Am I thinking right?

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perky
perky Member Posts: 241

I would love your input. I think I may have backed into my surgery choice but I also know that rationalisation is a powerful thing especially when under emotional stress.

I found out a month ago that I have a 2cm tumor of IDC ER+/PR+ HER2 - grade I in my right breast. After insisting on an MRI found another 1.5 cm something on my left breast. Having an MRI biopsy next week.

I am seriously thinking about having a double mastectomy regardless of the second biopsy with expanders.

Here is my thinking and I would love to know if this sounds right to you.

I had Cushing's Disease for 15 years and it was only cured a year ago. It caused high levels for cortisol all that time which affects every cell in my body (hence the cancer I suspect) and causes me to have smaller blood vessels, and skin that is already thin. I don't think I can hope for much reconstruction after radiation. 

 I don't thinnk I am a good candidate for diep because the transplant may not take.

I don't know that I would be comfortable with a lumpectomy because while I feel reasonably good that it could catch it, I have no faith that any reoccurance would be caught at all. I have very dense breasts and nothing was found on a mammo and the second thing that the MRI caught wasn't even seen on ultrasound.  

 My surgeon refuses do do partial mastectomies and I see his point.

I feel horrified and at peace at the same time of losing both breasts and having to see them that way for a while. I am trying to keep emotion out of this decision as much as possible with the exception of what I can reasonably live with.

What do you think?  Is that the right logic? My surgeon most likely will want to do a lumpectomy because it is the shortest surgery and I will have to insist. Should I? Does that sound right?

Seems really odd to argue for losing both breasts but for my situation it seems like the best bet.

I would love your thoughts on it.

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