Starting Chemo Aug 09

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  • Loveshermother
    Loveshermother Member Posts: 101
    edited September 2009
    Thank you all for the responce. NavyMom congratulations on the new baby! Mom has her next treatment on sat and I will have my questions ready. I have been the one taking care of all her paperwork, I bought a folder to keep it all together. She is a strong lady and know she will get threw all of this, Its just hard to watch, She is always telling me she is so sorry for all the running around I do for her such as dr appts ect. I stop her in her tracks and tell her I have the easy part she is deal with the cancer!. I will do anything for my mother she has always been there for me and I will do the same for her. My family is very supportive with the time that is need for her. As a matter of fact my daughter (16) is going with us for her next treatment. She said to me that she wants to be supportive of her grammy and be able to go threw this with her in any way she can. My other daughter who is in collage (20) feels bad she isnt here to help out. I tell her that all she has to do is to give a call and it will make her day knowing she is being thought about. She does this weekly. My 16 year old told my mother one day that she felt weird asking how her NON BREAST was doing so she gave it a name "Deloris" this way she can ask and no one will know any of the weiser! I thought that was so cute. Smile. Like I said earlier I have read these post and I feel like I know you all in a small way. I pray for full recoverys for each of you.
  • kristin09
    kristin09 Member Posts: 56
    edited September 2009
    Hi everyone,It's been a while since I've posted.  My second treatment hit me much harder than the first and it wasn't until yesterday, day 12, that I really felt better.  I was still able to work, but just not quite as functional.  I even slacked off on exercise a bit, which I think just made it worse.  It's hard to know how much of this was due to actual side effects and how much was due to feeling sorry for myself.  The good news is that I feel much better today and am hopeful that I won't let the next treatment affect me as much, mentally that is.Jennsdogs - thanks for asking, I'm still exercising!  In fact, I went to the gym with DH yesterday (I typically work out at home) and had a great time on the treadmill.  I need to make sure that I don't lapse in exercise again after the next treatment as I truly do believe that it helps me get through this.Loveshermother - you've come to the right place.  The only thing that I will add to what the other ladies have said is that you said that your mom is Her-2/neu positive.  I am as well and am receiving Herceptin as part of my chemo.  Herceptin is a "miracle" drug for those of us that are positive and your mom should probably be on it.  There are some heart SEs, which may be why she isn't, but you should definitely ask your doctor.Chinablue - I was told to avoid excessive antioxidants and to try to limit eating out at restaurants just in case they don't prepare the food carefully.Titch - I'm soooo glad that my doctor didn't tell me to avoid sugar.  I don't do well with fruits and vegetables and I have a MAJOR sweet-tooth!  In fact, I downed a significant portion of a can of frosting last night!  Mom - if you're reading this . . . don't yell at me! Navymom - congrats on Navybaby!  Enjoy this time!Karen - it's so funny that people are so accepting of the bald thing, eh?  People keep telling me that I have a great head for being bald.  I just see GI Jane when I look in the mirror (without the buff body, of course!).Hope everyone is well.  Why is this post in italics?????K 
  • yasminv1
    yasminv1 Member Posts: 238
    edited September 2009

    Happy Wednesday Everyone.

    I hope everyone had a great holiday weekend. I am sorry I have been MIA. TX#2 last Thursday really kicked my behind the past few days. It took a good 4 days for treatment to hit me the first time but this second treatment got me by Day 2. By day 3 I was miserable. I was queasy, had joint pain, had pounding headaches, diarrhea and belly aches, hot flashes that continued on all the way through Monday. I had trouble sleeping due to feeling so terrible. Thank goodness I am starting to feel better. I just have a sore tongue and still some stomach issues but all other SEs are gone. Food has no taste but I expected this. I hope to feel a ton better by the end of the week. I am supposed to go to the spa with a friend for a massage on Friday night.

    Tonight is my Look Good feel Better Class. I felt so ill yesterday that I told my Mom I was thinking of not going anymore but I feel better today and I am looking forward to it now.

    Have a wonderful day everyone. Take Care.

    jennsdogs - Yoga or Pilates class sounds like fun. I bet it will feel great to do one of those classes.

    Reni - I hope you were able to get some sleep last night. Hang in there.

    Titch - I too have managed to escape the neulasta shot so far. Let's pray this continues.

    Jenn3 - I am glad you were able to have a little BBQ at home. I was so sad about being stuck at home all weekend but I know next year we will have a big celebration to compensate.

    PamsPromise - Good Luck with Treatment# 2.

  • manue
    manue Member Posts: 34
    edited September 2009

    Lots of posts to read - Going for my treatment #3 tomorrow, still feeling good. My hair is definitely thinning... we shall see what will happen with that... Taking some long walks every day and starting yoga this week! The more active I am, the better I feel. My chest is still very tight as the expanders are not very comfortable - wondering if I will ever be able to sleep on my side again!

    Navymom - Congrats on the baby, that little one is going to keep you busy!

    Kristin - I've got big hears so I'm not looking forward to be bold. Some kids used to call me elephant ears at my elementary school!!! Oh well...

    Lovehermother - My mother had ovarian cancer 4 years ago, she lives in France and I'm here so my sister took care of her. It's was so hard for me to be so far but I was in and out the country to try to help as much as I could. Make sure you take some time for yourself when you need to recharge!

    Jenn - In "Crazy Sexy Cancer tips", what do you think of Kris Carr's Raw diet???? Quite wild... I think I would like to see the movie.

    First day of school for my older son today! He took the bus and I met him there. His first grade teacher seems very nice, can't wait for tonight!!!! Manue.

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2009

    Good morning - Well I woke up this morning feeling like today will be a better day, walked the dogs and then my stomach decided to start acting up again.  Frustrating!!!  And...... I'm starting to feel sorry for myself again, which I don't like. 

    Manue - I'm not a fan of the raw diet.  My sister keeps insisting I go on a raw diet, but in all honesty I know I couldn't do it.  I could maybe go for some juicing in the am, but for now I'm focusing on a healthier diet, less sweets, more vegetables, leaner protiens, etc.

    Kristen - Sorry you haven't been feeling so well, it's tough mentally wanting to do something, but having our bodies tell us otherwise.  Exercise is beneficial, but there are times our bodies need to just rest so don't feel guilty when you skip.  I'm sure you'll make it up on your good days.

    Yasmin - I'm sorry you haven't been feeling so well - it sounds like a lot of us got our butt's kicked this round.  I sure hope you get to your class, it'll get you out of the house and give you something else to think about.

    Pam - Lucky you - I'm so glad you're not having too many SE's and feeling well.

    Loveshermother - Sounds like you're organized and very supportive of your mom.  She's lucky to have you. Remember to write down questions in a notebook between doctor visits so that when you're there you don't forget something that came to mind a few days earlier. 

    I hope today is a better day for everyone and will talk to y'all later.

  • smore
    smore Member Posts: 16
    edited September 2009

    ok, just checking in  made through treatment #2, I was drained again, thankful for the Labor Day Holiday. Went back to work Tuesday worked full day. This morning I went to work but was 30 minutes late, I just could not get my stomach together.  This weekend was rough for me, the shedding was out of control, got it cut from past shoulder blades to chin length bob. I kept that style all of one day, woke up from nap with half of the bob on my chin. Sigh, should have just shaved it in the first place, just letting the rest come on out, it should be gone by this weekend anyway. Once I let those tears out grieving what I had lost, and the fact I can't deny cancer anymore. I was glad (not sure if that is the word I want to use maybe accepting), because as my hair falls out, I know the chemo is attacking any cancer cells and that makes it worth it.

  • Kayel
    Kayel Member Posts: 28
    edited September 2009

    Good Morning Ladies~

    TX #2 hit me harder than the 1st but I have been feeling much better since Tuesday.  I actually played tennis this week and that made me so happy.  I used to play several times a week and have not played for 7 weeks.   I am planning to do yoga again starting Monday with my own mat in a small class.  My onc said it would be great for me.  Obviously practicing good hand washing always.

    My DH gave me a buzz cut  at the end of the week as my hair was coming out in huge clumps.  My girls thought it was fun to pull them out though.  I have also had people tell me what a great head I have.  I wore my wig for the 1st time this week and had to speak in front of parents at a PTA event.  I felt very self conscious but had loads of compliments.  I am starting to wonder about my pre chemo look?  I never thought I would be comfortable with just a hat on my bald head but it is so much more comfortable.  I know I am keeping our bus driver guessing as I have hair one day and bald head the next, lol.  I also do not have hair on my arms, legs which is great.

    I was curious about the period thing as well.  I was told it would most likely cease.  I have a neighbor who went through chemo 12 years ago and she was 43 like me and has never had a period again.  My came early and was twice as long.  Go figure, the 1 SE I was looking forward to isn't happening!

    I am sorry to not give personal messages but I hate to leave anyone out and there are so many of us.  I am happy for those who are having an easy time and so sorry for those of you who are suffering.  I am really not looking forward to going for the next treatment but I do know I have to do it.

    I hope you all have a great Thursday! 

  • MaineCoonKitty
    MaineCoonKitty Member Posts: 125
    edited September 2009

    Good morning!

     I had the pleasure of meeting Yasmin and her mom last night at our Look Good Feel Better class.  She is absolutely beautiful and has one of the prettiest and most realistic looking wigs I've ever seen.

    You go, girlfriend!  Hope you're feeling better today because you look really good!

  • jennsdogs
    jennsdogs Member Posts: 56
    edited September 2009

    I had the same problem with the period thing.  I got mine a few days after the 1st tx and and it lasted 2 WEEKS!  What was that about??  Going in for a blood draw - maybe I will ask?  Also going to yoga tonight with my own mat.  Can't wait!

    My hair was falling out in clumps yesterday and today as well.  Having a bad hair day today! Sealed Hoping it lasts until tomorrow night so I can drink a few glasses of wine and get DH to shave it.  That way it gives me all week-end to get used to it before I face work on Monday. BUT I do have Look Good Feel Good class Monday night. It should brighten my spirits up. 

  • yasminv1
    yasminv1 Member Posts: 238
    edited September 2009

    Good Evening All, 

    The Look Good Feel Better Class was wonderful. I am so glad I went. It was so nice to meet the lovely MaineCoonKitty. She is strong and beautiful woman.

    I am feeling better today than I felt yesterday. I still have tummy issues and I am a little tired but I feel like I am starting to regain my energy. The taxotere acne rash on my face and upper body has started to flare up again. Luckily I got some great concealer at class last night to hide the spots on my face. I am looking forward to tomorrow. I am scheduled to go to the spa with a friend to get massages. DH is taking Mom and I out to dinner. It will be so nice to get out of the house and socialize for a little bit. I haven't left home much since last Thursday.

    I hope everyone had a wonderful day and has a great evening.

    Jenn3 - I feel you on the stomach issues. Hang in there..I know how frustrating it can be.

    MaineCoonKitty - It was a pleasure meeting you! Wishing you the best.

    jennsdogs - Great idea to have a little "Wine and Shave". I had a little wine and shave party with family and friends a couple weeks ago and it made the whole experience so much easier and fun for me.

  • Kim09
    Kim09 Member Posts: 100
    edited September 2009

    Sorry I haven't checked in for awhile but I have really busy with work.  The onc would probably not be happy with the fact that I worked over 10 hours on both Tuesday and Wednesday.  We have a critical deadline coming up and the work has to get done.  I think I am paying for it today though.  I had my 3 tx today and I was much more tired during it then I have been with previous ones.  Just one more to go (Oct 1) and then hopefully the onc will release me to have my surgery.

    Navymom - Congradulations on the grandbaby.

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited September 2009

    I'm remembering our 9-11 victims today, praying for there families and thanking our military sons, daughters, fathers and mothers for protecting us.

     I'm sorry for being MIA on the boards but I've been feeling pretty good the last week and trying to keep busy. I had chemo #3 TAC yesterday (halfway there) today I will get Neulasta, iv fluids , Aloxi, and dex  (because I've been so nauseated) felt bad after chemo last night which was weird but feel ok this morning. I took the 800 mg of Motrin before and for 2 days after Neulasta and it worked for the bone pain, a chemo nurse suggested it! I am taking place in the Susan G. Komen race for the cure October 3rd just found out chemo 4 is Oct. 1st so that will be interesting.

    Navy- Congrats on the new baby I can't wait for a couple of them but my oldest son is only 20 and still in college so I'm waiting patiently!

    Jennsdog- I too still have my period and plenty of it, asked my onc. yesterday and she said since it was still going strong after tx2 it will probly stay. Just my luck the couple of SE's I wanted I have not had, still shaving my legs too, but hair down there gone and hair on head gone ( a few white 1/2 inch long stubbles) I look like a baby bird!

    I have gained 7 pounds between chemo 2 and 3, I'm so frustrated I now am heavier than I've ever been. Onc said it's from steroids and don't worry about this now? OK? I don't eat the first week after chemo, not by choice, but then after my stomach feels better usualy day 10 I eat, eat, eat.

    It's bad enough to be bald but getting fatter on top of it sucks! Oh well keeping my fingers crossed for a good week. Hold your heads up ladies we are getting there! Hugs....Donna

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2009

    Good morning - After 8 days of feeling bad, stomach issues and one self pity day, yesterday was the day I finally felt like me again.  Thank goodness!!  I was hoping to get out in the garden today and get some weeding done, but it is pouring down rain this morning and it looks like it's going to hang around all day.  However, I was able to get out early this morning and walk the dogs (in the rain) which my DH wasn't happy with. It was a short walk and the dogs didn't mind at all. However, my DH thinks that if I get wet from the rain I'll get sick - I can't after all these years convince him germs aren't in the rain water. Upside......... I didn't have to worry about ruining my hair in the rain.

    Smore - The anticipation of the hair loss I believe is much worse than when it's finally gone. I do know what you mean about losing your hair makes it look like you have cancer - once the hair is gone we're finally facing the reality of what we're dealing with.

    Jennsdogs - Wine, hair buzzed followed by the Look Good class sounds like you planned it out perfectly.  Who would have thought before all of this that we'd be having hair shaving parties.....

    Donna - So glad to hear you're doing well.  Good luck with the race, it'll be a lot of fun and you'll be surrounded by people that understand what you're going through. 

    Yasmin/Maincoonekitty- Y'all got to meet one another - how wonderful.  Did you both know you would be at the same class or was it accidental?

    Kayel - Glad to hear you're feeling better and able to get some tennis in, I'm sure it helped you to feel better physically and mentally.

                  Cool            Laughing           Cool         Smile  HAPPY FRIDAY!!!   Laughing          Cool            Smile

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited September 2009
    TGIF!!!!!!!!!!!!!!!!!!Cool
  • YoYo44
    YoYo44 Member Posts: 203
    edited September 2009

    Hello Ladies,

     Glad so many of you are doing well.  Hang tough everyone, this will be over before long.

    I had some good news this week. Just had tx  #7 of 12 and my doc asked if I was actually going to chemo.  I am blessed by some miracle of genetics to be handling chemo really well.  He was shocked to see me with full hair still (although still losing lots) and he said to me, most people are anemic by now.  So maybe I do have some luck afterall!  I also got the results of the bone and CT scans, no metasteses.  What a relief!!!  I feel a million pounds lighter.  For me it is the fatigue, hot flashes and poor sleeping that are a problem.  I am careful with the eating so the nausea has gone away.  Start with yogurt in the morning and then just remember to snack carefully between meals and lots of iron rich foods and lean proteins.  The doc is saying we will reassess at #10, might go longer than 12 to let the hormone therapy work before surgery and he held out some hope-if it goes really well maybe no more chemo after surgery!!  I think he is getting more info on ILC.  When I go to the office I get lots of double takes from the people who know I have cancer.

    Have a great weekend ladies, enjoy the last wisps of summer.

    Yo

  • NavyMom
    NavyMom Member Posts: 1,099
    edited September 2009

    Good Morning everyone.  I had TX #2  TAC on Tuesday and it wiped me out.  I was surprised because I felt so good after TX #1.  I can relate to the period stories.......got mine too.  Onc says it may take a few treatments before they stop.  And since I was nearing menopause anyway (49yrs old)  she does not think they will return.  Oh, and regarding the weight gain......What is that all about?  I am up 10 lbs since my MX.  Is it not enough that we have battle scars, foobs, no hair on our heads but now have to deal with that bloated round feeling at our waistline?  Clothes don't fit right.....not even close.  Yikes.  enough already!!  No wonder we need to have a pity party once in a while. (ok, I'm done complaining, thanks for listening)

    Had my CA125 (ovarian CA marker) redrawn because it was slightly elevated back in May, when this whole adventure started. Also requested that I have the BRCA 1 & 2 drawn.  I just feel I need to let the others in my family know if I am a carrier of the gene.  Now, especially with a grandbaby on the way.

    Feeling a bit better today and going for a walk this morning.  I hope everyone has a great weekend    (GO PACKERS!!!)

    Navy

  • weety
    weety Member Posts: 1,163
    edited September 2009

    Hi everyone,

    I've only posted a few times, but have been keeping up with everyone else who started chemo in August like me.  I've had one full TCH treatment, and just went in yesterday for my 2nd treatment, and already the onc is worried about my WBC count.  It was down to 3.3.  She went ahead and did treatment #2, but wants me to start the Neupagen shots next week.  This was really quite depressing, because I had felt so good this last week--I was so positive that all my bloodwork would be back into the normal range!  Disheartening to find out it wasn't.  Especially since I am young and relatively healthy, thin and fit.  What implications does this have being that I still have 4 more treatments to go????  Anyone else needed WBC help this early on in the chemo?

  • gillyone
    gillyone Member Posts: 1,727
    edited September 2009

    Weety - I have had the neulasta shot after each of my AC tx. (no SEs from them and don't know if I will get them with taxol) Don't feel bad about feeling good! You can't help it if your WBC count is low.

    Navymom - the whole weight thing seems different for everyone. I have lost considerable weight since this whole cancer thing - not that it is a bad thing for me, I had pounds to spare. But I have found it increasingly hard to keep eating as nothing has any taste. Soup every day keeps me going.

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2009

    Good afternoon- Well today is another very rainy day and I was unable to walk the dogs.   But....... it did let up enough by late morning so that I was able to get out and do a little shopping and lunch with my daughter.  I wanted to find a few new blouses, but nothing seemed to fit right, I became discouraged and gave up.  Having no boobs sure does make it hard to find cute tops.  I did however end up with some earrings and my daughter was able to find a few things to add to her extensive wardrobe.

    Navymom - To date I've lost 10 lbs, but I've read on these boards that a lot of women have gained weight.  I think it's pretty normal to gain weight during chemo due to the steroids. 

    Weety - I too was feeling great when they told me by WBC was extremely low and that was with the Neulasta shot.  They went ahead with the treatment like your doctor did and have been monitoring it.  It continues to drop, but so far not low enough to stop treatments.  Because my WBC has been so low I've just been extra careful to wash my hands and/or use hand sanitizers a lot, especially when I go out in public or crowded places.  I'm also having trouble with my RBC, which causing me to be more fatigued and cold all the time (and I live in NOLA where it's hot and humid). 

    Gill - It's been a while since you posted.  How are you doing?  Still wearing the boot? 

    I'm off to take a nap - it seems I've used up my energy for today and need a little cat nap.  Talk to y'all later and I hope everyone has a happy Saturday evening.

  • gillyone
    gillyone Member Posts: 1,727
    edited September 2009

    Hi everyone

    Yes Jenn I am still wearing the boot. I had my fooy re-xrayed this week and it is doing fine, but it will be quite some time before I'm done with it.

    I had a tougher time with fatigue after tx 4 of AC but feel good now. I get my first taxol on Tuesday and am hoping for few SEs. I'll let you know how it goes.

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited September 2009

    I am so tired of the never-ending periods! Day 9 and still going, I am so sick (nauseated) after tx3 and tired! Guess you could say I'm sick and tired of cancer today!

  • yasminv1
    yasminv1 Member Posts: 238
    edited September 2009

    Happy Monday All!

    I hope all of you had a great weekend. Boy, what a week! My second treatment kicked my butt. I did not start to feel better and regain energy until Friday (8 days after my second tx). Had a litte scare on Friday as well. I have a rash from the Taxotere on my head, face and armpit. The rash (2 hard acne looking little lumps) appeared under my right armpit on Friday morning . My onc suspected I had Shingles but when I saw him that afternoon he confirmed I had infected follicles. Not sure how the rash in other places isn't bad but it is under my armpit. I haven't shaved in weeks since I lost under arm hair from chemo. My onc gave me a prescription for an antibiotic but asked me not to fill it unless the rash spreads. He also recommended warm moist compresses 4 times a day. I am so glad it ended up not being the shingles as my Mom told me it is dreadful.

    The lumps are painful and have started to get bigger as they look like they are becoming one. It hurts constantly so I can't really use my arm all that much right now. I am going to give it one more day and if I don't see an improvement I will call my Onc to see if I need to start those antibiotics.

    Have a wonderful days ladies. Wishing you an SE free day!

    Jenn3 -MaineCoonKitty and I actually figured out via this thread I believe that we would be going to the same Look Good Feel Better class. It was so lovely to meet her. ;) Sorry you had little luck finding cute tops this weekend. I am glad you found cute earrings though.

    Yo - You go girl! So happy your are handling your treatments so well.

    NavyMom - I have gained about 7 pounds since MX. I was quite lean so I needed the extra pounds to prepare for chemo. Each chemo treatment makes me lose weight and then after about a week I gain it all back. Don't beat yourself up about weight gain. Your body needs all the nutrients it can get right now and dieting during chemo is not recommended. I generally eat well but since starting chemo I have been very lax about what I eat and I don't allow myself to go hungry. I plan on getting back to my athletic build after my Tissue expander exchange surgery this winter. I will be gifting myself sessions with a good presonal trainer so I can get my pre-cancer body back quickly. :)

    buccaneersdj - You poor thing. Hang in there!

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2009

    Good morning - Yesterday was another good day for me, I was able to make it to a swim party my friend was having.  She has a big pool and usually rents blow up water toys so that the kids and adults have their choice.  I didn't swim, but had a great time playing and watching the little ones. It was nice to get out, visit , have some of the BBQ I missed for Labor day and watch the season opener for the Saints!!!  Then......... I went to visit my cousin and got to see my new god-child.  I somehow also managed to make it to the grocery, then cooked spinach lasagna for the family which included my oldest daughter and her new boyfriend.  I was really tired by the end of the day, but at the same time I felt like me again..  This morning woke up feeling pretty good so I took the dogs for a really long walk before the rain starts again, cleaned a little and still have some energy.  I can't wait for treatment to end so that I can feel like this for longer periods of time.

    Donna - I can relate - I am sick of cancer!

    Yasmin - Ouch - the bumps sound painful.  Sounds like you need those antibiotics.

    Gill - Those boots are a pain - I actually had one for 3 months trying to avoid surgery for a torn achilles, then after the surgery and the cast I was back in it again.  This was all right before I found the lump.  I had to stop PT to deal with this mess. I went from one to the next and thought it was miserable I can't imagine being in a boot and dealing with this.  I'm sure you're doing fine, but I think of you often.

    Hope y'all have a great Monday!!!

  • jennsdogs
    jennsdogs Member Posts: 56
    edited September 2009

    Shaved my head this week-end.   UGH! My 5yo does not like it.  This morning he got up early and I didn't have the wig on.  He asked if I would put it on or put my bandana on. He asked me why I didn't have my hair back yet too.  Funny what they like and don't like. 

    I do want to say, thank God for good friends because without them I don't think I could make this.  I am one that doesn't have many but what I do have, I can count on!  My mom is flying in tonight so hopefully it will be better.  Looks like TX #2 is a tough one - I am not looking forward to it but have my mom to help out for a little while!

    Buccannersdj:  I am with you - I am going on Day 13 - thought I was done and safe - lo and behold this morning I wasn't. What is up with that?  I am sick of it too.  Have you asked the doc? 

    I also have a bug bite, probably mosquito, and it has bruised all the way around it.  Does that have to do with my RBC down? 

    Yasmin:  Sorry about the bumps - if it's not one thing, it is another! I think I have one thing licked and then another comes.  After reading your post I have decided to do the same thing about getting a personal trainer.  That's my treat to myself after this is all over.  I have tissue expanders in too - I can run in them now but only about 3 to 4 miles.  This port is what hurts now.  Like I said, if it's not one thing, it's another.

    Weety:  My WBC was 1.5 last week but felt like I made strides when it was 3.6 this week. They haven't mentioned anything for me to take and said it would probably be back up this week before my 2nd TX.  They just said to watch out around crowds.  I have been trying to stay away from the kids at work as much as possible, I make them all use hand sanitizer and don't go around them if they are coughing.  I am young and fairly athletic too so I guess it is the way our body has reacted. I was surprised when I went in for my blood count too. I was half expecting them to say, don't worry you don't even look like you have had chemo, oh, by the way, your hair won't fall out either - ha!

    Jenn3;  Keep up the good work this week.  One thing: Go Cowboys.  They beat my DH's team yesterday!!Laughing  Had to laugh at him.

    Happy Monday - have a good week. Not looking forward to Thursday (TX # 2)

  • manue
    manue Member Posts: 34
    edited September 2009

    Hi everyone - Had my "Look Good.. Feel Better" class yesterday and I love all the goodies! I also met some wonderful women and we were able to chat for a while which is so good for the morale! I started yoga again on Sunday and that was absolutely wonderful!  My chest feels so tight and with one class I already feel better. It was a very emotional experience for me and had to hide my tears... big hug, Manue.

  • jenn3
    jenn3 Member Posts: 3,316
    edited September 2009

    Today is my youngest daughter's 18th birthday.   I normally would have had chemo today, but the doctor gave me an extra day so that I could feel good on her birthday.  I started @ 5 am making her a special breakfast (spinach fritata) before school, then ran errands to get a few more things done for tonight's dinner and family party.  I am a little tired at this point, but nothing I can't handle and I can't tell y'all how happy I am that I am feeling well for her birthday.

    I have to tell y'all although I didn't get any infections or have the terrible mouth problems this time I am having a terrible time with fatigue.  It's only been these last two days that I haven't run out of energy within a few hours.  When it comes on it feels like I've hit a brick wall and if I don't just stop what I'm doing and rest, not necessarily sleep, but rest I'll pass out.  Are y'all experiencing that?  In addition my stomach has acted up every few days and it's so frustrating.  Yesterday running errands I had to give up after having to race into the restrooms of each place I was visiting - I hate public restrooms!  

    Hope everyone is doing well and not having too many SE's - talk to y'all later.

  • buccaneersdj
    buccaneersdj Member Posts: 241
    edited September 2009

    Hi everyone! Today is day 7 after chemo tx3 and I still feel like crap! The nausea is better as of today but I feel like I can barely hold my head upright. I too am having bowel issues (Jenn3) but I seem to have a pattern to them. If you are easily grossed out stop reading now......it seems that after chemo I am constipated for about 4-5 days but after that I get what I refer to as my chemo poop, very loose, colorless run to the bathroom type for a few days and after that is done I feel better. Thats why I call it chemo poop because it seems like as soon as I get rid of it I start to feel human again. Also I don't get mouth sores but I get the most disgusting slime on my tongue nasty taste, I am constantly using my tongue scraper. It makes me want to vomit more than anything, does anyone else get this. Also my biggest complaint is the dizziness, the chemo nurse said this can be from the nausea. I lay down alot but as soon as I get up and move around the dizziness starts. Anyone else get this? I hope everyone else is having little to none se's!

  • weety
    weety Member Posts: 1,163
    edited September 2009

    buccaneer,

    I get the dizziness, too.  I think it is the worst side effect, because I 'm not really nauseated, just dizzy and woozy feeling--sometimes I feel like I'm not even walking straight.  I've only had 2 tx so far.  I hope it doesn't continue to get worse.  I'm usually okay the first 2 days after, but then days 3-4 are dizzy days from morning to night.  My chemo nurse also said it is probably from the nausea, but I've taken the anti-nausea drugs and they don't seem to relieve it.  I think it's something different. 

  • Titch
    Titch Member Posts: 141
    edited September 2009

    Hi all

    I am too tired to read the post today.  I hope you are all doing ok.....

    I had tx3 due today, went to hospital had my bloods waited 3 hours and then told my white blood cells were too low and I couldn't have chemo.  Big bummer.  I now have to go back next week and hope the blood sorts itself out.  I feel ok, but just abit fatigue

    Then I saw my oncologist and she ascertained I have lympodema in my back, they told me all about my arm.  Noone ever mentioned the back.  So I saw a speciality nurse who does massage and manages lypmodema, she has taped me all up.  Have to see her next week also

    So not good news........ 

  • Karen09
    Karen09 Member Posts: 320
    edited September 2009

    Hey ladies!  Sorry some of you aren't feeling very well.  Hugs to you all!

    I'm going for FEC treatment #3 tomorrow.  Joy.  Getting a few things ready today and trying to drink drink drink. 

    Today would have been my mom's 61st birthday.  She died of uterine cancer almost a year and a half ago so I am feeling a bit down and emotional today.  Just miss her so much and wish she was here and healthy. 

    Good luck to Kristin and anyone else going tomorrow for treatment.   

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