Calling all TNs

Cathytoo

Praline...I found your post very interesting. My own experience has been that doctors are not in the same page, even those within the same speciality. My breast surgeon said no Chemo, even though my tumor was 2.5cm and grade 3. The four oncologists I saw all had varying opinions about the type of Chemo. I had done a lot of research (not Googling) and knew that I had to be as aggressive as I could handle. I am close to your age and very healthy with no other health problems. I chose, however, NOT to go the ACT route because of the small risk for heart damage. I wanted to come out from chemo as healthy as I went in. I decided to do TCx4. Now that I have completed 3 with virtually no side effects, I will do one more and decide about a 6th. You are so lucky that your tumor was so small. But, it's still a TN situation. The MO I chose and the RO both said the same thing to me. "We want to give you the maximum treatment that will cause the minimum damage." Those words made the most sense to me. As far as being 75...so what? If you are healthy, you could have 20 years ahead of you. One of the women who sits next to me in the treatment room is 82. She gets chemo for IV BC. She's been going strong with treatment for many years. After treatment she goes to the gym‼️ I chose to hit this TN with all I could handle. I hope you do the same.

HausFrauMi

Meadow-- actually my son (and hubby) is the squeamish kiddo! But it made him feel better to go and realize that it wasn't scary or bad. Then he talked to my MO nurse and she was great to answer his question! Even gave him her card so he could call anytime.

I'm feeling so blah after this AC tx. My daughter went home sick on Friday throwing up. Went to urgent care and they thought flu. I thought strep. Haven't heard back on test results but she had an important field trip on Monday to an 1850's style school house little house on the Prairie style. All the kids dress up! She's on Tamiflu&antibiotic

Meadow

lou52, so glad you are close to finishing your chemo. Have you tolerated it ok? I know you are ready, and ready to begin the next phase of regaining your health. Hang in there!.

Haus, did your daughter get to go on the field trip? I think by your post she did. She looks darling! Laura Ingalls Wilder lived and wrote her works, about 30 min from my home. There is a museum there, just a modest place, and her humble home. She and her husband lived out their lives there, and we have taken many visitors to the museum. If you have read the books you know about Pa's fiddle. ...it is there. Your daughter's pic made me think of her!

greenae

HFM, your daughter looks adorable!

Meadow, I read all of those books when I was 8-9, and Loved Them. Still do. Waiting for snow in NY on second day of spring. Hope all are having a good weekend!

Hugs

Arlene

Shopgal2

Haus your daughters photo makes me smile. Yes I agree very little house on the prairie. I loved the books and the series. Sorry to hear your latest ac has you feeling blah. I remember being at my 3rd and having that same yuk feeling. Hang tough and just take them one at a time. Hugs to you.

HausFrauMi

Sydney has her field trip on Monday! So far she is still good. That picture is when I had her bring home the costume to make sure it fit. She is borrowing it from the class and they are keeping it at school. None of us feel perky this weekend. Hubby says he is having sympathy blahs . I hate that I will miss the parents lunch visit but I'd be surprised if I feel up to it tomorrow. Hubby Is supposed to go and take pictures for me

koala55

Hi Praline,

I was diagnosed TN in October. age 60. Had 12 weekly taxol with carboplatin each 3 weeks (4cycles). The grade 3 lump was originally about 3 x 4 cm with at least 2 nodes involved. The lump reduced significantly during chemo. Surgery 4th Feb (lumpectomy) and sentinel node biopsy. Pathology showed pathological complete response in both remaining tumour and many (about 19) lymph nodes. Oncologist recommended standard treatment of 4 x AC and suggested I could do 2 more cycles of the carboplatin/taxol. I opted to do dose dense AC only and have now had 2/4. It seems to be much harder than my first chemo rounds. After this radium. Seems to be that TN is treated as aggressively as possible so I'm hoping I have made all the right decisions. I'm in Singapore and the care here is not the team approach that might be available in Australia so I feel I need to do a lot of my own research. best wishes on your journey

Luvmydobies

Haus your daughter looks so cute! Hope you're feeling better today.

anotherNYCGirl

Haus, - your daughter is a cutie pie! I remember when my daughter was that age and she insisted to go to school one day when she wasnt feeling 100% because her class was putting on a play. She came to breakfast dressed in her costume and I let her go to school but later found out that she had strep. It's 20 years later and I still feel badly that she may have gotten rest of the class sick!

I am glad that your son spoke to the nurse and feels better about your treatments!

Meadow, - my girls loved those books, too!

Hope everyone undergoing treatment is having a good week! Keep drinking those fluids and eat carefully!

Think SPRING!

Hugs to all from slightly snowy NYC!

Meadow

Oh yes Another, ready for Spring!

Koala, good to hear from you!

Curlyq1974

This is for the parents who have kids on Spring break - eventually the kids will say how bored they are and that they have NOTHING to do... My silly fur baby:

Meadow

Curly, soadorable! It that baby a Manchester Terrier?

Curlyq1974

Meadow, he is a Miniature Pinscher... my post cancer gift to myself He helped me thru the post-treatment blues... And is my baby!!!

BanR

curly....cute picture!! Spring is technically here although we still have flurries on and off in spring followed by a full fledged snow fall tomorrow and day after.

for everybody..

Sharing in short, an information, that I came across...

Light pollution triggers breast cancer! The need to stay more and more under natural light. Even the light from laptops, televisions and smart phones can trigger breast cancer..this is because of a link established between hormone melatonin and artificial light and how lack of melatonin is one of the agents to trigger breast cancer. While i was reading more and more about this, I just came to know that just yesterday Apple announced a new technology which will enable reduction of blue light from its devices and if you all do more reading on this, you will find out that blue light is the most harmful of all artificial lights and all these electronic devices use blue light.

Cocker_Spaniel

To all of you wonderful ladies and Mike have a wonderful Easter, stay well and eat as many chocolate eggs as you can.

Cathytoo

HAPPY EASTER

greenae

Happy Easter, Friends!

sylviaexmouthuk

Hello all you nice ladies,

I am just popping in to wish you all a Happy Easter and a Happy Springtime.

Fond thoughts from the UK.

Sylvia

LoveMyVizsla

Happy Easter from the Easter Vizsla

Cathytoo

LoveMyVizsla...beautiful and looking very cool in his bunnie ears

4everStrong

happy easter to all ladies here.

I found out today after my surgery that I had CPR. So good news.. but going through Google I found out it wasn't that significant because if you had a high ki76 - from the biopsy mine was 80%. I should be expecting a recurrence? Any knowledge on this topic at all?

I am recovering from my surgery now and getting ready for radiation may b mid April.

Will we ever relax?

placid44

From what I have read, pCR makes quite a significant difference in lowering odds of recurrence. Ki67/high proliferation cells generally respond well to chemo (ie those that are not chemo-resistant). I did not have a pcr, but ki67 of original tumor was 70 and much higher than the residual tumor, so I'm hoping that anything that got "out" was taken care of by chemo

Valstim52

4everstrong

hope you don't mind my 2 cents worth.

there will always be a caviet (forgive my spelling) to any good news we get because it is BC and has no cure. I say hooray for your good news.

On this board and other threads, you will see long term survivors with the worst of odds: lots of nodes, no pcr, poor response to chemo, stage 3 etc, and they are here 5, 10 plus years NED. Then you will see and know of others, low stage diagnosis, great odds (no nodes seen etc) and they have a recurrence with a vengeance. We just never know, but they now have guides for us to speculate and sort of 'know'.

. 24 years ago when I had my first BC (and was in complete remission, this is a new cancer in the other breast) You did not have all the tests, studies etc, in some ways I feel it was better. To this day, don't know if it was TN, etc. I had a lumpectomy and radiation and was sent on my way. Had check ups every 6 months, mammo's and US 2 x's a year for 5 years. Then on my way.

Meadow

4 ever strong, I am SO GLAD for your complete response! Very good news!

Thanks everyone for the Easter wishes, same to you all.

Allydp

Happy Easter to all of you strong ladies and our few awesome, strong gents as well!

Luvmydobies

Happy Easter to all of you gals any guys!! God Bless

shiny

hello!

Took time out yesterday and read several recent pages of this thread. Lovely bunch of ladies.

Just wanted to pop in this Easter Morning to send you all my very best wishes and lots of happy moments this Holiday weekend, and always.

Have added your thread to my ' farourites' and will pop back in to follow your successes!

Happy Easter!

Shiny

Kayrem

I took some time today and visited this thread today. I was diagnosed at the age of 46. My children were 5 and 7 years old. Friday, I celebrated my 51st birthday and my children are now 10 and 12. They make me smile so much! I really was not very hopeful four years ago that I would see this day.

Time goes on and before you know it you have moved on, not forgotten, just moved on to other things. Take care everyone and be grateful for the good days. They will occur more and more often! Happy Easter everyone

Valstim52

Kayrem

Thanks so much for posting. It gives those of us early in this journey so much hope. Especially us TN's.

Val

Meadow

Shiny, so very glad you are here! Hoping you find tons of information and support. Happy Easter!

Kayrem, I echo Val, thank you so much for popping in. I am grateful for your post.

I am reflective today, thinking about Easters of my childhood.....coloring eggs with my brothers and the simple joy of finding those same eggs. We did not have the plastic ones filled with money and candy, but they would have been a treat and treasure too. Also thinking about Jesus and the cross, that sacrifice for all, and what love is all about. HUGGING YOU ALL.

My sweet Spouse started giving me a bunny at Easter when I was a teenager. ..he has continued to give me one every year since, and I am now in my 50's. I am currently holding this year's stuffed version, a charmer for sure. Thank you Spouse, for everything.