Starting Tamoxifen today

fighting4mykids

no going back now...took my first Tamoxifen pill. Any ladies out there that did NOT get any SE's from Tamoxifen? 

lexislove

Most woman do get some sort of se's. There is actually a theory that if you DON'T get se's you may not be metabolizing it well. It's not difinitive

Maybe ask your onc for the CYP2D6 test / Tamox metabolizing test. I think any woman who is perscribed Tamox should have the test, even if you have to pay out of your pocket

For me, I had joint stiffness ect...

You will be fine!

apple

i am on Femara.. the first week was awful  but it's now quite manageable.  Not the same drug but it has many of the same side effects.

everyminute

i have been taking tamoxifen for just over a year - no real issues.  I get some hot flashes but not unbearable.  I feel like I have to be more cautious about what I eat.  But I also had a hysterectomy so both could be attributed to that also.

Celtic_Spirit

I have some bone aches in my lower legs and feet and joint stiffness, but nothing I can't handle.

Anonymous

I started Tamox the beginning of September 09, haven't really had any side effects.  I do have hot flashes, but those started on chemo so I can't attribute them to the Tamox, in fact they stopped for a while after I started but since have returned some.  Hoping that it's a cycle and maybe they'll go away again.  No weight gain or loss, just staying the same, no mood issues either.  Hope it's easy for you too.  HUGS, Dawn

clairebear

I started Tamox. on January 1 and so far, so good.  I have hot flashes, but they started during chemo and are about the same.  No other side effects that I can tell.  

karen_in_nj

I started taking tamoxifen about six weeks ago. I haven't had any side effects at all. I asked my oncologist about it at my follow up appointment this week and she said that only 30% of women have side effects from the tamoxifen alone..

cathmg

Hi Fighting4mykids,

I have been taking tamoxifen for the past13 months and have had few problems. I had some hot flashes during the first few weeks, but those have gone away. I do take the antidepressant Celexa, and that may help with the hot flashes. My period has gotten very light and irregular, and I just had a pelvic US to make sure there isn't anything going on. The US came back normal, no problems. My onc said the t. can cause your period to be irregular. I also had an eye exam recently, and my eyes are fine (they were looking for cataracts related to T. use).

I hope you have an easy time!!

Catherine