Anyone Starting Chemo Jan. 2010?

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  • michelle_nj
    michelle_nj Member Posts: 50
    edited March 2010
    Hello Sisters,

    I had yesterday ny first Taxol and it was very long infusion, 3.5 hours. But I didn't have any problems getting it. I even had a half an hour nap, because of the benadryl I guess. Today I got the Neulasta. My nails are very sensitive so far, but I'm expecting things to get worse starting tomorrow.

    Tamatar - I had my hgb 10.5 two weeks ago and 11.3 yesterday, but my onc said I shouldn't worry because is normal in chemo to have it a bit lower. Congrats on finishing AC. Half chemo done.

    Bubbalu - The implant is inserted under the chest muscle. So as MsLrg explained, you need a few months with the expanders to stretch the skin and the chest muscle.

    Nkrun - How are you feeling? I'm reading the book you recommended us, Anticancer A new way of life, and I really like it.

    MsLrg - Thanks for the article. Where do you find this supplements?

    VegasDiva - You are the first one to finish chemo. Time to celebrate!Yeahh!
    Ya, the weather today in Jersey is horrible.

    Wish everybody a nice weekend!

  • wren22
    wren22 Member Posts: 40
    edited March 2010

    michelle_nj:  try the tea tree oil for you nails--I got it at a local health food store and it seems to help.  It actually comes in a nail polish bottle and you can just brush it on your nails.  Maybe this will help!  Weather here in Ohio is wet and rainy, but not too cold.  Can't complain--at least it washed the dirty snow away and we can see the grass again!  Plus I noticed my crocuses and daffodils are sprouting up!

  • pagowens
    pagowens Member Posts: 194
    edited March 2010

    Greetings All!

    Yea for negative test results!!!  Yea for finishing chemo treatments (I"m counting the days until June 1st which is scheduled as my last Taxol)!!

    I had a tough week - started out good with the Tuesday infusion of iron (re chemo-induced anemia) - perked me up for Wed and Thursday.  Got to the Gala Thursday night at 6 PM - did my duty and then crashed at 9 PM - shakes, chills, fever 101.  Wound up Friday morning in the ER for 6 hours, as per orders of my onc for blood cultures, chest xray, iv antibiotics.  I have bronchitis.  Been in bed for 2 days already.  Bummer.

    I know I'm going to get yelled at Tuesday by the nurse practitioner who will say, "Are you crazy going to an event with 1,000 people?"  All I can answer is "yup."  But with the makeup artist's ability to transform my face from chemo-pale to healthy-normal.....it was worth it!  Most people said, great hairdo (Colleen, my wig), you look great, blah blah.  So, it was nice to have the appearance of health again, even if it caused a minor set-back.

    I get a muga scan and EKG today to move on to the Taxol infusion Tuesday.  Am not looking forward to any of this.  Keeping my eyes focused on June 1st...I can make it....I can make it....I can make it....

    This stuff stinks and is not a journey I'd wish on my worst enemy.  I'm glad you guys are there, although I'm truly sorry any of us are here.

    Ciao,

    Pat

    PS the rain has been torrential and another good reason not to get out of bed.

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    Pagowens--feel better and take care. Even though you have bronchitis,I think it does us good toget out once in a while and feel something close to pretty! I put on a full face of makeup yesterday just to go out front and trim hedges. Normally, I don't fix myself up to do yard work, but now I feel like I need to make myself feel a little better.

    Michelle--I get Cimetidine at the drug store, its brand name is Tagamet, but you can buy generic and save $$. I take 2 pills three times/day. I buy the modified citrus pectin online at vitacost.com/ You can get powder or capsules. Powder works out cheaper. You can also buy the capsules at the Vitamin Shoppe, but they cost a little more that way. Take 1 teaspoon, dissolved in juice or water 3 times a day. I don't like the taste, so I mix it in about 1/4 cup of Greek Fage yogurt (as per receommended by Dr. Oz--helps with chemo tummy problems too). I add a little honey, cinnamon, and wheat germ, and have me a little treat!

  • youngmomof3
    youngmomof3 Member Posts: 156
    edited March 2010

    It has been a few days since I've been on here. Had 3rd tx on Thursday and for the first time I slept for most of it. Usually have difficulty setteling down from the Benedryl but this time onc gave me extra Ativan(2x) through my iv and it knocked me out for most of the day. Felt bad for my dear friend who came to sit with me that day esp since she had to listen to me snore:) Onc also told me I was slightly anemic but that it is a common SE of chemo and not to worry. Was so glad I was even able to get tx b/c I have been fighting off this sinus infection for the past 2 weeks but wbc were good. So relieved. Wish I could say that I spent the weekend in bed for some much-needed rest(body is completely exhausted and emotionally I am a mess) but Mother Nature had other things in mind. East coast hit by huge storms and on Sat my mother-in-law was here watching the baby while DH took boys to a b-ball game. Neighbor knocks on door to tell us that our boys brand new trampoline(x-mas present) is getting ready to fly out of our yard. DH had tied it down to the fences and swingset but the wind was way too strong so trampoline started flying around and fortunately got stuck on neighbors fence. Called in reinforcements until DH came home and then entire tramp had to be cut and broken apart. Needless to say boys were very sad and we won't be getting another one. So grateful for my neighbors but was so frustrated b/c I couldn't do anything to help. I felt so helpless and useless and overwhelmed. Then we lost power for over 24 hrs, had to figure out what to do with freezers full of food people had made us that were defrosting, & had a leak in the basement. Spent Sat night sleeping on baby's floor to make sure she was okay and yesterday spent day at in-laws trying to rest. Overall very crappy weekend and I was an emotional wreck!. Felt like an inadequate mom and wife b/c I couldn't help DH with all of the house stuff and needed MIL to take care of kids. Cried everytime kids were near me...my reminder that I was failing as a  mom. Hate this cancer and what it is doing to me and what my kids see in me!!!

    Congrats friscosmom, so happy for your wonderful news and so glad you were able to speak your mind to your onc. Congrats to everyonefinishing up chemo:) Mslrg & Tamtar: hope you are both feeling better soon and Pagowens: what a rough week for you. So glad you were able to make it to the benefit and felt beautiful and am hoping that you are feeling better soon. hang in there! Stlcardsfan: sorry to hear about your results. You are in my thoughts. Just met with the genetics counselor on Thursday and am feeling incredible anxiety about the results which will take 3 weeks to come in.

    Well I am hoping the week gets better for me and I hope all of you incredibly strong women have a wonderful week. Take care.

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    GoodMorning, Ladies. I hope you all had a good weekend. The weather in my neck of the woods was beautiful (temps in the low 70s) and I was able to get out and do yardwork-one of my favorite things to do. Since I didn't have chemo on Friday, I was much more up to it,and was also able to resume my yoga class yesterday.One thing I can say for sure, is that I feel more and more like my old self for each day that separates me from the last chemo infusion. When you are in the throes of the really bad side-effects, it's difficult to believe that you will ever feel normal again, but what a difference a few days make!

    I saw my BF at the yoga class yesteday, then we went to a coffee shop to chat afterwards. She told me how much she's missed me and all that ,so I had to finally confront her about something that has bothered me for quite some time. As soon as I had my mastectomies, my friend disappeared out of my life almost completely! I think I can count on one hand how many times I've seen her and that was only when I could get myself up to meet her at the coffee shop. My feelings were hurt, as we have been friends for over 15 years and until my illness,we met for coffee every Sat and Sun mornings, celebrated every holiday together and even took vacations together. I felt abandoned by her at my time of greatest need. She acknowledged that she has "retreated" because she cannot bear to see me go through this. I told her that she is lucky to be able to make the choice not to participate, but I have never had the luxury of having a choice not to take this on, and having my friend by my side would have been a comfort.

    I don't know about any of you, but I have noticed that people I haven't heard from in decades have come out of the woodwork to throw their support on me. I have found long-lost friends and relatives. I am from England and many ties got cut or let go when I left to come here almost 30 years ago. But I can't tell you how many people are coming back in my life now and that is a true blessing!

    But again, I have been disappointed by those who I expected would be there for me at a time like this:  my father lives in Barbados and only came to visit me here once in 30 years--for my wedding 16 1/2 years ago. I have cancer now, and he still hasn't come tovisit. He calls me every week, but a visit would be nice. One of my sisters who lives in London, was in my home town here in California  2 weeks ago to visit her husband's relatives and never even called me! I was gutted when I found out! When I asked my other sister how E could be so heartless, she said that E "doesn't like cancer and all that unpleasantness." How inconvenient for her that I have cancer, and how nice for her that she can just choose not to be bothered by it! WhenI thinkof how much I have done for my sisters and father, I hurt lots and doesn't make me feel very loved by the people who matter to me. This kind of stuff really stings, but it lets you know what individuals are really made of, morally and so forth. If there's anything that I can learn from all of this is that the next time I know of someone struck by a catastrophic, life-changing illness such as this, I will make sure I step up, and reach out to help more actively than I have ever helped anyone before. Life's lessons have a way of biting you in the a$$!

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    yougmom--sorry about the trampoline. That is unfortunate. I know about feeling helpless. There is so much  I cannot doright now and that frustrates me too. I did the lion's share of everything before I got sick, and instead of others stepping up to take care of things I used to do, it gets left undone and that bothers me. Hopefully, your kids will get a new trampoline sometime in the future.

  • georgiabirdgirl
    georgiabirdgirl Member Posts: 143
    edited March 2010

    Mslrg- I am so sorry about your experience with your friend and your family that have "disappeared" during all of this.  It's amazing how much we learn about ourselves and others when a truly scary illness is revealed.   I have to say that now that I'm on this side of the equation, I realize how much more I could have and should have done for others that I have known who have gotten a cancer diagnosis.  I think many people don't know what to do, and so usually do nothing by default.  I am glad that you had a chance to share your feelings with your friend.  At the very least you don't have to keep that bottled up.  Plus, maybe now she will rise to the occasion and try to be there for you through the rest of this journey.  Glad you're feeling well and enjoying the nice weather.

    Youngmomof3- there's nothing like a weather crisis on top of chemo to stress you out completely!  Sorry about the boys' trampoline.  I guess the good news is that the damage sounds like it could have been much worse.  I'm glad your MIL was there to help through all of that.  I'm glad you all survived the weekend and hopefully it'll be uphill for the rest of the week.  Hang in there!

    I had my first Taxol on Friday and luckily the infusion went smoothly.  So far the SEs have been totally manageable.  I've had fatigue and stomach upset (but that's been consistent since the start of all of this).  I had a weird reaction on the bottom of my feet - red and painful.  It felt like I had been walking barefoot on gravel all day.  I took an antihistamine and it went away.  Yeah!  We'll see if I get hit with the day 6 mack truck with this drug too, but so far it doesn't feel as bad.  I think the lack of all the steroids has something to do with it.  I am a little anemic as well, and the docs said that was normal for chemo.  There's not much I can do to affect it at this point.  My  WBCs were good despite all the cold and viruses running rampant in my house.  Has anyone noticed more hot flashes with Taxol? 

    By the way, I'm reading ANTICANCER too and it's terrific.  It's definitely a book about being proactive and finding hope for the future.  Plus, it's full of good information. 

  • friscosmom
    friscosmom Member Posts: 146
    edited March 2010

    mslrg - know exactly what you mean with the friends and family. I have not been close with my family over the years, we're somewhat disfunctional but I do try to go to NY and visit when I can. What little bit of contact we have maintained over the years has been all my effort. I am now sick and other than one of my sisters I have received no support, not a single phone call, card or letter from the parents; the one sister that I was closest to growing up and lives here in TX I get nothing from. I post updates on my FB about how I'm feeling and what I'm going through, I get more support and encouragement from old highschool friends then from my own sister.

    I have basically written off those people; one thing about having this disease is that I have realized that life is way too short and if they aren't interested in making an effort than neither am I. I will surround myself with the people and things that make me happy in life, period. I too will make every effort to be more supportive of others that go through something like this.

  • paxton
    paxton Member Posts: 577
    edited March 2010

    Well, I'm back in the hospital.  I had my last chemo on Thursday, but ended up getting sick over the weekend.  I think it will just be the usual couple of days of observation.  But it pushes my CT/PET Scan back until next week.  Bf brough me the laptop and a dark chocolate frappuccino this afternoon.  I'm tired of feeling like crap and I miss my baby.

  • paxton
    paxton Member Posts: 577
    edited March 2010
  • friscosmom
    friscosmom Member Posts: 146
    edited March 2010

    I'm sorry Paxton, you have had the worst time of it. :( On the bright side, you're finished with chemo and that's a good thing!

    I like your little duck, has anyone sent you the little song with that duck singing to it? If not, I'll try to put a link to it here, it's a good stress reliever. :)  

  • paxton
    paxton Member Posts: 577
    edited March 2010
  • paxton
    paxton Member Posts: 577
    edited March 2010

    I still have more chemo to go, just not sure when yet.  More than likely, I'll be having a double mast in april and then more chemo.

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    Pagowens: love, love, love the cat in the hat rhyme--I got the notion to tweak it  little. Here's my update:

    Ode to Cancer

    I cannot see

    I cannot pee

    I cannot chew

    I cannot screw

    Oh my God, what can I do?

    My memory shrinks

    My hearing stinks

    Bad sense of smell

    I look like hell

    My mood is bad---can't you tell?

    My body's drooping

    Have trouble pooping

    My eyelids twitch

    Life's such a bitch

    My port-a-cath just bust a stitch!

    Got gas and bloating

    A gross mouth coating

    Metallic taste

    A pock-marked face

    Wish I could fly to outer space!

    Nails turned black

    Broken and cracked

    My bones they ache

    My boobs are fake

    This cancer shit's no piece of cake!

    Instead of hair

    It's wigs I wear

    Or hats, or scarves

    Who gives a care?

    My baldness would bring shocking stares!

    My energy's smashed

    Another hot flash!

    Internal bleeding

    Trouble breathing

    The cancer curse has come at last

    The cancer curse can kiss my ass!

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    Paxton--hope you feel better and that youget out of the hospital soon so you can see your sweet baby.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    MichelleNJ-Glad you are enjoying the anticancer diet book. I know I've made some changes to my diet after reading it.  Time will tell of those changes make a difference.  Did you read the chapter on cell phones.  Scary.  I've been feeling really good lately-thanks for asking. I have my final A/C on Thursday and the thought of going to the infusion makes me want to vomit.I  have strong  negative associations with everything related to the infusion center. 

    Mslrg-Sorry to hear about your absent BF.  Weird

    Friscomom-Good news

    I went to a Look good Feel Better class this morning.  It was a little less exciting than I imagined. I think the time change along with the early morning schedule left everyone in the class pretty quiet. I don't wear much make up and I've never had anyone teach me how to put it on so overall the class was helpful.

  • KAJDerby
    KAJDerby Member Posts: 310
    edited March 2010

    Paxton - So sorry!  Loved your little chicken!  Hope friscomom can find the song!

    youngmomof3- sorry about the trampoline.  If you get another one and have strong winds again, turn it upside down and put sandbags on it.  That is how we do it here in Okinawa during typhoons.  It really works.  We have had winds up to 160 mph and trampolines stay put.

    MsLrg - Interesting that  this should come up today! 

    I just got off the phone with my sister, who is very "there" for me.  However, I called her because I was so angry with another family member.  This third AC has really thrown me for a loop and I am having some depression issues.  Sick, Sick, Sick, of being sick.  Now I know how my mom felt when she was going through her cancer and she said, "I'm sick and tired of being sick and tired!"  I'm sick and far away from my friends and family.  Anyway, this other family member called last week and I missed the call.  I called her back within 15 minutes and she had already turned her cell phone off.  I tried calling the next couple of days, and still phone was off.  She called me yesterday afternoon as she was waiting to catch a flight.  It would have been in the wee hours of her morning.  She said she was just sipping coffee and decided to call me.  She asked how I was doing and I told her that earlier I was ok, but the diarhea and nausea had just kicked in and I was back in my bed.  After 1 minute of conversation she said, "Well, I'm going to let you go now."  and hung up.  I am so tired of people expecting me to cheer them up about my health!!!  Why do I have to always be the positive one, making them feel better.  I can't even make myself feel better these days; let alone be responsible for someone else's depression! 

    MsLrg said - "How inconvenient for her that I have cancer, and how nice for her that she can just choose not to be bothered by it!"

    That is exactly this situation!  They are having a hard time?????  I'm the one with chemo, cancer, no breast, no hair, puking... How do they think I feel!!!!!!!!!!!

    Okay, I'm done!  Maybe.................Yell

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    Grace--thank goodness we have this forum to vent! Only we can understand what this is like. I don't know why people ask you how you are if they don't really want to know. What did your relative expect you to say? "Oh, I'm so friggin healthy and happy, my guts are made of steel and can take any chemo, no problem, and I just LOVE my bald head!, and how are you?"!!!! My BF just emailed me, I guess I must have got to her yesterday. Here's what she said:

    "I really enjoyed visiting with you. I know you said how disappointed you are with "certain friends".  I told you I felt I let you down while you are going through chemo. I hope you understood that I feel strongly about being there for you and I have offered, (but never followed-through on the offer) but how difficult it has been to support you doing chemo because of how I feel about it. (translation--too inconvenient for unpleasant for me to be inconvenienced by it) It has been tearing me up. (Since when was MY CANCER about YOU????)I don't know if I am expressing it well or not.(Loud and clear, sister!) I support you and any decisions you make without any reservation, but knowing the destruction of chemo I didn't want to have any of my feelings about the chemo come over. (So you thought that being physically and emotionally absent would mask your displeasure???)  The other part is I have not wanted to bring with me any of my "stuff" including any health or other things going on because you have enough on your plate.(Add that in as a weakly plausible excuse!) I love you very much and I hope you also realize if you need for any reason I will be there at the drop of a hat. (As long as you can meet me at the coffee shop, otherwise, I am unavailable)

    All good clucking sounds from someone who cares, BUT!!!!! How can I ask for help when I really need the help? When I am so sick that I cannot lift my head off a pillow, or too depressed to even know what it is that I need or want, how can I ask for help? If she was PHYSICALLY there then she could be EMOTIONALLY there too. She doesn't understand that if she sees me it's only because I feel good enough to get up out of the hosue and meet her at the coffee shop; she would not think of stopping my the coffee shop, getting my favorite drink and pastry and bringing it to me on a Sunday morning when I can't get out of bed. That would be helpful and a loving, thoughtful thing to do.SOrry girls, but I guess I'm having my own pity party today. Thanks for the indulgence.

  • friscosmom
    friscosmom Member Posts: 146
    edited March 2010

    http://entertainment.webshots.com/album/577034583ZnIFcG

    Ok, I think I finally have the link right, couldn't get it to post on the board. Watch with caution, don't have the kiddo's in the room, it contains the "A" word. :)

    Love the Cat in the Hat poem and the expanded version!

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    very cute video!

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    NKrun--know how you feel about the infusion center, I just dread it! I'm considering not doing it anymore.It just makes me so ill.

  • pumpkinsoup
    pumpkinsoup Member Posts: 34
    edited March 2010

    friscosmom--Yep, that's a funny chicken. I needed a laugh tonight!

    nkrun--If I even think about the infusion center, I can literally make myself sick. I'm trying really hard not to think about chemo next Tuesday, but it's always in the back of my mind. I hate, hate, hate that place.

    mslrg--I'm sorry about your friend. It's interesting how friends and family react to this diagnosis. Several of my good friends were ready to fly out to be with me when I was first diagnosed, now they've somehow just vanished. No calls, no emails. My sister and I used to talk almost everyday, now we talk once or twice a week. I think the only people who can really understand the horrors of going through a cancer diagnosis are the ones who have experienced it. And everyone else tries in their own ways. And it seems many just distance themselves from it.

    Thanks issymom and georgiabirdgirl for updates on SEs from Taxol. I start mine next Tuesday. The fun never ends. 

  • mslrg
    mslrg Member Posts: 293
    edited March 2010

    Pumpkinsoup--good luckon the Taxolnext Tuesday. I'm still up in the as to whether or not I'll be able to get my last TC on Friday. I see he gastroenterologist this afternoon. I am getting so much pressure from one side or another tellingmeI should or shouldn't complete chemo and I'm so stressed. I wish people wouldn't keep telling me what I should do or what they would do if they were me. They can't lnow if they haven't walked in my shoes. My mother is staying with us helping with the kids, which is reallygreat, but she hates that I've been doing chemo and throws literal temper tantrums every time I go for an infusion. Then the week afterwards when I'm so sick from it, and just need to be taken care of, she stands over my bed and reams me for subjecting myself to it. I am so emotionally spent! I think I am more worried about her going of at me again than the infusion or its side-effects. I old DH that next time I want him home with me as a buffer. I have asked him 3 times to apply for catastrophic leave at work--he's been paying into it for almost 2 decades and never used it. I think he finally heard me last night. I think I'm losing it!

  • friscosmom
    friscosmom Member Posts: 146
    edited March 2010

    The infusion center... yes, I too get sick just thinking about it, I get sick when I look at my "chemo bag" that I take with me for treatments, pretty much anything that triggers thoughts of that place makes my stomach roll. I try so hard on my last good week to not think about it and ruin my last few days but it always sneaks into my mind. My last FEC is Thursday and I wish I could celebrate but I know I have the Taxotere just around the corner and that scares me all over again.

    mslrg - I hate you are feeling so bad and I'll be careful how I say this, she is your mom after all but I sure hate that she's making this a bit harder for you. I am sure she only says what she says out of love and concern for you but I can only imagine how hard that is to hear. There are days I think about telling my onco that I simply do not want to do the Taxotere, let me be done after the FEC; I'm so very sick and tired. But I know myself and if I get a reoccurance or mets I will always be kicking myself wondering if that happened because I opted out of the Taxotere. For me, I don't think I could live with that so I trudge on. We all have our tolerance point and some of us have had it much harder than others, I think you have really gotten hit hard with the SE. I support you in what ever you decide, you have to do what is right for you. :)

  • 1marmalade1
    1marmalade1 Member Posts: 308
    edited March 2010
    I had my 3rd Taxotere/Herceptin treatment a week ago.  The only complaint I've had are achy legs (and that is generally in the evening).   As we all know, everybody responds differently.  Don't panic about Taxotere giving you harsh SE's, you may be like me and not suffer too much at all!
  • paxton
    paxton Member Posts: 577
    edited March 2010

    Hope nobody minds me posting goofy pictures etc once in awhile.  It just feels good to have something on the lighter side along with our heavy struggle.

    I'm still in the hospital.  Started feeling better until yesterday afternoon; started coughing and coughing and sore throat.  My ribs hurt so much from coughing. 

    Good luck with treatment this week ladies.  One foot in front of the other.

     

  • 11tyBillion
    11tyBillion Member Posts: 96
    edited March 2010

    mslrg:  I can totally relate to you feeling about the negativity and pressure your mom is putting on you.  About 3 or 4 weeks ago, I was between my 3rd and 4th A/C and it seemed as though the worse I felt, the more my mom would freak out at me about the whole chemo thing.  Get this, my mom, is a ~20 year survivor.  She had BC in 1992, had a bilateral and immediate reconstruction, and refused any further treatment.  One year later, the LN's under her arm pit swelled up and she went in, they were removed and tested + for cancer (would that be considered a recurrence!?!?).  Sine I am BRCA1+ I wonder if she was TN as well?  Anyway, they sent her to get chemo, and she decided that she hated it and "chickened" out of her chemo after a week or so of treatment.  She has not been to a Dr. since (holy CRAP!).  NOW she feels as it is her duty to constantly remind me how she "ran for the hills" and everything turned out just fine for her, and well if I ever want to do the same thing to jsut call her, and she will back me up ... so since I did not "run for the hills" and here i am bravely fighting the HARDEST fight a woman has to fight, she is no where to be found.  She'd support me if I decided to quit, but not if I decided to fight!?!?!? WTF?  Not one time since I was diagnosed has she (or my dad) ever called to ask me about my treatments or how I am feeling etc.  They only call and small talk about the weather, what they watched on tv, or want to talk to the boys.  I realize that callign someone and talking about their Cancer would be a really difficult and not so pleasant thing to do ... but they are TOTALLY denying the giant pink elephant in the room.  I seriously snapped a few weeks ago after she started in on my husband about how I should "run for the hills".  They can say whatever they want to me (I can ignore it), but NOT to my caregiver.  My husband has had to watch me go through this shitty metamorphesis, and take care of me and our two small children all by him self ... why would she want to weaken his resolve with her negativity?  I completely snapped.  I wrote a very heartfelt entry on my CAre Pages that basically said "either you are for me in this fight, or against me...".  I did not name them in the entry, nor give any back ground (public humiliation was NOT what I was going for), but I did talk about how devestating negativity can be for someone fighting for their live AND taking care of their family at the same time.  It is one thing that we are feeling at our worst, but the depression brought on my this is really nasty as well.  Since then, my very very supportive friends have become even more so ... and my parents, seemed to have calmed down (shut up) a bit.  They are coming out this weekend for the first time since Christmas ... if there is any negativity what so ever, I am ending the visit.  I have had it with negativity.  Matter of fact, my husband and I are going to bet how long it takes either of my folks to even bring up the Cancer topic.  Here I sit bald as a billiard, and I bet they will not even say, or ask anything. I am laughing jsut thinking about it!

    I wish there was something I could say or recommend to help you get your mom off your butt ... just surround yourself with supportive, positive people as much as you can, and hopefully that will help counteract her negativity towards your chemo.

    You keep fighin' sistah!  We are going to get through this.

    Nothing of use to post for my Taxol SE's.  I think that since I get it once a week, my SE's are greatly reduced.  I am totally wiped out today though, but I think that is because of the darned time change!

    Sorry this post was so long!

  • leta17
    leta17 Member Posts: 120
    edited March 2010

    paxton - Sorry to hear you are laid up again, but love your posts:) 

    On friends...what I have learned is that when someone is going through a rough time.  I will not say to them "Let me know if you need help."  This is what most people say and although it is well intentioned, I like many of us don't LIKE TO ASK for help, or if we do, it isn't COMFORTABLE.  Going forward I will say something in a manner they can't say no to.. like..."I would like to prepare a meal for you, when may I drop it off?"  or "How about I take our girls to dance on Thursday?...or boys to Soccer practice?"  etc. etc.

    My DH, who is a chef, said that he will cook/throw a party for all of our friends that have helped me (and my family) through this as a 'Thank you' and 'End of Chemo' celebration!  We will have a kick a** party at our house, but like mslrg, a few may not be invited:)

  • KAJDerby
    KAJDerby Member Posts: 310
    edited March 2010

    11tybillion and MsLrg - Wow!!!!!!!!!!!!!!!!!!!  My mom passed away 25 yars ago this month from cancer and when she was diagnosed she was given only a few weeks to live.  She did chemo and rads anyway and it gave us our last Christmas together.  She would be right here cheering me on.  My dad however, is in denial.  I don't know what I would say to a mom that was yelling at me or advocating runnning.  It would be MOST difficult to be around.  I am thankful that no one is fighting my decision for treatment.  Hang in there!!  Keep going!!  Don't give up!!!!!!!!!!!

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