November 2009-Starting Chemo

Cafelovr

LOL Melinda! Since a power port can be used when you get scans with contrast, that's what the surgeons give you. What they don't tell you is that the scanners don't use the port and prefer to do an IV. I put Emla cream on when I go for MRIs at CTs. The techs told me last time not to even bother with it.

The chemo girls have graduated? The warriors have conquered? Amen!!!!! There is nothing we can't do!

I get my simulations and tatts on 5-11. 33 rads to chest wall, nodes, sub-clavicular nodes, and sternum. Fun times ahead. I'm wondering if I will glow in the dark!

Mouse6694

Brenda I still have until Nov 17th until my last Herceptin I go every 3 weeks I go May12th to get me back on track with smiley faces. Thanks

Had my muga scan and heart actually scored better than last time so ticker is doing well. Had my pet scan on Thursday and was hoping to hear from the dr. today but no luck so of course my brain goes to "oh they didnt want to ruin my weekend" thoughts. So my fellow sisters send your thoughts and prayers my way that all is clear and cancer free. I finally have my reconstruction surgery scheduled for June 29th I cant wait these expanders are getting harder and harder.

Wish everyone a great Mothers Day!!!!

suzieq60

Hi Girls,

I've been taking new pics of my hair, so I thought I would share the latest with you. Still some baldy patches on the top, but all of the staring in the mirror has been paying off

Sue

doronet

arghhhhh!  Suepen, I can't seem to access any pics of yours and I want to see what your hair looks like.  Can't figure out why they don't come through.

Just FYI:  I have started to get the tingling in my hands now that wasn't there when it first started in my toes.  Is 11 weeks post-TX.     I knew SE's would still be with me,  but am surprised to get new ones at this point.  This sensation is like my fingers are falling asleep, where my toes are more the numbness/tingling.  It mainly comes during the night and only occasionally during the day, but most importantly, it's temporary and goes way within minutes.  Guess that's a good sign.

My hair is doing well, and though I go without head covering in my house, I still haven't ventured out in public that way.  Need's to get longer for me to feel comfortable. 

A huge HAPPY MOTHER'S DAY  to all the moms!  Nette

suzieq60

Nette: I've sent you a PM asking for your email address, I'll send you a jpeg of the picture.

Sue

Cafelovr

Happy Mother's Day!!!!

doronet

anyone heard from littlebird?  I've been thinking of her a lot lately.  she was having such a tough go there for a while.  So many that haven't "chimed in" recently.  Hope all is well for them and that "no news is good news."

suzieq60

We haven't heard from SharaD or KayH for ages either - where are you???? We miss you!!!

Sue

micheleboots

Hello ladies, Happy Mothers Day...

Sue love the new hair.  If I send you a picture of the back of my head could you check it out often to help me along? 

suzieq60

Michelle: Sure, send me your pic or you could start obsessing like me and keep a hand mirror at your side.

Mouse6694: Not sure if Brenda is going to keep track of our herceptin treatments - that might be a bit much for us to expect of her.

Only 8 rads to go - woohoo but I'm worried about how I'll react to the Arimidex which I'll start after rads. Herceptin this Wednesday. then I'll only have 10 to go - only? Seems like it will take forever.

Sue

Cafelovr

Cafelovr

I am having the hardest time inserting a pic. Let me try again...I cannot figure this out! What is the image URL? Ugh...

Cafelovr

P1020512.JPG

Melinda41

Linda,

have you got the pic on facebook or photobucket or some other site?

Cafelovr

I have them posted on Facebook.

Melinda41

Is this the one you wanted?

Melinda41

is this the one you wanted?

Melinda41

Linda, go to facebook and bring up your pic.

Right click on it, go to properties, then copy the link

Insert it here with the image thingy, but cut the dimensions in half.

Or tell me which pic you want and I will do it for you.

Good looking hair.

micheleboots

So here is my hair...

doronet

Suepen:  I started Arimidex on May 1 and as of today, May 10th, I don't think I'm having any SE's.  I believe the minor joint aches I have are due to the last Taxol TX.  I still have the neuropathy from the Taxol, so it stands to reason that the aches are from that, too.  I purposely did not go back to check the SE's of the Arimidex before I started taking it so that I'm not looking for something that might not be there.  Just look at it as a vitamin you need!

 Nice hair, Linda and Michele!  Nette 

suzieq60

Nette: My onc has said he's worried about how I'll react. He's assured me he'll get me bisphosphonates for free which will hopefully stop me getting osteoporosis.

Sue

Cafelovr

 I did it! Thanks Melinda! I wanted to show this one because it shows my eyebrow growth. If you look in the corner of my left eye, I have an ingrown eyelash. Will it ever end??? Who cares...It's nice to have hair!

BrendaSharon

I hope all "Warrior women' had a fantastic Mother's Day!

I think we are all happy because we have all finally made it over the wall.

 Well, I did say I had some new to share after we all made it through our chemo so I guess now is a good time as any. I wasn't sure how to say this, because I have been sad for some time over this. (Part of the reason my posting became less and less). Back when I started this thread, I became very close to a lady Ms. ccnani.  As you all know the last time she posted was right before Thanksgiving. I have been trying to contact her since but to no avail. I was even given her personal email as well & permission by the administrators to try to reach her. She has never answered. So, I have to lay to rest the feelings that she is somewhere in a better place and watching down upon all the rest of us "Warriors" just saying you go girls. I wish my news could have been I located her, but I do know if she where here she would be cheering us all on and congratulating each and every one of us. I will never forget you ccnani~~~~~~

So in my moments of silence, I willl remember you cc (((((Warrior Prayers & Hugs Forever)))))

Cafelovr

Nooooooooooooooooooooooooooo This is not right! God we need a cure! She was so supportive of us girls. God Bless You, CC Nani!!!

(((WARRIOR HUGS)))

MaryNY

Brenda: maybe ccnani stopped posting for a reason other than her own health, maybe some family issues or just found she was spending too much time on the boards. A few people who used to post on the Oct 2009 chemo thread just faded away too. I PM'd them but got no response.

BrendaSharon

MaryNY,

I would love to believe she stopped because she was spending too much time, BUT

read her last post to us and see if you believe that is truth  ~~~

She was so supportive and there for all of us, she would not give up on us.

UNLESS, It was her family trying to stop her from posting.

MaryNY

Brenda: her last post looks very cheerful to me. Just two things I noticed: she bolded the entire post, but looking at her previous posts, I see she had a tendency to do that anyway. Also she mentioned that the concert she attended was "her last hurrah" but I take that to mean her final fling before starting chemo. She mentioned on 11/17 that chemo was to be delayed for another two weeks so she hadn't yet started at the time of her last post.

I do see why you are concerned though as the seemed to have been a very frequent poster up to that point.

suzieq60

Brenda: KayH and SharaD have stopped posting too. Don't worry too much. My onc urged me not to read these boards as it can be upsetting. But I told him I found it to be a comfort and I'd read them if I wanted to. With such a large family, she may have become too busy to keep in touch. Also, there's nothing in her dx to suggest anything bad could have happened.

Linda: Your hair looks like the same colour as mine and about the same length.  Looking good!!!

Sue

Cafelovr

She was so into these boards! I don't think she would have just stopped cold turkey. Also, if she didn't respond to her personal email, there's not much more to say. Brenda...were you able to get her name and do a search for it in Long Beach, CA?

We can only hope...

micheleboots

I hope that perhaps CC is having a blast on some tropical island, and forgetting about cancer for a while...