New to this forum

ibcRN

New to this forum

ibcRN

An IBC friend suggested I join this forum since I am a 15 yr IBC survivor, nurse, and serve as the Executive Director of the Inflammatory Breast Cancer Research Foundation (www.ibcresearch.org)  When I was dx there was very little info available and what was there was not encouraging.  Fortunately I've beaten the odds and have not had a recurrence, although have numerous treatment related issues: spinal fractures, blood clots, shoulder problems.....but I'm still on two feet!!

There is life after an IBC dx!  I've been blessed to find a way to use my medical and patient experiences to help others by being involved in both IBC advocacy and research.  I sincerely hope that one day there will be such effective tx for IBC that there will be no need for forums such as this.  It would be nice to know the cause/s and how to prevent IBC but that's so complicated I don't know if that will happen in my lifetime.

In the meantime, I hope I can contribute useful/meaningful comments to this forum and read about others concerns, as time permits.

Ginny

lexi4

Hey Ginny,

Thank you so much for coming to our forum and introducing yourself. I am so happy and encouraged to see that you continue to do well 15 years out!! That's terrific!!

If you don't mind me asking, were you given a stem cell transplant or any other txs besides chemo? Just being curious...  Any new research you have to share would be great.

Be Well,

Lexi

Caseysmom

Ginny:

Welcome to our group and congrats on 15 years of NED.  I will check out the Hall of Survivors thread to see your news report.

Hugs

Laura

txred9876

Welcome and thank you for joining us!!

Tina