No routine scans for me...and that terrifies me!

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Niknak0320
Niknak0320 Member Posts: 138

I just finished chemo on Tuesday!  At my last appointment with the medical oncologist I asked about future scans and was told that the radiation oncologist would be the one to order my first post treatment scan.  On Wednesday I met with the radiation oncologist to discuss my rads treatment plan and I asked her when and how often would I get scans but she told me that I will NOT be getting routine scans!  She says that I should consider myself NED, a survivor...now.  She told me that if something comes up that they will order tests.  I'm not sure that I will be able to handle that...how can I get the courage to continue with my life without constant worry about reoccurance or mets? 

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  • MAMAQ
    MAMAQ Member Posts: 240
    edited October 2009

    Niknak-  I'm so glad that I found your post.  First, we have a very similar diagnosis.  I have IDC, <1cm, stage 2a, grade 3, 1/5 nodes er+,pr-, and her2-.  I finished my chemo in August and am having the same feelings.  And it was my oncologist that said the same thing. ("you consider yourself cancer free')  So, I'm sorry that I don't have any answers for you but I do hope that you take some comfort in knowing that you are not alone in your feelings.  I have been having the same fears and am trying to figure out the same things myself.  I guess we just take one day at a time. 

    Mamaq

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