OOMPH Versus Hysterectomy?

Pure

My obgyn called over to DUKE to talk with one the Duke OBGYN oncologists. They suggested I do a hysterectomy versus a OOMPH.

They said it opens the door to using tamoxifin as well as b-c of the bc I am increase risk of something ( I forgot) hence the hysterectomy not an oomph.

Anyone else told this?

everyminute

My doc suggested a Hysterectomy v. an Ooph (no "M") for the same reason.  If I were to stay on tamox there is a slight risk of endometrial and uterine issues and frankly the uterus doesnt serve much purpose after the ovaries are gone. She actually removed my cervix too.  She was slightly concerned I would have incontinence and/or bladder issues when running but I dont.

caaclark

I did a hysterectomy but left cervix in tact.  I was done with my ovaries anyway and was on tamox. but had a cyst form on each ovary and had uterine thickening from the tamox so I told them to take as much as they wanted.  They saw no reason to take the cervix for me.  My goal is to have as little estrogen in my body as possible since I was 95% ER+.

Bugs

Mine gave me the option and I decided on the ooph alone.  I don't regret the decision.

Leah_S

I'm going to have an ooph for prevention of ovarian ca (Grandma died of ovarian ca) but I'm still on tamox even though I'm post-meno. My onc says he's had good success with 2 1/2 yrs tamox then 2 1/2 yrs AIs for post-meno women. He also was quite specific that he did NOT recommend a hyst.

As far as the uterine ca - the risk for the general population is 1 in 2,000 and the risk with tamox is 1 in 1,000. So while the risk is technically twice as high, it's still a very small risk. Since you can go on an AI after an ooph you might not have to worry about this no matter what. As far as I know having bc does not put you at a higher risk for uterine ca. However, as everyminute has mentioned, there is a higher risk for bladder and incontinence issues with the hyst. I already have a bit of a problem with that (had 6 kids) so I'm not interested in making things worse. Since you've had 4 kids it's something you might want to discuss further with your docs.

I suggest asking lots of "why" questions since it doesn't sound like anyone's given you much in the way of reasons or info. They may have a very good reason for suggesting it but just haven't told you what it is.  (Don't get me started on docs who figure a patient doesn't need to know anthing.)

Best of luck.

Leah

KerryMac

i asked if it would be better to have a full Hyst, rather than just an ooph, and I was told they wouldn't remove my uterus unless there was a reason to. So, I just had the ooph.

JacquelineG

same as Kerry above-- i also opted for the ooph (I'm also on Tamoxifen and may switch to AI's after 2 or 2.5 years).

Jackie

Beverly11

I went to a specialist for a consultation.  I was told that since my periods had stopped due to chemo there was no need to have an ooph.  If they started again they would review the situation.  That was around May/09.  No periods yet.  I  am not entirely at ease with the situation though. 

Anonymous

I chose hyster vx ooph. Drs basically left it up to me, but my gyobn was leaning to the full hyster side. After surgery he and I were both pleased that was the choice I made. I had never had issues with my female organs but did have a cousin pass away in her 30's with uterine cancer (hence part of my decision to do the full) he said that he was shocked that my uterus was covered with many cysts when he removed it. Of course he sent it to the lab for testing but all came back b-9.

I would choose the same option again if I had to do it over again. I just turned 49 and am taking tamox but am pretty sure my onco is going to suggest changing to an AI when I see him this coming May.

I think you should ask lots of questions and weigh your odds before making any kind of surgery decisions.

Best wishes

Jule

dogsaver

glad to see this thread. i am scheduled for laparascopic surgery on april 16th to remove ovaries tubes and uterus. keeping the cervix. was just going to do the ovaries but ultrasound shows mild thickening of uterine lining with cystic appearance as well as two cysts on left ovary. to throw a wrench in things, after the surgery was scheduled i got my period. first one since october! now wondering if i should leave the right ovary. its crazy but im cursing and praising my period at the same time! i tested positive for the MTFHR gene (causes clotting) and have family hx of ovarian cancer and uterine cancer. would love to hear how you are controlling the hormones after ovary removal thank you!