OncotypeDX Scores

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Hi,

I think it would be informative to add a spot in the "diagnosis section" for OncotypeDX scores.  Since so many of us have had them now, it would be a good reference to quickly see the score and how the outcome is based on treatment.

Thank you,

Nancy

Comments

  • ThereIsHope
    ThereIsHope Member Posts: 62
    edited February 2010

    Nancy... Great  suggestion.  I should know my score by Wednesday of this week and know I will be interested in others' scores and treatment.  Karen

  • otter
    otter Member Posts: 6,099
    edited February 2010

    There already is a very good section on the BCO website called "Oncotype DX Test."  It's in the "Screening and Testing" section of "Symptoms & Diagnosis": http://www.breastcancer.org/symptoms/testing/types/oncotype_dx.jsp

    There is no specific forum on the discussion boards that's dedicated to the Oncotype DX test.  Personally, I wouldn't favor creating one just for that one diagnostic test.  Why have a special forum for Oncotype testing, and not for mammograms, or ultrasound-guided core biopsies, or self-breast exams, or CYP2D6 testing, or Vitamin D measurement? 

    OTOH, there are plenty of threads that discuss Oncotype DX testing and interpretation of the results.  One example is a thread (topic) called, "NEW Oncotype Dx Roll Call Thread," which can be found in the Chemotherapy forum.  Lots of women have posted their scores and treatment regimens on that forum.  You can find other threads where Oncotype DX testing is being discussed, if you type "Oncotype" into the discussion board search engine.

    otter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    Otter, I think what Nancy is suggesting is that oncotypedx be added to the diagnosis line, just like ER/PR and HER2 status.  I don't think that this has anything to do with creating a new forum.

    I have noticed that a lot of women already put their oncotype in that space, and I agree with Nancy that it is helpful to have an at a glance look at the results without chasing all over the forums for the information.

    Keep warm,

    Susan

  • otter
    otter Member Posts: 6,099
    edited February 2010

    Oh, of course!  Sorry...

    When I read, "in the diagnosis section," I thought of everything except the diagnosis in our signature lines.  In that case, I agree -- I think it would be helpful if we could add our Oncotype DX recurrence scores to the information on our profile pages, and have the scores appear in our dx lines.  That's a great idea.

    otter 

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited February 2010

    Hi,

    Yes, sorry I wasn't clear...I would like to see it added to our diagnosis line which appears under all of our posts. 

    Thanks for your support!

    Nancy

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited April 2010

    I take it the moderators don't like this idea.  I still think it's a good one:)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    I think it is a great idea.  It is extremely difficult to find information on Oncotype on this website.  Good luck with getting the moderators to add it.  "Good luck with that"

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2010
    I like this idea. Just waiting for the tech team to get to it Wink
  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited April 2010

    Hey....thanks for responding and taking it into consideration.  I appreciate your time.

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