No more treatment after lumpectomy

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Amain
Amain Member Posts: 14
No more treatment after lumpectomy

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  • Amain
    Amain Member Posts: 14
    edited December 2009

    I had a very small area of DCIS and a needle biopsy in Oct. and wide excision 2 weeks ago.  I had clean margins; the spot of DCIS was 2mm in diameter but the amount of tissue removed was 6 cm x 3cm x 2xm.  Seems like a lot for a tiny speak of microcalcifications.  After much research and dicussion with breast cancer researchers, the top people in the field of DCIS study, I have chosen not to undergo additional treatment like tamoxifen and radiation.  I believe, as many women on this discussion board have said, that treatment for this, as yet under-understood disease, is far worse than the disease itself.  Why put all these toxins in an otherwise healthy body when there is not compounding reason (like family history of cancer) to justify it?  It's called CYA.  My opinion is this:  until I have a REAL cancer tumor, I'm not doing anything more.  If I get a real cancer tumor, then double masectomy immediately.  I believe that DCIS is the new "in" disease...something that isn't even proven to be cancer yet all the medical community wants to treat it like it is because they really don't know what it is.  Is it cancer?  No, but it could be...they just don't know.  Not to diminish those that have suffered invasive cancers, but an "in situ" diagnosis means just that, it's "in it's place" and probably won't become invasive.  Until it does, there is no way that I going to pollute my body with known toxins like radiation or tamoxifen.  Yes, you must be your own advocate and make a decision that you are comfortable with.  I saw a specialist at the Mayo Clinic and she said, "take it out and forget about it".  That's what I did and I"m sticking to the decision.  Good luck to everyone fighting this dreadful disease. 

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