Breast prosthesis now and future reconstruction
Hi ladies,
I had BM in 2/09 with TEs and exchange surgery 12/09. Unfortunately, the reconstruction failed on the radiated side. I will be using a breast form until another reconstruction procedure near the end of the year. I have been reading through many of the threads, but still have some questions I hope people can answer.
First, I know everyone is different but I am curious if anyone knows which reconstruction procedures (other than implants) tend to be most successful after radiation. At this point, I am considering a lat flap.
In the meantime, I have gone for a fitting for a prosthesis and hope to have it next week. The person fitting me said I can use the regular form when swimming unless I swim often. I rarely am at the pool, but will be in Hawaii for two weeks before my next surgery. Do other people use the same form for all activities, daily, gym, beach/pool and then wash it? I hate to spend money unnecessarily, but want to have the products I need.
Also, I tried on a number of different bras and she is ordering some in my size to try. Some didn't work, especially with puckering on the opposite breast (without nipple or projection). I also prefer seamless bras, which seemed to limit my choices. I have seen many different sites online, but am curious if people could recommend sites that are good to work with, especially returns if I am not happy with the fit. I also would like to order a couple of bathing suits and am afraid that will especially difficult to order.
Finally, the fitter has asked for prescriptions from the doctor for one prosthesis and four bras. If I order online, can I send the bill to the insurance company for some reimbursement? Would this also apply if I only buy a couple from this fitter and order more online (up to the 4 ordered by the surgeon)?
Any advice people can give me would be appreciate. I really like coming to this site and reading what people have to say from their own experience.
Thanks,
Patti
Comments
-
Check breastfree.org, which is a site begun by our bc sister Barbara (screen name Erica). It has lots of info about trustworthy sites and good options for prostheses.
Dawn
-
BoobsinaBox,
Thanks so much for posting the link to breastfree.org. I had been looking for info on prosthetics (need to heal a bit more before I venture out to shop) and was sitting here irritated by the post-op cami form and realizing the only reason I'm wearing the stupid thing is to not scare my little girls (while at the same time thinking they'd probably be less fazed by it than adults). I'm less than 2 weeks past a unilateral mastectomy, but I'm already thinking maybe I don't want to go through the reconstruction rigamarole. I'm finding lots of good info and confidence boosters on breastfree. I'm not claiming that it hasn't been difficult and challenging to my self-esteem, but probably the strongest thing I'm feeling is that now I just want the other one gone too. I'm lucky enough to be in a very supportive, long-term relationship and don't feel the need to reconstruct for him, so maybe I won't for me either! Or maybe I will, but at any rate it's nice to see such a positive approach to going without.
Thanks again,
Tory
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team