Member Posts: 119
    edited March 2011

    I will be starting a trial next month of gemcetabine with MK1775 Wee1 inhibitor.  Has anyone heard anything on this?  I think it's like a parp but a different enzyme is being targetted.  I have to be off chemo for 3 weeks so I am very freaked about that.  My disease seems to move so fast.

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  • kelben
    kelben Member Posts: 269
    edited March 2011

    welcome Kymn I will add that I think you are doing the right thing with doing chemo.  It is a pain, but the whole time you will know in your gut that you are killing any cancer cells that may be roving... it is a feeling that sort of gave me strength

    Good luck Michelle and Survivor I will be thinking of you both.

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  • tracie23
    tracie23 Member Posts: 598
    edited March 2011

    Hi Titan: My mother had breast cancer twice and never had chemo or radation with no drugs for 5yrs. My Aunt had chemo for years and radiation and pills etc... for years her cancer was detected way to late.

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  • MonikaV
    MonikaV Member Posts: 201
    edited March 2011

    Kymm, I am also a mother of two. I turned 40 last September. When we found out that I was ER-, PR- , HER@- my doctor said we needed Chemo. I first had a lumpectomy, but when I found out that I was BRCA + , my doctor suggested Bilateral Mastectomy. I took the advice. I remove breast and Ovaries. Have you done your BRCA test? That might help you to decide.

    MBJ: Are you feeling better?

    Heidi: Love your cartoons!!!!!

    Michelle67: Good luck with Chemo! You can do it!

    Laurajane: Nice work!

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  • Kymn
    Kymn Member Posts: 999
    edited March 2011

    HI ladies, no I havent had BCRA is that the genetic testing one? I dont believe here in Canada they do that rountinly and you have to pay for it sigh. But I did get my chemo date march 17. I had chemo class today and cried on and off the whole time. just wanted to pop on and let you know Im just drained right now. talk soon

    KYmn

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  • Babs37
    Babs37 Member Posts: 455
    edited March 2011
    Kymn- I live in Quebec and I did get tested for the BRCA gene and I did not have to pay for it.
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