Anyone Starting Chemo Jan. 2010?

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  • jaebee
    jaebee Member Posts: 3
    edited January 2010

    as I sit here and read this, I am 2 days away from my first treatment. @ paxton I am assuming the alpha's are the terms used for type of chemo,  the type I will have is TCD( I was given the names of the drugs, (Trastuzumab, Cyclophosphamide, Docetaxel) help, I'm new at this. I guess this is the best place for me to be to find out and understand. I too am worried about the SE, but I'm gonna continue to pray and try to keep my focus off of the SE, and on something else. I feel great but at times I just feel down. 

  • volleyskcat
    volleyskcat Member Posts: 3
    edited January 2010

    Hi everyone,

    This is my first post so hopefully it goes to the right place.  I just had my first chemo treatment today of AC - dose dense for 4 treatments.  Then I will have Taxol for 4 treatments after the AC is done.  Today was not too bad - I got a weird feeling in my head toward the end of the infusion and the nurse thinks it might have been the steriod they gave me in the premed stuff or it could have been the Cytoxan.  It was not a pleasant feeling and then turned into a headache.  I have had slight nausea but quickly took some Zofran and it seemed to go away.  So I have to say that Treatment 1 was pretty easy.  Hope it stays that way.

    Good luck to all of you.

  • msledford
    msledford Member Posts: 6
    edited January 2010

    Wren, I too am taking TVx4. My second treatment is the 26th. Tuesday my hair started coming out also. I am  having to wear a hat or shed on everything. I put a washrag in the tub ,drain, so I don't clog the thing.  I am just thinking, that when, I wear my new hats or wigs, "This is the NEW me. "  I think most of the hair left is just the gray. I will surprize everyone with my pretty blonde wig. We are just going to have to have some fun with this. I think the more we joke about it, the less it will bother , others.

    Hope everyone has a good night.

  • paxton
    paxton Member Posts: 577
    edited January 2010

    I'm finally home from my trip to Mayo Clinic.  It was long, but I'm glad I went because they had some different suggestions for chemo.  But they said since I started the Abraxane, I should keep on it for now.  I will be changing the regime that was suppose to follow; FEC.  The Dr said it was so much like the ACT I had the first time around that it would be better to use the newer drugs that are different. 

    There's a new combo for trip neg's that just went off clinical trials and is awaiting FDA approval.  The Dr thought it might be a year for approval, give or take.  Its made up of 3 drugs, 2 of which are already approved and so that will most likely be what I'll get after the abraxane.  I have them written down but dont' know them off the top of my head.  Kind of sucks knowing there's something that could save your life sitting right there just out of reach. 

    I'm shaving my head tonight.  I thought I ordered some more turbans from tlc but they never come (major chemo brain). 

    I'm so excited to pick up our family pictures we took a few weeks ago. 

    Keep plugging away everybody.  We're making it day by day. 

  • youngmomof3
    youngmomof3 Member Posts: 156
    edited January 2010

    Hello everyone,

    Just finished packing my chemo bag for round 1 tomorrow. Got some great ideas for things to take with me too so thanks for that. Having all kinds of feelings tonight; anxiety, fear, and just feeling unsure of what is to come. Also feeling a little relieved that things are finally starting so now it is my turn to fight this damn cancer & beat it. By the way, "Beat It Day" is the new name my friend came up to refer to chemo day. Think it is appropriate.

    Riverview817: love the idea of having your boys help with your haircut. My boys are close to yours in age and think they would have found that somewhat fun or at least funny and laughed about how I looked.

    Paddlegirl: I have looked a lot for scarves & can tell you that the scarves they sold at the wig store were more expensive than most I found on line. Try some on in the store though so you get an idea of what kinds you like and what colors look good on you and then check the tag to see if the company that makes then has a website. Even if you only save $5-$10 a scarf it may still be worth it. I have found some on ebay(check under"chemo scarves/headwraps") and also headcovers.com has a large selection. I also ordered the free scarf from the Good Wishes program through franceluxe.com but did it via email last week and didn't hear back so I may have to call instead.

    Pagowens: I am with you on cutting your long hair. I was growing mine out and it was about mid-shoulder and felt this may be the last time I would grow my hair long and then...bam cancer hit. So anyway, I got it cut into a short,cute little bob and the compliments have been rolling in. Wait till they see my wig b/c it is way cuter and has a better highlight. maybe some will even be jealous of my stylish,not to mention no-fuss, wig:) Wishful thinking anyway.

    Wren22: sorry to hear about your hair but I think every one of us needs a good cry and time to mourn the loss of it. It is not just hair it is a part of how we see ourselves and losing it represents so much. Hang in there.

    Mom2BeNegative: Sounds like you have lots of great ideas for entertaining and fundraising and also spending time with your girlfriends. May have to borrow a couple of them. I totally agree with you about not being able to be as active b/c I just had my port put in last week and the hardest part was not being able to do my "mommy things"; picking up the baby,making dinner, cleaning the house, cuddling in bed with my boys. Being a mom is how I define myself so losing some of my ability to do the things I normally do was rough and I'm sure it will be one of the hardest parts for me to deal with throughout this journey.

    Sorry for the long post but you all wrote such great things and I love reading each and every post.

  • TerriJo
    TerriJo Member Posts: 25
    edited January 2010

    Well today was my first treatment and so far (knock on wood) things are going good.  My sister picked me up and gave me two hats and a prayer shawl that she made for me.  We shared a room with another lady who also has BC and her sister.  She was on her third TX out of 4.  It was great to have someone going through the same to talk to and ask questions.  During the treatment a student nurse came in and asked if I would like to participate in a study they are doing on Neuropathy from Chemo.  She asked questions, tested the strength in my arms, wrist, knees (front and back) and lower legs, had to walk for 6 minutes (counted the laps I did in that time), and get up from a sitting position and walk 10 ft and back as fast as I could.  She also measure my arms for lymphedema.  She said that I would either be put in one of two groups for the study - one that did nothing and the other group would be given bands for exercising their arms and legs.   She will be back to reassess my progress during my treatments.  The enevolpe that she had put me in the group that does nothing.  For taking part in this study I received a lovely pink bag, a daily planner, and at the end I will receive a $50 gift card to Target.

    Half way through we got moved to another room which we shared with a gentleman and his son.  The man also has BC which has now spread to his bones.  He has the same Onc that I have.  He told me that after each of his rounds of Chemo that his hair has come back a different color and texture - first was black and curly, then salt and pepper and lastly grey and thinner.  He was so nice and kept asking me if I was doing ok.  Both the lady and man are on the same schedule so I might see them next time.

    After 4 1/2 hours it was time to leave and go home.  I was feeling a little tired and didn't want to worry about feeding my children (10 & 12), so I had two pleasant surprised for me when I got home.  My niece had picked them up from school, which I knew about, and taken them to a movie and dinner which I didn't know she planned.  Great, now I just had to cook for me.  My neighbor came over with a crock of chili that she had made for us - enough for several days.  Yippee, no cooking for me!!  She also said that she would have dinner for us on all of my Tx days.  What a sweetie she is.

    So the day I have dreaded and worried over for weeks has not been so bad and hopefully will continue that way.  Now I just need to wait for my hair to fall out.  Hope everyone is doing well and keeping you all in my thoughts and prayers.

     TerriJo 

  • pagowens
    pagowens Member Posts: 194
    edited January 2010

    Hi Everyone,

    I also agree that reading these posts have been a huge help for me.  Thank you all who take the time to write - even the "crabby" vents (which I totally understand).  Today was my first AC chemo treatment.  One of my sons picked me up and stayed with me - I think more for him than for me, but I was glad for the company.  We totally looked like "newbies" - had two chemo bags (mine and his) and the chemo room is a group room.  It kinda reminded me of the old-style beauty salon with mostly women (a few men) sitting around getting "done."  Some were reading, some were listening to music or watching the TV and one older lady had an eye mask on and was snoozing.  None had two bags filled with stuff except us LOL.

    Out of those bags, here's what I used:  2 water bottles, 1 Gatorade No Excuses, 1 small bag Cheeze-its, 1 banana, my iPhone Ipod and email and messaging and phone (essential equipment), 1 magazine.  I didn't use the throw (afgans in the room but it was warm), the puzzles, the socks, the wet wipes, the tissues, the file of b/c stuff (tests, info on the drugs, books and pamphlets), the sugar-free lozenges, the little hard candies my son had, the game and puzzle books my son hopes will keep chemo brain at bay because he's already worried about my sanity, and the small pillow (had them in the room from the center) plus some other small stuff.  And, I did snack on some of the whole grain Fish my son also brought along.  So, my lesson is - pack light and bring the cell phone charger.

    Like several of you I am on the AC part (4 cycles dose dense) and I got it in the following order:  Emend, Steroid (Doxi=something), Cytoxan (the C) and then they "pushed in" the red A stuff and also told me that was the rough stuff that gives you most of the side effects, and then a 1.5 hour drip of the research drug, Avastin.  Took nearly 5 hours but this was my longest visit, next time the Avastin is one hour and then one-half hour from that point on.

    I have a slight front headache and a queezy/unhappy stomach but not nauseous.  So, I feel very lucky.  I fell asleep at 9 PM and now it's 3 AM and I'm wide awake, so I took a Tylenol PM since I have tomorrow off and my grandson is over at a relatives for the night.  I'm hoping to fall back asleep pretty soon and get some beauty sleep so I can bear my father-in-law's 3-hour viewing at night. 

     Not so bad a day - people were kind and loving.  I am blessed.

    Ciao!

    Pat

  • KAJDerby
    KAJDerby Member Posts: 310
    edited January 2010

    Hey Pat,  glad you are doing well.

    Had my first one.  Same headache.  I was home by 2 pm , but very sick by 4pm.  Did not throw up, but tried multiple times.  Took the dissolvable Zofran, which worked for just a short time.  Finally I took another Zofran and a promethezine!  Voila, went to sleep and slept all night.  Took another this morning and slept all day.  Feel much better.  I did have cotton mouth that lasted a few hours.  Biotene helped a lot.  The chemo hints helped.  I took the miralax the day before and twice yesterday.  No constipation.

    Well, too exhausted to type more and computer seems to bother my eyes.  It is night in Okinawa, so g'night!

  • georgiabirdgirl
    georgiabirdgirl Member Posts: 143
    edited January 2010

    Well- "famous last words" is the phrase that ran through my head most of yesterday.  I had reported that I was feeling well and mostly on the rebound.  It seemed that I was typically feeling good in the morning and then getting tired and queasy in the afternoon.  Wednesday (day 6) I woke up and felt like I had been hit by a mack truck.  I couldn't even lift my head off the pillow until almost 11am.  I had terrible stomach distress and pretty much felt miserable.  I started to feel some relief around mid afternoon and happily woke up feeling much better today.  I'm praying that yesterday was the worst of it and that I'll feel better from today until my next treatment on the 29th.  Did anyone else have symptoms that came and then went?  Once you started to feel better, did it stay that way until your next session? 

    pagowens- congrats on your first ac done.  i'm glad your son was with you.  I had an overflowing chemo bag that I hardly touched too.  I think we stuck out as newbies also.  Our center has almost everything you could need- snacks, blankets, magazines, pillows, etc.

    volleyskat- I had the same "weird feeling" in my head after my AC treatment.  I think it was the steroids, but I was glad not to be driving home.  I definitely felt doped up. 

    TerriJo- I am so glad that your treatment day wasn't bad.  It's the anxiety of the unknown that is the hardest on me.  I am so happy for you that you have supportive family and neighbors.  Your kids and you will be able to get through this so much easier when everyone pitches in to help.

    paxton- i'm glad to hear the Mayo trip was successful in getting you new information.  It's frightening to think how subjective all of this treatment is.  You just want the doctor to look at you and say definitively "This is what you need to make you well!".  Hopefully, you're updated regimen will be exactly what you need.  Good luck with the head shaving.  I'm going to wait until next week, but am already anxious about it.

     So- I guess hair is the next big obstacle.  It sounds like many of you are in the midst of it falling out.  I cut my hair short last month and plan to shave it next week.  My friends really want me to get a wig, but I'm resistant for some reason.  I'm probably in denial about it all.  I have some hats, head coverings and scarves, but no wig yet.  Do you have to get measured for one or can you just go in the store and pick one up?

  • pagowens
    pagowens Member Posts: 194
    edited January 2010

    HI GeorgiaBirdGirl,

    The wig thing is a biggie.  I did a lot of research online and was agast at the cost of most of the wigs.  I went to several wig stores and didn't see anything just right for me and in my color - would have to be ordered anyway.  I finally stumbled across the American Cancer Society-related TLC site which has very reasonable cost wigs and found a really cute one I liked and was in my color.  It came in less than two weeks and the receipt states that the $100 I paid was a donation.  A win-win making me feel better about the wig and that it was so cost-effective.

    Here's the site http://www.tlcdirect.org/  They have tips for choosing and styling the wig, how to measure your head, etc.  They also sell supplies - shampoo, styler, spray, head, holding band, etc.

    And here's the wig I bought and got my hair cut to imitate: http://www.tlcdirect.org/products/sku-8052__dept-25.html  It looks great on and is light.  I'm a dark brown and this picture had me wishing I was a strawberry blonde - but I got the dark brown anyway and it's nice.  I'm hoping its comfortable for work and that it could be a good transition piece - from my long hair, to a short bob, to a close cut when my own hair grows back.

    I don't feel too resistent to the wig since I've been using "pieces" for years - clip ons, hair scrunchies, extension stuff to help my own hair along and make styling long hair MUCH faster and easier and to give me variety.  I see it as a natural progression, in some ways.  I do alot of external stuff for my work and although I'm perfectly happy rubbing on MaryKay gold shine skin lotion on my head at home, I think the Kiwanis Club speaking engagement might not go so well with a baldie speaker shining in the spotlight.  I figure it might be distracting to some (altho the inner advocate/rebel sorta likes that image).

    But, this is a personal choice about how comfortable YOU are, not me.  If there is no compelling reason to do the wig thing, don't!  If you can afford it (or your insurance will reimburse) you might want to buy a reasonably priced one that you like just in case you come across a situation that calls for hair -- as a backup.

    Hugs!

    Pat

  • Issymom
    Issymom Member Posts: 264
    edited January 2010

    I wanted to say that when I had my AC treatment last week, I too had the headache.  The nurse told me that many people who take Cytoxan say they can "feel their sinuses".  Not a great way to describe but I did get a headache that started when I started to "know/feel" my sinuses.  It lasted the first day but was much better day 2.  Also, I did NOT have a steroid as part of my treatment so my headache was not from that. 

    I get my port put in tomorrow and will make sure I ask for a prescription for the topical numbing cream.

    As others have said, thank you all for posting your highs and lows and in betweens.  I feel like I have a new group of friends.  Though we might be feeling well, it is still so hard going through all of this and there is no way that our friends and family truly understand it.  They are understanding and supportive but they don't really understand.  You all do.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Wondering if anyone else in the A/C group  getting bumps (similar to insect bites) on their torso? I had my first treatment 1 week ago. 

     I love this group.  Thanks everyone for being so awesome!!!!

  • georgiabirdgirl
    georgiabirdgirl Member Posts: 143
    edited January 2010

    No bumps (yet!)  Do they itch?  My main side effects have been: headache (fuzzy head), fatigue, slight intermittant nausea, terrible dry mouth and dry eyes, and diarrhea.  Sorry if that's TMI.  I've been keeping a daily diary to keep track of my meds and I write down my daily side effects there.  That way, I can bring the whole thing in and let the doctor sort out if there's anything that can be done or that is concerning.  I think I read from someone's post earlier that they developed a rash.  It maybe an allergic reaction to one of the drugs. 

  • agbmom
    agbmom Member Posts: 21
    edited January 2010

    Hey everybody!! I start chemo (AC) next Thursday.  Is anybody doing AC only dense dose? 

  • leta17
    leta17 Member Posts: 120
    edited January 2010

    Finished Round 1 of TC today!!!   Besides feeling a little fuzzy in the brain, I feel rather 'normal'.  I do believe though the steroids last night and this morning with the tx are helping my energy level out a lot.  I take them tomorrow morning again and then not until my next tx...so I will take it day by day and we shall see what is in store for me:)

    Wig styling on Saturday!  The TLC websight that pagowens mentioned is great, buy one and if you need a little adjusting on the length, take it to your stylist:)

    Love to hear everyone's experience's!!  You all have great energy and drive!!

    Leta

  • paddlegirl
    paddlegirl Member Posts: 18
    edited January 2010

    leta17- I'm one day behind you on TC, first round tomorrow for me. I'll be hoping your night is good. I don't take steriods tonight, they will give them to me just before treatment. Delaying packing my bag, guess as much as I tell myself I'm ready for this, I'm not. Started the personal trainer from the Lance Armstrong Foundation grant and do believe keeping up my exercise program will help.

    Stay strong!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2010

    Paddlegirl,

    Where can we get information on personal trainer from the Lance Armstrong Foundations?

  • VegasDiva
    VegasDiva Member Posts: 109
    edited January 2010

    I had my second TC today.  Half done!!  Whoo hoo.  It went fine.  So far I have lots of energy from the steroids so I am taking advantage of it in case I feel crappy later.  Getting some cleaning done.  I cooked on Monday for the week, so I can just heat up something.  My friends want to cook for me, but I decided I would wait until I really felt lousy to take advantage of it.  I don't want to use it now in case I will feel worse later.

    I got some really cute wigs from Paula Young.  They are so reasonable.  I was able to get 3 for less than half of what I paid at the wig store.  I got this one and 2 others called Rennie and Ultimo.

    http://www.paulayoung.com/product~pid~1942~mscssid~~adsrc~.aspx

    The nice thing about Paula Young is they send you free hair samples so you can see the actual color next to your hair.  I haven't had much luck ordering from the colors shown online.  I found the perfect color for me, yet from the wig store I had to go darker, they had nothing that matched.  Luckily they got the cut right on the money.  Even my onc said this morning "you're not wearing your wig yet are you?"  Everyone just thinks I colored it like 2 shades darker.

    Here is the link for the color samples  http://www.paulayoung.com/Swatch-Request/

    Paula Young also offers a full money back refund if you return the wig within 30 days.  That is nice too.

    Once you only have 3 options - going out bald, wearing a hat, or wearing the wig, it's amazing how easy it is to put on.  Wink  I just keep telling myself, "no one gives a crap about my hair and if they do they really need to get a life."

    Don't worry about SE that may never come.  Take it day by day and even hour by hour.  This too shall pass.  Stay strong Sistas.

  • paddlegirl
    paddlegirl Member Posts: 18
    edited January 2010

    nkrun: The research nurse at my cancer center gave me the info on the Lance Armstrong grant, check with them.

  • mslrg
    mslrg Member Posts: 293
    edited January 2010
    Issymom--I'm also begining to lose my hair, it comes out in the hairbrush and shower. My wig is ready to pick up. I hate this part! Even though I still have most of my hair, it's limp and has no oomph!  Maybe the wig will lookbetter.

    I registered for the 3-day Susan G. Komen in San Francisco in October. I took the plunge and I'm gonna do it! One big middle finger up in the face of cancer! Now, I have to fundraise--something to keepme busy :)
  • volleyskcat
    volleyskcat Member Posts: 3
    edited January 2010

    I got my Neulasta shot today and boy did it hurt. The nurse put it in real slow (took about 3 minutes from the time she stuck me until she pulled the needle out)..that was a surprise.  She said if she had done it faster it would have been much more painful.  I am waiting to see if I have side effects from this, so far haven't had a hard time with the chemo treatment from yesterday.

    Hope everyone is doing well tonight.

  • breastfriendxx
    breastfriendxx Member Posts: 3
    edited January 2010

    Hi Grace,

    I'm on the other side of Australia in Perth.

    What treatment are you having & have you started yet? I start 1st week of Feb.....rather nervous but in light of everyone on here, I know it's going to be all good!

  • youngmomof3
    youngmomof3 Member Posts: 156
    edited January 2010

    Hi ladies,

    I posted on here last night andnow have no idea where it went so i'll try it again. Yesterday(Thursday) was my 1st chemo and what a day it turned out to be. I felt pretty prepared; chemo bag packed, comfy clothes, wonderful husband and a positive attitude(thank goodness for the last too). Well as it turns out my darn port didn't work AT ALL! The nurses tried a few times to access it, push fluids throught he line, draw blood and put in medication to see if they could unblock a clog but nothing worked so I ended up with a needle in my arm all day. I already hada follow-up appt with my surgeon for today so hopefully she will be able to figure out why it didn't work and I am praying she can fix the problem without going in surgically again. Seriously didn't start off the day well but felt I just took it in stride and moved on.

    So first I got Benedryl and an anti-nausea med and then Herceptin for 1 1/2 hours, then Carboplatin for 30 minutes(I think) and then the Taxotere. Well 3 drips into the Taxotere and I had an immediate reaction. My throat and upper chest started to feel heavy,like I needed a deep breath, so I asked the nurse if this was normal and she took one look at my face which she says was very red and stopped the medication. Talked with the onc and he said maybe there was too  much time between the Benedryl & the Taxotere and wants to try again next week with more Benedryl and a slower drip to see how I do. He feels this is the best med for me but we may have to change it. okay now all of this is kind of stressing me out b/c I thought I knew what I was dealing with a new meds or less chemo but weekly(another option) is not making me happy.

    Few good things about today though were that b/c I only got 1 chemo med I don't need the Neulasta shot this week or next b/c white cells should be good:) and 2nd, onc says side effects shouldn't be as bad this week. And speaking of side effects...this is why I am up and typing at 5:00am b/c I can't sleep and am nauseaus. Woke up to use the bathroom, felt a hint of nausea, drank some H2O and tried to go back to sleep but couldn't because I was debating on taking an anti-nausea pill or not. Worried that if I missed my window that the nausea would hit me full blown so I decided to take it and now I am worried that it wil bring on drowsiness as the bottle says and I have to see the surgeon today. UGH! Last night had a slight headache but took 2 motrin and went to bed and woke up with no headache so that was good.

    TerriJo,Pagowens, Grace Okinawa, & Leta17: Glad to hear round 1 went well for you yesterday and am hoping today you are all feeling pretty good. Sounds like you girls have some great support systems and wonderful people who care about you which makes such a big difference. I came home from chemo and a friend had dropped off a meal for our family which really just touched my heart so much. These gestures make such a difference in my spirits.

    GeorgiaBirdGirl: sorry to hear about your rough day but hopefully it is behind you and you will have a few weeks of feeling good. As for the wig issue, why don't you go to a store with a good friend or family member and try some on. They had a large selcetion at the store I went to and I ended up with a beautiful(although somewhat pricy but I think it is worth it) wig and it looks like I just left the salon with a perfect cut, color and style. I am with you on not being enthusiastic about wearing one but for me I feel that transitioning from my own hair to a wig will be easier than going straight to scarves(which I think are adorable and they have so many beautiful ones to choose from). Even if you don't get a wig from a store you'll have a better idea on what style and colors you like best so if you decide to order online you'll know. They are fuller so that is something to keep in mind and I found that most either have bangs or a full side sweep across the forehead which is going to take time for me to get used to since I 've never been able to wear bangs b/c of a cowlick(sp) in my hairline. And yes, check with your insurance to see if they reimburse. Good luck with whatever you decide.

    Paddlegirl: good luck today. You can do it and you will be okay. Just getting there and starting are the hardest...the anticipation was hard for me.

    Hope everyone has a wonderful day todaySmile

  • Merilee
    Merilee Member Posts: 3,047
    edited January 2010

    Barbara

    What is Cixipro?

  • KAJDerby
    KAJDerby Member Posts: 310
    edited January 2010

    breastfriendxx - yes.  started on Wed Janu 20. 

    Tonight I am finally feeling somewhat normal. I do feel foggy, spacy, and just waiting for something worse to happen.

    Didn't someone say that the 4th or 5th day is the worst?  That is tomorrow and Sunday for me.  Just curious what the "worst" means.  Is it nausea?  I had terrible nausea the day of my chemo and have just had mild since.  Any help would be greatly appreciated. 

    11tybillion - how did your second treatment go?

    Georgiabird - so sorry for the tougher times.  That's what scares me most.

    youngmomof3- I am so very sorry about your port!  How awful!  I didn't even feel the doctor put the needle in the port!  It was wonderful.  Praying it will get figured out for you.

    Issymom- why aren't they using steroids for you?  just curious.

    Well, g'night!

  • wren22
    wren22 Member Posts: 40
    edited January 2010

    youngmomof3:  I had the same problem with my port the first time.  It took several tries and finally they had me lay flat on my back and it worked.  Seems there was just a little kink in the tubing and once I laid down it was fine.  Don't know if this was your problem, but it was an easy fix for me and certainly worth a try.  Good luck at the surgeon's today!

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited January 2010

    Good morning ladies! I hope you all are feeling wonderful!

    I had a long day yeasterday but fun. We went wig shopping. I got a couple of wigs. One I am really waiting for is the one that is a ponytail for a hat!! I went to the young survior coalition and got a lot of goodies there. they were super nice. Went to cancer action and they were great to. I could pick out anything I wanted for free. I got a free wig, a couple of sleep caps, vday scarf and some wig care products.  We then went to Brian Joesphs. I got some stuff that will save my lashes and eyebrowns.

    Grace they said the 4th would be the worst for me but it wasn't. I hope it isn't for you!

    Youngmom, I am sooo sorry your port didn't work. That is my biggest fear, i hate myport. I keep thinking that I am going to rip it out. I hope it goes better next time.I hope they find out what is wrong with out going back in. (())

    Woo Hoo for you,Vegas Diva! Half way done. I hope you feel great all week long!

    Volleyscat, sorry it hurt. I hope you got some rest and feel fine today:)

     Way to go, mslrg. Sorry about your hair though:(

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited January 2010

    Well I still didnt' start the chemo. I was given Tuesday the "free to go" by my PS. I am not comfortable to start it with these people though, I am going to see another oncologist Monday. I was supposed to get 4 rounds of Taxotere+Cytoxan.

    I am glad everything went so good for you! Hopefully you won't have any problems from it and you'll be able to fly through your treatment.

  • chasinghope
    chasinghope Member Posts: 126
    edited July 2010

    Hello ladies sounds like we're all hanging in there through this!

    NKrun, I am on 4 cycles of chemo AC right now, had first on Jan 7th next Jen 28th,  I am having the same issue with sores, but mine look like pimples. Also AC has given me mouth sores, horendous mouth sores?Are you getting this? Anyone on the board getting mouth sores. The Biotene is not helping and I can't feel my mouth or tongue with the miracle mouthwash, anyone else?

    Hang in there everyone Feb is coming around the corner and it will be one month down!

  • VegasDiva
    VegasDiva Member Posts: 109
    edited January 2010

    volleyskcat: I just got my second Neulasta shot this morning and had no issues.  It was very fast and painless.  On the order of a flu shot given in the back of my arm.  It seems odd that yours was given so slow.  I was done in less than 15 secs and never felt a thing.

    Try getting a shot of Sandostatin - that will bring tears to your eyes and jaw pain from clenching your teeth so hard!  Frown

    What was the shot like for you other ladies that have had your Neulasta?

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