tubular carcinomas

tamgam

Just wondering how many of you have invasive tubular carcinoma?   I was dx 1/25 with invasive tubular and DCIS and some LCIS.  Tubular makes up about 1-2% of all bc so its not talked about much.  I am opting for a dmx but have to wait until late March for a dmx with reconstruction.  So long to wait and would love to hear from others with this "slow growing" cancer. I kind of feel like its slow growing to those that do not have it growing in their own breasts! LOL Any growth at all is scary to me.  I have a positive outlook and the prognosis is good so far but I need to chat about it! Ladies?

1stick

Hi tamgam - I'm so glad to find someone else with a tubular cancer!  I was diagnosed in January 2009 and had a similar sized growth to you.  I was recommended lumpectomy with radiation to follow then tamoxifen for 5 years (I was 43 at diagnosis).  Like you, I was told that this is a good, slow growing cancer, but the diagnosis came like a bolt from the blue.  I couldn't wait to have surgery and get rid of it.  Slow growing it might be, but I did not want it in there.  Incidentally I also had about 5 cysts in the other breast and had worries about follow up and what might happen to that breast over time - I don't like going to the doctors and felt that anxieties about the other breast would be difficult.  I eventually requested a bilateral mastectomy and after a series of visits with the breast surgeon, plastic surgeon, oncologist and radiologist, eventually had bilateral mastectomy and tissue expanders in Feb 09 with exchange surgery to silicone implants in October 2009.  The surgery went well and I'm doing great.  I take the tamoxifen and get the odd side effect but nothing much.  I don't worry about recurrence or more cancer although sometimes I worry that I should be worried.  Human nature is a funny thing!

I haven't been on this site for a while so have just come across your post - you should have had surgery by now?  I do hope you're well and doing OK.  It's a funny cancer to have really - I sometimes feel quite isolated as it's difficult to find much information out there about tubular Ca.  I have to keep reminding myself though that if I have to have cancer, it's a good one to have. Do let me know how you are.  My thoughts are with you.x

tamgam

Hope- that stinks that you have to go through so much.  It amazes me what some people get thrown at them.  I will def keep you in my prayers.  ANY cancer is scary but it does help a little to have a favorable type.  Feel free to vent here I will always listen.  Sometimes I give too much of my opinion and philosohy but it is just an opinion so feel free to ignore when necessary.   Sometimes what others say or write is meant to console or inspire but it can come out preachy or just plain wrong.

I know I have been quite upset by many comments since I was DX but have had to look at the spirit in which someone said them.

I too am from MA.  I am 41 with 3 young children- all 8 and under.  When life throws a curveball ( and I have had a good share) I have started to just sit back and wonder where it will take me.  Sometimes you end up learning very valuable life lessons and gaining a lot of self respect for being able to handle things.  I also find it is awesome to meet people through certain journeys that I would never had had the chance to if not for my "problems".  I have also learned a lot about true frienship.  Sometimes the ones you lest expect are the ones to step up and support you most.  Then again a few really fall short and disappoint but at least you finally know where you really stand.

Sorry for the rant.  Hope you can enjoy today and find strength to handle all that has come your way.

HUGS!♥

Tracie

Brightsocks

I am wondering what treatment everyone had for tubular BC after you had a lumpectomy? I am on the fence about the next stages on what to do?