29 Stage IV IBC with new baby

Nicolethomas

29 Stage IV IBC with new baby

Nicolethomas

In July of 09 I was diagnosed with stage IV IBC, I have had a double mas, all lypmph nodes removed and have 3 sessions of chemo left, then on to radiation. I have an 8 month son and a terrified husband, but we are getting through this. I just want others to know you can enjoy your life while being completly scared. I have dealt with the hair loss and loss of my breasts and am here to answer any questions reguardless of your stage, but I am also wondering if there is anyone out there going through the same thing as me?

mossybaby

Yes, I'm here as well. I'm 32 with about the same diagnosis that you have.  I have had 2 different types of chemo thus far and currently I'm doing radiation for my skin mets.  After the rads, it will be back to chemo to control the other mets.  I'm really hoping to get a period of remission

Reading above, you seem to have a much more positive outlook then I.  I have been trying my best to try to think good things and recondition my mind into believing all will be well but it is very hard.  I have two little girls ages 6 and 3 who I want very much to be there for. 

We can talk any time you'd like.  I hope your treatments are going well. 

Love Peace Health & Happiness - Yvonne 

Jellydonut

It always angers me when I read such young women are diagnosed with breast cancer -- I just want to scream!  It's so unfair!

You ladies will get through this an move on with your lives.

Wishing you a big dose of good health, healing, complete remission and happiness in 2010 and beyond.

Jelly

apple

oh Nicole.

in the forum index you find forums for IBC, stage III and stage IV posters.  All of them should be helpful to you.  There many young mothers in the stage III forum that I have met.  Join us there.  One lady is going to have her baby any hour, and another, in just a week or two.  We are helpful and supportive.

good luck to you and your family.  there is much hope even with a daunting diagnosis

melmcfad

I also was diagnosed July 09. I just had my fourth child went to my ob for my 6 week post partum check and he found a lump in my right breast. He told me to watch it and I did for a month then went to my primary doctor then a surgeon and that's when it was diagnosed with needle aspiration and then later biopsy. I've had all my chemo. I'm getting ready to have a bilat mastectomy Jan 28 and then radiation. I am seeing 3 plastic surgeons this week to get opinions on reconstruction. This was all unexpected. I'm still in shock.

Billynda

Hi:)  I'm one of the girls Apple was talking about.  I'm 27 and was diagnosed in June.  I've had a BLM with lymph nodes removed.  So far, they are saying it is Stage III, but I haven't had any scans to see if the cancer has gone anywhere else, so who knows?  I will have all that done one week after the baby is born.  My due date is the 26th, so pretty soon.  I am trying to keep positive, but also trying not to fool myself into thinking everything is going to be fine and they're not going to find anything.  I did that with the biopsy, and surgery and I think it was a lot more devastating than if I had let myself prepare mentally a little for a bad dx. I also have a 20 month old girl - so I understand what you're dealing with there.  At least we don't have to explain to them that we have cancer! 

Cafelovr

I'm 38 with IDC...mets to liver. Right now, I'm doing chemo until March, then I'll have surgery followed by rads. I have a six-year old beautiful little girl who is the sunshine I need on those dreary, down days. I plan to watch her grow up and enjoy grandkids. I refuse to be a statistic and plan to live life to the fullest! I got cancer for a reason, and when I'm done with treatment, I'll find out what my purpose is.

(((HUGS))) to all!

kate_e

I'm 33 with a 3 month old baby boy ... just was diagnosed with mets to liver and bones 3 yrs after initial dx. 

I just got out of hospital this week - woke up after an afternoon nap two weeks ago unable to get out of bed with what turned out to be a fractured vertebra. I had to wean straightaway (have to say, I am/was pretty proud of myself being able to breastfeed my baby with only one breast) but at least I could go on some proper painkillers.

While I was in hospital I had my ovaries out plus a little radio to my legs. I've got a CT scan on my liver tomorrow to see how the liver mets are doing. I'm trying not to be scared about the results but that's not going so well tonight  

 Kate 

joanneasiata

WONDERFUL STRONG LADIES

I'm reading all your posts with tears running down my face ,firstly I'm saddened by your stories and them I'm saddened , and ashamed with myself remembering all of my pitty parties Ive thrown for mysel,f when you ladies have a whole lot more to deal with .

I am wishing you all the strength and love, peace ,and most of all good positive test results

JOANNE 

paxton

36 yo with 6 month old baby.  This is my 2nd time with bc.  First was 7/07.  Not sure if its spread.  I had lump the first time and am doing chemo now followed by db mast if all goes as planned.  I'm scared as I'm sure you can relate.  It does feel good to know I'm not alone though I wish no one were going through this.

Melanie36

Hi all,

I'm 36 with 4 girls (18,14, 6 and 3)

 I presented with stage IV cancer pretty much from the get go. My bi lat surgery was canceled just 14 hours before I was scheduled. CT scan showed mets to my liver.

I am just about to start my 3rd cycle of Xeloda and have had some pretty serious hand/foot syndrome.

This has been such an emotional roller coaster, I can relate to so much of what you ladies are saying. I live day to day...some days good...some days not so much. The thought of not seeing the next birthday/graduation/wedding terrifies me.

I like the saying "last time I checked my foot, there was no expiry date."

Melanie

silviazara

Hello,

I read this short thread and I must say that your stories sadden me and take the hope away. Hope that I would have more babies someday without having to deal with a cancer again. Almost all of you were diagnosed while being pregnant or shortly after having a child. I can say me as well, my daughter just turned two when I was diagnosed. My oncologist is giving me a hope that after few years on Tamoxifen we can have a second baby, but I can't really find any breast cancer survivors with ER+ PR+ cancer who would have more children. Am I just stupidly fooling myself? Anyway, I am 31, I have one daughter and she has been my sunshine throughout all this dreadful journey.

Love & strength to you all. Silvia

makmak

Just wanted to join this thread.. got diagnosed on 2/5.. got the news of liver mets on 2/12.. today had my second round of chemo.. I'm 39..  my daughter will be 3 mos on Sunday.. have a 15 year old girl and 13 year old son... I too had to wean my daughter in 2 days.. to start all the MRI's and scans after the results of the biopsy.. that was 2 weeks ago.. and my boobs are still killing me.. Very scary.. and I still have to do the BRCA and I'm petrified.. I have 2 girls..  We will all get through this and see our babies graduate college and get married.. That's the only way to think...

Marina 

JerseyMom

I am also another young woman who got diagnosed right after having a baby (3 months after delivery). It is interesting to note that most of us who got diagnosed right after pregnancy/during pregnancy are all ER- and PR-.

 -Ren

melly

I was diagnosed at the age of 26, with IDC, fairly early, stage 2a.  The lump appeared during the first few weeks of my first pregnancy (ended in a miscarriage- who knows maybe it saved my life) however I was 20% positive for progesterone...2 years later I am pregnant again (due in June) and although I am concerned with the future, I was not going to let this horrible disease stop me from living my life.  My heart goes out to all of you faced with stage IV.     

Nicolethomas

I checked out of reality for a while and am just now reading what all of you amazing women have to say. I am 3 weeks out of radiation and have been given the diagnosis of cancer free. The original dr that diagnosed me as stage IV with mets to lungs and the dr I am currently  seeing ended up having conflicting ideas about my stage. My new oncologist beleives that it never met to my lungs because now my ct's are all clear after a dbl mas, months of chemo and 7 weeks radiation, she put my original state down to stage 3C. I know the possability of reaccurence but I feel amazing. I am already working out,chasing my 1 yr old, skipping naps:) and getting ready for a date night with my husband, all of this after just 10 months ago being told that their was a 20% chance of survival over the next 5 years, my odds have increased to 50% over 10 years, still scary YES YES YES, but I have never been so determined to enjoy everysecond as I am right now. I just wanted to touch base and share what I feel is my miracle. God bless all of you.

Jaimieh

Nicole~ You sound wonderful!!!  Enjoy your date night and chasing that baby around ((bighugs)).