Calling all TNs
Comments
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Hi everyone! Good news! Scan shows tumor still contained. Surgery is March 20th. Thank you all for the prayers and well wishes! I'm so glad I found this site. Everyone has just been amazing.
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So good to hear from you, Annie. You have been missed on this board!
Special hugs to you, DiV. Your strength is amazing.
I guess I consider myself one of the "Oldies" around here. Coming up on 8 years now.
I check in daily and keep everyone of you in my thoughts. Just not posting like I used to. This board was a lifeline for me during treatment and for the years that followed. Not sure what I would have done without all of the great people that come here.
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That is great news, DIV!
Thanks, Valstim52. :-)
Lyn
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DiV, great news for you! You are in my prayers for a successful surgery and recovery.
Anne
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YYEEESSS!!!
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Hi Div
So glad that you can proceed with your surgery. I'm in your pocket. =((((DiV))))
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That's such wonderful news, DiV. ✨🙏🏻✨
NavyMom - Way to go - 8 years - that's Fantasic! Lookingback, what advice could you share with us?
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My advise? Whew, that is a huge question.
Surround yourself with good people and stay away from the ones that are toxic to your health and happiness.
It's Ok to be nervous at times. But don't let it get away from you. And always ask for what you need. If you are not sleeping well, tell your Onc, Get some meds to help you. Whether its nausea, constipation or anxiety, there is something that you can try that just might help make your life better.
Cry when you need to but try to find joy in a least one thing each day. You are stronger than you think.
Gosh I could go on and on...
I think that we could all write a book about our BC adventure....
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I could write a book, but what I did write was blog posts along the way. I've saved them on my computer. But what was more important were the positive and encouraging comments from friends and family. Helped me get through the process.
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Thanks for the update, DIV. I'm glad you got positive news. I've marked March 20th on my calendar to send you especially powerful thoughts that day. I think of you every day.
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NavyMom thanks so much for the advice. Sometimes I really need to focus on what is good. Also to give myself a break.
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Well Ms Cocker. It's absolutely WONDERFUL to hear from you! So glad to hear you're feeling better. Yes, you're going to be with us a long, long time because God doesn't want you yet and the devil's afraid you'll take over. So you're stuck. Also glad you have what seems to be an amazing support system in place as you fight this nasty battle. Comforting for the rest of us who can't be physically there to help. Take care of yourself and let the doctor's do what doctor's do and let's get this nonsense in the rear view mirror!
Much love,
Mike and Kathy
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Annie, the joy you are feeling better shines on and through us all. You made my heart happy with your warm post. Hoping and praying you get stronger and stronger. Sending you my biggest hugs.
SA8 and another, thank you for the well wishes. My wound from the infection had been a real problem, it goes on and on. It is still open. I see the infectious disease specialist tomorrow, hoping he thinks things looks better.
Navy, so glad you posted such bright words of encouragement. Thank you.
Simple, I thought of you in Annie's home country as you shared those beautiful pics on another site! So lovely!
Every one, have a beautiful weekend.
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Dear Ladies,
This is one incredible group of women here! And Yes! Agree that we could all write books about our bc journey. For sure, it has made each of us stronger, more compassionate and loving. Sending love and well wishes to all of you.
Dear Annie, not a surprise that your family is so wonderful - they got their attributes from you and your feller! It makes us all so, so happy to hear that you are getting through this harsh, harsh treatment. You are cherished for a reason dear lady. DiV, what a strong spirit you are too. I admire your attitude and courage more than words can say. Special prayers for you two very special ladies.
Love, Paula
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DiV, thankful you can move forward with your surgery. We are definitely in your pocket on March 20.
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I want to thank all of you for the prayers, well wishes and support. All of you have been great! As surgery day approaches I'm getting more nervous, anxious and scared. I'm going to kick cancers ass and go down in the medical books! I will post as soon as I'm able after surgery.
Meadow I'm praying your infection gets cleared up soon so you can finish your reconstruction and put this all behind you.
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(((DiV))) We'll be thinking of you and praying for you.
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I would be scared and anxious, too, DiV. I look forward to updates on that arse kicking!
Lyn
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DIV...YOU GO GIRL. Will be praying for you.‼️
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I'be been off this thread for a few days, and there's so much to catch up with: it's really great to read so much good news and good advice! I so agree about finding and noticing the joy in each day, something I'm trying harder to do. Special thoughts for DiV, Annie and Meadow you are so inspiring. Even when I don't read or post, I think of you all everyday and send loving kindness to youall. X
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DiV you're in my thoughts and prayers for your upcoming surgery! You're an inspiration for sure and I know you'll do well! Just hang in there and try and relax and enjoy the weekend. I know that's easier said than done but we are all with you. Don't forget!! (((((HUGS))))
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DiV, try to do something fun this weekend. Thinking of you!
Well, my experience may help other patients. My dermatologist is co-authoring a paper on the risks of radiation in lupus patients. She wants to include a description of what happened to me, a photo (without my face), and the drug that worked so well to calm down the rash. Glad my suffering will help other doctors treat their patients. 🙂
Hope everyone has a good weekend.
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Father God,
Please grant complete healing to all of us needing it. Amen.
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Anyone totally exhausted? It's 10 months pfc and I've been feeling pretty great. Suddenly, I can hardly walk more than a few blocks without feeling achy in my back and very very tired. Pain is not there other times. I've been bad and have not exercised since my lumpectomy over a year ago. Opinions?
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Cathytoo: all day, every day! I feel your pain-literally. I have Ehlers-Danlos syndrome; it's a connective tissue disorder that affects the entire body. Chemo exacerbated all my symptoms to the point that I couldn't work for well over a year, as I was in too much pain/too exhausted/too physically incapacitated (joints not working properly plus ongoing neuropathy) to be on my feet for any length of time, which is what my previous job demanded. I'm finally working at a desk job now, and full-time. But after a full work day and the hour I spend on the road to get to & from, all I have the energy to do when I get home is lie down! I *wish* I could exercise...
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Cathy, About a year ago I had a very similar feeling. I would bring a load of laundry upstairs to my bedroom and would feel exhausted. I had to sit on the bed and rest for several minutes before I could do anything else. This went on for several months. I told my PCP about it and I had some blood work done. Results showed that my thyroid med needed to be increased. Also my B12 level was in the basement! So now I give my self a B12 injection once a month. And thankfully I am feeling much better.
DiV, sending gentle hugs your way.
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DIV in your pocket and gentle hugs our way.
Cathytoo, the fatigue is a beast i have yet to slay. It comes and goes. My bone on bone knee is not helping either.
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Meadow, - what is next for you? Have you seen a wound specialist? (Forgive me if you already told us, - my memory is awful of late.
I hope you can finally get that wound closed !!
Cathytoo, - Like you, I have not regained my energy level at all. It seems that many women compete their procedures and treatments and life returns to 'normal', but I am not one of them. Often times, my body is not comfortable, probably more on the lat flap side, so sleep is disturbed which may contribute to being tired. I've aged at least a decade these last couple of years. I ache in new places, my arm strength is diminished, I get tired and my hair is thin and awful. Some days are better than others and I keep hoping that I will regain more of who I was. My onc suggested that I return to pt to see if that helps. In the mean time, I am thankful for each and every day, no matter what!!
Div, - may your surgery go smoothly! We are all in your corner! Update when you can!
Thank you, my friends, for being here to 'talk' to.
Sending hugs and BE WELL wishes to all here!
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{{{{BIG HUGS}}}} to all on the eve of the first day of spring (which is also DH's and my anniversary)!!!
DiV, you'll be in my thoughts tomorrow; your strength is amazing.
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DiV, thinking of you on this eve before surgery.
Another, I saw the Infectious Disease Specialist on Friday, he was encouraged the infection is improving, and maybe can close the wound in about 2 weeks. I will not try to have another surgery for reconstruction. I am going to be happy and content with my one fake boob. Being flat on one side some how makes my fake boob look really good!
Adapted, Happy Anniversary!
((((Annie))))
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