November 2009-Starting Chemo

Mouse6694

I guess DH pity party is over he came home and made biscuits & gravy for dinner and did the dishes with no complaints and he fell asleep before me. I think they have breakdowns just like we do but we have a good reason they dont vows state in sickness and health. Wishing everyone a good day. Alicia what is the status on your hubby?

JustmeAlicia

Melinda ~ those night sweats post chemo are awful.  I hope you are feeling ok today.  Stinks they can't do the blood out of the port?! 

Kyasou ~ WOW on the bulb planting.  BUT, I do love that thought of us all being in bloom for Spring. 

Asterix ~ Welcome aboard.  While we all wish we didn't have to board this train, we are ON IT TOGETHER !!! 

Cafelovr and Boxersue ~ how are you girls?

Micheleboots ~ hubby goes to the hematologist on Jan. 4th.  grrrr so we WAIT!  I am trying not to think about it. 

I HATE ALL OF MY WIGS.........  and I hate being bald.  I bought 3 expensive Rene of Paris wigs.  Can't stand any of them.  Thankfully 2 were paid by insurance.  I just ordered 2 more cheap Forever Young wigs.  SHORTER hoping that will make them more doable.  The thought of being bald for the next few months is sickening.  I look like an Alien. 

I am trying to sip a cup of coffee this am.  Something my stomach has NOT allowed me much of since chemo and then I get headaches.  So I'm trying.  I MISS MY COFFEE!!!!

Good day girls.

Hugs ~

Alicia

Melinda41

Remember the show "Alien Nation" from the late 80's?

I may let the kids take the magic markers to my head.

BrendaSharon

Melinda,

I love it!!!!~~~~~~We belong to the  "WARRIOR ALIEN" nation for sure LOL!!!~~~

Alicia,

Don't feel bad, I know what you mean about anything on the head. No matter what I wear it doesn't feel comfortable right now. I don't even much like my hats or scarves. thank goodness I'm alone most of the time in my office. If I see a truck pull into the yard for material, I just put on my hat. I manage to get it on before he comes up to get weighed out. I don't even wear my (Hip-Hat-Hair) and it was fairly expensive. I just save it for when I want to go somewhere special. NOT that I go anywhere much as of late other than to work.  :-( I act like a spoiled brat lately.

I need to get working on todays updates and TX's, will be back to chat soon

Psalm121

Good Morning all you Beautiful Warrior Ladies!!!

Who cares what we look like on the outside? You are all wonderful, funny, inspiring, thoughtful and so dang SMART!!!  So much is going through my head right now, I don't know where to start!! But, here goes....!!

BrendaSharon,  I could just picture the DH headscarf shopping trip in my mind----it's sweet and funny at the same time!  I'm also very cautious about going places....I always use a tissue to open doors and keep Lysol wipes in my purse for cleaning grocery cart handles.  Sanitizer is in the car and purse, too!!!  I was always the germaphobe at work anyway -- and now it's just heightened.  I work in a medical clinic...and always seemed to still catch the colds, even when being so careful BEFORE bc!!!   Thanks for all you do for us!!!

Shel, loved the Courage quote! The little things, like encouraging each other when we need it most, is what makes this thread so special!!!

Sherri, I totally understand the dry skin problem.  Had it after #1 TX, I ended up getting a very gentle exfoliating wash (mine's Neutrogena).  It has helped soooo much....dry skin is cleaned away and then the moisturizer can do it's job!!

Melinda, Hope your se's are minimal.....your mentally wimpy statement hit home with me.  Your Mom is probably not even aware she makes you feel she disapproves.  Ask her how she feels, maybe she doesn't know what to say to you...?  I've learned that some people tiptoe around me because THEY are uncomfortable with their own perceptions and ignorances. (meant honestly, not mean-spirited).  Wishing you heartfelt moments!!

Cafelov, Warrior Power is Awesome!!  I was on my period my 1st TX, still haven't started and I'm overdue, but not missing it by any means!!!

SharaD,  Got your message; I totally agree; but had to laugh; 'cause it's so ME!!!  Love it, Love it, Love it!!!!

Kayh, You always have the perfect timing and the right thing to say!! 

Alicia, Mouse, Mabelle, These husbands are dealing with our loss as well as theirs.  Their comfort zone has been totally wrecked!  I noticed my husband gets grouchy every time he vacuums---griping about things being cluttered, etc.....I had a meltdown and told him just exactly what Mouse said, "I didn't ask for ca, and I damn well would RATHER be vacuuming and cleaning house, and so sorry for YOUR inconvenience!!!" He's been a total sweetheart when he vacuums now!!!  And I always have laundry caught up...so the only laundry he has to do is the weekend after my chemo.....that he didn't gripe about...he just didn't seem to appreciate how much I was still doing even WITH all this crap!!  I caught myself looking at him and yearning to be the wife I was---and I realized this is how he feels as well.  He can't wait for me to be cheerful and energetic and talkative and yes, horny!!!  He yearns for normalcy, just as I do...and sex is just the natural expression of a normal, healthy relationship.  The timing has always had to be right, it's just that now we've got all these other issues thrown into our lives and it's hard for me to believe that he wants that.  But that's HIS normal and I guess that's why I still can't stand at the kitchen sink without getting a slap on the butt, and my...that kiss on the back of the neck DOES feel good!!!

Love to all and Happy Husband-Cuddling!!!

Melinda41

Psalm121: In my gut, I know my Mom is not disspointed IN me, she is disspointed FOR me that I am going through this. I just hate being the cause of anymore stress for my Mom. Her husband just had hip replacement this past week, one of my sisters has dropped out of the family to conduct an extramarital affair and is now divorcing, it is just alot going on. Cancer has such bad timing.

Today is the first day the three year old that I babysit has been here since my bald happened. I am still wearing my little sleep cap. I don't know how to show her. I figured I would wait until her Mom picked her up and let her be here. I don't want her scared and I don't want her taking clippers to her own hair!  She is fascinated with my hat/scarf collection.

Two things that I am musing...my low body temp, I rarely get up to 98.6 anymore. And all the pills I take to feel human, nausea, mucous relief, laxatives, anti-depressant, stool softeners, Tums, Tylenol.

Oh well, so much for waiting for three year olds Mom, while I was typing, she wanted to change my hat. I explained that I had no hair under there and showed her the top. She pulled off my hat, pulled on a new one and didn't seem terribly phased. Cool.

Psalm121

Melinda,

It seems we have so much to deal with....and then we get more!!! My mom was so over-whelmed when I was first diagnosed, I know I explained the same thing to her 5 times!! She totally couldn't understand why I did the mastectomy rather than lumpectomy.. save the boob, yes, but then have radiation for 6 weeks/5 days a week.....didn't want to do that!!  I'm sorry you're having to worry so much about others....it's amazing that we find ourselves comforting people on a regular basis, isn't it?

I have a 2 yr old niece that I am afraid to let see me in my baldness!!  Now I am encouraged, I forget sometimes how resilient and accepting children are!! Your little one is having fun with hat dress-up and easing your mind at the same time....thank God for the little ones!!! 

SharaD

I woke up feeling GREAT today!!!! Then I remembered that I have my second TX session at 2:30pm. Why oh WHY did my doc decide that I needed the WEEKLY routine? We're going to have to discuss this one.



Meanwhile I have to concentrate on all the things that I have to be HAPPY about.



1) The hospital is only a 35 minute drive! And only 55 minutes on the way home at traffic hour!



2) Only ONE of my kids is home with the flu! The other one merely has sniffles!



3) The power's back on after being out all night! No more finding my way to the toilet with a scented candle that smells like spoiled fish!



4) My ex left a message that the child support check is in the mail! It was only due 8 days ago, if it arrives tmrw that'll be a new record!



5) New ear plugs are working like a charm! I no longer have to hear the words "Tiger Woods" every time I walk by a TV or radio!



6) I've got seven whole days of looking beautiful 'til my hair is supposed to disintegrate! My aunt Jenny sent me her old Eva Gabor wig in the mail! (Okay, it looks like a furry lampshade and smells like an old shoe, but at least she got the address right! And she added a nice little note that said "Hope it fits! When I see you at Christmas, I'll give you some great tips on styling this thing".) Gotta love my Aunt Jenny! She's 80, and shrinking! Can barely see over the dash but drives a Mustang convertible! Top down in winter! And I know she is looking SO forward to see me sporting this piece of matted hungarian horseHair.

JustmeAlicia

You girls really are on a roll today with the snarky humor.  It has me laughing.  I am having a rally day and trying to clean some more today !! 

Melinda ~ I am with you on the low body temperature.  My skin is cold to the touch.  I feel like a corpse.  It is gross.  I look forward to chemo being over and feeling FLUSHED with warmth !

SharaD ~ I love the matted hungarian horse hair.  Your so funny !

Psalm~ my mom is mortified that I have no boobs.  She will never let me show her what my hamburger buns look like.  She won't even look at my chest area.  And the whole bald thing, that just leaves her speechless.  She doesn't look at me, she looks through me. 

Hugs

Cafelovr

Hi all! You guys are just funny as hell. I needed a good laugh and you delivered. I had a dr appt today, not a treatment, but that's fine with me. That's next wk. Counts are in the toilet, but I expected that. One week of Cipro...here I come!

Melinda: Thanks for the flashback. I actually watched that show! I am a veritable pharmacy myself. I feel like I could open a magic elixer joint on the sidewalk and sell my wares.

Alicia: I have the low temp too. I barely get above 97 anymore and always freeze. Just so we don't get a fever!

I couldn't do this without my mom. She goes to every tx...every dr appt. She's been through this all before, but not as bad as mine is. She was Stg II, I'm IV. Competition sucks! She feels bad for me, but pumps me up when I need it!

I heard a cute saying: When I have three hairs on my head, I'll braid it; when I have two hairs on my head, I'll wear pigtails; when I have one hair on my head, I'll put in a ponytail. When I have no hair left, I'll thank God that I don't have to do my hair today! I just thought that was cute!

And as far as the DHs go...be lucky you're getting some. I'm itching for some attention Tim thinks he's going to hurt me I guess. He'll happily do housework, homework, and errand running, but is afraid I'm made of china and will break. I just need him to throw me up against a wall and have his way with me! Ahhhhhhh

BrendaSharon

Alicia,

I'm trying to get out of my "FUNK" Then I go and loose my entire post i just spent 1/2hr. on. So, here I go again!!!!~~~~~~~~~~~~~~~~~~~Aaaaa'rrrrrrrrrr~~~~~~~~~~

Alicia,I really was trying to get out of the funk because I realize my mind must be in the right spirit before my Friday TX.  You where speaking of moms and their reactions. My mom really doesn't understand the whole breast cancer thing. I lost a sister 21 years ago to Leukemia. She had battled this cancer for 5 years before she passed away. We where very close and my heart was broken.  She went through sooo much.  My mom can't understand that my cancer is different. Heck we know that even all breast cancer itself is not the same, but mom doesn't get it and all she thinks of is what happened to Becky. I told her because of Becky a lot of research was done and it paved the road for me to make it easier. She understood that so I left it there. My sissy actually was a pioneer in bone marrow research. I wish I had had the chance to save her life.

ASTERIX1234,

Welcome aboard!!!~~~~ We are all here to help and guide you through your journey~~

If ever in need of information and/or advice please ask. Cry, kick, scream and laugh when you need. We are all here for you!!!!~~~~Good Luck tomorrow~~~TX#2 ~~~~~~remember to drink a lot of water, then drink some more water, then drink again!!!!  Also, be sure to go to your Chemo TX with a full belly. You will feel much better if you do. I have found feeding this -cancer- bull is the best. Along with PLENTY of water to continually cleanse the system works wonders. Cleansing with lots of liquids helps with flushing out the toxins!!!~~~~ Also tomorrow,

Mabelle

(((((WARM & HEALING HUGS))))) for tomorrow's 2nd TX's

Kayh,

Thanks for the good vibes sent my way. I as you for sure need them this week with TX's coming up for us as well.  I'll send them your way Thursday and you can send them back to me on Friday~~~~~~~~~~

Sherri,

Worse than the dry skin to me is the fact I'm getting the ole spot thing going on. Does anyone else have dark spots that kind look like freckles on their hands and arms??? It reminds me of older peoples skin. I most certainly DO NOT like it at all!!!!

Psalms,

I read your post and I cried. It was the part about cuddling with the DH. I do believe I need that cuddle really bad.  As wonderful as he is and we get along fantastic, yet I don't even remember the last time we made love. I don't really even want to, BUT the cuddling sounds really nice!!

SharaD?   Every week sounds insane!!~~~~~Are you sure?

 Every week? What type of TX every week? Do you go today or tomorrow for your TX?

 Alrighty, let me send this off before I loose it again~~~~~~Good Day ALL Sisters

LVLinda, RedHeadPam, Phillipa, Toyah, SueinFlu, Nette, mousse, Kimberly, jwick, AnnHoung - where are you? , Natilie, Shel, BecaS, portergirl, reglau, Omarsmom, AroninMia, deedee, anamary1, Melinda, Susan, CafeLovr, BoxerSue, iamamom2four, littlebird - are you still doing OK? CCNani, We all still miss you!!!!~~~~~cka0706, also  

CoolBreeze - Amazon leader - to all - hope I havn't missed anyone - To each of you

((((((((((WARRIOR HUGS))))))))))

micheleboots

Shara you make my laugh so much...stay funny. it helps.

micheleboots

Cafe, what is stopping you from finding a wall and throwing him against it...you go girl.

Melinda41

MicheleBoots: When I read your post to Cafe, I thought we were talking about unsupportive husbands being jerks. I had to scroll back up and check. Good advice!

My kids were straightening their hair and I asked one to straighten mine. They agreed until they remembered I don't have hair. Is chemo brain contagious??

kyasou

Just finished my #3 TX and got the prescription for compazine - YIPPEE!  Now I'm waiting in the hospital for an echo to make sure the AC isn't doing any damage (crossing my fingers).  Focusing on the positive...that I was able to eat a BLT during the infusion.  Heard mention that one or more of you are experiencing vertigo.  I have too!  It hit me after TX1 and TX2.  The dr. doesn't think it is related, but now I wonder.  I read that compazine helps with vertigo, so I am hoping that will help with the nausea AND vertigo...please, oh please!

mabelle

Just found out today that my wbc count is too low for chemo tomorrow. I'll have to wait until the 16th for my next treatment, then start neupogen on the 20th. I'm disappointed that my treatment is delayed, but I guess I get a bonus week of feeling good before it all starts again.

I got a new wig today at the "wig bank" - its pretty cool. A friend is coming to style it tonight.

Cafelovr - you're right. I should be happy that I'm "getting some". I'd probably be more upset if he didn't pay attention to me.

You're all very funny today. Thanks for making me laugh!!

micheleboots

Mabelle, is that your hair in your photo or a wig? Either way it is cute.  You look good with short hair...I see you are from BC. I don't hink I noticed that before..or perhaps I didbut can't remember..damn that chemo brain.  We lived in Comox on the island for 3 years...LOVED it.

Brenda, don't you just hait sitting for hours typing and then poof everything gone...I find as long as I don't go back a page I am safe..

Michele

BeccaS

Every evening I come back to this board for my reality check -- you make me laugh and cry. Sometimes I feel lucky in comparison and sometimes I feel so happy that someone is having a good day! Thank you all.

My SE are fairly minimal just now...tingly sore tongue and mouth. I expected to just keep feeling better and better. But no, little headaches, and just tired tired tired and out of sorts.I try to focus on work and I just can't hold it for long enough to accomplish much. Oh well.

And my sweet tooth is becoming more insistent! I find myself grazing...I think I am looking for energy, but the boost from food is only minimal. However, that BLT sounds really good!

Hope the compazine works well for you. 

Cheers!

micheleboots

Thanks Becca, now I want a BLT. And it is bed time for me....I find that as soon as someone mentions a food I want it...

MeNeverMind

First off let me say that I am doing ok. I am just so fricken sick of all this crap that I can't bring myself to even look at the computer. I was just reading throught the last 20 pages since I was here last so let me say...

Sex? I totaly don't feel like it. I am bald and backed up and want to puck. Very sexy. Hubby is just going to have to deal with himself.

Sounds? Everything gets on my nerves. The tv is always to loude, even hubbys voice can become to much. And if the cat meows again I may just let her outside.

Periods? Had 1 right after my 1st treatment, not another. Love that.

Dry skin? My face is falling off it is so dry. I scrub and scrub and then put mu foundation on and I an still flacking off. The corners of my mouth craked 3 weeks ago and bleed almost every day. I eat lotion and lip balm but still craked and dry. Now my feet have started to dry and crack. Lucky me. I have always had trouble with dry skin in the winter. If I can have the humidifyer on so high that the windows drip I might make it through the season. But this is so much worse.

Wigs? i am so sick of fake hair. I want my real long soft hair back! I never had bangs so it is real hard getting used to having stuff in my face all the time.

Christmas? I put up one nontraditional tree and I kicked my butt. i don't even feel like going shopping. I am doing shawls that I found on line for all the ladys since I am always cold I figured it was a good idea. One stop shopping. But I have nothing for the men and I am not sure I care at this point.

Food? Is it me or does everything taste like crapy wall paper paste? EVERYTHING is WAY to SPICY!!! Even minuet rice with out salt seems spicy to me. If I wasn't always so hungary I would never eat. Bread is to sharp, soup (even salt free) is to salty. Water tastes like crap (yes, even with a touch of lemon in it) Even chocolate milk to yuckie. Chocolate was my fall back and now that tastes like crap to.

Husbands? Don't get me wrong I love mine. He is so sweet. Does all the dishes before coming to bed. The laundry is getting washed and dry, not put aways but who really cares. I know he if feeling left out. I get home from work by 5pm and try to be in bed by 7pm. With making dinner that doesn't leave anytime for anything else. And it seems that the last 2 weekends were mostly me laying in bed and him playing a video game. Not what he wants but he is dealling with it.

Tongue? Mine still is raw. Bleeding this morning when I brushed it. My whole mouth is raw. Everything tastes like crap, but I think I said that already.

Poopy fairies? Never stoped getting those visits. Thank God for the small stuff.

Sleep? Never really had any trouble. Thank God for the small stuff.

I feel so much better. Thank you all for letting me vent. In reading I saw that I am not the only whimp in the group. I hope everyone is doing ok. ((((((((((((((((HUGS)))))))))))) to all those who are not doing good. Love Kimmy

JustmeAlicia

Kyasou ~ Congrats on #3 down !  I hope you are feeling ok today.

Mabelle ~ Enjoy the reprive from CHEMO.  I think I would like one myself.  Glad you got a wig you are liking that is quite an accomplishment. 

Becca ~ Hope you are getting some rest and keeping those SE's at a minimum.  I would like a BLT too please !! 

Michele ~ I am like you I hear someone mention a food I want it too.  Had that problem with someone mentioning KFC so I had that last week.  My taste buds are dead.  My salt shaker is on overload.  Nothing tastes like anything.  Love your pic ~ ahhh the day when we had soft boobies.  BUT they were trying to kill us so boobs b gone !

Kimmy ~ we have missed you.  I am sorry for all of your skin problems.  I am with you hate the fake freakin' hair.  WHO's hair is that shiny and napy at the part.  grrr hate all the WIGS!  I hope you feel better soon.  How many more TX's do you have. 

I have 5 more freaking chemo's.  Lord help me.

Brenda (our WARRIOR LEADER), Melinda, SharaD, Psalm, Cafelvr ~ and everyone else I hope you are all ok.  ((((((GROUP HUG)))))))))

Littlebird ~ are you out of the hospital, are you OK????  Thinking of you !

Alicia

feistybluegecko

hi girls

i am still here but really poor connection so little online time.  thinking of you all.

i have blood test tomorrow and if it is ok i hed back to bangkok and chemo 3 on sunday - yuck, scarey yuck yuck!

skin is horrible - sensitive and creepy - it tingles it is so sensitive, i call it heebie jeebie skin!

i hate being bald and jump every time i see myself in the mirror, or every time i see Dr Evil of Austin Powers.  I dont know what he is doing in my bathroom I still have hairy legs!  I dont understand -  if chemo cant tell the difference between fast growing cancer cells and fast growing hair cells, then how is it so clever it can tell the difference between head hair and leg hair???

sending you all hugs

when i am back inbangkok i have better access to email

philippa

x

micheleboots

Kimmy,  well I think you covered almost everything in one big letter...Cancer sucks.  I use carmex on my lips and any dry areas that need moisture.  Not down in the firgina area though.  It is for cold sores but is awesome as a lip balm. I also like to slather on baby oil in the shower,then   a nice rich lotion when I get out.  I also use Ahava foot cream on my hands.  It is rich and thick and who cares that it is for your feet.  I get it at places like Marshells or TJ max. In Canada at Winners.  The also have some body lotions that are good.

I am with you. The thing I hate the most is having no taste buds...can't wait to tast food again.

Wigs, who needs them..put on a soft cap and run free..I only wear something when I go out.  And only because it is bleeping cold out.

Remember we are here for you sista..vent all you want.  We may have no breasts, but we have big supportive shoulders.

Michele

mabelle

Had a bleeding nose for a good half hour this morning while trying to get the kids ready for school. What a gong show. Now that they're gone, I read in my 'cancer binder' that I should seek emergency help for nosebleeds lasting more than 20 minutes. I feel totally fine and its stopped - so I'm just going to call the nurse helpline once it opens in 10 minutes. Anyone else experience nosebleeds?

Michele - yes I'm from BC. Vancouver is freakin cold right now and I'm just not used to it! Comox is beautiful - I've been there a few times. I've noticed that there are a few of us Canadians on this November thread. Funny thing... my name is Michele too (one L) My husband calls me Michele ma belle (mabelle)

I love the venting.. you all say the things I'm thinking!

Take care all. 

micheleboots

Mabelle, I figured perhaps you were french..Ma Belle.  There are not as many of us one L Micheles..everyone asks why I spell it that way..I say I didn't chose to spell it that way, my parents did.  We are getting a big snow storm here today.  Kids are off school. So we are doing xmas baking.  Why not. We are stuck inside anyhow.

Michele

BrendaSharon

Asterex1234,   Go Warrior Princess~~~~~~~~~

Today is you TX, be strong and kick some more C- BUTT 

Micheleboots,

You had me rolling on the floor LMAO, when you told CafeLovr "Why didn't you just pick a wall to throw him up against?" Too, too funny!!!~~~~Loved it!!  And like you I almost wish NO ONE would speak of any type of food because YEP, I instantly want whatever it is.Human garbage gut

Mabelle,

I once visited Canada, many moons ago. I was only 21, so it was like 35 years ago. I went of course to see the Canadian side of the Falls of Niagara. Just awesome as heck. I also went to The Worlds Fair in Canada on the same trip. Me and my husband camped throughout our vacation. OMG it was so cold and it was in June. I never felt a June so cold. I loved the visit but would never want to live there! Just too cold, totally gorgeous though!! I also visited part of "The Thousand Islands" That too beautiful and talk about catching fish!!OMG Drop a line catch a fish, drop a line catch another fish, just unreal. Sorry bout the nose bleed,  hope your well now!!~~~You do have a TX today, don't you? I show #2 TX, good luck and stay strong!!~~

Alicia,

I'm sorry you seem a little down as the rest of us. I know we will get through this, but it sure is trial & tribulations for sure. I hate that I still have 6 Chemo treatments to go!!~~~~I'm not sure Spring will be here quick enough. The insurance is now giving me heck with renewing my "Emend" they want me to pay $435.00 every time I get the 3 pills now. It was just $40.00 for the 3 the last two times. If it goes that high I can't afford this. They can keep the shit, I'll just have to PUKE my guts out. Insurance Co. Sucks!!!!~~~~~~~~ I don't really know how they can charge so much anyways for these meds we receive anyways, it's just crazy!!!!!!!~~~~

kyasou,

I have a question. How does that compazine work for you?? I hope well, because my insurance is denying me my "Emend", unless I want to pay the full $435.00

(NO $435. IT'S NOT A TYPO) That is all I have been taking till now. Does it help you sleep as well? I heard someone mention it was good for sleep and for dizziness also. I have had vertigo ever since day14 after my first TX. So, maybe the compazine wil help.

Well "Warriors"I'm closing as I've not been with it today, can't seem to shake my nausea!

((((((((((HUGS))))))))))

LVLinda

Hello Everyone!  I've read through many of your posts the last few days.....I feel for all of you!

I just haven't felt good at all with this darned infection in my intestines.....but it is getting better.  I go in this morning for my 10 day draw, it's been good every time in the past, but I'm wondering what the infection did to it.  I'm keeping my fingers crossed.  I'm supposed to have round 5 on Dec. 18, but we will just have to wait and see.

Sorry I made a disappearing act, but I've been so darned sick I just have been doing a lot of nothing!

I'll try to post later.....everyone hang in there!

Linda in LV

LVLinda

I forgot to mention something - I've been seeing all of the discussion on "wig, or not to wig" and I must tell you - I purchased 3 different wigs and don't like wearing any of them.  So, I decided to just not worry about it.  Even when we had company, when I was feeling great, we took them all over Las Vegas, Casino to Casino, Mall to Mall, dining all over the place and I just wore my little knit caps.  I just don't give a hoot what anyone else thinks anymore.

One time, I got a "triple-take" from some loser guy, just staring at me....so I looked at him, smiled real big, and pulled off my cap.  I asked him - what do you think?  Pretty cool huh?  He ran away fast and I laughed about it for a long time.

I know I look down right terrible without hair, but I kind of feel like I deserve to be comfortable, and if other people think I look strange, well screw em! <G> 

I've also found, by just wearing my caps out, many people have actually been more polite, opening doors, telling me to take their place in line, etc.  It's really something.  I even had a lady who I was purchasing something from, mark it on sale - she said her mother was going through chemo and she knew how difficult it was.  I told her she didn't need to do that, but she insisted.

So, a little moral of the story - just go with what you are comfortable with - it's really not that bad, sometimes it's great! <G>

Linda 

LVLinda

One more thing - on the "Sex" discussion.  I'm not having a problem at all with my hubby, he's been sooooo supportive it's just been wonderful.

But - Listen to this - he goes to all of my treatments and Dr. appts. with me.  On the first appt. right before the first round - my Dr. told him that if we had sex, that he must be very careful, use a condom, because the chemicals they were putting into me could actually harm his "you know what" and would not be good for him at all.

So, if any of you want to tell your hubby what the Dr. told me, maybe they will lighten up a bit.  It might just be because I'm on TAC, but who knows.  I don't think that would make it very appealing to any guy and his "member." LOL  The Dr. told me that the chemicals can be secreted from any mucus membrane areas.....so that includes the mouth too.  That's why all of our taste buds are screwed up.

Ask your doctor about it too!  You might be surprised to hear the same thing.

Linda

BrendaSharon

Linda,

My onc told us the same thing when I first seen him. He told my hubby needed to be careful if we had sex for the same reason.  The Toxins could cause him penis pain!!~~ I just laughed because I haven't much cared for sex for as while now. It is for reasons other than cancer. My hubby is wonderful to me so I can't complain. I prayed to God that I wouldn't want sex quite so often as I did.(I like wanted it constantly, I drove my hubby nuts) and sure enough my desire stopped. It just stopped a little too much as I haven't wanted it for over a year. I almost wonder if I have some other problem I'm not aware of.  the last time we did have sex it hurt me so bad!!!!  So, of course after that I surely didn't want it. I have been to the gyno for paps, etc. and she didn't find anything wrong with me, so I don't know why I'm in such pain. I guess it was God answering my prayer. I guess i should be careful what i ask for.

The hair thing, like you it does not matter to me anymore and I don't care what people think either.A cap or light scarf is enough, sometimes I can't even stand them. I never used to wear any sort of hats ever. On my little bald head, I HATE ANYTHING touching IT!!!!!