No chemo for me.

MomoB

Thanks, Nan and Sunris.  I'll check it out!

MsBliss

Hi Sunris!

Back at 'cha!

Good to see you too!

MsBliss

Nan,

Absolutely count on me to go to TNBC daily if I can....I learn so much at TNBC.

Hugs and more,

MsBliss

gardenbeetle

Returning to the original 'no chemo' topic, I found an interesting piece of research. It's main objective was to determine the minimum % benefits that patients need to find chemotherapy acceptable, and to explore potential preference determinants.

The most interesting thing for me was the finding that almost 40% of the participants undergoing chemotherapy said that they would have accepted chemotherapy even if it had NO clinical benefit, ie 0% benefit! Have to say this doesn't really surprise - I've seen many conversations on forums where a patient's oncologist has not recommended chemo, but the patient argues for it. 

You can download the full paper here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2363690/

 

margarita88683

Hi,

My name is rita i was diagnosed in April of this year . I have been doing alternative treatments i am triple negative too. Just found malignant lump under my armpit which is only 1/3 malignant having surgery monday the 16th to remove it. Right and Left breast ok through MRI but it said metastatic adenopathy for the armpit. I am stage 2, grade 3 what else are you doing as far as alternative medicine maybe i need more. I was looking into IPT chemo but very pricey with less side effects may need it now since it says metastatic not sure. seeing oncologist in 2 wks to see what he recommends i really only been following with a MD where i go for my IV's. I had 2 opinions back in april and they both said chemo but i chose not to do it. Now i am scared because of this lump hope i made right decision help.

ritapmc1@verizon.net

ER PR- Her - stage 2 grade 3

Titan

Hey Rita...it's sooo hard to make the "right" decision..you just never know and have to do what is right for YOU..however, please listen to your doctors..PLEASE!  I did dd chemo...and I'm OK..for now...there is no way I would not have done it..but that was my decision..only....

I don't know how old you are, or if you have any other health issues...but chemo was not that bad...wasn't fun..but definitely doable..maybe consider giving it a try....?

Hugs to you...everything is so darn scary....continue with the holiistic treatments too...

Let's us know..we are here for you..no matter what you choose...

MsBliss

What kind of IV's have you been getting?

MsBliss

As far as alternative med, what therapies have you been doing? 

Have you been doing any of the following:

curcumin  coq10  loxin 5  mega vitamin D  vitamin A  modified citrus pectin  avemar   coriolus

LDN indole 3 high plant/green/colorful foods  flax and fish oil

Titan

MsBliss..did chemo/rads..but still take the vitamins..Vitamin D 3...Vit. D., calcium, fish oil, drink green tea, eat lots of veggies, limit the meat   I like combining the foods./vitamins with the chemo/rads...I figure..the best of both worlds...at least I hope!

cookiegal

Hey I'm not a tripple neg, but I appreciate what all of you are saying. I always thought I would not do chemo given a choice, but now I am wavering. I wish all of you the very best of luck and health!!!

clicrowley

For the time being I decided no chemo only radiation. I believe this was the best decision for me and feel great about it.                                                                                                            I never believed cancer would strick me but it did, at 32. I excersiced 4-6 days a week, eat  healthy, and just make green choice for my family and home

 I  found my own lump, I was told the lump was likely a cyst because of my dense fibro cystic breast tissue, until pathology report came back. Now I tell everybody to check there breast and to follow there gut, doctors can be wrong.

JenXX

I'm glad I found this threat - it gives me hope.

I had a miserable response to my first TC, so the onco reduced the taxotere by 25%.  2nd and 3rd tx were okay, but the 4th one I had last week was worse than death.  I have bleeding sores, 1 week + of extreme nausea, I have blood clots, am anemic with low potassium, my chest port hurts, and it goes on and on.  I am worried also about the long term implications on my health from the chemo.  I have only 2 treatments left but think it might be best to just consider it "done" now - that 67% completion, which I think is enough.

I am interested in focusing on the healthy lifestyle protocols going forward, that people have mentioned in this thread.  I truly believe that me gaining 70 pounds led to a cycle of unhealthiness in my body in which cancer flourished.

worldwatcher

Hi dsgirl.

I'm new to the forum and happened across your earlier post regarding "I happened to have a reaction to the blue dye, lots of hive bumps at the injection site, over and over, they come and they go, even now 7 months later, ugh, Later I found out there is sulfa in the solution which I have an allergy to."

I just wanted to thank you for posting this. I have surgery scheduled for July 16, lump and SNB and have a severe sulfa allergy. This gives me a chance to alert all the medical team concerned with the SNB.  I have found that sulfa is a sneaky little bugger, hiding out in the compounding of quite a few drugs including diuretics.

I have pretty severe SE problems with just about everything especially sulfa and am  leaning towards no chemo, and leery of the rads and the Herceptin. Waiting until the post-lump path results come back to decide what if anything further to do.

I know that my allergy is probably in my records, but mistakes happen. This will enable me to pester everyone concerned with the dye about this situation.

Thanks for the warning.