Please share how breastcancer.org has impacted you....

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Moderators
Moderators Member Posts: 25,912
edited October 2014 in Life After Breast Cancer

One sentence about how Breastcancer.org has been helpful or impacted you.  We want to share your quotes with our supporters. 

Thank you!!!! 

Melissa

«13

Comments

  • FLtricia
    FLtricia Member Posts: 140
    edited February 2010

    I came to this website when my daughter found it shortly after diagnosis.  I arrived terrified and pretty much ignorant about breast cancer.  The research, treatment and side effects sections helped so much, but the ladies here were my saving grace. 

    When I joined in 2006, Iodine, Alaska Deb, Fitztwins, among others, were posters that lifted my spirits, made me able to laugh, reassured me (I mostly lurk and read). 

    More than one sentence, but the impact on my life demands more than one sentence. 

  • REKoz
    REKoz Member Posts: 590
    edited February 2010

    BCO has given me every tool from emotional to education/knowledge that I have needed to get through this arduous journey. I am beyond grateful.

  • Warrior517
    Warrior517 Member Posts: 355
    edited February 2010

    BreastCancer.Org has been my friend that does not judge, is never too busy and is always available which in turn provides me with support, love and most of all, HOPE!

  • mari55
    mari55 Member Posts: 693
    edited February 2010

    I am new to this website and discussion boards.  I was diagnosed the first part of January with bone only mets to my T spine and my hip bone after 10 years post mastectomy for DCIS.  I am part of the 1% club.  The postings on this site have been invaluable.  It helps to hear from the many strong women struggling with this disease and treatment, who have the same concerns, fears and hopes that I do.  I visit multiple times during the day and continuously find comfort , knowledge and the reassurance I need to get through this.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2010

    Wow, this is powerful. Thank you all so very much!!!

  • idaho
    idaho Member Posts: 1,187
    edited February 2010

    Thank God for Breastcancer.org!   Questions answered, hope given, sisterhood found, strength shared, love showered, and grief aknowledged.   Tami

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited February 2010

    breastcancer.org is a great site. I love the feeling of warmth and respect that all the posters have for each other.

    On the other hand, I think the new member post count limit of 5 posts a day until 50 posts creates a tremendous barrier to people who are newly diagnosed, frightened, and trying to seek out words of advice and support.

    When you first find out about your breast cancer is when you have the  most to ask and to say. 

    It's very frustrating and demoralizing to then have to wait for a minimum of FIFTY posts to be able simply post away.

    That's 10 days of agonizing that we really don't need.

    I would strongly urge the site to reconsider the 50-post limit and lower it to at least half that.

  • TennesseeMichele
    TennesseeMichele Member Posts: 136
    edited February 2010

    Only one sentence??!! 

     BCO is my lifeline when nobody else around me can understand my fears, my questions, my loneliness; a sisterhood waiting to reassure, educate, and encourage me.

    Michele

  • hrf
    hrf Member Posts: 3,225
    edited February 2010

    Breastcancer.org helped me get through my dx and treatment by connecting me with an army of supportive and knowledgeable women. I will always be grateful.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited February 2010

    Breastcancer.org and my sisters on this site have held my hand, guided my steps, educated me and have allowed me to help others who come after me. I would be lost without BCO...Hugs, Mazy

  • KAJDerby
    KAJDerby Member Posts: 310
    edited February 2010

    I am an American living in a foreign country and BCO gave me so much information and support to help me understand what my foreign doctors were telling me.  I have to say one more thing.  My doctor says it is much easier to explain things in English as I have so much knowledge about the subject.  I know my doctor is also very grateful that I have this wonderful resource for information and support.

  • grdnslve
    grdnslve Member Posts: 310
    edited November 2010

    breastcancer.org has allowed me to be in contact with wonderful women who are on the same rocket ship-sharing is empowering.

  • Kyta
    Kyta Member Posts: 713
    edited February 2010

    I was recently diagnosed and was so scared. The information that I accessed through BCO was instrumental in having informed discussions with my doctors, and the support I received from members was so helpful. Knowing you're not alone really helps.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited February 2010

    This website has kept me from feeling alone and isolated.  It has been a great source of information.  Hearing people reach and and help has been very, very healing.

  • lewisfamily503
    lewisfamily503 Member Posts: 621
    edited February 2010

    Breastcancer.org  has answered my questions, listened to my fears, kept me sane, made me laugh, made me cry and most of all, made me realize we are all connected and a part of something bigger than any one of us.

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2010

    Breastcancer.org gave me the support of a community of women while I was going through treatment and continues to provide me with information to live confidently as a survivor.  I honestly could not imagine this journey without BCO!   Thank you!!!  Deanna

  • joanneasiata
    joanneasiata Member Posts: 719
    edited February 2010

    This sight is very valuable for knowledge, for overcoming fear ,for making friends in the same boat that have the same feelings ,for a good laugh ,and for hundreds of caring shoulders to cry on , i would be very lost and feel so alone if this sight was taken away from me even though i have a fabulous support system around me .

  • GramE
    GramE Member Posts: 5,056
    edited February 2010

    BC.org has given me a network of adopted sisters who are there when I need them to help me deal with the ins and outs, the ups and downs, the good and the bad, sharing and caring about me and giving me hope, love and kindness.   

  • ktym
    ktym Member Posts: 2,637
    edited February 2010

    When I was terrified and not knowing what to expect I found breastcancer.org.  It gave me invaluable information about what to expect in treatment.  Allowed me to ask better questions of my doctors.  Most importantly the support from my fellow sisters has literally been the crutch that has gotten me through.  There are times no matter how understanding and supportive your family and friends are that the only person who really understands how you're feeling is someone going through the same thing with you.  I would be bereft without this board to come to.

  • Magister105
    Magister105 Member Posts: 73
    edited February 2010

    It changed my ignorance to knowledge; my powerlessness to empowerment; my despair to hope; my isolation to support.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2010

    Wow! Thanks so much All for sharing with us!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2010

    I came here in 2006 when I was diagnosed with breast cancer.  It was so uplifting to hear the stories of other women of all ages, shapes and sizes and to not feel alone...I think not feeling so alone was the most important aspect of my coming here.  I found it on the internet while looking up the use of Juice Plus and cancer patients.  After several years after recovery, my life went on without cancer.  I am writing an autobiography, doing needlework and greeting cards to support cancer patients.  I am still trying to find connections for children with cancer to send my cards to.  Any ideas or suggestions?

    Well, the interesting part of my story is that February 9, 2006 I had my mastecomy.  Now here it is February 10, 2010 and I am planning for treatment for brain cancer.  How ironic is that?  How do I feel now...well, here I am back for support and wondering if I need to go to a different site for patients with brain cancer...and wondering if any of my old friends are here?  Wondering how everyone who was on this site back then will recognize my name?  Since the tumor is on my frontal lobe, my memory is a mess...I have been having a pretty good attitude, but nights when I am tired are always the worst and here I am beginning to cry. 

  • palaminoridesagain
    palaminoridesagain Member Posts: 241
    edited February 2010

    I found breast cancer.org by accident while I was frantically searching the internet for information about breast cancer in 2005 when I was first diagnosed.  At that point I stopped searching and have been here everyday since.  I don't know that I would have gotten through this journey without this site.  At first I found myself on the chat for hours and made so many friends.  Then when I went back to work, I found the discussion boards.  It's more than a lifeline, it is part me.

    Nicki

  • havehope
    havehope Member Posts: 503
    edited February 2010

    I am profoundly grateful to everyone that contributed to this site. I don't know what I would have done without it. I hope this site will always be here. Thank you! 

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited February 2010
    Thank you BCO!   I too, found this web-site by chance....My heart was breaking after I heard the words "It looks like you have Breast Cancer"...My Husband & I came home, I "found" this site, & haven't left, not even for a day (Except the day I had Surgery!)   My fears were slowly taken away by the women on this site!  I felt connected!  I felt "I can do this!"...And I HAVE!  Now I can offer a hand, or warm hug, to the many new-comers on this site!  Just THANK you for being there!  Jeannette
  • Mouser
    Mouser Member Posts: 245
    edited April 2010

    Early on, when i needed info on diagnostic significance and treatment options, this was the *only* site other than PubMed that offered me useful information -- i'm a biologist with a low tolerance for thinking pink. And when i unexpectedly needed a mastectomy 18 months later, the discussion boards are where i got the emotional support i needed -- plus hugely valuable info on prostheses, etc. This is the only breast cancer site i visit.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2010

    This is so great to hear.....

    Thank you ! 

  • stephanie1
    stephanie1 Member Posts: 131
    edited April 2010

    When I was first diagnosed I felt alone. Breastcancer.org gave me hope and connections with women who were going through the same trials; I haven't felt alone since.

      

  • bramblewitch
    bramblewitch Member Posts: 12
    edited July 2010

    Everyone on here was with me when I was up all night and couldn't sleep from fear when I was first diagnosed.  That was in November 2004.  Today, Bastille Day 2010 is my five year anniversary of being cancer free and I thank every one here and am grateful for the help this has been.

  • Jane108
    Jane108 Member Posts: 36
    edited August 2010

    Little things don't bother me anymore, and I've learned to smile more!

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