CALLING ALL STAGE I SISTERS

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  • DucorpsToo
    DucorpsToo Member Posts: 37
    edited November 2010
    Hi there!  Another stage 1 person here..Lurked for a long time, finally signed up yesterday. Great board and very informative! Have a nice daySmile
  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2010

    3jaysmom welcome! although sorry you have to be here

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited November 2010

    I think if there is family history or if you had polyps before they do it every five years. I have family hx and polyps so I have to do every five years too.  Prep is the worst, getting use to the Versed haze.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2010

    Julie, sorry you are here with us but good luck with your onc appt.  I felt better once I started meeting with the doctors and started getting some answers.  The worst part is always waiting on test results.  Just waiting on my BRCA test now and should start rads next week.  This forum is great for information and gives you things to think to ask your drs.

  • jo1955
    jo1955 Member Posts: 8,543
    edited November 2010

    Raeinnz - Trying to deal with all of this.  Sometimes my head still spins from just the though that "I" have BC.  Have lots of support not only here but where I live.  Know several ladies that are survivors and we get together and talk alot.

    Monday update after having to stop rads on Fri.  Saw my RO this morning, rash is looking good after a weekend of Topicort & Aquaphor.  Said I could get back on schedule.  He has been such an arrogant SOB throughout all of this.  Had a drastic change in attitude Fri and don't know what happened - think my BS had a talk with him.  Went out of his way to get me in this morning while I was there instead of coming back this afternoon at my regular time.

    The long and short of all this is - I have only missed one tx - 18 down and 12 to go.  RO is nicer to get along with.  Maybe able to get through this after all.  Try everyday to maintain a normal schedule and work around the fatigue.  Had a great, restful weekend.

  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    There are so many new sisters here today. I just want to remind you one thing.

    ALL NEWCOMERS ARE ALLOWED  5 POSTS IN 24 HOUR PERIOD UNTIL THEY REACH 50 POSTS.

    YOU HAVE UNLIMITED PRIVATE MESSAGE POSTINGS BY CLICKING ON THE PERSON'S NAME YOU WANT TO COMMUNICATE.

    JUST FOLLOW INSTRUCTIONS WHEN THE NEW PAGE OPENS UP.

    I HOPE THIS WILL HELP ALL THE NEWBIES.

    SHEILA

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    WOW! So many new sisters with the beast. My heart hurts. Big {{{HUGS}}} to all of you and if we can help in any way, just send us a private message.

  • oakley
    oakley Member Posts: 206
    edited November 2010
    Hello everyone!  Thank you so much for all of the wonderful thoughts and hugs!  Here's a little update - got the MRI results today which showed everything was as suspected on the left side where the tumor is, but the right side had something a little suspicious so I had to run back for an ultrasound guided biopsy in two spots on the right side.  We will all be surprised if it actually turns out to be malignant, but I guess it becomes worrisome now that I have a cancer.  Anyway, will know those results tomorrow by 2, and if everything is fine will be moving ahead with my lumpectomy and SNB on Wednesday.  I have been so anxious since the MRI on Thursday and I feel a big sense of relief right now.  I hope everyone has a wonderful evening and big hugs for all of you who are in pain from your various treatments.  Step by step.  Smile
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited November 2010
    oakley, I am your Dx twin. (Except my treatment was right side, but strangely enough I have two spots on my left that are being watched by ultrasound.)  Good luck to you having your surgery on Weds., and I wish a speedy recovery, including many handmaidens and butlers to wait on you during recovery time.  (That was just a dream I had for myself...just passing it on.)
  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    (((OAKLEY))) just some gentle hugs while you wait.

  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    A Big Welcome to DucorpsToo and Determined.

  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    (((OAKLEY))) A big hug coming your way for Wednesday and any other day.

    You are having The same 3 procedures as I had over 5 years ago.

    If you have any questions just PM me.

  • Twilah
    Twilah Member Posts: 9
    edited November 2010

    Val, I was wondering if you or anyone else on here had any dizzyness while having radiation.  I am just experiencing it tonight and thought it may be a side effect?  Hopefully I'm not coming down with anything.....'

    thanks

    Twilah

  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    Twilah...I didn't experience any dizziness.

    Is it all the time?

    Maybe you should mention it to your DR.

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited November 2010

    Update...I met with the surgeon today.  I am scheduled for a partial thyroidectomy (right side only) on November 23rd - NO OTHER TREATMENT NEEDED! 

     

    Now I have to get geared up for my MRI on Wednesday...bring on the valium Laughing

  • deborye
    deborye Member Posts: 7,002
    edited November 2010

    I never heard of dizziness as a SE from rads.  I just wish I could get rid of the stupid tat that looks like a blackhead.  If I have a scoop neck shirt on you can see it.  

    I am a redhead and oddly enough I did not even blister when I had my rads.  Got medium rare like a bad sunburn but it went away fast. That didn't start showing up until half way through.   I just kept putting everything on my tata that they gave me.  I did get some foliculitis  Inflammation of the hair follicles.

  • deborye
    deborye Member Posts: 7,002
    edited November 2010
  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    Michelle so nice to hear from you sister/friend.

    Big Hugs♥

  • Twilah
    Twilah Member Posts: 9
    edited November 2010

    No, it just started tonight....I will tell them tomorrow when I go to the center. It's new and of course my imagination is running wild. Thanks for answering...I'll have to wait until tomorrow for answers. I'll keep you posted.

     Twilah

  • Valjean
    Valjean Member Posts: 1,898
    edited November 2010

    Twilah ~ As a matter of fact, I remember a couple of times, maybe three or four, that as I arose from the rads table, I felt light-headed & sat for a moment longer. I didn't say anything to the tech, just fiddled w/the gown or something & walked out still slightly off-center.

    I attributed it to maybe I got up too fast or something, but I only had it during the rads & haven't had it since. You are the only other gal that has brought it up. I'm glad you asked. From the other posts, I see it is not common & most likely is not an SE of Rads, probably just something within us, maybe we did get up too fast. How did yours occur? Maybe not enough water leading up to the tx, or we needed to eat?? My tx's were late afternoon, I made dinner as soon as I got back home.

    Let me know what you learn tomorrow, would you? In retrospect, I should have said something & I didn't.

    Michelle ~ That is wonderful that you won't need any tx other than the partial thyroidectomy. I'll be thinking of you Wed during the MRI. {{hug}}

    oakley ~ I will also be thinking of you Wed & will be near while you have your lumpectomy & SNB. Prayers for good result tomorrow for the US biopsy you had. 

    jo ~ Glad your rads tx is back on track & that your skin is looking better. 

    Welcome to the newbies! So happy you have found us but I am saddened once again by the increasing number of new sistas....{{hugs}} to all of you.

    Rae ~ Like your picture post at the top, but some of it is blocked for me. Strange how that happens for some & not for others.

    Love & hugs to all my beautiful sister/friends,

    ♥ 

  • raeinnz
    raeinnz Member Posts: 815
    edited November 2010

    Twilah - imagination running wild is a major SE of a BC dx I reckon.  I was never obsessed with my health but now every twinge or ache and my heart starts beating faster imagining the worst :(

    Michelle - hey there. YAY that you only have to have surgery.  Is it a long op?

    Welcome all the newbies - we look forward to getting to know you.

  • raeinnz
    raeinnz Member Posts: 815
    edited November 2010

    Reposted it for those who can't see the whole picture.

  • raeinnz
    raeinnz Member Posts: 815
    edited November 2010

    I DON"T BELIEVE IT!   Same thing ROFL.

    This time.......

  • Meece
    Meece Member Posts: 19,483
    edited November 2010

    The comment about every little twinge making you worry brings a quick little question.

    For several months now my left breast, the one that had rads, has been itching inside,  That means scratching gives no relief.  When I brought this up to my onc in Sept, she suggested changing laundry soap, and to let her know if a rash develops.  Has anyone else had interior itching, and has your dr. given any idea what it is?  Today has been a full day of the itching and it is really unladylike for me to scracth my chest all day.

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited November 2010

    thanx for all the welcomes, ladies. i know some of you from other threads, hullo...welcome to gonna win( lovethe name!) Julie (boatergirl, Ducorps too sherry c and Jo, and anyone else i missed. i've found so much support on this site, and am so sorry you all have to be here, but am glad you found us!

        Rae, i loved both pics and i totally "stole" the dancing smileys, is it ok  michelle? 

          look at barbara As' avatar, that's me with her and Marybe raising our glasses in weston, fla. a great visit!! so, if you look carefully, you'll know who you're "talking" to lol nite...3jays

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited November 2010

    Meece - I get phantom nipple itches...of course I know they are not there but I cannot help myself and start scratching any way. 

    Raeinnz - the surgery is approximately two hours, under general.  I am hoping for a clean MRI and that we can take out the port at the same time.  The surgeon was a little surprised at my request to keep my port parts, apparently I was the first person to ask ,but I just told him I paid for it so I might as well have a souvenir. 

    3jays - I 'borrowed' the dancing smiles too, more then happy to share.

    Good nite all!

  • raeinnz
    raeinnz Member Posts: 815
    edited November 2010

    Meece - I get the itches inside too and I have put it down to nerves regrowing.  For me it usually lasts about a month and then settles down.

    Michelle - a reasonably big op then.  Fingers crossed for a clean MRI and a trouble free op and recovery. 

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited November 2010

    Big hugs Michelle. Loved the dancing smileys. Meece, mine itches, too. Not all the time my like mad when it does.

  • gonna-win
    gonna-win Member Posts: 9
    edited November 2010

    Hello again girls! Yesterday I had great news and I just wanted to share. After much deliberation it has been decided that chemo is NOT going to be a benefit for me. YEH!! I was so not looking forward to that and my daughter gets married in Feb so it is a huge relief. I will be having all the major surgeries after her wedding and hormone therapies begin asap, but I am over the moon!! I have recovered well from the lumpectomy and SNB and will probably return to work in a couple of weeks. I celebrated the news today with a visit to the hairdresser to get the very long regrowth tended too. I was waiting to see if I would be losing it or not. I have never enjoyed the hair wash as much as I did today!  I feel so blessed and never before have I wished these blessings for everyone else as I have over the passed few weeks. Whenever I get good news I wish I could hand it onto others in my shoes, when you hear the bad stuff you know you wouldn't wish it on an enemy, the empathy you discover within yourself through this horrid situation is a positive part of the process. Hugs to you all from downunder!!

  • Twilah
    Twilah Member Posts: 9
    edited November 2010

    I'll let you know what they say  about my dizziness when I get back today. This didn't happen at the center, it was late afternoon and evening. Right now, I'm ok, but have a headache. Hopefully the dizzyness is gone. Will be writing later on today. Thanks, all.

    Twilah

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