Starting Chemo Aug 09

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  • weety
    weety Member Posts: 1,163
    edited October 2009

    Kristin09, which clinical trial is that?  I'm curious if I would be eligible.  Thanks for the tylenol pm tip.  I will try it tonight.

  • msmpatty
    msmpatty Member Posts: 818
    edited October 2009

    Weety...you might also try melatonin for the sleep issue.    Somewhere else in these discussion boards someone said their doctor approved it.  It is a supplement that helps regulate your sleep cycle.  Doesn't knock you out, just helps you get to sleep and stay asleep.   

    Anybody found a solution to the dry skin problem?  My body is okay with lotion, but my face seems to have aged 10-years since August.  At this rate I won't be having reconstruction after chemo...I'll be getting a face lift!   A friend gave me some really greasy stuff she got when she had a chemical peel.  It helps but you can't use it except at night...lines plus grease is not attractive!  I also bought a moisturizer from Lindi, who makes skin products for chemo patients.  It feels and smells nice..but the lines are still there.  Any miracles out there?

    Patty

  • Karen09
    Karen09 Member Posts: 320
    edited October 2009

    I'm not sure if I'm going to go into chemopause or not.  I thought for sure I was.  I was having hot flashes for awhile and my periods were getting later.  Then all of a sudden the hot flashes stopped and the periods came back.  I guess my body can't decide what to do.  I'm definitely not remembering things like I used to though.

    My stomach is bothering me lately.  Every time I ate something yesterday I got really crampy and uncomfortable and I had some diarrhea yesterday and today and threw up once this morning.  My temp has been normal though so it's probably nothing.  I'm just going to take it easy today I think.  Ugh!

    Hugs to all the August Amazons! 

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Today was great - woke up full of energy, took a long walk with the dogs and have been on the go all day again today. I even squeezed in lunch with my cousin and new godchild.  I sure wish I didn't have to do chemo tomorrow. 

    NavyMom - I second Kristen, take a walk around the house or neighborhood and know we are all thinking of you ((( HUGS))).  These drugs and the everything that goes with it takes it toll on us.  I have some really bad days, especially when the SE's are bad, so I I know it's easier said than done, but remember - this will pass and better times are around the corner. 

    Gill - Shingles............... you just got rid of the boot.  Ugh!!!

    Karen - I hope you're feeling better, these crazy drugs are what makes our stomachs mad, not mad and mad again.

    Kristen - Have the SE's you've been experiencing lately been there, but not as bad or did they sneak up on you?  I know it must be frustrating because you've been so active until now.  I'm thinking of you and hope it gets better soon.

    Weety - I second Pam on the Melatonin idea.  My daughter has a neurological problem that flares up from time to time and it causes her a lot of sleep problems. Melatonin was something that didn't interfere with any of her medications.  She said it worked, it helped her body go into a peaceful sleep, but not feel drugged.

    Hope everyone has a great afternoon!!

  • msmpatty
    msmpatty Member Posts: 818
    edited October 2009

    Karen - what I find frustrating about the stomach issues is that I often can't tell what it is and what will fix it.   Last week I was popping anti-nausea meds for my "mad" stomach (good description Jenn!) but it didn't go away until I took a Pepcid.  Hope yours is better.

    Chemo brain/CTFS - I read an article about a little study done with women on chemo versus women who were awaiting biopsy results for BC.  The study showed both groups were equally distracted and forgetful.  They theorized that it may not be chemo per se that causes us to suddenly go all stupid, but the stress of all the worry and having all these changes and decisions thrust upon us.  I'm not sure this theory is true,  but it seems a little more comforting to think it's due to temporary stress rather than chemicals chewing around in my brain.

     Patty 

  • kristin09
    kristin09 Member Posts: 56
    edited October 2009

    Jen - The SEs that I am experiencing are the same as what I've had with each tx, however they seem to be starting sooner (d3 this time instead of d4) and lasting longer.  With my first two txs, the fogginess was pretty much just on d4, with the 3rd tx it lasted a bit into d4 and with tx #4 it started on d3 and lasted well into d6.  The taste in my mouth is lasting longer and longer as well. So, I don't think that it's anything new it's just that the cumulative effect is sinking in. As a result, I'm laid up a bit longer than usual and am having to take it easier at work.  As you can tell, it's very frustrating for me.  I am, however, trying to stay as active as possible despite these SEs.  Of course, having two young kids, I don't have much of a choice!  :)

    Patty - Interesting theory.  My "CTFS syndrome" is definitely different during chemo than I have ever experienced before.  It's not just forgetfulness, I feel like I'm drunk . . . my face gets numb and I can see people talking to me but my brain doesn't track what they're saying.  On the positive side, it does only last a few days, but I'm pretty useless during those days.

    Weety - Did the Tylenol PM work for you?  Here is a link for the clinical trial: http://clinical-trials.ucsf.edu:8000/trials/detail_pageKG.php?study_number=CTSU S0307-CIRB&search_string=breast.  I was randomized to the zoledronic acid arm, which means that I have to have an IV infusion every month for 6 months and then every three months for 30 months.  The other two arms are clodronate and ibandronate which are oral.  My understanding is that one can drop out at any time, for any reason.  It's worth a try for me!

  • sunflower59
    sunflower59 Member Posts: 13
    edited October 2009

    Hello everyone!

    Hope you don't mind me jumping in two months later!  I had a wild and crazy year starting with my annual mammo in January.  The radiologist recommended a stereotactic biopsy because of microcalcifications on the left side.  I had that procedure in early Feb and it came back "Atypical Hyperplasia" so I was referred to a surgeon.  Had a surgical biopsy in March and the biopsy changed to "LCIS".  Sooooo.... then I was referred to an Oncologist who put me on Tamoxifen.  Everything was fine until the end of June when I started feeling some throbbing pain that would come and go every day.  It wasn't even near the surgical site.  One day I started pressing on the area and I felt a huge lump!  I went back to my surgeon and she was shocked! Three weeks later I had a bilateral mastectomy with reconstructive surgery.  That "lump" was 15cm and it was IDC. Miraculously it all stayed in my breast and only spread to ONE lymph node.  I chose to have the other breast removed as well because there was cancer there as well and a very small 1.4cm lump.  No lymph nodes were affected on the right side. 

    I just finished my third chemotherapy treatment last week.  I am getting Taxotere, Carboplatin and Herceptin.  I have expanders and had my last fill over a week ago.  I will not have the exchange surgery until 9-12 months after radiation which hasn't even started yet.  I believe that will start sometime in January.  I have three more chemo treatments and then will continue every three weeks for a year with just Herceptin.  I've been off work since my surgery (august 3rd) and getting more and more depressed each day.  I don't see the light at the end of the tunnel happening anytime soon.  The super hard part is watching your family and friends getting on with their lives and here I am left behind.  Having cancer is sooooo lonely.

  • kristin09
    kristin09 Member Posts: 56
    edited October 2009

    Welcome, Sunflower,

    Sorry to hear that you are joining us, but happy to have you.  I am on the same chemo regimen (also ER+/PR+ & HER2+) and finished my 4th tx last Friday.  I was interested to read that you are having radiation even after a mastectomy.  Is that because of the affected lymph node?  I am still considering a bilateral mastectomy but haven't made the final decision.

    We all understand how you feel and are here to help.  I have to say that working has been what has saved me . . . I can't imagine being at home waiting for SEs to hit.  Keeping busy and exercising has gotten me this far and I am hoping to do the same for my remaining two treatments.  Of course, my friends here have also helped a great deal! Welcome and congrats on being on the road to recovery!

  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2009

    Hello everybody and thank you for all of your support.  I got myself back to aerobics class yesterday and it did a world of good for me. Mentally and physically.  I do wish the weather would cooperate, so I could walk outside.  We have had so much rain and cold and nothing but gray skies for many days in a row.......I am tired of it.  Treatment #4 is Tuesday and I am preparing for the worst since TX #3 really put me down.  But I will be 2/3 of the way done with chemo!  And that is a good thing, right?  I hope everyone is doing well.  And welcome to the new people.

    Navy

  • Karen09
    Karen09 Member Posts: 320
    edited October 2009

    Navy - 2/3 of the way through chemo is great!  Hang in there!

    Sunflower - welcome to the group but sorry you have to be going through this as well! 

    Hope you all have a good weekend.  It's getting so cold here and we have a bit of snow in the forecast tonight.  Ugh!  It's too early for snow!

  • msmpatty
    msmpatty Member Posts: 818
    edited October 2009

    My son and my business have definitely kept me sane during this insanity.

    Kristin -  Obviously the CTFS "stress" theory is wrong your case!  Gosh.   I definitely get the extremely wierd facial numbness, but nothing like what you're experiencing in the chemobrain department.   Or...maybe I'm so gone I don't even notice I have the problem.

    Navy - Good luck on Tuesday.  I'm due for TX #4 next Friday which puts me not quite 1/2 way through -- but done with the "red devil" portion.   Like yours, my TX #3 was the toughest yet.

    Sunflower - I'm sorry you are feeling so down.  Keep posting...it helps!

     Patty  

  • weety
    weety Member Posts: 1,163
    edited October 2009

    Whenever I seem to be feeling good, my white blood cells seem to be at their lowest!  I went today and my WBC count was at 2.0!  The last few days I was feeling good, almost normal again.  It took a few days to recover from treatment #3 but I was feeling like my energy was back up now for the last 3-4 days.  Now I have to be put on a precautionary antibiotic.  Is that the standard when your WBC go below 2.0?  I hate all this.  Even when you think you're finally doing okay, you're not!  Ughhhhhh.

    Kristin09, I haven't had a chance to get out to get any Tylenol PM yet.  I thought I had some in my cupboard, but it was Unisom, and I don't know if that is safe to use.  Of course now my onc recommended I stay home for a day or two until my neupogen shots kick in and raise my WBC count.  THanks for the trial link.  How were you able to get in already?  It sounded like you needed to be done with chemo before entering the study.  I am going to ask about it at my next appt.  There isn't a real close study site, but I guess I can travel for something that will benefit me.

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Good afternoon - I did tx #3 of Taxol yesterday, did okay and feeling okay today. I was telling the trial nurse that my feet have been really tender, almost raw like I got them too soft after a pedicure, but it doesn't go away and I get occassional pains - she said it may be the early signs of neuropathy.  I sure hope not.  If it is, does it go away after chemo?

    I invited my mom, sister, in-laws, aunt and uncle over tomorrow to watch the Saints game and have been cooking all day.  My husband is worried I'll feel bad tomorrow, which I'm sure I will by the afternoon, but I'll be home and the food will be cooked so I figure - why not.  Before "cancer" we always had people over and I'm tired of not having family and friends over. 

    Welcome Sunflower - and I have to say Sunflowers are one of my favorite flowers!  I'm home from work because of the way our benefits work and it's driving me crazy.  They did give me access to do some work from home, but it's just not the same.  I can't wait to get back to work and feel "normal" again so I can relate to the frustration you're feeling. 

    Weety - My WBC count is low (3.0), not as low as yours and I felt great when I went in Friday too.  I guess it's a good sign that we're not sick.  My onc doesn't give antibiotics unless I have fever or an obvious infection.   

    Kristen - I had a bi-lat too and they initially told me I would not have to do radiation, but then after surgery they realized that in one of the lymph nodes it appeared that the cells were heading out. So....... they recommened radiation to be sure they catch any escapees. 

    Patty - Chemo brain is weird for me too.  I get really fuzzy brained and can't concentrate the way I normally would and on the bad days I get like Kristen explained I can hear what people are telling me, but it just doesn't process.  I don't get the numb face - thank goodness. 

    NavyMom - I'm glad you got out and did some exercise - it always helps.  Keep it up!!!

    Karen - Good luck with the snow!  That is something I'm not used to, but enjoy every 10 years or so when we get a little.

    Hope everyone has a wonderful afternoon!!!

  • kristin09
    kristin09 Member Posts: 56
    edited October 2009

    Weety - I'm not quite sure about when the trial starts, I took my doc's word for it that it was okay to start!  Which, when I think about it really isn't like me - I typically research everything! Anyway, I now wishing that I had researched it more.  I went in for the zometa infusion on Friday and have had nothing but problems.  During the infusion I experienced an "optical migraine".  This happens when the blood vessels behind one eye contract and causes blurred or starry vision in one part of the eye. They stopped the infusion when I asked about it and I went up to see my onc who explained what it was, but said that it's rare.  My vision went back to normal about 5 minutes after the infusion stopped, but it was a bit scary.  Anyway, after that scare, I went home and was fine.  The next day, however, I had the worst flu-like symptoms that I have ever had.  I was terribly achy (worse than neulasta-ache) with a fever of around 101.  My husband called my onc (I wasn't capable of doing anything other than laying in one spot!) and she said that it was likely a reaction to the zometa but she prescribed Tamiflu just in case it was the flu.  It lasted the entire day and never responded to either Motrin or Alleve.  It was miserable!  Luckily, the fever broke during the night and I am much better today.  I am guessing that, based on this experience, I will not stay in the trial.  As much as I want to experience the potential benefit of the zometa, I'm not sure that I can knowingly be so miserable once a month.  I'm pretty disappointed but will ask my onc if it's appropriate for her to prescribe an oral bisphosphonate just in case.  Bummer.

    Navy - good luck with tx #4.  I have to admit that tx #4 was pretty hard on me.  Do your best to prepare for it and take the time that you need to recover.  I think that one of the reasons that it was more difficult for me was because I was only planning on being "down and out" for a couple of days and it ended up lasting longer.  Next time, I'll plan for an additional day beyond how long this one lasted.  Preparation is key!

    Jenn - I have to admit that it's good to know that someone else experiences the chemo brain like I do.  It's so frustrating!  At least I've learned to stay home from work - the last person that I should be talking to is my boss on days like those!  BTW, I'll be rooting for the Saints, set a place at the table for me!  :)

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Okay - today is the big game for us (Saints v Giants).  All of the food is cooked, my daughter cleaned the house last night and I'm ready for company.  Kristen - you will have a place at the table today!  I am a little achy and tired, but................ I went out to the show with friends last night, then coffee and didn't get home until midnight.  It felt so good to do something so normal and with friends!  We went to see Couples Retreat - it was what I call good mindless fun and very enjoyable.  We laughed from start to finish. 

    Kristen - Because I'm not "officially" working at the office I don't have to make big decisions with chemo brain (thank goodness because I'm in banking), but my chemo brain is most frustrating when I'm talking to my daughter.  She is in her senior year of high school with a lot going on at school and college applications and there are some days I just can't make sense of what she's telling me and it has to wait.  I feel terrible, but when our brains don't want to process something there isn't much we can do is there?   I am so sorry to hear that you had such a bad experience with Zometa.  I think I'd feel the way you do - afraid to go through that pain again.  I have to admit I don't know much about Zometa - what are the benefits of it versus other drugs? 

    Happy Sunday - hopefully everyone has a SE free day!

  • weety
    weety Member Posts: 1,163
    edited October 2009

    Kristin, So sorry you had such a miserable experience.  All of this sucks, doesn't it?  I read somewhere on this board (there is a thread specifically about this trial) that the Zometa can cause lots of reactions when they infuse it too fast. Once they slow it down, side effects went away.  Also, I think I remember reading that women who had the flu-like problems with it the first time, had absolutely no side effects after that first infusion.  That said, I understand why you wouldn't want to go through with it again, just to find out it will happen a second time with you!  Look up the thread--I'm not sure of the name--but it had something to do with phase III bisphophonates trial.  It has 6-7 pages of info for you to read.  It's already answered a bunch of the questions I had, too (like you can either get it during chemo OR after you finish chemo.)

    I've got the chemo brain thing going, too, but it doesn't sound as bad as you other gals.  Mostly I just say dumb things without realizing I've said them wrong.  For example I'll say, "Did Ashley feed the cat?"  Well, Ashley IS the cat--what I meant to say is, "Did Elizabeth (my daughter) feed the cat?"  Usually when you mess names up like that, you realize what you've done the second it comes out of your mouth.  Not with chemo brain!  I'll repeat it 5 times with everyone around me looking at me like I'm crazy, and I still won't realize it till they tell me!  Yikes.

  • gillyone
    gillyone Member Posts: 1,727
    edited October 2009

    I had taxol 3 on Tuesday and I have tender feet with skin peeling off heels, numbness in fingertips and cheeks and lips, ridges and discoloration in finger nails and I have been incredibly tired the last 3 days. All taxol SEs I think.

  • gillyone
    gillyone Member Posts: 1,727
    edited October 2009

    I had taxol 3 on Tuesday and I have tender feet with skin peeling off heels, numbness in fingertips and cheeks and lips, ridges and discoloration in finger nails and I have been incredibly tired the last 3 days. All taxol SEs I think.

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Gill - I just did Taxol #3 and have noticed that my fingernails are slightly discolored and have ridges in them.  I also have the tender feet, not peeling or numbness though.  And....... I noticed that since I've started Taxol my already thinned eyebrows and lashes are falling out a lot more, at this rate they'll be gone soon.  I've actually started using an eyebrow pencil to fill in the holes - ugh!!!  Taxol does come with it's own set of SE's doesn't it?

  • gillyone
    gillyone Member Posts: 1,727
    edited October 2009

    I still have eye lashes and eyebrows, for what they're worth. I am a red head (or used to be - lots of grey now under normal circumstances ha!) and so eyebrows have never been very prominent. I sometimes put a bit a mascara on for some color as I am REALLY pale. Even my lips are pale. I'm not sure I like the taxol SEs. I did very well with AC and seem to have more things going on now.

    Can't remember if I posted I was back wearing the boot even though the doc said I could take it off. My foot just doesn't feel ready yet. Plus I'm dealing with shingles so not sure how that affects how I feel in general or if I can chalk it all up to taxol.

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited October 2009
    I hope everyone had a nice weekend I felt so good that I went to the driving range with my DH and hit a few balls; I'm a little bit sore now but whatever it felt great to get out. The temp here in Florida was a high of 70 very rare for us so I couldn't help but feel good!  By the way Jenn3 I thought I would let you know, I grew up in Florida and have always been a Tampa Bay Buccaneers fan since they have been a team, yes I know not good for me this season but I lived in New Orleans when I was little and have always liked the Saints. Bla Bla Bla, I just wanted to let you know that every year I pick a SuperBowl team and this year before the season started I picked the Saints (and everyone laughed at me) and since my Bucs are now 0-6 I will be rooting for your Saints, that are still "undefeated"!
  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Good morning - I'm up early because the Taxol/chemo aches are setting in for the day, ugh!  So far the routine has been the same since I started Taxol - body aches and pains start Sunday night and last through Monday.  

    Gill - I am so sorry you're having to deal with the shingles and a boot.  That's is a lot to deal with in addition to the crazy SE's of chemo.  I'm thinking of you and hope you feel better soon.

    Donna - Thanks for the vote on the Saints!  It's hard being a Saints fan, we don't have winning seasons very often, so I'm enjoying it!  I told my DH after the game yesterday I sure miss going to the Dome, starting off with a good Bloody Mary and screaming until I'm hoarse.  Oh well - next year.  When I checked in on the Tampa game and saw them coming back I thought for sure they would pull off a win yesterday - sorry.............  I'm so glad you were able to get out and do something that felt normal and what a wonderful day for you to get out, temps in the 70's. 

    Hope everyone has a good Monday!

  • YoYo44
    YoYo44 Member Posts: 203
    edited October 2009

    Hi Ladies,

     Happy Monday!  I hope you all had a great weekend.  It was sunny and nice here so I finished up some yard work and put up Halloween decorations yesterday.  I ended up exhausted and my stupid feet were killing me like I had been standing for days.  Silly Taxol SE's.  I also missed a dinner for 15 at my MIL's unfortunately, couldn't take the 2 hour drive and all those people.  Bummer.

    Can you believe it, I had Taxol #12 last Thursday!!  Might have 2 more, have no clue right now and am a little frustrated.  Still trying to get more info about surgery and what choices I have.  Pretty sure it will be the dble MMX. 

    Chemo brain-oh yeah!  Weety, laughed at your cat story.  I have done the same thing!  LOL  Late afternoons and evenings are bad for me when I am tired.

    Sunflower, welcome!  What a horrifric experience you have had.  Hang in there.  You will find great support here.  We are all going through our verisions of this battle and can understand.  I know what you feel about being left behind.  I am working and it is my saving grace.  I have a very understanding boss and company and that is keeping me going.  But I feel like I am treading water, just marking time.  I am doing tasks but cannot plan and keep having to decline things because I am too sick, unable to travel, bla bla bla.  Very frustrating.  Friday was a low day for me but I am better today.  This is not forever and we will all move on.

    Gilly, I cheer for your perserverence.  Boot, shingles and taxol SE"s.  You are truly an Amazon!

    Kristen, sorry to hear about your Zometa experience.  These unexpected things are so disturbing and take effort to put one back on track.  You sound like you are adjusted again.  Such great resiliency.  I think I want to sigh up for lessons!

    Jenn, sorry to hear Taxol is giving you more troubles.  This whole SE thing really is a lottery.  You never know what is next.  But you are almost there so keep toughing it out.  I find thick soled, soft shoes with a bit of a heel help with the neuropathy.  I just noticed you are in New Orleans, silly me.  Part of my frustration with this disease is I was supposed to be at a conference this weekend in New Orleans, have never been there and would have loved to have visited.  Oh well, like I said, this is not forever.

    Have a great day everyone!

  • msmpatty
    msmpatty Member Posts: 818
    edited October 2009

    I googled low blood counts and learned a couple things.   Seems like it is when the RBC get low that you feel bad - fatigue, anemia, etc.   The only thing they listed about low WBC is that you have an increased chance of getting an infection and you may not get the "normal" symptoms of an infection.  Thus, the precautionary antibiotics.

    Through AC TX#2 my blood counts were fine.  Didn't stop me from having wobbly legs and desperately needing to go to bed at 8pm.  Go figure!

    Sorry to learn about everyone's SE on Taxol.   I was really hoping that part would be easier.  Now, I'm thinking the SE are just different.   Thanks for sharing, it helps to prepare!   

    Patty

  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2009

    Going for TX#4 (TAC) this morning. 

    I ordered a stationary bike and it arrived yesterday!  So when the weather turns ugly again at least I can hop on the bike for 30 minutes to keep exercising.

    Hoping everyone has a good day.

    Bucc: Sorry your new hat did not bring luck for your bears....papers here are hinting that the head coach job might be open for bids soon.  Bye Bye Lovie Smith

    Navy

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    Good morning -  Yesterday wasn't as bad as the previous Monday and I didn't need near as much pain medication as last week.  I'm crossing my fingers for today.  I had a very productive day yesterday, I walked the dogs came home cleaned closets and drawers out, did some housecleaning, went to the park with my girls fed the ducks stale bread and cooked dinner.  I was exhausted by 6p, but I had a productive day!!  I have a few aches and pains again today, but nothing that'll keep me in bed.

    YoYo - I'm so sorry you didn't get to come to New Orleans.  They'll be another time and when it happens let me know so that we can meet for lunch or dinner.  Congrats on finishing TX #12 - how time flies.  

    NavyMom - I'm so glad to hear you have the bike.  Now when it's a gloomy day you can turn on all of the lights for stimulated sunshine hop on the bike and go...................   

    Have a great day!!!

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited October 2009

    Navy, Good luck today with #4 TAC, my #4 TAC was better than #3 hope yours goes the same. I go for #5 on Thursday! We are getting there! {{{HUGS}}} Donna

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited October 2009

    YoYo, I also got ripped off on my trip to NOLA, I was going to celebrate my 40th birthday there with friends I had the perfect itenerary and hotel room planned since January instead I was sitting in a chemo chair getting my first round of poison, no trip and no 40th birthday bash!  When this is all done I will be heading there as soon as I feel better!

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited October 2009

    Nobody has posted here all day, I am thinking about you guys and hoping all is well!

  • kristin09
    kristin09 Member Posts: 56
    edited October 2009

    Donna - were you really posting at midnight??  I am glad to see that you're feeling well enough to give out ((HUGS)) of your own.  Are you smiling?  Nice to have you back.  Even though you didn't get to go to NOLA for your birthday, we were all there with you in spirit!

    Jen - I'm not sure if zometa has any benefits over other bisphosphonates but I was assigned to the zometa group so I didn't have a choice of going on either of the other two drugs, both of which are oral.  Thanks to Weety, I found the other forums that discuss zometa and they have been very helpful.  I'm not as anxious to give up on it as I was after my initial awful experience.

    Today is d12 post tx #4 and I'm feeling almost 100% except for the lingering, horrible taste in my mouth.  I chew gum all day and drink flavored water.  Yuck.  Work has been very busy lately which has been beneficial as I feel like I'm contributing.  I'd better enjoy it before the next round of CTFS sets in!

    I have my 6th session with my personal trainer tonight; it's been going very well.  My flexibility is definitely low and she helps a great deal with that.  She says that I have greater range of motion and am able to do much more than her other chemo patients, so that helps me stay positive.  My bike-riding sessions have definitely taken a back seat but at least I don't feel like a total slacker!

    Did anyone see "Where the Wild Things Are"?  I took my 6yo and 9yo to see it over the weekend and we were all very disappointed.  We had very high hopes but it was quite dark and sad.  Sigh.

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