CALLING ALL STAGE I SISTERS

Valjean

Happy Birthday, Meecie!!

{{hug}}

bombaygal

tinaj,

you are right, I have Kaiser too, and I guess its procedure for them to do the Onco Test.

My score was a 16, and I declined chemo too. My Onc was not happy, but since she said its my decision, I chose to excercise it, not a lot we have control over in this fight, lets use what we have.

I am in San diego CA. who is your Onc?

On a different note, I had my first consult with Radiation and they were such a nice bunch of people, makes me want to go back...sweet, gentle and patient...made such a difference!

maybe we could use this thread to recommend facilities, I know, the last thing on our minds is research places, but they make a such a difference in our treatments and our attitudes to it.

adangel

Hi Tinaj,

Your situation seems so similar to mine.  I also had a non-palpable tumour that was found using a digital mammogram - like your story, no one could feel it, even knowing were it was.  I also needed the needle localisation technique before the lumpectomy, along with a wire insert.  Apparently, my left breast is extremely dense (personally, I find that a bit unfair).  The doc even had trouble getting the wire in - I think his exact comment was "your breast is too strong for my needle" - ha - that will teach you to call it dense!

Like you, surgery produced a surprise DCIS of 1.3 cm to complement the 1.1 cm IDC - all hormone positive and her2 negative.  Thankfully all nodes were clear.  At that point, I thought I'd get away with rads and hormone.  But, had the oncotype test and scored 29 so now I'm doing chemo as well.  Started yesterday.

How are you doing? 

Meece

Welcome, adangel.  Hope you got through first chemo well.  The few days after chemo are the roughest.  Best of luck as you weather this storm.

mimi1964

Welcome adangel.  hope your first chemo goes well.  I didn't do chemo with BC but did 8 txts with Hodgkins Dz years ago and it was no picnic back then but the advances they have made are so great.  Everyone tells me now that you do well with it and seldom if ever get sick.  Saying a prayer for you.

Anonymous

Bombaygal: I'm actually in NorCal. That's crazy that your Onc wanted you to do chemo with an Onco of 16 and a Stage 1/Grade 1 cancer!  My Onc had no issue with my decision that I could discern; she's the one who told me (and I confirmed on line from a valid source) that for intermediate scores they believe there's likely no benefit from chemo let alone a LOW RISK score! Good for you for making your own mind; you are very right that we have little control and need to be active in our care.

adangel: Welcome my sister of the youthful breast (we should start a campaign to change "dense" to "youthful")! Bummer about the Onco of 29; I would have had a harder time with my decision if I was at the top end of the intermediate range but I totally respect your decision and hope it goes smoothly with minimum SEs. As for me: I'm doing well now that the decisions are made and I get a break from treatment until May so I can relax and heal from surgery a bit! 

Meece

Ooh!  I like that term youthful, rather than dense.  Dense makes them sound stupid. Although if they were smart they wouldn't have developed BC.

annettek

tina- i will share it with you willingly although you have a low one as well

Chocolate- nope...I tried an AI that with one pill about killed me so I do a natural regemin- although I am hugely angry as I have already posted on another thread after reading most recent guidleines from NCCN for recommended treatment for someone with my particular stats following surgery...no adjuvant therapy....it really ticked me...I will still continue my supplements as I feel better doing so, but when I talked to onc about it she said..oh yeah they change those all the time...and I said YOU SHOULD READ IT more often. It is just weird to me. I agonized over my decision so much and hurt myself when I did cave and try it. It never made sense why on one hand they were all so relieved with path results, etc and saying do not worry-...and the other saying take that AI or ELSE. And my other onc (superstar who moved to Phoenix to open up a new branch of MD Andersen) was just as guilty for not being current. That makes me even madder since MD Andersen is one of the institutions making up NCCN ARGH...ok...I feel better now:)

annettek

Happy birthday Meece (even if belated)

Welcome ADANGEL:)

jo1955

Welcome ADANGEL.  This is a great bunch of ladies.

sheila888

Welcome Adangel

sheila888

Well Sisters I took my last Femara this morning.

I guess I graduated to the next level.

Im grateful to all of you for the support.

♥

annettek

CONGRATS SHEILA!!

jo1955

Sheila - Congrats!

                                  

Sherryc

Seyla congrats. what a wonderful milestone.  Just started my tamox so 5 years seems a very long way off. 

FireKracker

HAPPY bIRTHDAY mEECE....lots of good luck for your new birthday year.huggggs K

BarbaraA

SHEILA - so happy for you!!

Meece

Thank you. T^his year is going to be great.  It is the year I become Grandma and I so look forward to it.

Rennasus

Congrats Sheila!

Meece, I became a step-Grandma last year. I never had kids of my own so it is a lovely thing. Enjoy! 

Meece

I have a step grandson, but SD won't let us see him.  SO I don't really know how it feels.

Rennasus

Meece, I'm so sorry to hear that. ERGH!! The stepchild situation is its own minefield.

I wish you well and hope your SD softens over time. ;-)

sheila888

For All Your Kind Words Sisters.♥♥♥♥♥♥♥

charmainejensenvoisine

I am signed up for news alerts on drugs.com for Tamoxifen, and here is another article that just came into my inbox last night.

http://www.drugs.com/news/tamoxifen-may-offer-long-term-heart-cancer-protection-30266.html

Rennasus

Yes I saw that article too, very encouraging!! (Gotta love a GOOD side effect!)

Eph3_12

Sheila-I am envious of you taking your last Femara!! I've got 3 yrs, 7 months & 23 days, give or take (especially since my math ability sucks since chemo-not that was any good before that  

Sherryc

Eph3_12-your not counting are you?????

Eph3_12

Sherryc-not really, but Sheila's post about being done made me curious about how much more I have to go.  I am lucky, I'm not having that many troubles with Femara so It's not something I really have to do a countdown for.

mom2westies

The worker who "bent the rules" last week to tell me my mammogram was clear is now on my bad list. I finally got the letter with results yesterday and it reported an abnormality which is probably benign but  which will require follow-ups. I refuse to think that I will be repeating what  I went through from last March through radiation ending in September. At least my surgeon has'nt called. Our trip to Savannah has been postponed until after my oncologist appointment next week. We keep on keeping on I guess.

TinaT

xgolfer:  It sure is a roller coaster ride, isn't it?  Up and down, good news and bad news.  So sorry you are thrown back into the thick of things.  Here's hoping it's much ado about nothing!

jo1955

xgolfer - Here's hoping for B9 results and you can take that trip to Savannah.